Any moms with LO's here with SB? I posted in October after DS was born with a MM (We had no idea. All testing we had never showed any indication of him having SB). Since October, he has had the defect closure, an EVD, a VP Shunt and a wound washout, a wound exploration and today he is having a revision.
I'm just wondering if there is anyone else on this board. I lurk once in awhile, but never see any posts pertaining to SB
Thanks.
Re: Spina Bifida Moms
One of my triplets has SB. She is 4 years old. I'm sorry your son has to undergo a revision.
There is a very active SB board over at babycenter.
I'm so sorry your little one has had to go through so much and that you weren't able to be better prepared for it.
Peyton had a tethered cord and had spinal surgery in July. We are going to the spina bifida clinic this month as her cord has caused a lot of problems similar to that of which children with SB have. She has trouble walking, leg pain, and a lot of urology issues from it.
I may check out the board PP mentioned as well.
Good Luck!