Special Needs

confused

I received a letter stating that the Division of Developmental Disabilities was unable to determine if ds2 was eligible due to lack of developmental history. Ds is 3 months and has Down Syndrome. I am confused. At what point would he be considered as having at least one delay since intellectual ability or disability cannot be measured yet?

FWIW, at 14.5 weeks he does not have a responsive smile though he does smile in his sleep and at other random times. He also is unable to support his own head.

Baby Birthday Ticker Ticker

Image and video hosting by TinyPic

Re: confused

  • That strange. You can always call the number on the letter and ask for clarification. Request a meeting and ask lots of questions.
  • I'm sorry. In my state, that is one of the diagnoses covered from birth. I have no advice, but I think that is ridiculous.
    DD(13),SD(12),SS(11),SS(9),DS(3)

  • I wonder if this is just a paperwork glitch. Maybe a phone call to the proper person could help sort this out. If you do need to provide something to start services, a letter from his PCP should be enough.

    In many places certain dxs would automatically trigger EI eligibility. I know my great nephew was covered from birth because of methadone exposure.  

  • In our state, Lauren was covered by EI just because of her Down syndrome diagnosis. For private therapy she had to qualify developmentally. I would definitely call somebody!
    Lauren has Down syndrome and a complete AV canal heart defect
    Baby Birthday Ticker Ticker

    Baby Birthday Ticker Ticker

    image

    [url]WWW.MeetingLauren.blogspot.com[/url]
  • You should be able to appeal the decision.  Has he had any evaluations by ei yet?  Sometimes it is just a matter of submitting more paperwork.  

    Mommy to L (6), J (4) and S (March 2013)

  • image YellowLilies:
    You should be able to appeal the decision.  Has he had any evaluations by ei yet?  Sometimes it is just a matter of submitting more paperwork.  

    Yes, the local school district submitted a copy of his IFSP and MDT report to them and his pedi submitted his medical records as part of the application.

    We have 90 days from June 14th to request either an informal or a formal appeal.  So for now, I'm checking in with the ladies that run the local down syndrome support group to see what guidance I can get from them.

     

    Baby Birthday Ticker Ticker

    Image and video hosting by TinyPic

Sign In or Register to comment.
Choose Another Board
Search Boards