1st Trimester

Has anyone opted for the testing for Down's?

If so, was it worth it? My friend did it with her firat and it came back that her son had Down's Syndrome. He doesn't.

From what I've read on it, it's not very reliabe. Just curious about any experiences you all have had.

27 y/o - Dx with PCOS 7/10/13 - Started on Metformin 8/26/13.

BFP - 11/19/13      EDD - 7/18/14

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Re: Has anyone opted for the testing for Down's?

  • It was a standard procedure during my first Tri US. It was very simple, they just measured the thickness of the babies neck using the US equip and then a blood test. Anything is possible so I don't rely on that test. But since it was so simple and covered by my insurance I opted for it. 
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  • Perhaps her doctor didnt give her the odds. She told me they told her yes. She had to wait a week or so (and was very stressed out from it) and then later found out he didn't.

    I opted to not have it because my deductible is crazy. $4800.

    27 y/o - Dx with PCOS 7/10/13 - Started on Metformin 8/26/13.

    BFP - 11/19/13      EDD - 7/18/14

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    Bliss+Berry
  • I opted out both pregnancies...we didn't have any risk factors and didn't want the extra stress since it only gives you probability.
    J13 May Siggy Challenge: People lacking in common sense raise my blood pressure.
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    DD 8/11 | DS1 7/13 | DS2 7/13
  • I didn't have any of those screening tests. I would never get an abortion so DH and I wouldn't want it for that reason. I know some people get them to be prepared but I would rather not stress about something that is not necessarily true. If we have a child with special needs we will learn more then.
    It has nothing to do with whether or not you would abort. That's naive bordering on offensive.
    Actually out of all the people who have a high percentage of having a baby with down syndrome 90% abort the baby. It's a fact, I'm sorry you find it offensive. My sister has a baby with down syndrome so we get to find all the facts, the bad and the good.
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  • I didn't have any of those screening tests. I would never get an abortion so DH and I wouldn't want it for that reason. I know some people get them to be prepared but I would rather not stress about something that is not necessarily true. If we have a child with special needs we will learn more then.

    It has nothing to do with whether or not you would abort. That's naive bordering on offensive.

    Actually out of all the people who have a high percentage of having a baby with down syndrome 90% abort the baby. It's a fact, I'm sorry you find it offensive. My sister has a baby with down syndrome so we get to find all the facts, the bad and the good.


    It's offensive to say you'd never do the tests because you wouldn't have an abortion.

    Tons of women who don't want abortions do those tests, many of them because they want to make sure their baby has proper health care from birth.

    And some women learn that their baby is incompatible with life at the scan, so even if they planned on carrying to term, things change.


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    Ukulady
  • We will pay out if pocket for genetic testing and we will abort if there is a confirmed probelm. I work in the dev disabilities world and know that it is not the path we want to walk.


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    KSwen719StellaBlue28Songbird2lilfluke
  • All of you are saying that you would test not because you wouldn't abort but so you would be prepared. I also mentioned in my comment that reason. I didn't say just the abortion I just know that is one reason people find out. It's just if you get a high percentage (which there is a high chance of false positive) you have to get an amniocentesis which is very invasive and can cause a miscarriage, I know it's not a huge number. But I don't want to risk it. My sister and a good friend of mine both had down syndrome babies, both had heart issues, but none of them were offered in utero heart surgery. My niece, her heart fixed itself before they left the hospital, my friends daughter had surgery at 7 months old. My sister didn't know until after my niece was born that she had down syndrome because she didn't get the test either. And I've asked her if looking back she wished she had and she said no. Even if you know that your baby will have down syndrome there are different severities and there is no in utero test that will tell you that.

    It's quite obvious you have no idea what you are talking about. Quit while you're ahead.
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    chloephoebecaliimakeeff0rtsSmileyGirl18
  • Hubby and I are in are 40s and hubby has a nephew that has Downs.

    We decided to do the NT scan as well as the materni21 test.

    We wanted to know what are chance is. Even if our baby was Downs we would still have the baby.

    We just wanted to know so we could prepare. Baby's with Downs can have heart issues so we would want to make sure Dr know at delivery just in case.

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    RachelCA29
  • I am getting it done, I am not all that concerned and wouldn't ever choose to end the baby's life. My insurance covers it so I am getting it done. I am not really at risk for anything but am doing to find out.

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  • All of you are saying that you would test not because you wouldn't abort but so you would be prepared. I also mentioned in my comment that reason. I didn't say just the abortion I just know that is one reason people find out. It's just if you get a high percentage (which there is a high chance of false positive) you have to get an amniocentesis which is very invasive and can cause a miscarriage, I know it's not a huge number. But I don't want to risk it. My sister and a good friend of mine both had down syndrome babies, both had heart issues, but none of them were offered in utero heart surgery. My niece, her heart fixed itself before they left the hospital, my friends daughter had surgery at 7 months old. My sister didn't know until after my niece was born that she had down syndrome because she didn't get the test either. And I've asked her if looking back she wished she had and she said no. Even if you know that your baby will have down syndrome there are different severities and there is no in utero test that will tell you that.
    I totally get where you are coming from. Makes sense to me!

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    HalseytoBeLeskay
  • All of you are saying that you would test not because you wouldn't abort but so you would be prepared. I also mentioned in my comment that reason. I didn't say just the abortion I just know that is one reason people find out. It's just if you get a high percentage (which there is a high chance of false positive) you have to get an amniocentesis which is very invasive and can cause a miscarriage, I know it's not a huge number. But I don't want to risk it. My sister and a good friend of mine both had down syndrome babies, both had heart issues, but none of them were offered in utero heart surgery. My niece, her heart fixed itself before they left the hospital, my friends daughter had surgery at 7 months old. My sister didn't know until after my niece was born that she had down syndrome because she didn't get the test either. And I've asked her if looking back she wished she had and she said no. Even if you know that your baby will have down syndrome there are different severities and there is no in utero test that will tell you that.
    It's quite obvious you have no idea what you are talking about. Quit while you're ahead.
    I suppose you are the expert?

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    alieflynn1980
  • I get wanting to know to be prepared but no matter how much you prepare every case is different. I just personally feel it's not worth the stress of "what if".
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  • rockopera said:

    The tests are ARE NOT ONLY FOR DOWNS.

    There are fetal abnormalities that are far far worse. Abnormalities that are completely incompatible with life. And there are circumstances where not only fetal health, but maternal health, are very much in danger.

    The argument that "I wouldn't abort a baby with downs so there is no need for testing" is so incomplete and naive it is ridiculous.

    Exactly


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    savannah_girltinkerbell019crystaljoanna
  • @redheadbaker it's not stupid or naive to say that you would never abort, because I can say 100% I will never abort my baby. It doesn't matter what is wrong. I was saying no "what ifs" is not knowing until the baby is born how severe the disability is. There is nothing wrong with me not wanting to have those tests because I don't want the stress and it won't make a difference if I want the baby of not. It's my opinion, and that's what the op was asking. My midwife office only offers amnio if the testing comes back abnormal so that would be the only choice for me.
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    alieflynn1980
  • I didn't have any of those screening tests. I would never get an abortion so DH and I wouldn't want it for that reason. I know some people get them to be prepared but I would rather not stress about something that is not necessarily true. If we have a child with special needs we will learn more then.
    It has nothing to do with whether or not you would abort. That's naive bordering on offensive.
    It's the exact same reason we had none of those tests done with our first.  The Doctors told us flat out there was nothing that could be done if we were positive for anything before we had the baby.  While I suppose some people may do it to be prepared, there was zero chance we would have an abortion so we felt it was a complete waste of time and money as well.  If we weren't willing to end the pregnancy if something was positive we saw no reason to do the tests.  I find very little offensive or naive about it; it's just practical for some of us.
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  • Quite simply, no.  We save as much as possible before the baby gets here anyway, if the baby needs surgery he or she will have surgery, and if it would kill me to have said baby I would still have the baby.
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  • We opted out for several reasons. We didn't make that decision lightly though. It was with much discussion and time. We decided not to and happy in our decision


  • We will do as much testing as insurance allows. I am not high risk (AFAIK), but I believe in having as much information as possible. My coworker just had a daughter with cystic fibrosis...I take nothing for granted.
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