1st Trimester

Has anyone opted for the testing for Down's?

If so, was it worth it? My friend did it with her firat and it came back that her son had Down's Syndrome. He doesn't.

From what I've read on it, it's not very reliabe. Just curious about any experiences you all have had.

27 y/o - Dx with PCOS 7/10/13 - Started on Metformin 8/26/13.

BFP - 11/19/13      EDD - 7/18/14

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Re: Has anyone opted for the testing for Down's?

  • Perhaps her doctor didnt give her the odds. She told me they told her yes. She had to wait a week or so (and was very stressed out from it) and then later found out he didn't.

    I opted to not have it because my deductible is crazy. $4800.

    27 y/o - Dx with PCOS 7/10/13 - Started on Metformin 8/26/13.

    BFP - 11/19/13      EDD - 7/18/14

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    Bliss+Berry
  • I opted out both pregnancies...we didn't have any risk factors and didn't want the extra stress since it only gives you probability.
    J13 May Siggy Challenge: People lacking in common sense raise my blood pressure.
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    DD 8/11 | DS1 7/13 | DS2 7/13
  • I didn't have any of those screening tests. I would never get an abortion so DH and I wouldn't want it for that reason. I know some people get them to be prepared but I would rather not stress about something that is not necessarily true. If we have a child with special needs we will learn more then.
    It has nothing to do with whether or not you would abort. That's naive bordering on offensive.
    Actually out of all the people who have a high percentage of having a baby with down syndrome 90% abort the baby. It's a fact, I'm sorry you find it offensive. My sister has a baby with down syndrome so we get to find all the facts, the bad and the good.
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  • I didn't have any of those screening tests. I would never get an abortion so DH and I wouldn't want it for that reason. I know some people get them to be prepared but I would rather not stress about something that is not necessarily true. If we have a child with special needs we will learn more then.

    It has nothing to do with whether or not you would abort. That's naive bordering on offensive.

    Actually out of all the people who have a high percentage of having a baby with down syndrome 90% abort the baby. It's a fact, I'm sorry you find it offensive. My sister has a baby with down syndrome so we get to find all the facts, the bad and the good.


    It's offensive to say you'd never do the tests because you wouldn't have an abortion.

    Tons of women who don't want abortions do those tests, many of them because they want to make sure their baby has proper health care from birth.

    And some women learn that their baby is incompatible with life at the scan, so even if they planned on carrying to term, things change.


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    Ukulady
  • Hubby and I are in are 40s and hubby has a nephew that has Downs.

    We decided to do the NT scan as well as the materni21 test.

    We wanted to know what are chance is. Even if our baby was Downs we would still have the baby.

    We just wanted to know so we could prepare. Baby's with Downs can have heart issues so we would want to make sure Dr know at delivery just in case.

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    Me (40) DH (42).......Married 7/1/11......TTC 12/2013.......BFP #1 12/30/12........EDD 9/8/13
    Spotting,clot 2/15/13 all ok......2/21/13 no heartbeat 11 w 4 d missed miscarriage........2/22/13 DnC :(
    BFP # 2 10.10.13...........EDD 6.19.14



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    RachelCA29
  • I am getting it done, I am not all that concerned and wouldn't ever choose to end the baby's life. My insurance covers it so I am getting it done. I am not really at risk for anything but am doing to find out.

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  • All of you are saying that you would test not because you wouldn't abort but so you would be prepared. I also mentioned in my comment that reason. I didn't say just the abortion I just know that is one reason people find out. It's just if you get a high percentage (which there is a high chance of false positive) you have to get an amniocentesis which is very invasive and can cause a miscarriage, I know it's not a huge number. But I don't want to risk it. My sister and a good friend of mine both had down syndrome babies, both had heart issues, but none of them were offered in utero heart surgery. My niece, her heart fixed itself before they left the hospital, my friends daughter had surgery at 7 months old. My sister didn't know until after my niece was born that she had down syndrome because she didn't get the test either. And I've asked her if looking back she wished she had and she said no. Even if you know that your baby will have down syndrome there are different severities and there is no in utero test that will tell you that.
    I totally get where you are coming from. Makes sense to me!

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    HalseytoBe[Deleted User]
  • All of you are saying that you would test not because you wouldn't abort but so you would be prepared. I also mentioned in my comment that reason. I didn't say just the abortion I just know that is one reason people find out. It's just if you get a high percentage (which there is a high chance of false positive) you have to get an amniocentesis which is very invasive and can cause a miscarriage, I know it's not a huge number. But I don't want to risk it. My sister and a good friend of mine both had down syndrome babies, both had heart issues, but none of them were offered in utero heart surgery. My niece, her heart fixed itself before they left the hospital, my friends daughter had surgery at 7 months old. My sister didn't know until after my niece was born that she had down syndrome because she didn't get the test either. And I've asked her if looking back she wished she had and she said no. Even if you know that your baby will have down syndrome there are different severities and there is no in utero test that will tell you that.
    It's quite obvious you have no idea what you are talking about. Quit while you're ahead.
    I suppose you are the expert?

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    alieflynn1980
  • I get wanting to know to be prepared but no matter how much you prepare every case is different. I just personally feel it's not worth the stress of "what if".
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  • rockopera said:

    The tests are ARE NOT ONLY FOR DOWNS.

    There are fetal abnormalities that are far far worse. Abnormalities that are completely incompatible with life. And there are circumstances where not only fetal health, but maternal health, are very much in danger.

    The argument that "I wouldn't abort a baby with downs so there is no need for testing" is so incomplete and naive it is ridiculous.

    Exactly


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    [Deleted User]tinkerbell019crystaljoanna
  • @redheadbaker it's not stupid or naive to say that you would never abort, because I can say 100% I will never abort my baby. It doesn't matter what is wrong. I was saying no "what ifs" is not knowing until the baby is born how severe the disability is. There is nothing wrong with me not wanting to have those tests because I don't want the stress and it won't make a difference if I want the baby of not. It's my opinion, and that's what the op was asking. My midwife office only offers amnio if the testing comes back abnormal so that would be the only choice for me.
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    alieflynn1980
  • I didn't have any of those screening tests. I would never get an abortion so DH and I wouldn't want it for that reason. I know some people get them to be prepared but I would rather not stress about something that is not necessarily true. If we have a child with special needs we will learn more then.
    It has nothing to do with whether or not you would abort. That's naive bordering on offensive.
    It's the exact same reason we had none of those tests done with our first.  The Doctors told us flat out there was nothing that could be done if we were positive for anything before we had the baby.  While I suppose some people may do it to be prepared, there was zero chance we would have an abortion so we felt it was a complete waste of time and money as well.  If we weren't willing to end the pregnancy if something was positive we saw no reason to do the tests.  I find very little offensive or naive about it; it's just practical for some of us.
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  • Quite simply, no.  We save as much as possible before the baby gets here anyway, if the baby needs surgery he or she will have surgery, and if it would kill me to have said baby I would still have the baby.
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  • We opted out for several reasons. We didn't make that decision lightly though. It was with much discussion and time. We decided not to and happy in our decision


  • We will do as much testing as insurance allows. I am not high risk (AFAIK), but I believe in having as much information as possible. My coworker just had a daughter with cystic fibrosis...I take nothing for granted.
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  • I agree that saying you won't have the tests because you'll never terminate is both offensive and naive. It's not a Downs test. Downs is not as serious as some of the other mutations and abnormalities that are tested with 1st tri screenings. Many are incompatible with life and/or fatal to the mother and the baby. So you have no fvcking clue what you're talking about.

    OP: I had a quad screen and an NT scan with both pregnancies. Both came back with a low risk, thankfully, but to me knowledge is power. Had we had a high risk, we would have pursued a CVS or amnio to get answers and gone from there.
    "Hello, babies. Welcome to Earth. It's hot in the summer and cold in the winter. It's round and wet and crowded. At the outside, babies, you've got about a hundred years here. There's only one rule that I know of, babies. God damn it, you've got to be kind." - Kurt Vonnegut
    Bliss+BerryPrimRoseMama[Deleted User]tinkerbell019EPatter13Luckyu317[Deleted User]
  • I would have given it more thought had my deductible not be as high as it is (my fault...) I'm already dreading what they will charge me at my next visit. I still have time as well to do it. I will talk to my OB when I go in on the 3rd. I trust her opinion.

    27 y/o - Dx with PCOS 7/10/13 - Started on Metformin 8/26/13.

    BFP - 11/19/13      EDD - 7/18/14

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  • We never did the screening with DS. My OB actually said "if I were one of your closest friends, I would tell you not to get it because it is just added stress". He said this because the screening gives you false probabilities. My cousin had this problem. She was given high numbers from her screening, then was sent for an amnio test a week later. She stressed that entire week over the possibilities, as well as the risk. In the end, her son was negative and was born without any complications. I didn't want the added stress. We would accept what comes as it happens. To each their own on why they do not or do want the testing. It's perfectly personal. We will not do testing this time around either.
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  • My mother is an OB. She and I discussed this right away. She recommended getting the screen simply because should it reveal that the baby has a neural tube defect, then the delivery could be handled with the special care that it may need. We also discussed the worry that the ratios and false positives can bring, but to me knowledge is power and I would rather be prepared.
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    [Deleted User][Deleted User]
  • These screenings/tests have the ability to detect issues far worse than Downs. My first pregnancy, the first tri screening showed NT measurement was thickened, doc recommended we have further testing, as it may have been heart defect, etc. - non-invasive/blood work came back normal. We opted for the CVS, as mom knows best, still had a feeling something was not right. Unfortunately, we were given a diagnosis of Triploidy Syndrome (XXX, 69) a lethal condition - a third set of chromosomes can not be detected by the bloodtests. Lost our angel at 13 w & the pregnancy was determined to be Partial Molar (which is a risk to mom). I am very glad to have gone with instinct and had the further testing. Currently, we are 5 weeks into our next pregnancy and will be opting for screening/testing as we see fit.
    jenniferurs[Deleted User]RachelCA29

  • There's a poster on feb 14 who found out that her baby had an issue incompatible with life at the screening. And that there was a life-threatening complication to HER. So, for those who'd die to deliver your baby... Does that "never ever abort" apply if baby is terminal as well as mom? Or if the condition will end the mom's life before the baby reaches viability? There's zero reason to "die for your baby" if you're going to die before baby can survive outside of your womb, or when baby will never be able to live. Again, it's naive to say you'd never abort.
    Murder is murder, in my book.  If the baby will die on being born then that's how it will happen, not at my own hand.  Be offended if you like, it doesn't really matter to me.
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