High-Risk Pregnancy
ruby0902
member
Antiphospholipid Syndrome or Thyroid Peroxidase Antibodies?
ruby0902
member
Hey all - I've been ghosting this board for the past month or so and am hoping for some input/experience!
I had two miscarriages in a row (last one in June) with no live children, and I was fortunate enough to have an OB who agreed to pursue recurrent pregnancy loss testing. Since then, I've tested positive for lupus anticoagulant syndrome, antiphospholipid syndrome (cardiolipin ab was high), as well as a very high reading on my thyroid peroxidase antibodies. Further thyroid testing also shows high TSH (almost 5.0) but normal T3 and T4 for now. Hashimoto's runs in my family.
It was good that I was able to find some things out with the testing, but now it seems I have some pretty serious autoimmune disorders to get under control before ttc again. I was just wondering if anyone has been diagnosed with any of these and gone on to have healthy babies?
I'm assuming I'm going to be high risk next time I get pregnant and since I'm at the beginning of this new journey, would love to hear what anyone with a similar situation learned or what types of treatment/lifestyle changes were made to support a healthy pregnancy with these conditions? Keeping fx that 3rd time will be the charm! Thanks for your input.
I had two miscarriages in a row (last one in June) with no live children, and I was fortunate enough to have an OB who agreed to pursue recurrent pregnancy loss testing. Since then, I've tested positive for lupus anticoagulant syndrome, antiphospholipid syndrome (cardiolipin ab was high), as well as a very high reading on my thyroid peroxidase antibodies. Further thyroid testing also shows high TSH (almost 5.0) but normal T3 and T4 for now. Hashimoto's runs in my family.
It was good that I was able to find some things out with the testing, but now it seems I have some pretty serious autoimmune disorders to get under control before ttc again. I was just wondering if anyone has been diagnosed with any of these and gone on to have healthy babies?
I'm assuming I'm going to be high risk next time I get pregnant and since I'm at the beginning of this new journey, would love to hear what anyone with a similar situation learned or what types of treatment/lifestyle changes were made to support a healthy pregnancy with these conditions? Keeping fx that 3rd time will be the charm! Thanks for your input.
Re: Antiphospholipid Syndrome or Thyroid Peroxidase Antibodies?
of course I am having a different experience as I’ve never been pregnant or had a miscarriage before. Definitely talk to doctors and autoimmune specialists before getting pregnant again to set yourself up well.
im so sorry for your experience and then to find out all of this. I hope for a healthy baby in your future
Congrats on your first pregnancy!! So happy and excited for you and I hope everything continues to go smoothly 😁❤ best of luck in your 3rd trimester!
Currently I'm 22 weeks pregnant with my 2nd child. I am on lovenox daily since 6 weeks and will continue until approximately 6 weeks post delivery. I take a baby aspirin daily as well. I am also on blood pressure medication and take my pressure daily... Sometimes more than that. I'm seen monthly by an MFM (with an u/s) and monthly by an OB, so roughly every 2 weeks. After I get to 24w it might be more frequent. After I get to 28w I'll see the mfn every 2 weeks. Then at 32 weeks, I'll see someone weekly. At 34w possibly 2x/week. That plan may change as I go depending on how things are looking. But for now that's the plan.
My next appointment is on the 20th for my 24w u/s.
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My husband and I are getting ready to start ttc in again in Dec, and I'm feeling optimistic! Through the battery of testing I completed this summer after MC#2, I tested positive for both lupus anticoagulant antibodies, as well the antibodies for Hashimotos and a slightly elevated TSH of 3.0. I started at the beginning of November on 50mcg/day of synthroid to bring my TSH levels down and have also been instructed to start daily baby aspirin and lovenox shots as soon as I get my first positive pregnancy test. So fingers crossed for try #3!
How did you decide on your treatment plan for your HRP? Did you decide on your own to seek out the MFM or did your OB suggest it? What kind of intervention or adjustments can they provide if something seems off?
I feel like I need to cross the first bridge of just getting pregnant again, but with some of my issues identified, I'm also interested in being as proactive as possible to maintain a healthy pregnancy. I know a lot is out of my control, but we're going to keep fighting 🙂
Then when I wanted to meet with her, they said I needed to be a patient in their practice so I switched.
In terms of interventions they can do... I'm not entirely sure about everything. I know they can up my bp meds, put me on a bed rest situation to reduce stress, watch me more closely, start magnesium, etc. She is looking at things they didn't look at before. For example, she showed me my placenta last time at the U/S and said that if they start to see black spots in it, it could be a sign of preeclampsia. As of last u/s there were no spots. They'll monitor my urine for protein as well.
It took us a really long time to be ready, so don't worry about that. When we met with the MFM, she gave us percentages and risks. With that information we needed to decide if the risks outweighed the reward or vice versa. I felt comfortable that I was going to be ok (hubby was worried about losing me too) since I'd be highly monitored. I felt like I wouldn't be... I don't know that the right word would be... But fulfilled?... If I didn't at least try even knowing we could end up in the same boat or worse. For me, the reward outweighed the risks.
I'm crossing my fingers for you and hoping you get everything you want and need! ❤️
My MARRIED Bio