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IF Testing & Treatment w/o 9.2

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Re: IF Testing & Treatment w/o 9.2

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    @shoogapoff that's a hard choice but I think you did the right thing. Save a little money and hopefully the lining will thicken up if you need to do another cycle. I'm sure it was hard but try not to beat yourself up about it! 
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    @shoogapoff did they say what thickness your lining was at? Different RE’s have different desires so it might be low at your place but fine at another. Hopefully the estrogen helps boost it up though! I think you made a good choice that compromised moving forward but saving some money.
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    @shoogapoof That sounds like a good compromise. And hopefully the extra time you have to know about & treat the thin lining next cycle is just what you need. But FX you don’t need to think about it because hopefully TI will be enough! 
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    @mokay19 It was 5...I think that's pretty thin, right? Thanks for the encouragement!

    @keikilove @jennifer_louise Thanks for the pep talk, ladies!
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    @shoogapoff I'm sorry you didn't get the best results at your scan. I think you made the decision that was best for you and your DH. That's what matters most. 💚
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    edited September 2019
    @NYTino24. I remember last time my saline messing with O, yes.  My normally perfect digital opks never peaked?  If I remember correctly.... Fx they are able to see everything when you go in and don't miss it!

    @nitnat007. Happy Birthday, dear friend! 🎉 How did your day turn out?

    @hanshotfirst77 So grateful for your excellent results!!!!

    @shoogapoff. I'm sorry they effectively cancelled your iui.  Glad you were able to make a quick decision tho to make the most of it (((hugs)))

    Thanks, friends ❤️❤️❤️ Trying to be patient, but hopefully our time will be soon...

    @mokay19. Good for you calling and advocating for yourself!!! 👏👏👏 The loan part sucks, but at least you're able to find a way.  Sometimes we have to get creative to make things happen!  Still lucky and blessed to have the opportunity for treatment, kwim? (((Hugs))). AFM, we got a second opinion from another Ob last cycle (they found a way to squeeze me in sooner than Sept 16th when I hand delivered my chart 🤷) who seems to have a very different opinion from my original Ob.  So it's tough to say yet - potentially could involve switching Ob practices / hospitals.  Crazy as that sounds / feels.  But of course, still totally normal if a person feels that's where they will get the care that feels right for them! Right???  So we'll see what happens...

    ETA @keikilove. So hopeful the intralipids are your golden ticket!!! (((Hugs))) how long to you have to be on them prior to transfer?
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    @shoogapoff yes, 5 is a little thin... and like NYTino said, I don't know the rate that it thickens so hopefully you can get up closer to the 7 before attempted implantation and it'll be just fine :)

    @NYTino24 my salines have never messed with my O day... but I O later anyway so the salines have been about 2 weeks before O.

    @BusinessWife I totally feel lucky to even be able to do a loan.  It's not ideal (obviously, no debt is) but to have that option is better than nothing!  I always hate the thought of changing doctors, but I totally agree that if you're going to receive good care that is more in line with your thoughts and desires then you should go for it!  It's a temporary hassle/annoyance to hopefully ease a lot of future stress and annoyance.
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    @shoogapoff I agree with the others 5 does sound a bit thin. I think my RE says he wants it at least a 7. Hopefully the estrogen does the trick! Fx!

    @NYTino24 I don't think the saline sono ever messed with my O but like @mokay19 I typically O late anyways so I don't think it was an issue. I hope you get some answers at your RE appt.

    @BusinessWife I'm so glad you got that second opinion and it meshes so much better with your ideal timing. Switching docs is a hassle but it may be a hassle worth doing in the end. But I am sure either way you guys will make a decision that is right for you. <3

    TTC#1 - March 2013

    BFP 8/9/13 - EDD 4/14/14 - DS born 4/23/14

    TTC#2 November 2015

    Dx: Secondary IF June 2016

    Medicated IUI cycle#1- Clomid+IUI -1/15/17 -BFN

    Break Mid 2017 - Resumed TTC December 2018

    "She believed she could so she did..."

    Medicated IUI cycle#2- Femara 5mg+IUI 12/22/18 - BFP 1/4/19 - MMC 2/1/19

    Saline Sono 3/15/19 - All Clear!

    Medicated IUI cycle#3- Femara 7.5mg+IUI 3/28/19-BFN

    Medicated IUI cycle#4- Femara 5mg+Gonal F 50iu+IUI 4/27/19- BFP 5/11/19 - MMC 6/12/19 - D&C 6/14/19-

    Incomplete M/C Repeat D&C - 7/3/19 -Testing concluded baby was genetically normal  :'(

    Dx: Unexplained RPL July 2019 - Tested + as carrier for Usher Syndrome & Familial Mediterranean Fever 

    Saline Sono 8/7/19 - Mostly Clear! All systems go for IVF#1 

    But will need a repeat Saline Sono between ER and FET

    IVF #1 - Antagonist Protocol - 8/17/19

    ER#1 8/27/19 - 12R, 6F, 4 biopsied+frozen! (3d5blasts + 1d6blast)- 2 PGS normal embabies!

    Saline Sono 9/13/19 - All Clear! Onto FET Prep#1

    FET#1 - 4AA -10/4/19 - BFP 10/14/19 - EDD - 6/21/20 -Beta#1-10dp5dt- 379 Beta#2-12dp5dt- 1007 Beta#3-14dp5dt- 2844

    DD born 6/15/20  <3

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    Thank you for all the lovely birthday wishes ladies. So much love to you all!  <3

    @kpearse99 Thanks girl. I know it is a struggle that most of us face. I remember the days when I would laugh when my mother joked about artificially inseminating me if I had not given her grand kids by 30. Oh how that feels like such a long time ago. To be that naive again. 
    @hanshotfirst77 So thrilled on that great report! FX!
    @NYTino24 Sorry that you have had a rough few days. You are getting things done and moving forward. I hope that all your results come back and give you some answers or a plan to move forward. 
    @mokay19 I am excited for you! And still hoping that you will be a unicorn though. That would be amazing!
    @splashmountain Good luck on that repeat!
    @keikilove Glad that you had a bit of a break, even if it was not a planned one. A good reset is good for our hearts and brains too. not just electronics!  ;)  You are so right about age these days. I know it isn't everything, but I just can't help it popping into the brain though. 
    @b_1029 That is so tough when you are trying to avoid something and it just keeps following you are around everywhere. It is always the way though. We are here for the vent session though. And know that you are not alone.  <3
    @shoogapoff For what its worth, I think you made the right call. Seeing how your body responds to estrogen etc is also good info for the future. 
    @BusinessWife Thank you friend! The day itself was good. DH and I went out to an oyster bar for dinner, dessert bar followed by a drag show that one of friends was involved in. It was a nice evening. Cake helps! So good to see you here.  :)
    @inthewoods23 Haha I had a few med panics when I cycled too. Calendars and reminders help. I also set up an alarm on my phone for anything that wasn't once a day. 
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    @inthewoods23 I'm so glad you didn't really mess up your PIO. What a relief. When I was doing stims this was one of my biggest fears that I was going to royally screw them up. I had printed out my clinics how to instructions and kept them by all my meds and literally the one day I thought to myself oh I got this and didnt follow it line by line I messed up one of the shots and forgot to expel all the air before injecting and of course then pulled it out and liquid went everywhere and que my panic and calling the on call nurse freaking out. lol I can laugh about it now and of course it all turned out fine, but that night I was so worried. 

    I actually wanted to ask you or anyone who has done an egg retrieval how soon did you get AF after retrieval? Is it supposed to be 2 weeks from retrieval or 2 weeks from trigger? 

    TTC#1 - March 2013

    BFP 8/9/13 - EDD 4/14/14 - DS born 4/23/14

    TTC#2 November 2015

    Dx: Secondary IF June 2016

    Medicated IUI cycle#1- Clomid+IUI -1/15/17 -BFN

    Break Mid 2017 - Resumed TTC December 2018

    "She believed she could so she did..."

    Medicated IUI cycle#2- Femara 5mg+IUI 12/22/18 - BFP 1/4/19 - MMC 2/1/19

    Saline Sono 3/15/19 - All Clear!

    Medicated IUI cycle#3- Femara 7.5mg+IUI 3/28/19-BFN

    Medicated IUI cycle#4- Femara 5mg+Gonal F 50iu+IUI 4/27/19- BFP 5/11/19 - MMC 6/12/19 - D&C 6/14/19-

    Incomplete M/C Repeat D&C - 7/3/19 -Testing concluded baby was genetically normal  :'(

    Dx: Unexplained RPL July 2019 - Tested + as carrier for Usher Syndrome & Familial Mediterranean Fever 

    Saline Sono 8/7/19 - Mostly Clear! All systems go for IVF#1 

    But will need a repeat Saline Sono between ER and FET

    IVF #1 - Antagonist Protocol - 8/17/19

    ER#1 8/27/19 - 12R, 6F, 4 biopsied+frozen! (3d5blasts + 1d6blast)- 2 PGS normal embabies!

    Saline Sono 9/13/19 - All Clear! Onto FET Prep#1

    FET#1 - 4AA -10/4/19 - BFP 10/14/19 - EDD - 6/21/20 -Beta#1-10dp5dt- 379 Beta#2-12dp5dt- 1007 Beta#3-14dp5dt- 2844

    DD born 6/15/20  <3

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    @hanshotfirst77 haha yeah I had a freak out the first time I removed the needle from the bottle of Lupron. A few tiny drops went all over and I was like OMG MY PRECIOUS LUPRON. Turns out I was only going to be using half the bottle for the cycle, so no big deal but I did not know that at the time lol.

    AF came for me about 10 days after retrieval but it will differ from person to person. Someone else in the June IVF board got theirs only 4 days later!

    My PGS results came much quicker too - came in about 4 days (ER on Tuesday, results on Saturday).
    *TW* History:
    Me: 34 DH: 36 | Together since 2007 | Married July 2016

    TTC #1 since 7.2017
    Dx: low morph (1%), ANA positive, low decidualization score, high TSH and testosterone, histone antibodies

    IUI #1-3 all BFN
    IVF #1 | 6.11.19 | 24R, 17M, 15F, 6B, PGT-A tested - 5 normal, 3 girls & 2 boys
    FET #1 | 9.10.19 | BFN "I know you, but we've never met. I'm with you, but I don't know your name"
    RPL, Receptiva, & ERA testing | all normal/negative, recommended going on gluten and dairy free diet for next FET
    FET #2 | 3.31.20 | Opted to cancelled due to pandemic, continued diet and tried naturally over the summer
    2nd Opinion with another RE | 8.20.20 | Not immune to measles (received 1 dose); SA results similar to 2 years ago; decided to move forward with FET #2 redo at start of next cycle
    Surprise natural BFP! | 9.22.20 | MC 10.23.20 at 8 weeks
    TTCAL naturally | starting 11.22.20

    Initial consultation with Reproductive Immunologist | 9.14.21
    Decidualization score biopsy | 10.1.21 | abnormal - low score of 1; endometrial scratch recommended and progesterone supplementation
    Saline sono | 10.15.21 | normal
    Bloodwork | 10.21.21 high TSH, high testosterone, positive for anti-nuclear antibodies and histone antibodies, high protein S, multiple genetic mutations
    BFP! | 11.3.21 | EDD 7.14.22 B) | biopsy provided same effect as endometrial scratch; added supplemental progesterone and estrogen, prednisone, levothyroxine, and MTX Support to maintain pregnancy
    DS born 7.19.22 after induction


    TTC #2 begins 6.2023
    Consultation with RI | 6.6.23
    Saline sono, endometritis biopsy, skin & eye check | all normal
    Labs | high TSH, Factor XIII mutation, high %CD56
    Follow up | 8.8.23 | prescribed metformin, prednisone, plaquenil, and levothyroxine
    Repeat labs after 3 weeks on meds
    Follow up | 11.9.23 | Green light!, increase in prednisone, added lovenox
    Repeat labs in 8 weeks
    Follow up | 1.16.24 | Green light continues
    TTC put on pause
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    @inthewoods23 oh wow that's awesome you got your PGS results so fast. I'm 10 days post ER now, I'm not sure how my PGS will go though. My embryos are 5+6 day's but that happened over labor day weekend and I didnt find out about them until day 7. So im not sure did the testing get sent on days 5+6 or day7? They told me to expect up to 2 weeks wait. So I guess I have another week or so to go for them.

    TTC#1 - March 2013

    BFP 8/9/13 - EDD 4/14/14 - DS born 4/23/14

    TTC#2 November 2015

    Dx: Secondary IF June 2016

    Medicated IUI cycle#1- Clomid+IUI -1/15/17 -BFN

    Break Mid 2017 - Resumed TTC December 2018

    "She believed she could so she did..."

    Medicated IUI cycle#2- Femara 5mg+IUI 12/22/18 - BFP 1/4/19 - MMC 2/1/19

    Saline Sono 3/15/19 - All Clear!

    Medicated IUI cycle#3- Femara 7.5mg+IUI 3/28/19-BFN

    Medicated IUI cycle#4- Femara 5mg+Gonal F 50iu+IUI 4/27/19- BFP 5/11/19 - MMC 6/12/19 - D&C 6/14/19-

    Incomplete M/C Repeat D&C - 7/3/19 -Testing concluded baby was genetically normal  :'(

    Dx: Unexplained RPL July 2019 - Tested + as carrier for Usher Syndrome & Familial Mediterranean Fever 

    Saline Sono 8/7/19 - Mostly Clear! All systems go for IVF#1 

    But will need a repeat Saline Sono between ER and FET

    IVF #1 - Antagonist Protocol - 8/17/19

    ER#1 8/27/19 - 12R, 6F, 4 biopsied+frozen! (3d5blasts + 1d6blast)- 2 PGS normal embabies!

    Saline Sono 9/13/19 - All Clear! Onto FET Prep#1

    FET#1 - 4AA -10/4/19 - BFP 10/14/19 - EDD - 6/21/20 -Beta#1-10dp5dt- 379 Beta#2-12dp5dt- 1007 Beta#3-14dp5dt- 2844

    DD born 6/15/20  <3

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    @NYTino24 I never thought of the sono messing with O but now that I think of it - I had mine in June and then the next 3 cycles (including this one) had be 10 days longer than my typical 30 day cycles... so now I'm curious as well!

    @shoogapoff I was in a similar situation with the thin lining this cycle when we were supposed to do the IUI.  I was also on a very low dose, the lowest you can go, of the letrozole though. My lining didn't get up to the thinkness they wanted until CD 18 but that was also when my follies were "shrinking".  They never mentioned anything about taking estrogen to me though... so I think I might ask if we should try that next cycle in addition to upping the letrozole to 7.5.  Anyway - I know it's super disappointing to be so ready for an IUI cycle and then for it not to go the way you wanted, planned or expected. You're not alone, at all. I think you made the right call to go with the plan you opted for.  Chalk this cycle up to a learning experience where you and your RE had the chance to collect important data and form a more solid plan for next cycle. <3<3
    Our TTC Journey
    TTC #1: May 2011
    BFP: 10/27/2011 |  EDD: 6/30/12
    DS born 6/28/12 via C/S 3 

    TTC #2: September 2018
    Me: 36 | DH: 39
    Mirena removed 9/13/2018 after 6 years
    BFP 11/11/2018 | MC @ 5.5 weeks on Thanksgiving
    July 2019 - Diagnosed with Secondary Unexplained IF
    August 2019 - 2.5 mg of Letrozole = Never Ovulated so Trigger and IUI were cancelled
    9/30/2019 - IUI #1 (5 mg of Letrozole + Trigger) =  BFP but Betas showed CP @ 4 weeks
    10/28/2019 - IUI #2 (7.5mg of Letrozole + Trigger) = BFN
    11/25/2019 - IUI #3 (7.5mg of Letrozole, Trigger + Crinone after IUI) = BFN
    12/24/2019 - IUI #4 (7.5mg of Letrozole + Crinone after IUI) = BFN
    1/24/2020 - IUI #5 (50mg of Clomid + Trigger + Crinone after IUI) = BFN and an Ovarian Cyst
    3/2/2020 - Taking a break to reset/NTNP
    11/1/2020 - At peace with where things are in life and are no long actively TTC. Whatever happens will happen and it will all be okay. <3

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    @kpearse99 Thanks. It helps to know others can relate. I'm sad, and struggling with the change in plan. But I also recognize that we are still in the diagnostic phase, and they're putting pieces of the puzzle together. So, if a thin lining is an issue I have that we didn't know about, now we know. And hopefully we can address it. I'll let you know if the estrogen seems to help me!
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    @keikilove I'm sorry your insurance won't approve IVF. It feels really unfair that RPL would be held against you in this already difficult journey. FX that your intralipids do the trick!
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    keikilovekeikilove member
    edited September 2019
    @NYTino24 I somehow missed you my first time around with tags. I’m sorry it was a tough few days earlier in the week. Hugs to you. It sounds like today was really busy with YH’s tests. Hoping those results are reassuring.🤞🏽 And wishing you the best at your RE appointment next week. It’s always so exciting to see how many follies etc. Just thinking of you & hoping you get some answers soon.♥️

    @mokay19 Just wanted to say that I loved your question about Does anyone have a cool $20K they’re itching to get rid of? Seriously, wouldn’t it be amazing if we could each pay it forward to the next person by paying for their treatments once we got our own miracle? Hey, Girls can dream...
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    @keikilove that's horrible that your insurance won't cover IVF. I am furious for you. What the hell? Their reasoning seems like a slap in the face, too. :( 

    @NYTino24 I hope you were able to get some answers at your RE appointment. 
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    @keikilove you’re not alone with the insurance issue. They cover my IUI’s fully but they won’t cover IVF (not that it’s even a path we would be doing but still... it be nice if it were covered if we changed our mind). You’re so level headed about everything though... and have certainly done extensive research. I hope your new insurance is better covered but i really hope you don’t need it!!!
    Our TTC Journey
    TTC #1: May 2011
    BFP: 10/27/2011 |  EDD: 6/30/12
    DS born 6/28/12 via C/S 3 

    TTC #2: September 2018
    Me: 36 | DH: 39
    Mirena removed 9/13/2018 after 6 years
    BFP 11/11/2018 | MC @ 5.5 weeks on Thanksgiving
    July 2019 - Diagnosed with Secondary Unexplained IF
    August 2019 - 2.5 mg of Letrozole = Never Ovulated so Trigger and IUI were cancelled
    9/30/2019 - IUI #1 (5 mg of Letrozole + Trigger) =  BFP but Betas showed CP @ 4 weeks
    10/28/2019 - IUI #2 (7.5mg of Letrozole + Trigger) = BFN
    11/25/2019 - IUI #3 (7.5mg of Letrozole, Trigger + Crinone after IUI) = BFN
    12/24/2019 - IUI #4 (7.5mg of Letrozole + Crinone after IUI) = BFN
    1/24/2020 - IUI #5 (50mg of Clomid + Trigger + Crinone after IUI) = BFN and an Ovarian Cyst
    3/2/2020 - Taking a break to reset/NTNP
    11/1/2020 - At peace with where things are in life and are no long actively TTC. Whatever happens will happen and it will all be okay. <3

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    @keikilove That’s incredibly frustrating and unfair that they are allowed to make that decision. If any of them went through IF, it wouldn’t be the policy. I hope you find a way. The intralipid stuff sounds so interesting!
    @BusinessWife I absolutely regret not switching OB offices earlier and it almost had catastrophic consequences. I am feeling so much more confident and comfortable now.

    So my OPKs and BW show a false surge, but I did have a 13mm follicle and 5 mm lining that they want to see on Monday instead of waiting until Friday. CM has picked up, but OPK is lighter and temp is down after 3 days of being up. We should get DH’s BW and SA results on Monday. He might have to redo the SA because he didn’t *ahem* clear his system out close enough to the test. I told him we should BD on Tuesday and he said he didn’t want to mess with his test, which proves he doesn’t understand how any of this works with healthy swimmers. Either way, we need to abnormal SA to move onto IUI, so this could be one even if it’s not really considered accurate... not that we know results yet or even if that’s the path we will be taking. 
    It's funny how it's the little things in life that mean the most...not where you live, or what you drive, or the price tag on your clothes... There's no dollar sign on a piece of mind, this I've come to know! *ZBB*

    Me: 36 DH 35 
    TTC  9/2016     BFP 12/9/16    EDD 8/21/17    NMC 1/8/16 at 7w6d
    TTC  2/2017  BFP 3/6/17   EDD 11/17/17   DS born 11/25/17 via ECS
    TTC 12/2018   BFP 6/2/19   EDD 2/12/20  NMC / BO at 7 weeks, low progesterone
    TTC 7/2019   BFP 8/21/19 EDD 4/22/20 CP at 5 weeks
    TTC 8/19    IUI #1 w/ Clomid + Ovidrel + progesterone  BFN, IUI 2 and 3 w/ Letrozole + Ovidrel + progesterone,
    IUI 4 Follistim + Ovidrel + progesterone BFP 1/9/20 EDD 9/18/20

    AMA, ITP in pregnancy, vWD type II - low Factor VIII, unexplained RPL and secondary infertility
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