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February 2019 Moms
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Multicycstic Dysplastic Kidney

blonderoast78blonderoast78 member
in February 2019 Moms
My daughter and third baby was diagnosed at her 20 week scan with MCDK disease in her left kidney. Her right is completely fine and functioning for both, and my amniotic fluid levels are always good. I feel her like crazy too shes soo active! Honestly I'm just looking for moms who have been through it or are currently going through it. I'm so scared and even though everyone including her doctors tell me it's going to be fine and shell most likely live a totally normal life, I cant stop worrying. I feel silly constantly talking about it to friends and family because I feel like they think I need to chill. My husband was scared until we talked to the doctor but is now zen about the whole thing and I don't want to ruin that. Honestly I dont really know what I'm looking for except someone to talk to. As common as they make it seem I've never encountered anyone who has been through it. Sorry for the rant
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Re: Multicycstic Dysplastic Kidney

  • whattalife525415whattalife525415 member
    I've got no experience in MCDK and I'm sorry you are going through this. My first was born with a heart defect and I think the most helpful thing was to "try" not to worry until baby is born. Drs can only see so much in the womb but once baby comes then more labs, scans, etc can be done to really determine the whole picture. Good luck! 
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  • bieberm04bieberm04 member
    Hello,
    i haven't been on here much and have jumped back and forth between Feb and March but i saw your post and wanted to comment.  My daughter who is almost 2 1/2 has MCDK in her left Kidney also.  They found it at my 20 US also and it is extremely scary not knowing the status.  They essentially told us they wouldn't be able to tell if she has any function in it till she was born (she doesn't).  I was going for level 2 US every 2 weeks during the 2nd half of my pregnancy to review the growth.  The specialist stressed to make sure the hospital did an ultra sound of the babies kidney before we left the hospital because it is harder for any part of my records to be transferred to her file.  After we left the hospital they told us we would have to go to a children nephrology specialist for them to review the US and advise us.  They told us that her good kidney will work harder to make up for the non-functioning one and the bad one should get smaller/ dissolve itself (if all goes well) . we were going to the DR every 6 months for them to do a US and review the kidneys growth and after alot of stress we now only have to go once a year.  We will probably have to continue this for most of her life but she is an extremely active and otherwise healthy kid.  They also told us to be overly cautious if we think she spikes a fever without other symptoms as she might has a UTI which could turn into a kidney infection. im not sure where you are from but i would definitely push to have the US reviewed by a nephrology specialist not just a normal Dr.  I know you are probably sick of hearing don't stress but at this point you have to trust that he/she will be OK.  if you have any questions or just need to vent please feel free to message me. 
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