IF Treatment and Testing- W/O 11/12

AlohaKumu · November 2018

@celticknotfire I hope AF happens quickly so you can figure out what's going on with the cyst situation. It's so frustrating not knowing.

@chichiphin That's great that your family has been supportive. I would definitely ask for your numbers. It can be a pain to have to ask, but there are just a lot of times you have to be your own best advocate during this process.

@whatsbumpinpumpkin I hope your appointment goes/went well today! That sounds really scary for your husband to have to deal with an explosion. Yikes!

@purplg8r So exciting that you get to start on your FET meds soon! I hope the month continues to fly by for all of us!

@suzycupcake I'm glad to hear your doc is confident with your protocol. I would still want more monitoring, but part of that is due to my past history of issues.

@nitnat007 That's awesome that you could potentially do a fresh transfer! I hope you have a fantastic ER tomorrow and get good reports.

@inthewoods23 Fantastic news during your appointment, even if they had to stab you a few times to get all those vials of blood.

@Avrilmai How awesome that we are all prepping for our FETs all at once! I hope your meds go well as you start your prep.

AFM My appointment went well this morning! My lining was up to 6, which I feel is pretty decent for about 2 weeks to go before the potential FET. My RE is adding one more daily dose of Estrace to really boost up my estrogen levels.

inthewoods23 · November 2018

@AlohaKumu glad to hear things are looking good for you!

@Avrilmai DH's family for some reason just loves my brownies. They also come from a box lol. It was a long time for me too before I realized my grandma made stuffing inside the turkey as well as from a box.

My blood work results have started rolling in and I had a funny conversation with DH when I looked up the blood type. I've known for years that I'm A+. DH says he's B-. Anyway, the results page said A POSITIVE and then below that was the antibody screen which said NEGATIVE. I misread this the first time as being rh negative since I didn't realize the + or - after the blood type letter was the rh protein. I got all concerned about the whole issue with pregnant women having rh negative blood with a fetus having rh positive. So I'm telling DH I hope he's also negative otherwise we might have some issues and explaining how the fetus could be attacked and so on. Finally I realize my reading error and tell him we don't have to worry about that now. I asked if he understood and he says "yep. Your body is a vegetarian"

I did not expect that goofy response at all but that's such a DH kind of response

celticknotfire · November 2018

@whatsbumpinpumpkin I'm so sorry to hear about your flare. Hope your appointment went well and keep us posted!

@nitnat007 Good luck with your ER tomorrow!

@nomangos23 I had a bad experience with Clomid resulting in a thin lining and a cyst but I know that doesn't happen with everyone. You may want to ask for the cycle to be monitored so you can keep an eye on things.

@inthewoods23 You and YH are too funny!

suzycupcake · November 2018

@whatsbumpinpumpkin It sounds like a scary and stressful time all around at home. I hope you're able to still take it easy with the plant issue even though that would be tough. Did you have your appointment yet today?

@nomangos23 Msg in spoiler

Those kinds of decisions are so hard to make. We have another gal here who has RPL, but in doing IVF, the majority of her embryos are PGS normal. I don't think she has late ovulation, but then you have someone like me who has late ovulation with PGS all abnormal. However, I have a struggle with getting pregnant period. She was taking CoQ10 amongst other things to try to improve egg quality. I was not. Who knows really.

Have you and your husband considered getting yourselves karyotyped as an initial step or have his sperm DNA checked? There is evidence that some of loss can be caused by chromosome issues, but it doesn't mean the chromosome issues are always caused by the quality of the egg. It's the current thought that it takes 3 months for eggs to develop so I'm not sure Clomid would have any affect on quality, but I've not looked into that.

There is a lot of evidence that we can help egg quality with things like CoQ10, making some environmental changes, diet changes, etc.. Not sure if you've read ISWTE yet, but it's well worth the purchase. In women under 35, up to 1/4 of their eggs are aneuploid on average. All of those follies that compete to become dominant every cycle, as you know, only one makes it naturally. How I feel about IVF is you're bypassing the however many cycles it takes to win the egg lottery. But that's not to say that IVF is definitely what you should decide. Hope some of this helps.

suzycupcake · November 2018

Afm; First IM shot went great Monday night. All of that freaking out in my head proved to be, once again, all in my head. No pain at all. There was a ritual with stims that I decided to continue through prep. Some music, lighting a candle, a glass of wine (okay maybe two), ice pack before injection, heating pad after, and allowing myself to take my time. It probably takes a good 45 minutes, but it really helps me. Had my googly eyed pineapple socks on and put a unicorn bandaid on afterward. My husband filmed it because that's how he feels involved.

We got the application for fostering and my oh my. It appears that we are secretly being recruited to the CIA with all of the questions. They want to know how often we argue, what we argue about, what our childhood was like, how we were disciplined, what our relationship was like with our parents, etc. We get it. We really do. It just feels a bit overwhelming.

nomangos23 · November 2018

@suzycupcake

Thank you for that insight. I'm going to pick up that book (or download it) ASAP. And great call out on the clomid and egg quality taking 3 months to really affect. I hadn't even considered that. Duh. As far as the karyotyping, we had one done on our first loss so the RE seemed to think that if baby had inherited anything from either of us we would have picked it up then, however I think we would for SURE have the karyotype done before we decided to move forward with IVF.
Have you and your husband had the karyotype done? I've been following your updates but don't remember if that's something you guys did or not.

suzycupcake · November 2018

@nomangos23

We have not yet, but will definitely before we ever consider doing another ER. One thing that our coordinator mentioned to us which really turned a light bulb on in our heads was that our Doctor is not a Geneticist. She has been doing this longer than I've been alive and said only one clinic she worked at had an RE who was also a Geneticist which was tremendously helpful to his patients. That was in Texas.

Ours tried to say that if a translocation or something like that existed, our 7 biopsies would've picked up on it. We had 7 embryo biopsies to choose from! I don't think that's true. From reading, it seems to me that not all arrays can detect this and even if they could, we wouldn't trust it personally because they're only sampling 5-6 cells of over 150 and those 5-6 are being pulled from the trophectoderm, the part that becomes the placenta and not the actual baby. We'd want to know if there could be a BT somewhere in the rest of the embryo.

Nothing is full proof unfortunately though because someone with a BT =/= offspring with a problem. It can, but not always. We still want to know if one of us has one though. It's important to remember that medicine is a practice. Everyone is practicing. Also @emmasemm and @zamora_spin are some of the biggest smarty pants I've talked to on TB. Maybe they'll chime in at some point here.

charmedlifex3 · November 2018

Yup, it blew up. Well... the incinerator did, then the building caught on fire. Luckily the fire department was able to knock it down, and the damage was as limited as it could be... you know... for what it was. From what he found out today several weeks to few months before they are up and running, the higher ups are just trying to decide what makes the most sense financially to do with the employees, and then since my husband has an engineering role if it makes sense to keep him on, or part time and do what they call shared work (part time unemployment benefit) so he is available for the new machine...

So my appointment today was interesting. Celebration! He did NOT bench me, but did recommend more testing, sooner rather than later. He wants to do a high definition echo cardiogram since he thinks I might be having micro clots, which is what is causing some of the symptoms, he also is running additional labs, and referring me to a hematologist. He wants me to hold off on any medication changes until after this is all done.

TW - BC

Something he did bring up - With this diagnosis, I can never take hormonal birth control again. It is completely contraindicated. Now, we are planning another baby right now, and it's not happening, but assuming it does... It just really threw me for a loop that he was pushing me to make the decision for permanent sterilization, either immediately after I conceive (my husband) or at birth. Given the risks of carrying, especially without preparation, given the fact birth control isn't an option and barrier methods aren't reliable. Right NOW I don't feel ready to make the decision that we are done.

I always thought that decision would be something that happened naturally in my late 30's, or early 40's and being pushed to it by a doctor because of a disease I can't control is just heart wrenching. It makes me feel like so much less of a woman.

Just trying to focus on the fact we know we want this next baby, we are cleared to try, and do everything possible to make it happen.

suzycupcake · November 2018

@whatsbumpinpumpkin I'm very sorry he is pushing at you to make that kind of a decision. That's awful. So have you been diagnosed with Infertility? Or is it that they are trying to get the Lupus under control so you can carry another baby safely?

charmedlifex3 · November 2018

@suzycupcake I have been diagnosed with lupus anticoagulant antibodies which will make it harder to conceive, and carry to term - but theoretically possible with careful observation by a team of specialists. From Dr. Google, LA can cause an issue in implantation, which would just either make it never happen, or cause another loss. If that doesn't happen, it can get pretty dangerous if certain things aren't done early on. So it's not a traditional cause of IF, and the issue is me carrying the pregnancy as much as anything.
My OB thinks I it possible I have some secondary IF issues possibly complicating matters, but is hoping things will normalize if they get the lupus under control. I'm also being tested for antibeta 2 glycoprotein (FX THAT comes back negative)
The working theory (from the doctor) right now is my body is kicking off micro clots which is screwing everything up - including my lady bits, preventing pregnancy. I keep hoping they will find a fix, find a magic bullet.
I know it's kind of stupid to be worrying about what we'll do after we get our theoretical BFP, through a successful pregnancy, and out the other side NOW, since none of that is an absolute (or maybe even likely).... but it just shook me today.

LJMoon6 · November 2018

My heart has been torn between wanting to post more and wanting to be a good employee… cause, lets be honestly, the only time I bump is at work. Sorry for my lack of participation lately. I do lurk and see everyone’s post but it’s become harder and harder for me to post anything. I love you ladies!

@kobrien827 Stims day is so close! Are you getting anxious?

@nitnat007 Your first IVF cycle went so fast! GL today. I can’t wait for an update.

@jrm_14 I’m so sorry you’re having to deal with this, on top of everything else you’ve gone through. You’ll be in my thoughts.

@inthewoods23 I’m glad your U/S went well. We also had the genetic screening but mostly because we knew of a few things that run in our family. It was great to have that information. I haven’t told my boss yet about any of it. I’ve just been saying that I have a medical appointment and leaving it at that. He’s asked to questions. I might end up telling him if this cycle doesn’t work and we have to do it again but I’ll cross that bridge when the time comes.

@beachbunnyxo123 How did your monitoring go the other day?

@crookshanks10 Hey friend. When do you think you’re going to test? I have my FX so hard for you!

@kiki047 I’m glad you were finally able to get in to see an RE and that your appointment went well. Let us know what you decide to do.

@suzycupcake I’m so happy to see your update. You got this girl!

@alohakumu I’m so glad your lining looked good! FX for you!

@celticknotfire I’m sorry to hear about your possible cyst. FX it clears up quickly and you can get started. Have you had an IUI before?

@chichiphin I love green bean casserole! How could I forget that one!? I hope your appointment goes well tomorrow.

@whatsbumpinpumpkin I’m so sorry to hear you’ve been having a rough week. That’s crazy about YHs work! MH works at a large factor. So large that the city it’s in required the company to have their own firefighters and emergency response team. He is part of the emergency squad. So whenever there’s a fire or medical emergency, he is the one that has to deal with it… it’s frightening.

@purplg8r FX for you and that this time goes by quickly. I’m so hopeful that this is your cycle.

@nomangos23 I’m sorry the tests didn’t turn anything up, but also glad? I have taken clomid now for 3 cycles. For me, it hasn’t been bad at all, just some random night sweats. But I do know some women have pretty bad headaches or other terrible side effects. Feel free to PM me if you have any other questions about it.

@avrilmai I’m sorry your anxiety has been high. I have a hard time sleeping when I’m anxious. Sometimes I don’t even realize I’m anxious until it’s time to go to bed and can’t fall asleep. I have my FX for you that this is your cycle!

Diagnosis (if you've been): Unexplained

Status (WTO/TWW/TTA): TWW

What are you doing this cycle? (Testing? Treatment?): IUI, 100mg clomid

How are things going?: Well, last week I had my first IUI. Only 2 of the 6 measurable follies continues to grow to maturity. My lining was only a 5.8 the morning of my trigger… this makes me a little worried. I think I’m going to push for a change to femara (my RE right now wants to keep me on the same protocol for next cycle). DH count was 29 million with 85% motility.

We’ve been very open with our friends and family about ttc from the start. It’s been great and really hasn’t been an issue until this past weekend. I ended up yelling at my MIL… I don’t think MH updated her that we had move on to seeing a specialist. So when we called her to let her know how the IUI went things didn’t go over well. MH likes to try to make his mom uncomfortable so he starts the conversation off with “So guess what I did today?... I jizzed into a cup and then a doctor injected it into LJ.” And her response was, “You’re paying someone to do that?!... I think you guys need to stop trying so hard and just relax” … I blew up. I yelled at her, called her insensitive. Even DH got a little upset and stood up to her, let her know the statistics of us “just relaxing” and trying on our own. Ugh I’m still fuming over it.

Any questions?: Nope

GTKY: What is your favorite Thanksgiving side? Stuffing from the box, of course. But also, cranberries from the can, with no chunks in it please.

kobrien827 · November 2018

@Avrilmai @LJMoon6 Just a bit anxious to get stim started!
A question I have for those who have done stim before- Did your doctor or nurse show/teach you how to do everything? They havent told me how to do anything so ive been looking on youtube and watching people doing it. Kinda frustrated I am in the dark but glad youtube exists so I can teach myself.

inthewoods23 · November 2018

@kobrien827 do you have the option to call or email message your doctor? Might be worth checking back in with them and ask if they have any instructions or resources you could look at so you know what to do.

crookshanks10 · November 2018

@whatsbumpinpumpkin Oh my goodness! I'm so glad your DH and his coworkers are all okay. I cannot imagine how scary that was!
@LJMoon6 I'm thinking Saturday. I have that "about to start AF" feeling, but the progesterone has been messing with me so, I'm just in the brutal waiting period. Sorry about your MIL

That is SO annoying!!! People can be so insensitive sometimes. I'm glad you and your DH stood up to her ignorance!

Question: For those of you who have taken suppositories during your LP, how long did it delay your period? My RE just said to keep doing them until AF arrives.. but I know a lot of people have stopped around 14dpo once they get a BFN. Any advice is appreciated!

Avrilmai · November 2018

@kobrien827 the nurse in my RE's office did a very brief demo, it was not helpful, (she is also no longer there), but they did direct me to freedommedteach.com and they have videos for several types of meds. It was very helpful.
@crookshanks10 at my RE's instruction, I stopped 14 days post IUI and tested. I then stopped using the meds and AF came 2-3 days later.

crookshanks10 · November 2018

@Avrilmai Thank you! I'm thinking that's what I'm going to do too. Obviously we don't want to delay our next cycle.

chichiphin · November 2018

@Avrilmai I hope your start to medications has been smooth today and I am glad your anxiety has tempered a bit!
@AlohaKumu hooray for that lining!!
@suzycupcake I love your "ritual" and I may be taking notes if I have to start shooting myself up anytime soon
@nomangos23 that is a LOT to take in and I understand how overwhelming it is. I'm glad you have ladies here who are so knowledgeable to bounce things off of
@LJMoon6 your MIL blow up is TOTALLY reasonable IMHO. I'm so sorry you had to deal with that. I'm glad YH spoke up too.

AFM - I did advocate like crazy (thank you @Avrilmai @alohakumu) and I got my AMH. 4.3. Apparently this is "high" and an indicator of PCOS? this coupled with my low progesterone has me worried that I have some pretty shitty (ETA: immature) eggs during O.... perhaps this also explains my ultra painful periods but very light flow?

nomangos23 · November 2018

@chichiphin Did you doc tell you this was high and could be PCOS? Or did you consult Dr Google? Mine is 4.41 and my doc didn't even consider me a candidate for PCOS. She just said she likes to see it higher than 2 my number is "healthy"

chichiphin · November 2018

lol @nomangos23 keeping me honest - the level is high per the lab result range. everything else is Dr Google.

inthewoods23 · November 2018

I'm curious what my AMH is. There's a few tests that I haven't gotten results for yet! One was uploaded to my account at 3 in the morning so who knows when these will be ready!

beachbunnyxo123 · November 2018

Sorry I haven’t been around much it’s been a stressful week. My FET cycle is cancelled. Lining decreased today and I was supposed to start PIO tomorrow. Oh well. I’d rather hit the reset button and try again. Just wanted to update you guys since I was supposed to transfer 11/21

AlohaKumu · November 2018

I'm so sorry, @beachbunnyxo123. This is so incredibly unfair. I'll definitely be thinking of you and hoping your next lining is really stellar.

@kobrien827 Definitely be vocal about it if they haven't shown you and you aren't familiar with the process. I always ask them to draw on me for the progesterone (but you won't be doing that quite yet). They should show you how/where to inject everything properly! I think sometimes they forget because it's so routine to them.

celticknotfire · November 2018

@LJMoon6 This is my first IUI so I'm a little nervous. We've been honest with our family too and the other day mu older sister gave me the whole just relax speech and I almost lost it. I wish there was some sort of pamphlet we could give our families that explain everything including what to say and not to say.

@crookshanks10 I took progesterone suppositories last cycle and at 14 DPO I was still getting BFN so I messaged my RE's office and then said to stop the progesterone and call on CD1.

@beachbunnyxo123 Sorry about your canceled FET but sounds like you have the right attitude about it. Take care of yourself!

@whatsbumpinpumpkin Wow what a lot to take in. Are they going to put you on a blood thinner to help avoid these clots? I hope you get some answers soon.

crookshanks10 · November 2018

@beachbunnyxo123 So sorry to hear that your FET was cancelled. FX for a wonderful next cycle

@celticknotfire Thank you! I think I'll do the same!

nitnat007 · November 2018

@kobrien827 we were given a teaching session on stims at the clinic but had watched many videos beforehand and all the same things were covered so I felt comfortable. Good luck!

@beachbunnyxo123 I’m so sorry friend. That is really frustrating. I hope you are able to get another date set soon.

@LJMoon6 I would have climbed through the phone too. That’s annoying. *hugs*

AFM quick update. ER went well. We got 12 eggs and will find out tomorrow on maturity and fertilization report. A little crampy and just very tired.

crookshanks10 · November 2018

@nitnat007 That's a great number! Keep us updated (:

kiki047 · November 2018

@nitnat007 12 eggs, that's great! Hope you can take it easy and get some rest.
@LJMoon6 I am so sorry for your MIL's insensitive comment. I don't blame you one bit for defending yourself. You shouldn't even have to do that much.
@beachbunnyxo123 So sorry to hear your FET was cancelled. Your optimism and strength are truly inspiring

I hope your next cycle goes smoothly and you can set a new date soon!

suzycupcake · November 2018

@kobrien827 Here's this in case it helps you too https://www.mdrusa.com/medications/

@AlohaKumu Is your FET gonna be around 11/28 then? When do you start PIO?

@beachbunnyxo123 I'm so sorry this happened. I hope a stim lining protocol will be just the thing that your body needs to make it happen this next time. Fx for you!

@nitnat007 Yasss friend yassss! You did it! Fx that everything works out perfectly for the transfer plan

@LJMoon6 It's so frustrating when people, who have no clue, say things like that. We had the same issue with my MIL. A couple educational conversations seemed to do the trick because she's a retired teacher and an all around super loving woman. Hopefully, it will be the same with yours. But sometimes, with some people, we wanna just be like if you don't know a damn thing about something, please just shut up. The further we go in this process, the more we see that it's just that a lot of people had no idea that this world existed. Hugs to you and your husband

@crookshanks10 My experience was the same as @Avrilmai. Hoping so hard that you won't need to stop taking it at all. Fx for you girl!

Eta; @tamalahoops and @lulu1180 How are you ladies doing?

purplg8r · November 2018

@whatsbumpinpumpkin wow! A plant blowing up sounds terrifying! Glad no one was hurt! And that’s such a hard decision to have to make right now.

@nomangos23 are you guys leaning towards IVF?

@Avrilmai all of this is so stressful. I don’t know how NOT to have anxiety about it!

@AlohaKumu come on lining!! (It’s funny the things we root for with IF)

@suzycupcake that’s a lot of in-depth questions!! I’m glad the injection wasn’t bad. I’m not looking forward to them.

@LJMoon6 ugh! I seriously hate it when people say “just relax”. That and “it’ll happen when it’s supposed to” puss me off to no end!

@kobrien827 mine showed me but I honestly had so many thoughts going around in my head. Freedom pharmacy has great videos on all the injections

@crookshanks10 I always took it until 14dpo then was to test and stop taking it with a bfn.

@beachbunnyxo123 I’m so sorry. I know how frustrating it is and how much it sucks.

@nitnat007 that’s a great number! FX for a great fert report tomorrow!

nomangos23 · November 2018

@beachbunnyxo123 I'm so sorry your cycle was cancelled. How long will it be before you have a new date set?

@purplg8r I don't think we're leaning towards IVF yet, but it's good to know we have that option in our back pocket.

chichiphin · November 2018

Quick update: appt went really well. MH's second SA showed a morphology increase to 4% and his count was higher! Doc wants me to come in for CD2/3 blood work & saline tubal perfusion after AF, start Letrozole CD3 , HIO CD13&14, and then IUI CD15... which means mid-December! then progesterone post-IUI.

In the meantime, I have one follicle at 20mm chillin in my left ovary, so HIO session begins today for one last college-try!

lulu1180 · November 2018

@beachbunnyxo123 I'm sorry your cycle was cancelled, but you have a great attitude! I hope they're able to figure out the best formula for your next cycle!

@chichiphin Will the RE be doing any monitoring or are you going to be temping/using OPKs?? Just like clomid, letrozole does not affect everyone differently and it may cause you to O sooner (or later) than what your RE is suggesting.

chichiphin · November 2018

@lulu1180 I should have mentioned - I did mention that I usually O at 17/18, and he said to monitor it at home. I will be bringing up again at the saline test to make sure they don't want to do any follicle monitoring prior.

purplg8r · November 2018

@chichiphin if possible, I’d definitely ask to come in for monitoring

suzycupcake · November 2018

Has anyone in here ever taken Delestrogen injections?

charmedlifex3 · November 2018

You GUYZ! For the first time since January I can definitively say I am ovulating today! Go time go time!
Ovulation pain - Check. Positive OPK - check.
... It only took almost a year.
Dear husband. No pressure.

suzycupcake · November 2018

That's great @whatsbumpinpumpkin Fx! Do you usually O on the exact same day as a +opk?

inthewoods23 · November 2018

@whatsbumpinpumpkin get it girl!

Swiftlet · November 2018

Hello friends! True to my word I...oh wait no, I disappeared again. Sorry

I'm keeping up with y'all's updates and cheering for each one of you though

My current status: WFAF so I can get my preliminary testing done. Waiting is never fun. Hrmph.

inthewoods23 · November 2018

@Swiftlet Amen sister, waiting sucks! It felt like ages between my initial RE consultation and when I finally had my blood work taken last week. In fact, it was FOUR weeks of waiting. Too bad we can't just pick when we ovulate and when AF comes

IF Treatment and Testing- W/O 11/12

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