TTTC Checkin 06/20/2018

GoldenKeys · June 2018

Hey Everybody,

It's checkin time, congratulations to all BFP's and hugs to anybody who needs one.

Special Hugs to @Bababatty and @mrsjcrane

How is everybody doing?

QOTW: Favorite sandwich

2018 BFP Hall of Fame
lablover78 dx: PCOS, Compound Heterozygous MTHFR Rx: IVF
Tops-2: dx: anovulatory PCOS Rx: Metformin, Letrozole & TI
halfanewt: possible PCOS, MTHFR gene, slight MFI Rx: IVF
seethosestars: dx: DOR Rx: IVF + FET #1
Kim41313: dx: unexplained Rx: IVF
soehlerk: dx: Unexplained Rx: Femara + IUI
ChristenMA83: dx: MFI Rx: IVF w/ISCI
Mlight28: dx Unexplained Rx: Clomid
SoonToBeMommaHowe: dx: Unexplained Rx: naturally until IVF
honeybeebub: dx:septate uterus, MTHFR Rx: septum resection surgery, baby aspirin & progesterone
be08ryan: dx: PCOS and AO Rx: Clomid
kiwielopingbride: Dx: Unexplained Rx: IUI
thothscribe81: dx: unexplained Rx: IVF

PAGING:

@BWhitta: dx: PCOS, low AMH and endo Rx: letrozole
@Bababatty: dx:Low Motility Rx: IVF
@ChristinaV2015: dx: blocked tubes, PCOS, endo + MFI Rx: lap, OPKs + TI
@ChristenMA83 : dx: MFI Rx: IVF w/ISCI
@emgem819 dx: PCOS, Rx: provera, femara + Bravelle
@hoffmanr7: dx: unexplained Rx: IVF
@jmr1515: dx: Mild MFI/morph, fibroid Rx: Surgery + TI
@mackenzie07 dx: PCOS and Endo Rx: metformin, letrozole, ovidrel
@mandasand: dx: low AMH Rx:IVF (Lupron, Menopur + Follistim)
@MrsM00re87: dx: DOR PCOS, low morph Rx: Femara + TI
@Mythril: dx: PCOS (anovulatory) Rx:levothyroxine, metformin and femara + TI
@rachlee2010: dx: DOR Rx: IUI
@Samanthaarielxo dx: anovulation Rx: still in testing
@sarah0985: dx: PCOS, possible blocked tubes Rx: Lap
@SM746830: dx: PCOS, blocked tubes Rx: Surgery, Clomid
@starlitfae dx: MFI & balanced translocation, thyroid Rx: ivf with pgd testing
@funkykey dx: unexplained Rx: IVF
@Worldtravler0522 dx: PCOS/Unexplained Rx: IVF
@notamyrtle: dx: unexplained Rx: IUI + injects
@Kate437: dx:anovulatory Rx:Letrozole + trigger
@SP128: in testing/unexplained
@eranvo27: dx: anovulatory PCOS Rx: metformin
@brittlefebvre: in testing
@Charligirl28: dx: unexplained Rx: Clomid
@kristimh80: dx: unexplained Rx: Injectables + trigger + IUI
@Brooke4131: dx: Secondary unexplained Rx: in testing
@fluffybookworm: dx: Anovulation + insulin resistance Rx: Metformin + prometrium + testing
@Asampson87: dx: unexplained + MFI Rx: metformin + testing
@hannahlce: dx: anovulatory PCOS Rx: metformin + letrozole
@emmasemm: dx: DOR & autoimmune Rx: IVF
@floridanursegirl: dx: unexplained anovulation Rx:Metformin, IUI+Femara+trigger
@aeb1116: dx: unexplained Rx: IUI
@Happyin14: dx: unexplained, RPL Rx: IVF
@amac2313: dx: unknown Rx: Clomid
@nurseerin2012: dx: unexplained Rx: letrozole + IUI
@Knottie1467155066: dx: unknown Rx: letrozole + trigger + TI
@BenJay: Dx: PCOS/unexplained Rx. Metformin + supplements
@MicahDahn: Dx: irregular cycles Rx: preparing for testing
@moloninge Dx:PCOS, hypothyroidism, insulin resistance, fibroids. Rx:Metformin,Synthroid,IUI w/letrozole, ovidrel, and progesterone.
@beec2421: dx: PCOS, hypothyroidism Rx: metformin, synthroid, clomid
@wishing-and-hoping: dx: unexplained rx: IUI
@echocharlietango: dx: Unexplained Rx: trying naturally
@kgabhart: dx: Unexplained/PCOS Rx: letrozole + IUI
@linz36: dx: Low AFC, MFI Rx: testing/IUI
@jrm_14: dx: Adrenal/overian insufficiency, Borderline-low AMH, Low progesterone Rx: IUI w/ injectables.
@Bgreenfield10: dx: anovulatory PCOS, LPD Rx: Clomid + trigger
@serownarain: dx: in testing
@allisona66: dx: waiting for testing
@manhattanmama2: dx: unexplained Rx: IVF
@mirabelle33 dx: weak ovulation, possible LPD, AMA Rx: Injectables + Ovidrel + TI
@meganttc3: dx: PCOS, unexplained Rx: waiting to test
@mrsjcrane: dx: unexplained Rx: femara + trigger + TI + 2nd HCG booster
@mighty-mouse: dx:pcos & HA Rx: provera/letrozole + trigger
@ladystout08: dx: unknown Rx: waiting for testing
@leafyarch: dx: MFI, no thyroid Rx: IVF
@oklahomak: dx: PCOS Rx: metformin/letrozole/estradiol/progesterone+ trigger
@drewsdarlin: dx: RPL, PCOS, Hashimotos, low vitamin D and Iron RX: ?

NEWCOMERS:To be added to the Weekly Checkin, please answer the following:

1. How long have you been TTC?
2. What is your diagnosis?
3. What is your current Rx plan?

kristimh80 · June 2018

Doing good here! Just finished our ERA, now going in for a sonogram today to see if / when to start estrace or should wait for early July cycle for next FET.

drewsdarlin · June 2018

How is everybody doing? Doing okay. waiting to see if AF shows up next week or it happened this month

QOTW: Favorite sandwich: Grilled cheese

ChristenMA83 · June 2018

@GoldenKeys can you take me out of the hall of fame? Hoping to get back there soon, but alas I am back in waiting for the time being.

@drewsdarlin glad you found a more supportive therapist. The last one sounds like they were in the wrong profession. Wow!

AFM: Just finished hysteroscopy and bloodwork yesterday. The hysteroscopy found some scare tissue they took care of. The bloodwork will be back in up to 10 days. Clinic called today to see if I want to be on the July transfer schedule, so playing phone tag with them to work out the details...it may depend on my blood results though.

drewsdarlin · June 2018

ChristenMA83 said:

@GoldenKeys can you take me out of the hall of fame? Hoping to get back there soon, but alas I am back in waiting for the time being.

@drewsdarlin glad you found a more supportive therapist. The last one sounds like they were in the wrong profession. Wow!

AFM: Just finished hysteroscopy and bloodwork yesterday. The hysteroscopy found some scare tissue they took care of. The bloodwork will be back in up to 10 days. Clinic called today to see if I want to be on the July transfer schedule, so playing phone tag with them to work out the details...it may depend on my blood results though.

Thank you. Hope you get good results.

Bababatty · June 2018

I just want to thank you all so much for your support. It really means so much to me, every time we go through this, to know that I can lean on you.

@ChristenMA83 How was your hysteroscopy and blood draw? Any results yet? (ETA You posted while I was writing. Glad they took care of that scar tissue. Hope it helps!)

@emmasemm My understanding is that he’s concerned now about underlying uterine abnormalities, even though all of my HSGs and SHGs and whatnot have come back normal. Taking a deeper dive, I guess. Specifically now he’s looking for endometritis, which he says is maybe a 1-2% chance since I have no risk factors for it nor symptoms. I’d never even heard of it before and initially thought he meant endometriosis.

I am SO HAPPY to hear your little embie made it to freeze! I know it’s not a full three days—when it’s time to transfer will they thaw and let it grow a bit more? Also did you say the embryologist was taken ill?! I am so sorry your cycle was so stressful! I hope the next one is much smoother! Any word on if you can proceed?

@funkykey Thank you so much, friend. I feel like we’re going to get our sticky beans together because it’s like we go back and forth and inevitably end up cycling at the same time. I truly hope so!!

We have 3 left at this clinic and one at our previous clinic (which we’re applying to transfer and which won’t get tested because transferring can take up to 3 months). We have a meeting with the genetic counselor on Tuesday so we can be ready to go when the lab reopens in July. Hopefully we’ll get the results that month or early August in time to hopefully cycle in August.

My RE said the same thing about the rounds with abnormal embryos. Sometimes the whole batch is a bust and then you do another round and they’re mostly good. ¯\_(ツ)_/¯ I really hope you get some answers from the PGS testing!

@drewsdarlin I think it’s wonderful how your current therapist is supporting your connection to your babies and acknowledging your pain to help you heal. Your first therapist sounds horrible! I am so sorry she treated you like that. Good luck with your wait and FX!

@kristimh80 I’ve been wondering what’s been going on! When do you get your ERA results?

*TW* pregnancy and loss

AFM I saw my RE on Monday and he doesn’t think it’s ectopic—yay, I can keep my tube—but he can’t be entirely sure because it’s still early. We saw a black blob in the uterus, which he said could be the sac resulting from an abnormally implanted embryo or just as easily be a blood vessel. My beta continues to rise at an excruciatingly slow pace. I’m pretty sure we’re just waiting for me to miscarry, but he hasn’t said that—although he now only refers to it as an abnormally implanted embryo. Back tomorrow for another u/s and more blood work.

In the meantime, I got the ball rolling on all of the tasks he gave us related to PGS testing, and transferring our first embryo from the old clinic.

QOTW: Grilled cheese for me, too!

kristimh80 · June 2018

@Bababatty Hi there! I'm so sorry to read all of this today! I'll be praying for you...hopefully things can / will turn around for you and your little one!!

ERA results came back as everything normal...of course! But at least it gives a peace of mine...even though I was praying for a change of some kind. Keep in touch...will be thinking of you!

drewsdarlin · June 2018

Thank you

mirabelle33 · June 2018

@emmasemm great news that your embryo was frozen and I will keep my fx that it's a strong fighter! But oh my about the embryologist taking ill. Is there anything more bizarre that could happen to you during these retrievals? I think not. I hope this next round goes smoothly for you. How did baseline go?

@Bababatty I'm so sorry you're still in limbo and I hope your blood work and u/s today will give you more clarity one way or the other

@funkykey @Bababatty while I hate that you're both in this situation, it's nice that you have each other to lean on while going through something so similar. I hope you both get the answers you're looking for during the next round and that the PGS testing will give you both multiple normal embryos!

@drewsdarlin I really hope AF stays away and that you get your miracle this month. Your new therapist sounds so much better than your last one. It must have been very hard to write that letter and I think it was very brave of you to do it. I hope it was healing for you

@mighty-mouse how are you feeling?

@kristimh80 I'm sure you have mixed feelings about the results of the ERA, but I think it's usually better to find out something is normal rather than vice versa. Glad it's given you peace of mind. Fx you just had back luck the first time and that the second transfer will be the one that sticks! Keep us posted on when you're starting to prep for your FET

@ChristenMA83 glad you got that scar tissue taken care of! Let us know when you get the results of your blood work and fx that it doesn't delay your next transfer.

AFM, sorry I didn't update last week after our appointment with the RE. It was a lot to take in and I needed to sit with it for a bit. The good news is that DH checks out great and has no known issues at this point. I, on the other hand, have a couple of things going on. I was prepared for it based on how the day 3 (actually day 2) blood work and u/s went, but it was still a punch to the gut to get the diagnosis for real. I have very low AMH (.24) and borderline high FSH (11.9) even though it was only 6 point something back in September when it was first tested (my OB didn't test my AMH and wasn't planning to until I turned 38!). My AFC was 5 on day 2 with one lead follie on the right and 4 small on the left. However, she checked again on day 9 when I had the SHG and I don't remember the number of follies, but she said it was a bit better and that I would ovulate in roughly three days from the left (I don't know what happened to that big one on the right at day 2). Anyway, we don't know the exact cause of my DOR, but it's probably a combination of age and suspected endometriosis. There was still a small cyst on my left ovary (only 12mm) that she strongly suspects is an endometrioma and she also thinks there is some endometriosis on my right uterosacral ligament that was also flagged as suspicious by the MRI. She said that we have two options: 1) do a laparoscopy to clean up the endometriosis and drain any cysts and then try IUI. 2) go straight to IVF, but of course the concern is that I will not respond well to stimulation.

I was very concerned about doing the surgery and thankfully she agreed with me that they should not try to remove the cysts to avoid further damaging the ovaries. However, I wasn't expecting her to suggest IUI after the surgery and the thought of that just exhausts me. I was already prepared to plead my case for IVF and was able to show her that I actually responded fairly well to the three rounds of injections that I did with my OB. I started with 75ui of Puregon (Follistim) and after 8 days of injections, my E2 was in the 800 range (I don't know how many follies I had but I know that she had me trigger the next day). She lowered it to 50ui for the next two rounds and my E2 didn't spike as high, but it still got up to the 400 range by trigger time after about 10 days of injections. I only had scans of my last round, but it showed that I had two lead follies and a total of 12 follies all together. It's just so confusing because my OB had always said that I was a "good responder." Anyway, this seemed to persuade her that we could start with IVF as long as the cysts are gone. Otherwise, she didn't think the endometriosis would interfere with IVF or egg quality and when I voiced my concern about endometriomas being "toxic," she said that that is what they used to think, but not any more.

We're still in a holding pattern though. The doctors at the clinic meet once a month to discuss cases and so she will present our case on June 26th. She noted that our preference is to start with IVF and is also going to ask about doing multiple retrievals before attempting a transfer, depending on how I respond to the stimulation. However, because I still need to meet with the genetic oncologist on July 10th, we won't have our follow-up meeting with her to find out the final decision until July 20th. I was hoping if they decided we could try IVF that we would start with my following cycle, but unfortunately the lab is closed in August (merci France!), so the earliest we could start is September. Oh and PGS testing is not allowed here, so that's not even an option for us.

I'm trying to stay positive and DH and I have discussed that since there is not much we can do over the summer, to try and enjoy it as much as possible (we'll still try naturally, although I don't put much stock in it). I'm already preparing myself for a tough road ahead and as I'm sure you all know, some days are better than others. Thanks for reading this far!

QOTW: Favorite sandwich?

Recently I have been craving a turkey Reuben, and I think I had 3 of them during our trip to the US in April! Really though, any good deli sandwich is probably my fave right now just because they don't exist here! If I never have to eat another jambon/beurre baguette again, I would be perfectly fine with that!

ETA: @GoldenKeys you can go ahead and change my Dx to DOR and suspected endometriosis. Rx is TBD. Thanks

drewsdarlin · June 2018

mirabelle33 said:

@emmasemm great news that your embryo was frozen and I will keep my fx that it's a strong fighter! But oh my about the embryologist taking ill. Is there anything more bizarre that could happen to you during these retrievals? I think not. I hope this next round goes smoothly for you. How did baseline go?

@Bababatty I'm so sorry you're still in limbo and I hope your blood work and u/s today will give you more clarity one way or the other

@funkykey @Bababatty while I hate that you're both in this situation, it's nice that you have each other to lean on while going through something so similar. I hope you both get the answers you're looking for during the next round and that the PGS testing will give you both multiple normal embryos!

@drewsdarlin I really hope AF stays away and that you get your miracle this month. Your new therapist sounds so much better than your last one. It must have been very hard to write that letter and I think it was very brave of you to do it. I hope it was healing for you

@mighty-mouse how are you feeling?

@kristimh80 I'm sure you have mixed feelings about the results of the ERA, but I think it's usually better to find out something is normal rather than vice versa. Glad it's given you peace of mind. Fx you just had back luck the first time and that the second transfer will be the one that sticks! Keep us posted on when you're starting to prep for your FET

@ChristenMA83 glad you got that scar tissue taken care of! Let us know when you get the results of your blood work and fx that it doesn't delay your next transfer.

AFM, sorry I didn't update last week after our appointment with the RE. It was a lot to take in and I needed to sit with it for a bit. The good news is that DH checks out great and has no known issues at this point. I, on the other hand, have a couple of things going on. I was prepared for it based on how the day 3 (actually day 2) blood work and u/s went, but it was still a punch to the gut to get the diagnosis for real. I have very low AMH (.24) and borderline high FSH (11.9) even though it was only 6 point something back in September when it was first tested (my OB didn't test my AMH and wasn't planning to until I turned 38!). My AFC was 5 on day 2 with one lead follie on the right and 4 small on the left. However, she checked again on day 9 when I had the SHG and I don't remember the number of follies, but she said it was a bit better and that I would ovulate in roughly three days from the left (I don't know what happened to that big one on the right at day 2). Anyway, we don't know the exact cause of my DOR, but it's probably a combination of age and suspected endometriosis. There was still a small cyst on my left ovary (only 12mm) that she strongly suspects is an endometrioma and she also thinks there is some endometriosis on my right uterosacral ligament that was also flagged as suspicious by the MRI. She said that we have two options: 1) do a laparoscopy to clean up the endometriosis and drain any cysts and then try IUI. 2) go straight to IVF, but of course the concern is that I will not respond well to stimulation.

I was very concerned about doing the surgery and thankfully she agreed with me that they should not try to remove the cysts to avoid further damaging the ovaries. However, I wasn't expecting her to suggest IUI after the surgery and the thought of that just exhausts me. I was already prepared to plead my case for IVF and was able to show her that I actually responded fairly well to the three rounds of injections that I did with my OB. I started with 75ui of Puregon (Follistim) and after 8 days of injections, my E2 was in the 800 range (I don't know how many follies I had but I know that she had me trigger the next day). She lowered it to 50ui for the next two rounds and my E2 didn't spike as high, but it still got up to the 400 range by trigger time after about 10 days of injections. I only had scans of my last round, but it showed that I had two lead follies and a total of 12 follies all together. It's just so confusing because my OB had always said that I was a "good responder." Anyway, this seemed to persuade her that we could start with IVF as long as the cysts are gone. Otherwise, she didn't think the endometriosis would interfere with IVF or egg quality and when I voiced my concern about endometriomas being "toxic," she said that that is what they used to think, but not any more.

We're still in a holding pattern though. The doctors at the clinic meet once a month to discuss cases and so she will present our case on June 26th. She noted that our preference is to start with IVF and is also going to ask about doing multiple retrievals before attempting a transfer, depending on how I respond to the stimulation. However, because I still need to meet with the genetic oncologist on July 10th, we won't have our follow-up meeting with her to find out the final decision until July 20th. I was hoping if they decided we could try IVF that we would start with my following cycle, but unfortunately the lab is closed in August (merci France!), so the earliest we could start is September. Oh and PGS testing is not allowed here, so that's not even an option for us.

I'm trying to stay positive and DH and I have discussed that since there is not much we can do over the summer, to try and enjoy it as much as possible (we'll still try naturally, although I don't put much stock in it). I'm already preparing myself for a tough road ahead and as I'm sure you all know, some days are better than others. Thanks for reading this far!

QOTW: Favorite sandwich?

Recently I have been craving a turkey Reuben, and I think I had 3 of them during our trip to the US in April! Really though, any good deli sandwich is probably my fave right now just because they don't exist here! If I never have to eat another jambon/beurre baguette again, I would be perfectly fine with that!

ETA: @GoldenKeys you can go ahead and change my Dx to DOR and suspected endometriosis. Rx is TBD. Thanks

Thank you. But i have been cramping so feel like AF is going to show up this month. Good luck to you.

wishing-and-hoping · June 2018

hey everybody - sorry i've been MIA - not too much to report as we've just been taking this month to figure out IVF options. @GoldenKeys please change by rx to possible IVF.

@Bababatty
So sorry for all that you're going through. I hope that whatever the result, it happens sooner rather than later so that your pain and waiting isn't drawn out any longer.

@mirabelle33
that's so much for you to have to take in all at once. wow. sorry that you have to wait for their office to have their conference in order to know your next steps, but at least they didn't like JUST have it and you'd be waiting a whole month! and it gives you a little time to process/research. I don't know a lot about Low AMH but there's a really active thread for Low AMH in the Infertility board in case you're interested.

AFM just proceeding as though we'll be starting stims next week... we'll see! DH is on "skeptic island" as he called it - just trying to process his feelings about IVF before we fully commit.

funkykey · June 2018

@ChristenMA83 - keeping FX for your bloodwork results.

@Bababatty - my H and I had a (longer than I liked) talk about probability and randomness last night. We are getting deep into the odds talks about IVF and embryo transfers. We were initially told that, at our clinic, about 62% of the FETs are successful for women my age. So DH figured we had about a 60% chance with each FET.

(We've also spent a lot of time with this calculator: https://w3.abdn.ac.uk/clsm/opis )

But I keep wondering if those numbers actually apply to me. Like, I get it - those are the overall, average numbers. But whatever is causing our IF feels insidious. IVF is a great treatment for a lot of people, and really works if you have a number of conditions. But if the issue is that you cannot produce viable embryos, it's no help, you know?

(DH is convinced that we will produce normal embryos. He's convinced that our fourth embryo is normal. He thinks this is "just his luck". In some ways, DH and I were born under lucky stars, but in some ways, we most definitely were not!)

Anyway, I'm really curious about your test results, and keeping FX that your meeting with the genetic counselor is informative. I hope you have a batch of all good ones!

I have also never heard of endometritis. But I have recently heard a few stories of women with infections that they had very few symptoms for, so you never know. Totally different, but a woman I know had no pain or burning when urinating, nor did she feel a need to pee, and then one day totally lost control of her bladder. Turns out she'd had a bladder infection that presented no symptoms until it was quite far gone.

Also, I'm glad your pregnancy was not ectopic, but I'm also sorry that your beta numbers are inconclusive. Obviously, I'm hoping this embie is miraculous and somehow recovers, but I know that's unlikely. Preparing for the future is what I'd do too.

@mirabelle33 - Wow, that is a lot to take in. I'm so sorry. And that is a long wait - I think at my clinic, the doctors meet like once a day to discuss patients. Once a month plus a whole month off? Some things are not better in Europe!

Anyway, keeping FX that the next month goes quickly, your meetings in July are smooth, and the time passes quickly during the wait to cycle!

@wishing-and-hoping - ooh, stimming! It will go by so fast! FX!!!

AFM: Not much new here. Still mentally and financially preparing.

QOTW: I do love a grilled cheese, but then sometimes I'm in the mood for cucumber and cream cheese, or a veggie sandwich. And now that it's summer, we've had a few more hamburgers. I know that's not a traditional "sandwich", but on a summer evening, it's pretty nice to have a sandwich fresh off the grill.

emmasemm · June 2018

Hey ladies- sorry was a crazy week, again!

@funkykey I’m hoping the weeks will fly by and September will be here before you know it. We have most cycles another discussion about odds and how they apply to us. We often feel like if there is something that happens to 1 in 1000, then we are that 1...

@wishing-and-hoping hope your DH gets on the boat to “I’m fully supporting IVF” land soon! Once you’re started then you just get so in the rhythm that any previous thoughts of if it’s right or not should be forgotten

@mirabelle33 wow that’s quite a week, no wonder you needed to think on it a while. Did they also test your vitamin D levels? If it’s too low it can impair AMH and make it look falsely low. Your FSH is definitely a bit higher than you would like - but was it a true day 3? It’s also not crazy high. And you AFC and response sound quite good in general. Still in the average range at least. But getting an early lead follicle is one sign of potential DOR as your body not only pumps more FSH out but also earlier in the cycle. So the picture doesn’t fully match up.
I was only advised to have surgery after we’ve finished egg retrievals and banking embryos. There’s always a risk with surgery that ovaries might be damaged.

@bababatty so so sorry Your limbo continues. Hope the follow up showed the progress you want and need.
It’s good you have the tasks to do to help feel like you’re moving forward.

AFM well we did a CD2 baseline, which was totally crazy.
Right ovary showed no change to two weeks ago so we think it doesn’t actually really respond at all. Left ovary was hiding. Then when they found it there was nothing showing on it and they weren’t even sure it was an ovary or maybe thought it was a myoma. It took three OBs and they still weren’t sure... But I have lots of scan pictures of gray blobs. Then my lining was once again not clearing properly, probably the polyp from last cycle still lurking. But with no follicles I expected them to cancel this cycle.
Then the lab called to check some things from my BW. Then they rang again because they wanted to check again. My progesterone was literally undetectable, whilst it shouldn’t be high it should be higher so we definitely have a problem there to deal with when we eventually get to transfer. My estrogen was 19, which is ok for CD2. My LH was borderline LP/FP which indicated I was more early CD2 than later. And then my FSH was under 4!!!!! I have never seen my FSH below 14 before. I wasn’t sure what the clinic would make if it - but it turns out they were super happy! They hope the priming has worked better this time, that the first FSH my ovaries will be exposed to will be the stims and that this is our best chance to get a bumper crop. But! There is a risk my ovaries don’t wake up properly this month as they are so deep in slumber...
So we have monitoring on Monday and see whether we proceed or not depending on follicles appearing and change in E2...

kristimh80 · June 2018

@emmasemm You poor thing! So sorry you're having to go thru all of this right now! You are in my thoughts...I hope Monday brings good things for you!

mirabelle33 · June 2018

@wishing-and-hoping haha yes I had the exact same thought when she first told us the date of their monthly meeting! I wish we didn't have to wait to find out there decision until after my appointment with the genetic oncologist, but I know it's important to address that issue too. Thanks for the tip on the low AMH thread. I'm actually working my way through it now and plan to jump in once I'm caught up!

Sorry DH isn't fully on board with IVF yet. I hope that he will get off the island soon and join you in stim land

GL if you do start next week and keep us posted on how it's going!

@funkykey Thanks for your good wishes. I'm laughing (re: crying) about the doctors at your clinic meeting once a day to discuss patients

I don't see that ever happening here. Having the lab closed in August is a pain, but I've been here long enough to know how it works and I expected something along those lines. I really shouldn't complain though since French social security covers the vast majority of the expense and we probably wouldn't be able to afford much treatment in the US.

I hate that you feel like whatever is causing your IF feels insidious. As much as our diagnosis stings, I can understand how being unexplained is more difficult to deal with in many ways. I truly hope that either DH is right and your fourth embryo is your lucky charm or that they find the reason for your IF and can treat it properly. Sending [[hugs]].

@emmasemm I've never had my vitamin D levels checked, but now I wish I had done it last January. We had a terrible winter this year and I'm not exaggerating when I say that we didn't see the sun from Christmas until the end of February, so I wouldn't be surprised if it was low then. However, I did start taking 4000ui of Vitamin D daily in March and I imagine my levels were fine when they tested my AMH in late May. I suppose it couldn't hurt to have it tested though and maybe I'll ask my GP when I see him again for acupuncture. As for the blood work, I technically had it on day 2 this time. The RE didn't seem too concerned about my FSH level and she said that it fluctuates and isn't as set in stone as the AMH level (she was pretty adamant that this does not change). The thing that bothers me though is that when I had day 3 blood work (in this case, I think it was day 4) last September, my FSH was only 6.2. My OB did not check my AMH or do an AFC count at this time. I then went on to do 4 cycles of Clomid with her but without monitoring (I was naive and hadn't found TB yet). The first 2 cycles seemed fairly normal, although my LP was only about 10 days (she asked me to temp so that's how I know when I ovulated). This seemed to fit with her diagnosis of "weak ovulation" and for the 3rd cycle I added progesterone after ovulation. This did extend my LP, but then something weird happened and I ended up ovulating very early (day 8) on the 4th cycle. After that disaster, we immediately switched to FSH injections for 3 cycles and I always responded fairly well and on low doses. My OB never mentioned any signs of DOR after frequent monitoring of my ovaries for 3 cycles + she did an ultrasound on day 5 after the 3rd cycle to check for the cyst and never mentioned a low AFC. I realize there is definitely something going on with my ovaries/ovulation, but like you said, the picture doesn't fully match up with DOR. I guess at this point, all I can hope for is that they agree to let me try IVF and that I respond better than I should on paper. I'm glad to hear the advice you received to wait for surgery lines up with my research and gut feeling about it. Do they suspect endometriosis in your case or would the surgery be for something else?

I'm sorry you had so much trouble at your baseline, but will definitely be keeping my fx that the clinic is right about the priming and that you get a good response from the stims! You are certainly way overdue for a break and some good news. Will be thinking about you tomorrow!

Worldtravler0522 · June 2018

@Bababatty I'm so sorry to hear what you are going through. I was secretly hoping in my absence that you and @funkykey would have graduated. Sending lots of thoughts and prayers to both of you that your stay is not much longer.

So sorry I've been MIA but I've kind of been in a holding pattern. A quick update/summary of where I'm at.... I upped my Metformin in early May which resulted in horrible stomach issues but it also gave me my first spontaneous period in years, yay! Also, it helped me ovulate for the first time to my knowledge. I suppose I will just muddle through the horrible stomach trouble because of the results I'm seeing. Now that I got a positive OPK we scheduled a hysteroscopy for this Thursday. The recurrent pregnancy loss dr swears there's an issue with my uterus so she is hoping this will give us the answer. I'm hopeful we get a final answer and we can come up with a new plan to move forward. I'm not going to lie I'm really nervous for the hysteroscopy but I'm assured it's not a big deal... Now that we are sort of back on track I'll be around a little bit more. Hope everyone is doing well!

ChristenMA83 · June 2018

@Worldtravler0522 I did a Hysteroscopy last Tuesday and they removed some scar tissue. I returned to work the next day. Had some mild cramping the next couple days, but nothing more than a typical period. I'm still spotting a week later, but they said that could continue for up to two weeks.

wishing-and-hoping · June 2018

@Worldtravler0522 i agree with @ChristenMA83 the hysteroscopy is not bad - my main symptom was feeling loopy from the anesthesia for a few days afterward. I had some cramping (especially right when I woke up) and spotted for about 4 days I think. A little tenderness in my lower abdomen as I'm sure they were palpating and moving things around to access my crazy cervix. It's always a little daunting going into these procedures but you'll do great and I hope it gives you some answers.

Worldtravler0522 · June 2018

@ChristenMA83 and @wish-and-hoping thanks for the info!! I'm actually not being put under for the procedure

I'm just getting some valium type of drugs and some numbing of the cervix. Also, not sure it will happen now because they made me get my blood redrawn to just make sure I ovulated. Ughhhh! Always waiting...

kristimh80 · June 2018

@Worldtravler0522 I never had any Valium or anything like that for my Hysteroscopy's. I always take 600 mg of tylenol 45min - 1 hour before and always fine. Did the same thing for my ERA biopsy and was fine. I could have returned back to work right after. So try not to stress too much over it

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