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LEO09 · March 2018

PLEASE IGNORE. I have been told I should not have posted this here, and I haven't found a way to delete...I apologize to all for the inconvenience. I promise this will be my last post

so no more errors and clutter on your message board from me!!

Just hoping to compare notes here.

I have an underactive thyroid, but I take medication for it (Synthroid). I got pregnant last October (miscarriage in December, though), and I asked the doctor's office immediately how/when my levels should be monitored (at the suggestion of my primary care doctor). They never wanted to check them. After my D&C I asked again if my thyroid levels needed to be checked (I figured the hormones coming and going could be affecting it). Still they said no.

Now that I am pregnant again (6 weeks 3 days today), the same doctor's office had me come in earlier at 6 weeks for an early ultrasound after HCG level checks during Week 4. I saw a different doctor after the ultrasound, so I asked my same questions about my thyroid. THIS doctor told me we probably need to get it checked now since most women's dosages increase in the first trimester. I had the blood drawn...

They called the next day saying the doctor wants my dosage increased. When I finally got the results of the blood work, though, all my levels were well within the normal range. I have read many articles saying it can be beneficial for dosages to be increased before Week 8, but it still seems odd to mess with something that is already looking good. I haven't had to change my Synthroid dosage in probably 8-9 years, so it just feels a little odd.

It also feels odd to have two doctors from the same practice have such opposite reactions/advice on even testing my blood!

Just wondering if anyone else has any info or experiences with all this?

cdepperschmidt · March 2018

So this is my experience. I’ve been on thyroid medicine for eight or nine years now. My dose has never changed. When I was pregnant with my son my Endo checked my thyroid levels during the first trimester and again during the second trimester. It was fine both times and then they saw me again after my pregnancy.

This time around, I have a different Endo. I called them as soon as I found out I was pregnant and they got me in to be checked immediately. My numbers are fine, but they had me increase my dosage by one pill one time per week. My Endo said it would give me a little added boost since many women have to up their dose during pregnancy. This Endo also wants to check my levels monthly.

kiwi2628 · March 2018

Honestly, 20 people could come on here and tell you about their experiences, but it may have no bearing on you and your experience. The best advice for medical questions will come from a doctor, and if you are second guessing your own, I would seek a second opinion; ideally from someone trained to deal with this (like a reproductive endocrinologist, or if unavailable, simply an endocrinologist) as they have far more experience and expertise than a PCP or OB.

Also, we do have an entire thread already dedicated for people to ask questions for any future questions so the board doesn't get filled with everyones one-off questions.

LEO09 · March 2018

@kiwi2628 Thanks. I'll try to get this removed, and I'll go ahead and stop posting on these boards (if I can remove all my additions, I promise I will...just no clue if it works like that). There are so many rules. I've read the rules 3 times, and, honestly, it's not worth it. I find it interesting to hear people's experiences or to see what they're dealing with (beyond what foods they miss or random things they want to complain about the for the week...which I've never found as helpful).

I honestly thought thyroid conditions + pregnancy would be general enough to warrant its own page. Funny part is I really did think about it before posting scared I was doing it wrong. I should have known there would be one specific place for one specific thing. It was just an attempt to hear people's stories. Thyroid conditions are so common. But now I feel embarrassed and shitty I didn't follow the rules. Yay! What a great addition to morning sickness.

This probably sounds not how I mean it either. Yes, I know one of the rules was not to be upset when someone tells you you're not following the rules. No hard feelings or anything. I'm not really even upset. I fully accept responsibility for misinterpreting l the rules. Just not the place for me when I already feel so awful and don't need to feel worse here.

Best of luck to all. I've found pregnancy to be one of the most isolating experiences of my life (probably the most) with its whole range of emotions. I hope the best for everyone on here!

LEO09 · March 2018

@cdepperschmidt
Thank you SO MUCH for sharing your experience!! It was pointed out to me I shouldn't be posting this here, and I didn't want to further the conversation (Going to see if I can delete everything now). I did want to thank you first, though. Best of luck to you in the coming months!

kiwi2628 · March 2018

@LEO09 theres no reason to leave. Its simply a fact that no one here can (legally or reasonably) advise you on medical matters. They can share their experiences, but again, one persons experiences may have no bearing or may be exactly opposite of yours, and neither may be incorrect, so it can cause more stress and concern to compare. I can tell you on the IVF board I was on, we could compare and contrast protocols, but we could never say 'does this sound normal' because for every person who said 'yes, that sounds like what I did!' there were 20 more who said otherwise.

Pregnancy doesn't need to be isolating- these board have been a godsend for me the past 2 years TTC/dealing with infertility. On boards you live and learn and nothing will be held against you or anything ridiculous like that unless you make it so.

sammierose464 · March 2018

@LEO09, I think @kiwi2628 is just trying to make you cautious about asking medical related questions. Especially with something so important as your thyroid. Honestly, if I was questioning my OB's feedback I would seek out a different dr or an endocrinologist to confirm. It's not that you did anything wrong, she's just pointing out that asking this kind of question could get you advice that is harmful, or no advice at all because people don't feel comfortable.

Please don't feel like you can't post here and that you're not wanted. You are encouraged to ask questions, but we do have a "questions thread" to help group some of them together.

sammierose464 · March 2018

A great example is the PCOS thread I start monthly. My dr just took me off a med, but someone else's dr encouraged them to stay on the exact same med. It differs for us both why we are on it, what our doctors believe, and our own beliefs of the medication. I wouldn't ask someone else what they take for a similar condition if my dr was telling me otherwise.

muchwanted · March 2018

I think comparing notes on this sort of thing is just fine. I've been with four different REs and all of them have managed my mild hypothyroidism differently, which can be confusing and distressing. I'm not really worried about it at this point, but OP seems to be, so I think shaming her for asking about it is unwarranted.

So. This clinic is the first I've been at that had me change my Synthroid dosage with a positive beta, before they'd even checked my TSH. However, my endocrinologist told me years ago that this is often recommended, because most pregnant women do require a higher dose. That said, my TSH hasn't jumped with all of my pregnancies - in one it actually fell - so I get why most wouldn't do this as standard practice.

Mild hypothyroidism, especially if relatively well managed with meds, is unlikely to cause problems in early pregnancy, so try not to worry too much.

LEO09 · March 2018

Seriously, guys, I get it! I 100% understand. I find the rules confusing, but I do understand why this was not the place for for asking for others' experiences out of curiosity. I can't find a way to delete it, so I tried to put IGNORE everywhere I could. Maybe you pros have a way to get an admin's attention to delete it?

Otherwise, I'm out...and won't be responding anymore! And it's not out of hard feelings. I find everything on here difficult to find and stuck in between such random stuff that I just don't find helpful or interesting. It's all good. I just don't feel like going through the decision process or figuring out where and what to post or what's okay. I'm no expert on any of this like so many of you guys. It's wonderful that you find comfort here. I was hoping I would, and I didn't. That's how it goes! It already took me two pregnancies to get the nerve to start posting anyway, so I don't think this was ever for me.

Oddly enough, I can't even find where to delete a Bump account! HAHA! Now I'm just feeling like an idiot! :-D

DunkinDecaf · March 2018

This was the most polite and friendly GBCB I’ve ever seen.

knottieamusements · March 2018

@LEO09 - For what it’s worth- I would likely also have posted this as a stand alone thread. There aren’t really hard and fast rules about who can start what threads, and there really isn’t any firm guidance about what is a small question vs. a big question- we all get to make a judgment call on that.

Regarding your doctor’s advice, I also agree with getting a second opinion if you are uncomfortable. I will point out that just because two doctors are in the same practice, it doesn’t mean they will necessarily have the same approach to certain issues. But if you don’t like/trust your doctors, you should look to change now rather than the middle of 3rd trimester- no reason to spend six months stressing over someone you don’t like.

cdepperschmidt · March 2018

@LEO09 I don’t think you were in the wrong to think this was single thread worthy. The questions thread is just getting started and it definitely gray what goes there. No need to
leave either, this board is actually full of a seemly nice group of ladies.

In in terms of medical advice. I think it’s best to consult with the doctors. However, it doesn’t hurt ask to ask for people to discuss their experience. I know thyroid issues are linked to MC and I’m sure after a loss you’re especially worried.

estellegetty · March 2018

I would have 100% posted this as a separate thread. Big, disorganized “question” threads are not efficient and who decided that was how this BMB needed to work?

As far as medical advice, yeah I’m not a doctor and so I can only tell you what I would do — get a second opinion from a new endo.

I hope you don’t leave over something this silly! I agree the bump is not the easiest site ever (forget the app!)

ashin121 · March 2018

@LEO09 I totally would have made it a separate post from the questions thread too. Ive been part of 6 birth month groups and I've never seen a general questions thread. There's no hard fast rule that you can't post it. I find the questions thread disorganized with so many questions going on at once with tons of people answering different things that I've stopped reading it. Some people like it though so each their own.

I don't see how this is different from the PCOS thread asking if your Dr is doing anything different with treatment or the mental health thread asking if everyone is going to stay on their antidepressant or the influenza A thread asking if taking Tamiflu is ok or the genetic testing thread asking if people are going to do it and if it's covered. Later there will be a gestational diabetes thread and a pre-eclampsia thread, an abnormal NT ultrasound findings thread , a what prenatal vitamins are you taking thread , or extreme MS thread comparing meds that were prescribed or tips to help it , contraction, headache , positive group b strept thread- all threads people are asking about what their Drs advised or are doing.

I understand and agree with everyone on the dangers of trusting here over medical advice though. I'm a medical professional and I won't answer the questions because I don't know your history. I agree to get second and third opinion from different doctors if you don't feel comfortable or are confused. You can ask your Dr to explain too and they will gladly do it.

Who cares what threads get started - is what I'm getting at. There isn't a limit of number of threads you can post on the bump. If you don't like the thread just don't read it.

norahkate · March 2018

For what it's worth (and I apologize @LEO09 because this does not relate to your original post) I appreciate this thread so much! I almost walked away after reading the "rules" posted for our board because it seemed fairly combative right from the start. (i understand that it was borrowed from another board and that it addresses some issues easily, so why recreate the wheel, but it just did not seem welcoming...i would certainly be nervous about starting a thread at all just from that). Glad that i decided to give it shot though, because this group of ladies seems so great and supportive already, and this thread really shows that. And to be honest, my only complaint as far as posts here go is that i wish there were a few more...but maybe that is just because I have a lot of down time at work. I have been part of a different group before but it had so many threads and there seemed to be a lack of connection and a ridiculous amount of drama, so i guess maybe there is a middle ground out there somewhere, but this definitely gets closer to my comfort zone.

sammierose464 · March 2018

@norahkate I think as we get further along we will see more posts come up. I really like some of the general discussion ones, like BF, FFFC, Randoms, THankful etc. They tend to spur fun conversations that are easier to get to know people and interesting to read.

cdepperschmidt · March 2018

@norahkate I’ve really been enjoying this board too! I think we have good structure, but it’s not too strict.

knottieamusements · March 2018

My thing is that the multiple conversation threads allow a lot of different conversations to happen simultaneously, without everyone starting a new thread because they puked on their steering wheel this morning, or found the cutest shirt for big brother! It’s kind of like walking around at a big party and joining different conversations before wandering to the next group.

I lurk in some other BMBs on different sites, and I hate them, because there is no cohesion- just random complaints, and often the same complaint from three different people in five different threads!

cdepperschmidt · March 2018

@knottieamusements Yes! That’s how Infeel about baby center.

sammierose464 · March 2018

I'm in a few FB groups and I tend to not even read them. I'm so over seeing ultrasounds with "who's good at Ramzi theory?!?". I like these because there's some sort of organization to conversation.

knottieamusements · March 2018

sammierose464 said:

I'm so over seeing ultrasounds with "who's good at Ramzi theory?!?".

So I kept seeing that question and had to Google it. I now find that question even more laughable. Seriously- without a lot more information from the poster, there is no way any rando on the internet is going to figure it out. And if the poster actually had the relevant information, they’d already know the answer to the question!

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