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May 2018 Moms
hotmessmamax3
member
Blake Pouch Cyst in Ultrasound
hotmessmamax3
member
I just got a call from my midwife that they found a Blake Pouch Cyst in the baby’s brain in my 20 week ultrasound last week.
I have to go next week to a more specialized ultrasound office. In the meantime I am completely freaking out.
She said it could be a potential marker of downs, though they saw no other markers. They won’t know much more until they do another ultrasound. Has anyone had any experience with this?
I started googling but ended up with lots of medical journals and then I also realized I am probably going to freak out even more by googling.
I have to go next week to a more specialized ultrasound office. In the meantime I am completely freaking out.
She said it could be a potential marker of downs, though they saw no other markers. They won’t know much more until they do another ultrasound. Has anyone had any experience with this?
I started googling but ended up with lots of medical journals and then I also realized I am probably going to freak out even more by googling.
Re: Blake Pouch Cyst in Ultrasound
I am still waiting to have it scheduled, which is just adding to my anxiety. I hate not having information and playing the waiting game.
My mom did do some research and found that the cysts are rare and easily treatable. I still hate the possibility of a newborn needing any kind of surgery but I am feeling less fearful that this could have fatal results.
Married: 8/22/15
BFP #1: 8/22/17 | DS: 4/20/18
BFP #2: 7/14/19 | EDD: 3/18/20
Have you spoken to a perinatologist? Or a genetic counselor? If not, I recommend ask to speak to one pronto.
From all I've learned about cysts on the brain, in the absence of any other abnormality or pause, your risk for a trisomy issue isn't that much increased than it was without the cyst. That's why I say talk to a perinatologist or genetic counselor. You can also elect to go for the serum genetic test. Your insurance might cover it now that there is "cause".
Good luck!
So far no other markers have been found. There have been no other abnormalities but they also didn’t get all the images of the heart they needed because they baby wouldn’t get in the right position. They told me at the ultrasound I would probably have to come back for another ultrasound because they didn’t get enough images of the heart but didn’t mention seeing anything abnormal on the scan at the time.
I’m a mess about it but my husband is keeping things calm. I have only told him and my parents (and obviously this board). I feel so fragile and overly emotional- I know I need to stay positive but I can’t help but feel scared.
DS born 3/11
Angel Baby 3 6/28/11 9/5/17 BFP!!
divorced October 2014 9/6/17 hCG 88 progesterone 9.1 (prometrium started)
Married DH 10/15 DH's DS born 6/09 9/8/17 hCG 242!!!
Not preventing since 11/15 EDD 5/8/18 Adjusted 5/15/18
TTC since 1/1/16 9/27/17 we have a heart beat!
Married June 2012
BFP June 2013- blighted ovum, D&C Aug 2013
BFP Oct 2013- twins! A&H born May 2014
BFP Aug 2017- EDD 5/8/17
I was told we will get to meet with the doctor or a genetic counselor.
The news of an issue with the brain hit me hard because my best friend lost her baby shortly after birth due to a birth defect related to the brain. Her prognosis was always fatal and the little I know about ours it looks to be a minor issue. I think I am just extra sensitive to it because of her experience.
My mom made the point that with the advances in technology they are able to see so much more, so much earlier and they often times resolve themselves.
I am hoping today brings some answers to ease my mind. I have no idea what questions to even ask. My husband is usually good at asking a ton of questions though but if anyone has any recommendations of questions let me know.
Where in the brain is it? +Ask them to write down the name of the neural structure.
Had the size changed since the last scan?
Is it only a marker of downs or can it cause issues on its own?
Is surgery indicated in these cases?
Just a starting point.
So 24 hours of panic for something that wasn’t there! I am so incredibly greatful! I am so glad they got me in today so I didn’t have to worry unnecessarily for a week.
Thank you to everyone for your kind words and support here! It help tremendously!
Married June 2012
BFP June 2013- blighted ovum, D&C Aug 2013
BFP Oct 2013- twins! A&H born May 2014
BFP Aug 2017- EDD 5/8/17
DS born 3/11
Angel Baby 3 6/28/11 9/5/17 BFP!!
divorced October 2014 9/6/17 hCG 88 progesterone 9.1 (prometrium started)
Married DH 10/15 DH's DS born 6/09 9/8/17 hCG 242!!!
Not preventing since 11/15 EDD 5/8/18 Adjusted 5/15/18
TTC since 1/1/16 9/27/17 we have a heart beat!
Dating since: 11/17/2001
Married: 9/26/2009
TTC: June 2016
EDD: 5/14/2018
I feel so truly lucky- especially having several people close to me who have had to go for a follow up scan and have not left with such positive news. I reminds me not to take things for granted!
It may sound weird but I was less scared of the possibility of a Downs marker and more concerned about the baby having to have surgery on their brain. I don’t know the challenges of having a child with Downs but felt our family would be able to handle them but the idea of a tiny baby having surgery terrified me!