HG Check in Week of 10/8

mileswithmyles · October 2017

How is everyone feeling this week? Feel free to share how far along you are, if you’re taking anything, and any coping strategies that are working for you.

firefliesandfjords · October 2017

Taking B6/Unisom, phenergan, and zofran. But I'm struggling because I need zofran round the clock, and my insurance only covers 12 pills every 15 days. I had to go to ER for fluids on Friday, and will probably have to go in again today. I can't keep down my oral meds, I have no zofran and can't afford to pay out of pocket, and I throw up even the tiniest sip of water. I've lost 8 pounds (2 and half since Friday). Ketones were 2+ at my ER visit. Probably will be worse this time. I hate HG.

abbykm7 · October 2017

@firefliesandfjords Call around to different pharmacies- CVS had a "coupon" so I could get 30 zofran for $30 if I didn't go through insurance but with insurance they were $9/pill. So stupid. Luckily I live in a small community and my pharmacist remembers my struggle from my first kid so she figures this stuff out for me.

I ended up getting a zofran pump last week and its main benefit is I don't have to constantly figure out how to get my pills. My insurance didn't pay for the pump with my first kid.

mileswithmyles · October 2017

@firefliesandfjords that’s crazy that it’s that limited! Hopefully you can get some relief. My OB said I could also go to urgent care for fluids if I needed it. Do you think your OB, the ER, or urgent care could give you “samples?” When DH didn’t have insurance a long time ago, the doctor gave him a bunch of the samples/individual packs of meds to help him out.

@abbykm7 how does the pump work?

I’ll be 11 weeks tomorrow. I’m taking Unisom at night and 50mg of B6 twice a day. I’m also taking Phenergan 25mg every 4-6 hours. I’ve almost burned through my first prescription of 60 pills, and I’m hoping I don’t run into any insurance issues with a refill. It’s helped a lot. I still throw up once or twice a day and am nauseous/having aversions, but I’m far more functional. The meds make me really tired, but that’s easier for me to manage. For some reason, regular Coke helps settle my stomach, which is something I never drink.

kat11223344 · October 2017

abbykm7 said:

@firefliesandfjords Call around to different pharmacies- CVS had a "coupon" so I could get 30 zofran for $30 if I didn't go through insurance but with insurance they were $9/pill. So stupid. Luckily I live in a small community and my pharmacist remembers my struggle from my first kid so she figures this stuff out for me.

I ended up getting a zofran pump last week and its main benefit is I don't have to constantly figure out how to get my pills. My insurance didn't pay for the pump with my first kid.

Yes this! My insurance is the same- 12 pills for 15 days was not going to cut it! Goodrx.com has all the coupons for the different drugs. Zofran was super cheap with their coupon at Costco and Kroger.

bearwithme · October 2017

I think I go here? They haven't officially given me an hg diagnosis, but this feels like I'm beyond typical morning sickness at this point.

Went in for first round of IV fluids on Thursday. I've lost about 7lbs since 5 weeks pregnant (I'm 11 weeks tomorrow) but "didn't have that much weight to spare" per my OB. I dry heave daily and at least every other day actually vomit. Blood work showed some abnormal levels (sodium, potassium), and my lipase was high whichever triggered a us of my gall bladder, liver, and kidney. Some hydronephrosis and another blood draw Friday to monitor lipase levels.

They gave me a prescription for diclegis and that seems to take the extreme edge off so I can at least tolerate small amounts of foods. Liquids make me want to vomit when I even think about drinking them. The food and smell aversions are so strong I hate walking through my kitchen and my husband has to feed our son. And I have to lock myself away in our room if he's cooking.

Ive got phenegran for days when it's worse, but I can only take that when someone else is home because it completely wipes me out.

Im just exhausted from being so sick and I hate that I'm missing so much work. I was sick with my first, puked maybe twice- but this is a whole new level of suck.

mileswithmyles · October 2017

@bearwithme that sounds like HG to me. I didn’t even realize I had been diagnosed last time until I went through my medical records from DS.

Today is the first day I’ve had real coffee and I think I might have to go back to drinking a cup a day. It’s the first time I haven’t felt exhausted from the Phenergan. I can’t cook either because of the smells and because even thinking about most meat is a problem for me.

DSDavison · October 2017

I haven’t officially been diagnosed but have been getting sick anywhere from 3-9 times daily. Even the tiniest sip of water makes me sick. I’ve had to get fluids 2 times now and have lost 10 pounds in less than 4 weeks. I find I feel great the day after getting fluids- too bad I couldn’t get them daily! I have samples and a prescription for medications but am being extremely stubborn about taking anything. I have been doing acupuncture a few times a week- I can keep down 1 meal following the treatment but that’s about it. Drinking room temperature water is my only hope of keeping it down. Good Luck ladies- this will all be worth it when we are holding that adorable baby!!

mileswithmyles · October 2017

@DSDavison take the meds. I was so resistant with DS and I wish I hadn’t been.

bearwithme · October 2017

mileswithmyles said:

@DSDavison take the meds. I was so resistant with DS and I wish I hadn’t been.

Stuck in a box. But what she said- take the meds!

bearwithme · October 2017

mileswithmyles said:

@bearwithme that sounds like HG to me. I didn’t even realize I had been diagnosed last time until I went through my medical records from DS.

Today is the first day I’ve had real coffee and I think I might have to go back to drinking a cup a day. It’s the first time I haven’t felt exhausted from the Phenergan. I can’t cook either because of the smells and because even thinking about most meat is a problem for me.

I need to request my meds from my precious OB. They did a lot of things that I'm now finding out "aren't the norm" and in curious as to how this new practice will differ. For example, we weren't even offered genetic screening beyond the quad screen because "you're young and healthy" and we didn't do an NT scan at 12 weeks either. She also prescribed zofran from the start- this new practice won't consider zofran yet.

Also- I'm in awe and a bit jealous of your cup of coffee. I havent had coffee since about 4 weeks pregnant and I miss it so, so much. I just can't even stomach the thought of it right now.

mileswithmyles · October 2017

@bearwithme I haven’t been able to stomach it until today. It was a Latte freeze from Costco and it was delicious.

loko08 · October 2017

I'm still puking 5-10 times a day with the meds (Zofran, unisom/b6, phenaragen). Fainted this morning so now I'm waiting to hear back from my OB if she wants me to go to the ER for fluids or if she can put in an order at the infusion clinic. I'd much prefer the clinic because then there's no ER copay.

last time I did IV fluids 2-3 times a week until I was 12 weeks, but I didn't start until I was almost 9 weeks. I'm just over 7 weeks at this point, so I'm hoping starting now will make a big difference. Luckily I have no meetings today so I can work from home and my MIL is here with my DD.

It could be so so much worse, but I just feel like I'm in a depressed place right now and can't really enjoy anything.

bwow615 · October 2017

so sorry for all you ladies suffering these debilitating symptoms, hoping you all start to get some relief soon!

bearwithme · October 2017

mileswithmyles said:

@bearwithme I haven’t been able to stomach it until today. It was a Latte freeze from Costco and it was delicious.

That actually does sound kind of yummy. I ventured out and got a tea from Starbucks today and it was pretty decent.

I'm thinking I need to up my diclegis to two at night and one in the morning. By lunch time I start dry heaving again. I had blood draws on Friday and I heard back from the OB. My levels went from 119 (too high) to 37 (within normal limits) from Thursday to Friday. The suspect it's because I was so dehydrated and vomiting so much. So that's good news, I guess.

abbykm7 · October 2017

@mileswithmyles the zofran pump is a continuous infusion of zofran through a subcutaneous needle I leave in my belly. I carry a fanny pack with the actual medicine pump and bag of zofran in it with the tubing hanging out.

beckles112 · October 2017

This is my second HG pregnancy and I feel like it's worse this round. Im eight weeks and I'm so over this. I went for fluids last week and feel like I could use more. My doctor and I were hoping we could stay on top of it since we know how pregnancy affects me, but no such luck. I'm taking zofran right now. Nothing else has helped. I still feel basically useless. If I move too much I puke, so I pretty much just lie around which is hard with a toddler.

firefliesandfjords · October 2017

Got my zofran covered! It took two ER visits in three days for fluids for my insurance to realize they'd save a ton of money if they'd just give me the damn pills. My doc is also setting me up with an infusion center for regular fluids. But I can eat and drink now. Such a relief considering the weight loss and high ketone levels I was dealing with.

mileswithmyles · October 2017

@firefliesandfjords yay!!!

kimber308 · October 2017

Tuesday I spent 12 hours in the hospital. I needed 3 bags of fluids and lots of meds. Boy do the meds work so much better when given through an IV. I really want an IV to take home. UGH. HG is rough.

Today on the other hand, is the first day I feel almost normal. I'll take it. I've vomited so many times in the past few weeks, and I know it will be back. I drank SOOOO much water today. It was like a delicacy. I missed that. Dreading the anxiety I feel every morning when I wake up and find out how bad my day will be.

bearwithme · October 2017

@kimber308 I'm glad you get to experience some normalcy, for however long that lasts.

And the anxiety in the morning is horrible- I usually wake up and just wait... wait for it to hit me. I hope the meds continue to work for you and you can continue to feel like a human being again.

abbykm7 · October 2017

bearwithme said:

@kimber308 I'm glad you get to experience some normalcy, for however long that lasts.

And the anxiety in the morning is horrible- I usually wake up and just wait... wait for it to hit me. I hope the meds continue to work for you and you can continue to feel like a human being again.

I have heard that medications in combo are more effective than any single one alone. But I pop a lot of pills twice a day plus my pump. Also see if your doc can set you up with an infusion center. I can go in anytime and usually do twice a week for 3L. It’s cheaper than an OB visit or the ED on my insurance.

bearwithme · October 2017

Good advice @abbykm7! I'll look into that- thanks!

beckles112 · October 2017

Pretty sure I'm going to have to go in for fluids again soon. My pee was almost brown this morning. Uuuuuuuugh

kimber308 · October 2017

I'd go in sooner rather than later. My doc told me when I went I had dangerous levels of ketones. You want to avoid that.

beckles112 · October 2017

I actually ended up having a really good day that day and was able to get my fluid intake up! I don't want to jinx myself cause it can turn at any moment, but I feel like it's beginning to ease up a little.

mileswithmyles · October 2017

@beckles112 little victories! Yay!

kimber308 · October 2017

With my first it ended at week 13..... we are slowly getting closer............. we at least aren't getting further away from feeling better. I tried to keep this in mind this morning while vomiting.

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