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Cystic Fibrosis

zseirecargzseirecarg member
in June 2017 Moms
My rollercoaster continues. I found out today that I am carrier for the Cystic Fibrosis gene. DH now has to go get tested, if he is also a carrier there is a 25% chance our little lady could have it. Does any one have any experience with any of this? I have done a little research and found that while things are different with treatment a infant/child/person can live a normal life. Being pregnant is not helping me handle all these emotions I am feeling  :/
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    Stankonia2014Stankonia2014 member
    No advice, just hugs! FX DH isn't a carrier. Please keep us posted.
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    zseirecargzseirecarg member
    @Stankonia2014 thanks, hugs are definitely needed.  <3

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    c1tym0m22c1tym0m22 member
    More creepy internet stranger hugs coming your way!!!
    Me 37, DH 40
    BFP #1 6/13 DD 3/14
    Mirena 10/14-5/16
    BFP #2 9/2/16, CP confirmed 9/8/16
    BFP #3 10/10/16 EDD 6/22/17
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    krex-2krex-2 member
    Ugh, what a roller coaster!  Huge hugs coming your way!

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    mombodmombod member
    Im sorry you have this stress. No advice but fx your h isnt a carrier.
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    mirdamae03mirdamae03 member
    FX you get nothing but good news here on out!
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    wifeinraleigh28wifeinraleigh28 member
    I'm so sorry. It's unlikely your DH is a carrier. Fingers crossed and I'll join this giant creepy cyber group hug we have going on here!
    ***BFP & Child Warning***

    Me: 34, DH: 38 ~ TTC since 2014
    IUI #1-3 (Nov 2015, Feb 2016, May 2016) = BFNs
    IVF ER (July 2016) = 7 PGS normal embryos
    FET #1 (Sept 2016) = BFP! DD born 5/30/17
    FET #2 (April 2019) = BFN
    FET #3 (July 2019) = BFP! DS born 3/27/20
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    MotherofDragons MotherofDragons member
    How long will you have to wait for your husband's results? I hope not long and that you're able to get some good news. Sorry you're so stressed about this. 
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    zseirecargzseirecarg member
    @MotherofDragons it took 15 calendar days to get my results back - so I am assuming the same for his. I honestly forgot about my results and figured it was a no news is good news situation since I was busy thinking about the NIPT results that I took  two days after this test and found out the results on Monday. DH couldn't make it to the doctor's office today and is planning on going first thing in the morning but we are supposed to get a foot of snow between 1a tonight and tomorrow end of day so we will see if he is able to go or not. If not he will go first thing Monday since they don't do the genetic tests on Fridays.

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    anitamargarita_82anitamargarita_82 member
    Stay positive!  I know it's hard.  Keep your head up and pray for the best.  
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    huskermom14huskermom14 member
    I'm sorry you're stressing. I know that's such a scary thing to be thinking about. Hang in there, lady. Big hugs!!
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    Knottie42089123Knottie42089123 member
    Giant creepy sticky with BO internet group hug!! If it helps at all one of my hs friends has CF and is living a very full life as she approaches 40. 
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    zseirecargzseirecarg member
    @Knottie42089123 thank you - that does help!
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    Kylieslip24Kylieslip24 member
    Back when I nannied, I worked for a lady that found out while she was pregnant with her second that her and her husband were carriers. Both her kids ended up being totally healthy and after her baby was born she got her tubes tied. Hopefully your husband won't end up being a carrier. But I just wanted to give you a story with a good outcome, just in case. Hugs! 
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    CurlyMommy416CurlyMommy416 member
    We're all thinking of you and sending positive thoughts your way!!!
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    mrtmrt member
    Hope you get good news from your husband's test. Also, looking at this storm in southern New England, he's going to have to wait until Monday to get the test. Probably not worth driving tomorrow morning, if the doctors office is even open. Sorry that makes your wait and worry longer.
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    neludeluneludelu member
    Sending good thoughts your way. 
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    michaela0704michaela0704 member
    So sorry you got this news, FX your husband is not also a carrier... even if he is, odds are in your favor.  I know none of that helps the worrying and stress though.  ::hugs::
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    zseirecargzseirecarg member
    @mrt You are right, definitely not worth the drive just to shave off a few days of waiting and the office is closed regardless. I think we have 4 inches of snow already and it's coming down like crazy. 

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    gabadoogabadoo member
    Good luck with your hubby's testing! Hopefully he's not a carrier and there's not cause for concern. My husband's confirmatory results for the 3 genes that I was initially positive for took a LOT quicker that mine (we did the saliva swab), so hopefully you'll hear back sooner than 2 weeks!
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    zseirecargzseirecarg member
    @gabadoo Thank you! DH is doing the same blood test I did. Horizon - Natera Carrier Screen, so thinking it will be about the same.  

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    ellie111227ellie111227 member
    FX you get good results about your husband not being a carrier. Chances are very good that you will, but I know it is stressful.

    I had a close friend with CF growing up, and she had a truly wonderful and full life. She needed treatments, but she was happy and did everything the rest of us did - sleepovers, school trips, dances, general teenager nonsense. She lived to be almost thirty. It's a really serious diagnosis, but it isn't the horror it once was, and they are doing so much research and making so much progress on treatments. 
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    jc_twomamasjc_twomamas member
    Will be keeping you in my thoughts! Keep us updated when possible. 
    Me: 29
    DH: 29
    DS: 18 months 4/2/2015
    Baby #2 EDD: 6/1/2017 
    <a href="http://www.thebump.com/?utm_source=ticker&utm_medium=HTML&utm_campaign=tickers" title="Baby Names"><img src="http://global.thebump.com/tickers/tt1d450a" alt=" BabyFruit Ticker" border="0"  /></a>
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    email2ashemail2ash member
    Hopefully your husbands results will come back quickly so you don't need to stress waiting. Hoping you get some good news! Hugs xx
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    meg2704meg2704 member
    Fingers crossed for you! 
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    [Deleted User][Deleted User] member
    Fx for news your H is in the clear!  Pardon me for lurking, but MH is also being tested for CF carrier genes, amongst other things, although he has been dragging his feet on going in... :/  hope to hear good news soon!

    Turns out my BFF is a carrier, just like you, although I don't think her H has ever been tested.  I think a lot of people must be totally asymptomatic carriers, so hopefully it's nbd for you guys, either, and your sweet LO ❤
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    zseirecargzseirecarg member
    @BusinessWife no worries about lurking, I searched for other threads (even in other months) for this topic and couldn't find anything that was recent. Hoping he gets in soon and for good news for both of us.
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    shmarplershmarpler member
    @graceriesz, I know a set of identical twins with cf. They both played hockey all growing up and in college. Birth are married, have phd's, and are quite healthy as they approach 40. 
    Married 8/29/09
    MC: 9/14
    Goober #1 born: 8/17/15
    MC: 9/16
    Goober # 2 EDD: 6/27/17
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    zseirecargzseirecarg member
    @shmarpler thank you for sharing. 
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    krex-2krex-2 member
    YAY, fantastic update!!  I am so happy for you guys...glad that the stressful waiting is over!

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    ellie111227ellie111227 member
    That's great news, @graceriesz! Thanks for updating us!
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    mirdamae03mirdamae03 member
    Phew! Congrats!
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    silliegirlie143silliegirlie143 member
    Yay!!!



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    Elyse1384Elyse1384 member
    Great news!  
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    neludeluneludelu member
    Yay! You must feel so relieved!
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    anitamargarita_82anitamargarita_82 member
    That is great news..... such a relief for sure. 
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    bergberg member
    Congratulations!  That's such great news!
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    awillis13awillis13 member
    What a great way to start the week!  So relieved for you!!
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