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September 2016 Moms
jennlynn777
member
My poor boy
jennlynn777
member
Sooo I haven't been on here for a bit because I've been coping with my son's issues. Some of you ladies might remember me talking about my little guy crying constantly unless he was nursing. His weight gain is awesome. He currently weighs a little over 9lbs at just under 1 month. So he was getting plenty. So instead of making this all about me I made the hard decision to stop breastfeeding and start him on a hypoallergenic formula. The reason I decided this was because my 4 other children also required this kind of formula. I tried an elimination diet but because I'm allergic to so much stuff i wasn't able to eliminate with success. So back to formula feeding. We saw a drastic difference in his crying spells. He still cried quite a bit but not nearly as much and was sleeping much better. Then I started to notice him sqeeking very loudly. In the medical field they call this stridor. Wait though because that isn't all. He has been regurgitating up into his nose. So we took him to the Dr. who then sent us to the hospital for a swallow study and he was Dx with Gastro Reflux and abnormal swallowing. Now mind you I told the hospital the day he was born that he appeared to have trouble swallowing but they of course blew it off. Dr. Is referring him to a GI specialist and we now have to travel 3 hours away to a children's hospital for him to see a Ped. ENT. He was also prescribed Zantac. Let me just say that so far the Zantac has been awesome. He slept for 6 hours last night! Woke up completely happy for his feeding this morning night. So at this point the specialists will likely be doing a bunch of testing to rule out and determine a cause for the reflux, regurgitation, and stridor. I just want a happy baby. This has been so emotional...
Re: My poor boy
I have vocal cord dysfunction and have trouble swallowing / coordination w breathing. Its unrelated to what your LO has but can really empathize with how frustrating it can be to do the most basic of things - swallow without choking.
Sounds like youre doing everything right! Keep up the good work, momma
PCOS, Hypothyroidism.
Miscarriage at 8 weeks
First saw
It's a boy!
November Siggy Challenge: Selfie Fails
Hidden for the sake of your eyes!
Hey ladies! Ok so recap! We went to see the GI specialist in early Nov. and he recommend I take Luke off of milk based formula. Even the Simila Alimentum had traces of milk. He prescribed him this super expensive formula called Elecare which is amino aid based instead if milk based. So we started there as well as prescribing him Nexium (insurance wouldn't cover Prevacid) to help get the reflux under control. So after just a few days I started to see an improvement. He stopped regurgitating into his nose so that was HUGE for us. Then after a few more days his reflux started to slow. Then after a few more days the mucous I kept hearing in his throat went away. Last week we want back to the GI dr. and we told him the reflux had slowed quite a bit but weren't sure if it was just the medicine. The dr. stated that at 2 months this is when we would start to see the worst of the symptoms of reflux but since he is actually improving with almost no symptoms he said we could stop the Nexium gradually at around 4 month. He said then when many babies start to see some improvement by this time I will likely see complete recovery. So in a nutshell he had a severe milk allergy. Any trace of it in my breastmilk was causing him to cry uncontrollable and why he nursed constantly. It was kind of a vicious cycle. He still has some squeaking in his voice box when he feeds but with some recovery time I think it will heal from the reflux. He has become such a sweet happy baby! He is still very much high needs and still in his swing most of the time, but atleast he smiles now and seems to enjoy being a baby! ❤️❤️❤️❤️❤️