Update: TW- Officially out! Low HCG and Progestron

avas_dream · September 2016

**Update: Ladies just wanted to officially say bye and thank you to everyone for their support. We went for a scan at the hospital yesterday with a high frequency US machine and they could not find anything in my uterus or anywhere else. Not even a sac/blip/mark. I am about 6 weeks today so that certainly is abnormal with my low HCG levels. Given this my Dr. strongly suggests a D&C and I agree. I've had my BFP for a while so I know I am at least 5.3 + days far along if not 6 weeks- we BD'd just twice so there is no chance of late ovulation etc. and at this point they should have at least seen a sac. I have indeed lost all my pregnancy symptoms which are different than just feeling less sore in boobs - its like my body feels like it is done. I feel sad as we got pregnant naturally just before we were about to start the clomid cycle and I was so thankful that I did not need to resort to fertility treatments so this is big blow. It makes me question why, but I know these things have no logic- they just happen.

I wanted to be a part of this group so much, I wanted to have this baby so badly. I am just very shattered and I am sadder than I thought I'd be. You are all amazing women and I wish each and everyone of you a great pregnancy journey. I think I am going to be lurking back to the TTC boards for now.

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So...I just got my blood levels back at my HCG is only 50. Which though is in 'normal' range is low and my Progestron is just 9.9. I'm around 16DPO so about 4.3 weeks. I cannot stop reading the Internet!! Argh I just need to get through the next few days to recheck levels and make sure they rise. They put me on Progestron supplements that I will hopefully start tonight but I know the reality, if it's not meant to stick it won't.

Anyone have any experience with this and want to help me calm my nerves. Also, I'm a big girl so if this does look really low tell me as is...I rather be prepared than not.

MrsN092714 · September 2016

Hopefully those numbers jump up by your next test. I don't know much about the progesterone levels but had my HCG levels monitored my last pregnancy as I had bleeding at 5.5 weeks. I believe my inital test I was at 120. I had a chart I stalked like a mad lady and will try to link it....
https://www.babymed.com/hcg-blood-level-by-week-during-pregnancy-is-it-normal

Levels can vary by so much so the best thing to do is to wait and see if they are rising. Fingers crossed for you.

hartmich · September 2016

@avas_dream I don't have experience but sending T&P your way that everything checks out the way it should.

avas_dream · September 2016

hartmich said:

@avas_dream I don't have experience but sending T&P your way that everything checks out the way it should.

Thank you love. At this point I cannot do much than wait.

vrj0522 · September 2016

I wouldn't read too much into your HCG, it doesn't have to mean anything. What matters is that it doubles in 48-72 hours. I hope the progesterone helps!

Stormy61 · September 2016

I don't have any knowledge about HCG numbers but sending good thoughts your way!

CherylE418 · September 2016

I just went through a loss in April, and I have no idea what my levels were that time, so I'm not sure if this one is any different unfortunately. That said, we did check progesterone and hcg asap this time around, and at a little over 4 weeks I was at 131 hcg and 14 progesterone, and 48 hours later it had more than tripled to 460, and my doctor was thrilled! So it sounds like if yours is doubling like they look for in 48 hours, you could easily have been just a couple days behind where mine were first taken and see a big rise in a couple days! Are you having it done again soon?

and yes, definitely stay off the internet. It will drive you nuts so fast! Been there, done that. Feel free to message me if you need to talk. Prayers for all in this nerve wracking time!

avas_dream · September 2016

Thank you @CherylE418. I do hope that's the case. I go back Monday to check my levels again.

avas_dream · September 2016

Thanks ladies for T&Ps!! @Stormy61 @vrj0522

n&a0630 · September 2016

I don't have experience in this dept, but I am going through the same thing right now. I will be rechecked on Tuesday & have my first OB appt on Thursday. I'm hoping I can make it til then! I have not been given progesterone yet. Depends on my labs Tuesday. Good luck to both of us! Just wanted you to know you're not alone.

avas_dream · September 2016

@n&a0630 T&Ps for you as well!!

fbmandy55 · September 2016

Well I just had an US today as my progesterone was only 7.3. My HCG was 3564 though! Everything looked good on the US, I just hope it's still too early and my numbers go up on my labs next week.

avas_dream · September 2016

That's great @ @fbmandy55. Hopefully your number will rise but if US and HCG looks good it's very promising.

Cubslove12 · September 2016

The number doesn't matter as much as if it doubles! You can always go on progesterone supplements also. So I wouldn't worry unless it doesn't double.

avas_dream · September 2016

Just got my second beta and HCG is 150 and Progestron 14. Phew! I know not over the hump yet but I feel so good this afternoon. Nurse said that is appropriate expected rise. Thanks for all the nerve calming advice ladies.

andrea0418 · September 2016

Great news @avas_dream

vrj0522 · September 2016

avas_dream said:

Just got my second beta and HCG is 150 and Progestron 14. Phew! I know not over the hump yet but I feel so good this afternoon. Nurse said that is appropriate expected rise. Thanks for all the nerve calming advice ladies.

So good to hear!

chickyclg · September 2016

fbmandy55 said:

Well I just had an US today as my progesterone was only 7.3. My HCG was 3564 though! Everything looked good on the US, I just hope it's still too early and my numbers go up on my labs next week.

That is a great number, Progesterone suppositories do not always show up in your blood work so keep that in mind. You can always ask for PIO if you want to see a difference in lab work, but those injects hurt!

c1tym0m22 · September 2016

@avas_dream, this is super reassuring to me. My numbers are right around yours (progesterone a bit lower, unfortunately) - will be repeating them tomorrow. Waiting to intro until I know if this little one is going to stick...

avas_dream · September 2016

@lbh2280 all the very best for tomorrow!!

n&a0630 · September 2016

@avas_dream That's wonderful! I was just logging on to check on you. I'm happy to hear that. You might remember mine were low, too, and I was just rechecked yesterday. Today the nurse called back & they aren't telling me the exact numbers but my progesterone is still low. I have an appt tomorrow with my ob. He recommends a prog. gel, but it is not covered by my ins. & is almost $500 a month for the 8% kind he picked. However the 4% is covered, so we have some talking to do tomorrow. I am definitely losing hope on my end. But your situation sounds positive. Best of luck to you!

avas_dream · September 2016

n&a0630 said:

@avas_dream That's wonderful! I was just logging on to check on you. I'm happy to hear that. You might remember mine were low, too, and I was just rechecked yesterday. Today the nurse called back & they aren't telling me the exact numbers but my progesterone is still low. I have an appt tomorrow with my ob. He recommends a prog. gel, but it is not covered by my ins. & is almost $500 a month for the 8% kind he picked. However the 4% is covered, so we have some talking to do tomorrow. I am definitely losing hope on my end. But your situation sounds positive. Best of luck to you!

Why would they not tell you your levels? That's so annoying! Hopefully the OB will clarify. My progesterone supplements cost me $200 for 14 days. Lucky lI had some money in HSA but if I am to take it rest of 1st trimester I'm going to be fairly out of pocket. Good luck and don't lose hope yet!!

n&a0630 · September 2016

My 2 week supply of progesterone ended up costing over $600, and that's with insurance going ahead & covering a little and my hubby finding a coupon. I'm going to try to have the rest sent to a different pharmacy & see if that helps.

chickyclg · September 2016

Can you ask for a different form of progesterone? PIO is much cheaper but it hurts like hell.

avas_dream · September 2016

Ouch $600 for two weeks?!! Agree with @chickyclg try asking for a different brand, form etc. I asked my OB if one was effective over the other and he did not have a strong opinion either ways and prescribed me a cheaper one when I told him the price.

avas_dream · September 2016

Looks like it's not looking good for me ladies. My 4th draw only rose a little again - 242 to 340 in 3 days. The nurse said its a little worrisome and the main concern now is to rule out ectopic. I'm going to try and get in on a scan today or tomorrow and then we shall see. At this point I don't have too much hope unless my body gives me a miracle. I'm hanging on by a tread but will not give up unless I have definitive answers. Unfortunately I've read tons of research and talked to my OB and statistics don't seem to show a lot of hope for me :-(. Please keep me in your thoughts and wish with me that the whole world is wrong and I get my little bean to grow into healthy baby.