Hi, I'm Amanda. I lost my sweet, precious son last Monday at 26 weeks. We are heartbroken to say the least. This is truly the darkest, hardest thing I've ever dealt with. The grief is just so heavy. I have moments when I feel like I'm drowning in sadness.
I am so grateful to have a healthy 20 month old boy. That pregnancy was text book and I never thought I would experience anything otherwise. How naive of me....
Everything about this pregnancy was different. In February, I cried when my husband and I "oopsed" because I wasn't ready for another baby. When I thought I had my period a few weeks later, I really didn't. It was an early sign that something wasn't quite right.
When we went in for our 8 week sono, baby was measuring 12 weeks already. We got bad news the NT scan was abnormal (4.4 mm) so we had a Qnatal test. The NP tried to reassure us that this was nothing to worry about and that everything would be ok. The 2 week wait for the results was awful. My eyes were open to so many conditions, abnormalities, etc. that I previously had no idea about. Thankfully, the screening came back negative for the major abnormalities it tests for. It also confirmed we would be having another boy!
I was still worried that something wasn't quite right. That the test was wrong or that there was something more rare going on. I just didn't feel at ease...maybe mother's intuition. We waited until our next appointment to announce. I wanted to hear his heartbeat again before making it public. At 16 weeks, we heard that sweet sound

From a high to another low, we found out at the 20 week a/s that our sweet baby had defects of his heart and brain. I was scheduled to see a NP, thinking things would be normal and no need to see my regular ob. I knew something was wrong when she said she was getting the on call OB to talk to me. To say she was frank is to put it lightly. She told me to prepare for the worst, as these could be serious complications. Heart. Broken.
After waiting a long weekend (4th of July) I was able to get in to see a mfm. He was so great and hopeful. He referred me to a cardiologist and for a fetal mri to look at the brain the same and next day. The cardiologist confirmed a heart abnormality, but assured us that it was repairable and a fairly common issue that they fixed on a regular basis. What relief! We also learned that his brain condition had a wide range of outcomes and that he could be highly functional with a normal IQ.
We began to learn about his conditions and treatments and prepared. I had weekly scans with my mfm and each week we prayed for no news. And each week we got to see our sweet son on the screen, wiggling around with a strong heartbeat. Two Fridays ago, we went to tour the hospital where he would be born. The specialists were great and were humbled to have such a caring team around us. They said they anticipated a screaming 39 week baby boy to come in November and they would be ready to treat him in whatever way needed. T
hat was the last day I felt him move. I went Saturday night to the hospital where they confirmed that there was no heartbeat. I was so shocked and just broken. How did this happen?! Hadn't we been through enough? Of all the things to prepare for, I never allowed myself to think that he wouldn't make it. I had always assumed he would be here and we would get whatever care we needed for him to thrive.
My husband and I went home to be with our 20 month old son for the day, pack our bags and prepare to give birth to our son who wouldn't come home with us. I was induced Sunday night and gave birth to my sweet angel, Dean Everette, weighing 1lb 12 oz and measuring 12 3/4 inches long at 1:42 PM on August 8th.
Part of me is grateful that he will never have to experience pain or surgery or being alone in a nicu, but I miss him so very much. My arms are aching and my heart is heavy. I just want my baby. God is gracious and I know Dean is in Heaven now and I am glad for that. I just miss him so much. I am 9 days closer to meeting him again.
I have so many questions...What happened? Why? Will we ever know for certain? Will this happen again? When can we have another baby? How long must I wait?
Sorry for the long post, just had to get that all out. xx sorry that any of us are in this crappy club. hugs
Re: New Here - Stillborn at 26 weeks (long...)
We are here for you
Me: 36; DH: 38
DD: 7; DS1: 4; DS2 due 6-21-17!
**TW**
MMC & D&C Aug 2016
Me: 29 DH: 30
Married: 7/18/12
- bicornuate uterus
- heterozygous MTHFR a1298c
- sjogrens syndrome
BFP #1: 2/4/12 ; DD born 9/13/12
c-section
BFP #2: 2/3/16 ; MMC @ 18 weeks, 4/29/16
vaginal delivery + evac d&c for placenta
BFP #3: 4/6/17
It is a lullaby he wrote for his miscarriaged babies. So beautiful. Prayers for your heart to feel comforted soon. And for your husband as well.
Type 1 Diabetes since 2001, MTHFR hetero A1298T
Dogs: Raider 4 yrs, Dex 4 yrs
BFP #2 7/6/16 SCH, D&C 8/4/16
BFP #3 12/26/16 EDD: 9/6/17
My Chart / My Diabetes/Pregnancy Blog
My Type 1/TTC/Pregnancy Podcast:
Juicebox Podcast Episode 118
A1Cs:
1/12/16 6.7%
5/25/16 6.0%
11/2/16 6.1%
3/22/16 5.8%
4/27/17 5.4%
6/13/17 5.3%
"Sugar Fancy Tutu"
I lost my son in June around 18 weeks. It was totally unexpected. I also went through labor and delivery and I never knew I would have the strength to do that.
Sending big hugs!
Emily
__________________________________
Together since 2006
Married 01.17.15
TTC since May 2014.
Aug 2014 BFP, EDD April 22, 2015. Low progesterone, started suppositories. Loss at 5w6d.
Nov 19, 2015 BFP at 13 dpo, EDD July 29, 2016. MMC discovered 12/29 (9+4). Natural miscarriage 1/16 (12+1).
AMH results 0.42, 1.2; FSH 12.1, AFC 10, dx DOR.
RPL testing results normal. Nurse recommended progesterone suppositories in TWW.
Clomid + trigger + TI cycle August 2016 - failed. Thin lining.
Femara + trigger + TI cycle December 2016 - failed. Thin lining.
Short LP (8 days).
Acupuncture & Chinese herbs starting January 2017, lengthened LP to 10 days
Summer 2016 LFAF awards:
Winter 2016/2017 LFAF awards:
** December BMB Siggy Challenge - Animals in Pools **
Me: 31+ H: 32
TTC Since 11/2015
#1 - MMC 6.5 weeks (2/16); #2 - MC due to cystic hygroma at 20 weeks (10/16); #3 CP (2/17); #4 - Due 12.16.17
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