High-Risk Check In 7/11

Sugargirl1019 · July 2016

This is for us diagnosed with any type of condition that makes our pregnancy high-risk so that we can find support and companionship during this time! Feel free to comment at any point in the week and treat this as an on-going discussion.

If you have ideas for questions, post it!

1. Why are you high-risk?

2. How far along are you?

3. What are you doing for treament?

4. How are you doing? R/R?

5. Any questions?

MrsNap_515 · July 2016

1. Why are you high-risk? I have a birth defect in my brain (a really long unpronounceable word LOL) that prevents my body from producing appropriate levels of hormones, so I am on medication to help keep the baby, as well as a history of Gestational Diabetes & Pre-E episodes with my last pregnancy, due to my hormone issue, they monitored me very closely with weekly and then 2x week checks, so I'm assuming it will be the same this go around as well

2. How far along are you? Approx 5 weeks

3. What are you doing for treament? I am on Estrogen 2x a day, and Progesterone nightly before bed

4. How are you doing? R/R? Feeling good, just very tired and lots of bloat from all these hormones LOL

5. Any questions? Just saying good luck to all of us

JustAnotherUsername16 · July 2016

1. Why are you high-risk? Wolfe-Parkinson White Syndrome - it's a heart condition that makes me tachycardic
2. How far along are you? 4w3d
3. What are you doing for treatment? The medication I usually take is a calcium-channel blocker, and since the baby needs calcium, I can't take it. Essentially my doctors are currently in the "Cross our fingers and hope nothing bad happens" philosophy. No, but really, I have to wear a heart monitor at all times and I'm at a high risk for developing high blood pressure since they took me off my drugs, so I have to test that all the time...
4. How are you doing? R/R? TW Super freaking nervous. I was crushed when I had a MC at 2.5m pregnant in May. I'm just praying this baby is sticky....
5. Any questions? Do y'all have additional doctors besides your OBGYN who want to be at your delivery to monitor the reason you are at risk?

EnglishTeacherMama · July 2016

MrsNap_515 said:

3. What are you doing for treament? I am on Estrogen 2x a day, and Progesterone nightly before bed

Hey @MrsNap_515, my doctor just called to let me know my progesterone results came back and are low, so I'm going to have to take the progesterone suppository before bed too. Any tips? All I can see from my bit of Googling is that people say "it's leaky, wear panty liners."

Sugargirl1019 · July 2016

1. Why are you high-risk? Type 1 Diabetes

2. How far along are you? 4 weeks

3. What are you doing for treament? Insulin pump and continuous glucose sensor monitoring, trying to check my blood sugar 10 times a day

4. How are you doing? R/R? I suck. My last A1c was 6.0%, and that's all going out the window now I need to increase my basal rates a lot. I like to hang out at 170 recently. What the heck. Two weeks ago my blood sugar didn't go above 120 even with food.

5. Any questions? I really want to do a water birth or something.. like a Birth center.. but obviously can't do anything out of the hospital .. anyone have any knowledge about this as high risk?

MissPrint1219 · July 2016

1. Why are you high-risk? AMA (I turn 40 on my EDD) with RPL (4 losses). I am also heterozygous for MTHFR.

2. How far along are you? 5w 3d

3. What are you doing for treament? MFM has put me on Folgard, baby aspirin and progesterone suppositories at night.

4. How are you doing? R/R? Grateful for every ache and pain!

5. Any questions?

mittenlove86 · July 2016

1. Why are you high-risk?
Type 1 Diabetes

2. How far along are you?
4w5d

3. What are you doing for treament?
Trying to keep my blood sugar in check the best that I can but I'm fighting these highs that just won't budge. I'm on an insulin pump and continuous glucose monitor (CGM) and checking my blood sugar like 10 times a day. I'll be seeing my endo a lot and after my first ultrasound I will get referred for a consult with a MFM specialist.

4. How are you doing? R/R?
I'm starting to feel really discouraged with my blood sugar control. This is such a critical part of development for baby and I can't help but feel like a failure and that I am going to cause damage because I can't get my numbers down. My endocrinologist was supposed to get back to me today to change some of my pump settings, but I never heard back.

5. Any questions?

Sugargirl1019 · July 2016

@mittenlove86 Do you feel comfortable changing basal rates yourself?? I usually change it 2 hours prior to the numbers going up, and increase by .05 at a time, unless it's really crazy going up then I will change it by .1.

ETA: we also had to change both my insulin:carb ratio and sensitivity factor! It sucks.

ETAA: I have my pre-pregnancy basals on "standard" pattern and my pregnancy changed basal on "pattern A". I think you have a dexcom so I don't know of yours is the same? I use a medtronic.

mittenlove86 · July 2016

@Sugargirl1019 I am trying a temp basal rate today to see what happens. It's only 8:30 and I've already bolused 3 times this morning and I still haven't budged. I'm going to email my endo again today and get this stuff in check hopefully.

MrsNap_515 · July 2016

@EnglishTeacherMama yea I hate the suppositories! they are gross & gooey, and then there can be a "buildup" that you have to clear out,,bleck!! So I asked for oral, so they switched me to oral progesterone pills this time, much easier!

KellyT22 · July 2016

1. Why are you high-risk? I have a bicornate uterus (heart shaped) and a history of preterm birth (my son was born at 35 weeks).

2. How far along are you? 5w4d

3. What are you doing for treatment? There is no treatment since it is an anatomical deformity. My OB and I will discuss whether I will be getting progesterone shots at 30 weeks down the road.

4. How are you doing? R/R? It's really frustrating to know I have this and can't do anything about it. I'm doing well right now, but it will cause me to be in pretty severe pain down the road since my uterus won't stretch normally.

5. Any questions? Last pregnancy I had 4 total ultrasounds, so for financial purposes I'm curious if we'll be following the same plan.

Finallyhismrs07 · July 2016

1. Why are you high-risk? – Type 1 Diabetes combined with Thyroid Issues

2. How far along are you? – 6 weeks 4 days

3. What are you doing for treament? – I have increased the number of times a day I am checking my glucose levels, will also start wearing a CGM (continuous glucose monitor) fairly regularly. Both my RE & Endo docs are checking my A1C & TSH levels very often. I will also have more ultrasounds and tests throughout my pregnancy to monitor development and growth.

4. How are you doing? R/R? – I’m doing okay most days. Had a complete meltdown last weekend because I had 2 sites go bad in row and I couldn’t get my glucose levels down and I was convinced that I had harmed the baby. My doctor’s assured me that everything was probably fine, but I still feel guilty…

5. Any questions?

mittenlove86 · July 2016

@Sugargirl1019 and @Finallyhismrs07
2 T1Ds in the March 2017 board! This is crazy! Here I thought we were so rare. I'm glad we have each other here to help out because I would be lost in this world of diabetes and pregnancy by myself!

Sugargirl1019 · July 2016

mittenlove86 said:

@Sugargirl1019 and @Finallyhismrs07
2 T1Ds in the March 2017 board! This is crazy! Here I thought we were so rare. I'm glad we have each other here to help out because I would be lost in this world of diabetes and pregnancy by myself!

Yay us!! There was no one on my last BMB!! I'm excited we can share experiences and knowledge!

Finallyhismrs07 · July 2016

Absolutely! Good luck girls!

ashm1220 · July 2016

1. I'm high risk because my son was born with a rare neurological defect.
2. I'm 6w3d
3. Treatment has been watch and wait and refer to MFM once viability is detected (today) I am scheduled for genetic counseling and a sequential on Aug 25th.
4. I'm fine other than being a nervous wreck with weekly betas but all is well now so I'm great.
5.

conrkm38 · July 2016

I'm glad I found this board...

Im high risk because... Homozygous for MTHFR (C667T) - multiple MC

I'm 4w5d

Treatment- daily Lovenox injections, most likely starting progesterone suppositories tomorrow after more bloodwork results, daily baby aspirin, and methyl folate prenatal vitamins rather than folic acid ones.

Im trying to just remain as calm as I can. My therapist and acupuncturist have helped greatly with this in the past several weeks as I also just closed on a loan to build our first home. I'm also trying not to get too attached- I reserve my excitement since I've had many let-downs.

Question- Does anyone know how long these bruises at the Lovenox injection sites last?? I only just started them yesterday and I have two funky bruises so far.

Amberry10 · July 2016

Hi!
I haven't had my 1st appointment yet, so I haven't been declared high risk. But, I'm sure I will be...

1. Why are you high-risk?
With my 2nd, I went into preterm labor. I found out at my 32 week appointment I was in full blown labor. The crazy part, I didn't even know! I was rushed to the hospital and by the time I got there I was complete and ready to push. So, with my history of preterm labor and quick labor, I'm sure I'll be considered high risk.

2. How far along are you?
Today, I am 4w 5d. I found out at 3w 4d.

3. What are you doing for treatment?
Not sure yet.

4. How are you doing? R/R?
Since this pregnancy was a complete surprise, I think I'm still in shock. Hunting Pokemon has been very relaxing. Haha!

5. Any questions?

Sugargirl1019 · July 2016

How are my Type 1 mommies doing today? @mittenlove86 @Finallyhismrs07

I need to adjust my overnight basals some more. I can't stand going to bed at 100 and waking up at 150-170.

I also should not eat ice cream. I always start eating ice cream when I get pregnant. Why?! I don't eat it any other time!

mittenlove86 · July 2016

@Sugargirl1019 I had an awesome last 2 days! I upped my basal rate to 125% temporarily and I didn't go over 150 for like 36 hours straight! Then last night hit and I spiked overnight. I had a pretty big spike after lunch today too , but now I'm doing pretty good. Got some official changes to my basal and correction ratio from my endo today, so hopefully that will help

i had myself some peanut butter chocolate chip cookies last night

Finallyhismrs07 · July 2016

Sugargirl1019 said:

How are my Type 1 mommies doing today? @mittenlove86 @Finallyhismrs07

I need to adjust my overnight basals some more. I can't stand going to bed at 100 and waking up at 150-170.

I also should not eat ice cream. I always start eating ice cream when I get pregnant. Why?! I don't eat it any other time!

Doing pretty good this weekend. Still freaking out a bit about what 2 babies will mean. Oddly haven't had to increase my basals at all get but I am sure that is coming. And I totally had a milkshake yesterday afternoon. I was craving it and it was delicious. My motto is basically everything in moderation.

sarahbobby · July 2016

1. I have unicorn uterus which was discovered after two miscarriages.

2. I am 4 weeks 4 days. I just found out today. I have irregular cycles so I don't test early.

3. I am going to ask my doctor to prescribe progesterone.

4. I am still in shock and a bit freaked out!

Lafreeman21 · August 2016

mittenlove86 said:

@Sugargirl1019 and @Finallyhismrs07
2 T1Ds in the March 2017 board! This is crazy! Here I thought we were so rare. I'm glad we have each other here to help out because I would be lost in this world of diabetes and pregnancy by myself!

This is an old post, but can I invite myself to your high-risk weekly board? I'm a T1 with Hashimoto's and I'm alone in February. (EDD 2/23) You guys are already helping just from talking about your CGMs. I have one, but the site stings me constantly and I've abandoned it. Is that just something that I need to adjust to?

Sugargirl1019 · August 2016

I sent you a PM, but YES (even though I don't go here anymore). You can be my spirit animal.

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