I have never posted in one of these before but I feel like I am the only person in the world going through this. We just found out at 16weeks that our baby girl has anencephaly. They said that there isn't even much brain stem. She also has a severe cleft lip, an omphalocele (organs growing outside her body), and spinal bifida (along with other spinal things and a bone sticking out) all of this sounds so scary. I could never live with the guilt of getting an abortion(although in this situation I am not judging moms who made that choice) So our other option is to carry her to term if she makes it that long. I think her case is pretty severe and I wanted to know if anyone had other problems besides the head that made it to a live birth. I can't see how she could live outside of me like that. I would love to hold her but I don't want to get my hopes to high. I have been so upset I haven't been able to keep food down for the last 36hrs. I just need to know I'm not the only one out there.