Pregnancy after trisomy 13 loss

Lkatz1826 · June 2016

Has anyone experienced a loss due to a fatal chromosomal abnormality?? Last year at this time I found out I was pregnant. I wasn't going to do any prenatal blood test, however the np told me about the Panorama dna test cause it was newer on the market, and an option if I wanted. I decided at the last second to do it at my 11 week prenatal appointment... Two weeks later found out my daughter and trisomy 13 and we lost her at 18 weeks. It was devastating but my husband and I know God has a plan for us. He gave us our beautiful son who is now 2.5, and their is a reason for everything good and bad. We did the genetic testing and neither my husband and I are carriers, so it was just a fluke thing and the odds of happening again my OB said are very slim, but still it was already slim for my baby to get it in the first place. This is why I'm so so nervous I'm trying to get excited about being pregnant but at times it's really hard... I fear it may happen again, and I don't know I could go through that all again...Im full of lots of emotion. I'm trying to be optimistic and positive, I really am but until I get confirmation I have a healthy baby its going to be hard. Any other mommies going through something or something similar if so how do you cope? TIA ladies

LastMango · June 2016

No experience with this but just wanted to say I'm sorry for your loss. I have the Panorama screening scheduled for next week for this exact reason and I won't be able to fully relax until those results are back. Thinking of you.

nan814 · June 2016

I'm so sorry for your loss. I lost my son at 19w3d in January of 2014. The pathology report came back normal but I believe the tested my tissue, and not his (it also came that that he was a female, and he definitely had a penis). Based on physical appearance I believe he had some sort of chromosomal abnormality, my guess at the time was T18, but I've learned of a lot of other issues that would cause similar appearance.

I got pregnant in June of 2014 and delivered a perfectly healthy baby boy in March of 2015. If you'd like to talk I'm around! Lord knows I was a mess of nerves during my last pregnancy and am trying hard to keep those feelings at bay this time.

ThePax89 · June 2016

My most recent loss was a trisomy 16 boy. I was also told that the likelihood of it happening again are incredibly slim and unrelated to our genetics. It's terrifying. I'm so sorry for your loss.

lindsladle15 · June 2016

I have no experience, but I'm sorry for your loss and admire your faith that God had a plan for you and for that little one.

Jkp7749 · June 2016

I haven't lost to that, but I can only imagine how hard that would be and how nervous you'd be.. I can't remember if it was on this board or somewhere else, but some ladies were worrying and came up with 'today, I am pregnant!' I thought that was neat BC as much as we worry about what could happen, it's nice to be reminded to enjoy (or try to) the present. Hope this helps a little!

gapeachrn · June 2016

My second MMC was a Turner Syndrome baby. I was 11 weeks when we no longer detected a heartbeat and had to have a D&C. We send everything for genetic testing since it was the second miscarriage. After that loss my husband and I had genetic testing done as well. In the end the doctor thinks it was just a one time thing.
FX for healthy babies!

RocksInTheWater · June 2016

One of my losses was partial molar (girl) and another one was trisomy 15 (boy). I had 2 other losses with undetermined cause (genetic testing unable to be done). I am definitely nervous x1000 this time around worried about the results of genetic testing. I'll be getting the panorama test at the end of June and will be on pins and needles waiting to find out how baby is developing. I try to remind myself that I have no control over what is going to happen and try not to let myself dwell on the stress too much.

ThePax89 · June 2016

@Jkp7749 that quote is like nails on a chalkboard for lots of PGAL moms. Most mantras are flushed down the toilet when you've had a mmc.

Jkp7749 · June 2016

I've had a MC and waiting to know if we're having a mmc currently, it helped me feel a little better

ThePax89 · June 2016

@Jkp7749 I'm so sorry. I'll be praying for you. I was pregnant for 2 weeks after seeing a heartbeat with my trisomy 16 baby and had no physical symptoms of loss. An ultrasound told me the awful news. I know that no physical symptoms are generally a good thing. I just can't get behind that mantra. I wish I could.

Lkatz1826 · June 2016

Thank you all for the feedback.. It's so nice knowing others out there are dealing or have dealt with something similar if not the same as I'm going through. Sending positive vibes to all of you, and praying for healthy happy pregnancy ❤️

susykat77 · June 2016

@Lkatz1826 I am so sorry for your prior loss. We had a loss at 9w1d a MMC. The PGAL brain is hard to navigate. Sending you positive thoughts. Come and join us over on the PGAL thread. We check in each week and support each other throughout the week. Big hugs.

Lkatz1826 · June 2016

I just did thank you ❤️❤️

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