I had an induced labor due to high blood pressure in February. Unfortunately, due to the high blood pressure and what was eventually diagnosed as pre-eclampsia, my baby suffered seizures at birth which actually started in utero due to lack of oxygen delivery from the placenta. After a 17 hour labor, we were told that our perfect baby was seizing and had to be transferred to a children's hospital almost 2 hours away. We watched her be taken away from us and loaded into an incubator and an ambulance. Fortunately, I was discharged early and allowed to go up to the hospital to be with her. After a week in the NICU and a million tests, EEGs and MRIs, she was put on two different seizure medicines and discharged. She was officially diagnosed with hypoxic ischemic encephalopathy, or a brain injury due to lack of oxygen to the brain.
Our neurologist said that she's doing well now and is going to attempt to take her off of her seizure meds slowly in hopes that after a few months of quieting, the brain will have stopped seizing. This is great news! She is hitting most of her milestones so far (we're not smiling consistently yet) and her early intervention team is happy with her progress. However, no one is able to tell us how this brain injury will effect her development in the future. The damage to her brain on an MRI was "global" meaning it effected areas everywhere in the brain. They told us that we'll just have to wait and see how she meets or doesn't meet certain milestones. She could have no effects, she could have mild delays, or she could have major issues. We just don't know and we won't know until she hits age 3 or 4.
I felt like I was doing a good job coping for these first 2 months. She seems absolutely perfect to me. She is doing all the typical baby things and all of her doctors seem happy with her progress. I think I'm in a bit of denial about the whole situation. But, sometimes it hits me and things will trigger sadness and anxiety. The more I research about it to try to ease my fears, the worse it makes me feel. The internet is filled with articles linking this condition cerebral palsy which has not even been mentioned by my doctors. Does anyone have any experience with this condition? Are there any positive stories out there to ease my worried mind? I don't know how to deal with this anxiety until she reaches age 4.