Infertility
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To Tell or Not To Tell...

How do you all decide to tell or not about what you are going through.  I  have a few people at work that know because of the constant appointments.  My parents know about my condition because I was diagnosed at 17, but they don't know much about our current treatment.  We haven't talked to any other family, especially DH's family.  My MIL is a bit of a gossip, but also really wants grandbabies so she does unthoughtful things like buying us baby socks...  So sometimes I just want to tell so we stop getting nagged about having babies, but other times I don't want to tell because I don't want everyone to hear that it's "my fault" that we don't have kids.  That is how she would spin it.  I blame myself enough, I don't need someone else to blame me too.

Re: To Tell or Not To Tell...

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    I am EXTREMELY open about our struggles. It took me awhile to get here, but pretty much everyone knows what we are going through. It's a personal choice though! I am in general a pretty extroverted person. A lot of people were asking me when we were going to have a baby, which is a question I find extremely offensive, so I just told them that we are having trouble (sometimes in a snarky way bc I'm a little bit of a B and i want them to know they are being rude). I've posted a lot about it on social media, because I think people who aren't struggling with it need to know how to be sensitive to the fact that a lot of people suffer from infertility. I'm personally glad I am open about it bc I have a TON of support and positive vibes coming my way which I feel can only help. I've also reconnected with some people I may have lost touch with who are going through the same thing and have been a good support to those people which makes me feel good! The only downside is that sometimes people ask me about how things are going when it's not a good time to ask (like right after a negative beta) but I've kinda made it clear to those people that it is a subject that should only be brought up by me.
    Me: 29 DH: 28
    Together since 2008, married Sept 2013
    ttc #1 since July 2014
    DX: unexplained infertility
    Sept, Oct, Nov Clomid 50 mg: BFN
    Feb 2016 IUI w/ 50mg Clomid, Ovidrel, Prometrium: BFN
    March 2016 IUI w/ 50mg Clomid, Ovidrel, Prometrium: BFN
    June 2016 IVF: BFP 6/28!!! beta #1: 358, beta #2: 1428, beta #3: 3742


    Pregnancy Ticker
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    It's a tough decision to make and definitely one you should feel comfortable with. I'm a very private person by nature and feel that the less people know, the better off I am. At first, I didn't tell anyone and laughed off the baby questions. When things got tougher and we were referred to an RE, I felt like it was my fault as well. I held it in for a while and then decided to tell a friend who also struggled. It felt good to open up and educate her on what I went through. She got pregnant naturally after a m/c but she still understood the pain behind constant unsuccessful trying. When I told my best friend, it seemed like she understood, but she didn't really understand. She got pregnant with both of her kids without any issues. When I talked about my issues, she asks questions but doesn't probe further. My mom knows as well, but my in-laws don't. I feel like they stopped asking and just realized something must be wrong since we aren't having kids yet. They don't ask though and I'm happy for that. I feel like I will eventually share with them, but only when this works and once I get pregnant. DH wanted to be open with them from the beginning but I asked him to keep this between us, my 2 close gf's and my mom for now until the time is right. At the end of it all, we can't tell you to share or not to share, but I hope our experience helps you with your decision. Please stop blaming yourself, as it is not your fault! 
    ***History & TW in Spoiler***

    ***bfp & child warning***
    TTC - since 2014
    7 rounds of Clomid - BFN
    IUI #1 - October 2015 - BFN
    IUI #2 - November 2015 - BFN
    IUI #3 - December 2015 - BFN
    IVF #1 - March 2016
    Retrieval #1 - April 2016
    FET #1 - May 2016 - BFP!!! DS - Born January 2017
    Trying for baby #2...
    FET #2 - January 2018 - BFN  
    No more embryos left; switched to a new RE
    IVF/Retrieval #2 - January 2019
    IVF/Retrieval #3 - March 2019
    FET #3 - April 2019 - BFP!!! - DD: Born December 2019
    Trying for baby #3...
    FET #4 - October 2021 - BFP!!! - Due June 2022


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    Agreed @tulips29 everyone is different! Being open is therapeutic to me, but it definitely isn't for a lot of people!
    Me: 29 DH: 28
    Together since 2008, married Sept 2013
    ttc #1 since July 2014
    DX: unexplained infertility
    Sept, Oct, Nov Clomid 50 mg: BFN
    Feb 2016 IUI w/ 50mg Clomid, Ovidrel, Prometrium: BFN
    March 2016 IUI w/ 50mg Clomid, Ovidrel, Prometrium: BFN
    June 2016 IVF: BFP 6/28!!! beta #1: 358, beta #2: 1428, beta #3: 3742


    Pregnancy Ticker
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    msirni0 I am pretty open about things (but maybe a little less sharey after a year and half of ttc)...when I started people would often give their words of wisdom of just relax, or let me tell you about the time my friend who was trying 5 years got prego the min she stopped trying etc. lol I think being somewhat open about the struggle and being clear about the importance of medication/dr intervention for us...has helped to educate people that it isn't just about relaxing. I wish more people were open about their struggles on FB and with friends. One of my good friends told me she tried for a year with secondary infertility issues and I didn't know at all. Made me wish I had known so I could have been a support to her. 

    But to each their own. :) 
    Me: 37 DH: 32 TTGP Since 2014 INFERTILITY INFO (Medicated, IUI's, IVF/FET) IN SPOILER
    October 2014-April 2015: Without Medication or Doctor Guidance No Periods/No O BFN 
    Medicated April-December 2015: Clomid (didn't work) and so we tried Femera/Letrozole. Progesterone Met 1000 Not diagnosed PCOS but treating the same. Anovulatory. TI No US No O BFN 

    - TW - 
    IUI"S 
    January 2016-October 2016: Letrozole 2.5mg-7.5 mg, Pregyl or Ovideral Trigger Shot.
    9 cycles of IUI
    (7 Cancelled due to no mature follicles) (2 attempted IUI's with mature follicles)  

    IUI # 2 June 2016 and July 2016:  Met 1000, Estrogen (21 days), Progesterone (5 days) Femera 5m 6/28/16 Ultrasound CD14 = 25 follie. Pregnyl Trigger CD14 IUI 7/13 1stBeta (DPO 15): 7.6 (Surprise BFP...but Low #'s) 2ndBeta (DPO 17): 18 3rdBeta (DPO 19) 52.8 Progesterone Prescribed (spotting) 4thBeta (DPO 26) 6.9 Chemical Pregnancy BFN

    IVF and FET (diagnosed with PCOS) 204 pounds at start of IVF
    IVF # 1 October and November 2016: CCRM - Minneapolis 10/14 Consult and CD 3 testing, 10/14 started (OCP Antagonist - BCP) BCP, 10/21 1 day work up, Doxycycline 100mg 10 days, 10/24 stop bcp, Bloodwork US 10/29, 10/30-11/8 Stims 2 vials of Menopur, Dexamethasone, 225 of Gonal-F daily (dropped to 120). CCRM Vitamin Cocktail (like 20 of them), Monitoring (11/2, 11/4, 11/5, 11/6, 11/7, 11/8), Retrieval 11/10 (38 eggs, 30 mature, 16 fertilized ICSI), 11/16 8 Blasts 11/30 CCS testing results 3 Normal 5aa's (2 boys and 1 girl) 1 Unknown 4 Abnormal (All girls) 


    Fet #1 January 2017: CCRM - Minneapolis bcp/lupron/suppository/p4 in oil QOD AF 12/7, 12/8 start meds. 1/3 lining and blood work check 14/15 mm, BW check 1/6. 1/9 transfer with acupuncture 1 CCS/PGS Normal 5aa hatching Progesterone around 26ish? Lower estrogen level 207 (wanted above 300 but over 200 was acceptable), started 1 estrace, progesterone in oil every other day, vivelle dot patches 4 every other day, 3x estrodiol daily, vitamin cocktail. POAS: - 4dp5dt and 5dp5dt, 6dp5dt frer very very very faint line. 7dp5dt and 8dp5dt + on Accuclear. 8dp5dt pregnant on a clear blue easy digital. 214 pounds at FET
    1/18 #1 Beta 91.1
    1/20 #2 Beta 215.9
    2/3 6 week US 2 sacs? Twins? but only 1 heartbeat/pole good heartbeat Stopped taking baby asprin Added in DHEA Veg Vitamin (also got the report that they transferred a girl 5aa eggo) 
    2/10 7 week US 2 sacs (likely vanishing twin) only 1 heartbeat/pole etc good heartbeat 137
    2/24 9 week US 1 eggo sac good heart beat 182 1 very small fluid sac (shrinking) 
    2/24 9 week 2 days start weening. Graduated from RE (CCRM is now starting weening as soon as 8.5 weeks)
    3/7 10 Weeks 5 days  weened completely of FET meds A1C 5.3% (Normal)
    3/9 11 Weeks 1 day my progesterone level was 15 and my estrogen level was 881 (I freaked out!)
    3/16 12 Weeks 1 day baby heard on doppler 164 HB
    4/14 16 week 2 days Ultrasound baby is looking good with all good numbers sized 17 weeks. Also got to hear her on the doppler for a few mins too. 

    5/5 19 Weeks 2 days going in for "20" week anatomy ultrasound got measurements but need to come back as wasn't able to get all the measurements
    MEASUREMENTS BPD 4.6 cm 19 weeks 6 days* (78%) HC 17.0 cm 19 weeks 4 days* (70%) AC 14.5 cm 19 weeks 4 days* (69%) Femur 3.1 cm 19 weeks 6 days* (63%) Humerus 3.1 cm 20 weeks 2 days (84%) Cerebellum 2.0 cm 19 weeks 5 days
    CisternaMagna 6.2 mm Nuchal Fold 4.5 mm
    HC/AC 1.17 FL/AC 0.22 FL/BPD 0.68 EFW (Ac/Fl/Hc) 309 grams - 0 lbs 11 oz
    THE AVERAGE GESTATIONAL AGE is 19 weeks 5 days +/- 10 days.

    6/9 24 Weeks 2 days Glucose Test 1 hour (Failed) 190
    6/16 25 Weeks 2 days Ultrasound and 1st Baby Shower 
    6/20 25 Weeks 6 days Glucose Test 3 Hours (Failed) 95 (95), 183 (180), 213 (155), 198 (140) etc
    6/21 26 Weeks Recommended to a perintologist
    6/22 26 Weeks 1 day start monitoring blood sugar levels 
    6/30 27 Weeks 2 day A1 (blood sugar test ordered)

    7/5 28 Weeks Echo and 3d Ultrasound
    AMNIOTIC FLUID Q1: 2.6 Q2: 3.2 Q3: 4.8 Q4: 5.6 AFI Total = 16.3 cm Amniotic Fluid: Normal 
    MEASUREMENTS BPD 7.2 cm 28 weeks 5 days* (60%) HC 26.4 cm 28 weeks 4 days* (48%) AC 23.3 cm 27 weeks 4 days* (36%) Femur 5.2 cm 28 weeks 0 days* (36%) Humerus 4.8 cm 28 weeks 0 days (49%)
    HC/AC 1.13 FL/AC 0.23 FL/BPD 0.73 Ceph Index 0.77 EFW (Ac/Fl/Hc) 1142 grams - 2 lbs 8 oz (37%)
    THE AVERAGE GESTATIONAL AGE is 28 weeks 1 day +/- 14 days.

    7/10 28 Weeks 5 days Dietitian Appt and Lactatcian Consultant and A1 blood draw 5.4% (normal) 218.5 pounds
    7/20 30 Weeks GD consult. 6 Lantus at 7pm daily. Novolog 1 unit for every 15 gm carbohydrate if consumed more than 30 gm at brkfst or 60 gm at lunch or supper 215.6 pounds
    7/20 30 Weeks Transferred care to OB due to high risk. 216 pounds

    8/2 32 Weeks Ultrasound (not cooperative and still breech) and then weekly NST's
    MEASUREMENTS BPD 8.0 cm 32 weeks 2 days* (44%) HC 29.2 cm 31 weeks 6 days* (22%) AC 26.9 cm 31 weeks 0 days* (24%)  Femur 6.3 cm 32 weeks 2 days* (57%) Humerus 5.7 cm 32 weeks 6 days (71%)
    HC/AC 1.08 FL/AC 0.23 FL/BPD 0.78 Ceph Index 0.78 EFW (Ac/Fl/Hc) 1808 grams - 3 lbs 15 oz (29%)
    THE AVERAGE GESTATIONAL AGE is 31 weeks 6 days +/- 18 days.
    AMNIOTIC FLUID Q1: 3.4 Q2: 2.9 Q3: 2.9 Q4: 4.4 AFI Total = 13.6 cm Amniotic Fluid: Normal

    8/8 32w6d upped to 1:10 for dinner 
    8/11 Baby Shower
    8/13 Baby Shower
    8/16 34 weeks NST good reading Upped to 8 at bed for fasting and 1:7 for dinner 
    8/18 Dr Appt

    8/24 35 weeks 1 day (was suppose to be scheduled for 36 weeks) Weeks Ultrasound/GD Dr Appt/OB Appt 
    Frank Breech
    MEASUREMENTS BPD 8.9 cm 35 weeks 6 days* (67%) HC 31.7 cm 35 weeks 1 day * (35%) AC 30.2 cm 34 weeks 2 days* (33%) Femur 6.9 cm 34 weeks 6 days* (57%) Humerus 6.0 cm 34 weeks 6 days (64%)
    HC/AC 1.05 FL/AC 0.23 FL/BPD 0.78 Ceph Index 0.80 EFW (Ac/Fl/Hc) 2494 grams - 5 lbs 8 oz (39%)
    THE AVERAGE GESTATIONAL AGE is 35 weeks 1 day +/- 21 days.
    AMNIOTIC FLUID Q1: 3.3 Q2: 3.8 Q3: 2.4 Q4: 3.8 AFI Total = 13.4 cm Amniotic Fluid: Normal

    8/31 36 Weeks
    9/7 37 Weeks
    9/10 Water broke...I got it tested at the emergency room it it showed it was negative. More water breaking and didn't go to the dr.
    9/11 37 weeks 4 days Called the Dr and got retested for water breaking...
    10:30pmish Baby Girl Born via Emergency C Section (Frank Breech Baby) 6lbs 3oz  -
    9/13 Dropped to 5 pounds 10oz and had jaundice 
    9/13 38 weeks

    9/22 39 Weeks 2 days C Section Scheduled for 10am (arrive at 8am) Equinox/Solstice
    EDD 9/27
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    calfherdercalfherder member
    edited March 2016
    I just recently opened up about our IF to a select group of people on my Facebook (some friends and family members that I trust not to be too judgy). No one knew we were even trying, let alone going through IF treatments. I think what caused me to disclose was all the motherhood challenge posts, and the memes from new moms like "When my friends without kids say they're exhausted" (insert laughing pic). I hate when people are so 1-uppy on there, and those posts drove me over the edge!

    **edit to add: My situation is not typical since we live far from our relatives and see them only once or twice a year. It was easy for us to keep it a secret for so long because people aren't typically up in our business. No one asks us when we're going to have kids anymore because we've been married 11 years. I know it is a lot more difficult to skirt around those questions when you are still recently married. You don't have to tell anyone if you don't want to! I wanted to keep it a secret so if we did get pregnant it would be a huge surprise. But it felt good to finally be open about it, so many people showed me they cared, and it felt like a weight lifted off my shoulders.
    __________________________________________________________
    Married September 2004 <3
    TTC since January 2014 
    DX - MFI Antibodies, High DNA fragmentation
    IUI #1 November 2015 - 0% Motility
    IVF #1 January 2016 - (FAIL/Over-suppressed)
    IVF #2 May 2016 - (FAIL/25 eggs, 1 5BB xx, PGS abnormal)
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    Most of our close friends knew that we've been TTC for a while. We hadn't told either of our families, though, since we wanted to surprise them once we were pregnant, and also cause we knew that they would bombard us with constant questions and demanding updates. Now that we're doing IVF, only about 3 or 4 friends/couples know since we see them constantly and they're smart enough to figure stuff out. The rest of our friends and our family don't know, and we haven't decided on if we will eventually tell them. If it ends up taking longer than we hope, maybe...
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    I go between wanting to share and wanting to keep it private. I really want to talk about it sometimes! At the same time, particularly with my family, I'm nervous to say anything because I don't want it to hang over every interaction. Also, I feel like if they knew, I'd have a hard time keeping it together around them and my 2 baby nieces. I'm sure they will start to guess soon though, if I don't get pregnant in the next few months. It's no secret that both DH and I have always wanted (many) children.

    We recently had to tell my in-laws and my sister-in-law because we were unable to travel for Easter due to a ultrasound appointment. (Which, sidenote, turns out was totally unnecessary anyway, since for some reason this cycle I didn't respond to Letrozole like I usually do! :s Going for another u/s tomorrow to see if there's been any progression.) DH just told them the basics: that we are having trouble conceiving and had an appointment that we couldn't change.

    Other than that, I have told 3 friends. Two of them are my closest friends and I really needed someone to talk to. They are both expecting right now, due later this spring, so I haven't spoken with them about it as much lately.  Another is a friend who was TTC for 4 months and expressed her frustration to me. Although to me 4 months is not that long, it was frustrating/scary to her, so I tried to be helpful in sharing some of my own experiences and encouraging her to see a specialist if she thought there might be a problem. (She is 35 and concerned about her age & TTC.)

    I agree that it is hard to hear the responses. FIL told DH to "just relax" (GRRRRR) and I heard "Well, you can always adopt" from a friend. What I really want is for someone to say, "It really sucks that you may never have a child. I'm so sorry." This experience has definitely taught me that I don't always have to console or offer solutions to what friends are going through. A simple "I'm so sorry" and a willingness to listen and ask questions goes SO far.
    Me: 33, PCOS with anovulation
    DH: 36, No known issues
    TTC since 11/2014
    1000mg Metformin daily

    Oct-Dec 2015: Letrozole 5mg, Ovidrel, TI = BFN x 2
    Feb-May 2016: Letrozole 5mg, Ovidrel, TI, Prometrium = BFN x 3
    August 2016: Clomid 100mg no response, Letrozole 5mg, Ovidrel, TI, Prometrium = BFN

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    For me it really helps to talk about things so I have been pretty open about it. So it all depends on you and your husband and how you personally feel about people knowing. My entire bible study group knows, our close friends and family. Just beware that you may not get the reaction you want some people. I told one of my dearest college friends and she literally has not asked me once since how everything is going. (That was in November). So beware that your friendships may change after sharing something so personal. I have found many people in our lives that are really supportive though and it has been wonderful having people to talk to even if it is just for prayer or venting.

    Me: 28, DH: 30 Married July 2014  DX: Severe MFI- 3 failed IUI's, IVF #1 Egg retrieval June 4th 2016, 5 day transfer- BFP Baby Boy! EDD 2/25/2017. Our sweet miracle Carter Bennett arrived 2/12/2017 6 lbs, 2 oz 19 inches. <3 Surprise BFP!!! Baby Girl due 10/1/2018.


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    We originally wanted to surprise our parents with a pregnancy announcement, but a few months after we started trying we went on a 1.5 week camping vacation with my parents, and it was kinda obvious with regards to having to have sex. So we ended up facetiming with DHs parents to let them know that we were trying for a baby. Shortly after we got back from that vacation I decided to email my OB/GYN about taking Clomid as I knew I hadn't ovulated, and he said he couldn't and referred me to an RE. I started blogging about it almost right away, because I knew only one other person who struggled, so I wanted to help educate my family and friends as to what was going on. I'm a relatively open person to begin with, so it wasn't hard to make the leap to telling everyone about our infertility journey. Even the bad, like when I got pregnant but it was ectopic so I had to have a medically induced miscarriage. It was hard to share the bad, but helpful to have the support. 
    About us:
    Me - 28, Lean PCOS
    DH - 31
    Married June 2010, TTC since March 2014
    Blog: ourbinarystar.com

    FET cycle #3 Transfer July 28th 2016, Triplets born healthy on February 26th 2017 at 33w1d!

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    Only a few people know we are dealing with IF - my parents, two coworkers (one who struggled with IF for 10+ years and just went through IVF), one of my cousins and a close friend from college. I wasn't planning on telling any other family besides my parents, but my cousin confided in me that she has been diagnosed with PCOS and I let her know I had as well and what I had been dealing with. I think it is good to be open with her so if she ends up struggling whenever she decides its time to conceive, she knows she isn't alone and can come to me with any questions. My sister will most likely be informed next week since she is coming to stay with us for a few days and all my meds are just chilling in the fridge, lol.

    We decided not to share anything with DH's parents or family because they are known for inappropriate comments. When we had just gotten engaged I got, in a baby voice from my future MIL "Are you ready to be a mommy?" And she has voiced her opinion about birth control and other treatments based on her religious beliefs, completely unprovoked and unrelated to us but we decided we didn't want to hear about how God  will bless us with children when He is ready. She also asked my sister upon the first time meeting her at my wedding shower if and when she was planning on having kids. My BIL had asked us when we were going to have children and eventually my DH told him that he should never ask couples that question because it is not appropriate and then asked him how his sex life was going and that shut him up.

    I told my DH that I support him and even encourage him to be open with some of his close friends if he wants (even to just complain about me, lol!), only for him to have some additional support other than just me because I know I'm not the easiest to deal with at times through this process. As of right now he said he doesn't feel comfortable with that and would only say something if it came  up naturally in a conversation, which with guys I'm guessing never will.

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    Hello! I should say I feel nothing weird about telling people about my previous struggling. But this might also be so because our fertility journey is already behind. And that we can breathe in freely now. From the very beginning I could talk about the matters only to my family members and two very close friends of mine. Also people on forums as this could be done almost anonymously as far as you'd like to make a real acquaintance. So probably this depends very much on what character we have and what stage of treatment we are in, definitely.
    Take care x

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    It took us a long time to tell anyone. The first year we were TTC only my closest girlfriend knew, we really wanted to suprise our friends and family with a pregnancy announcement. After being referred to an RE and finding out we may have a long road ahead of us we decided to tell our closest friends and my family.

    We felt like we had withdrawn a bit from our friends and were making excuses not to join in on vacations, nights out and parties like we used to. We had some really bad news on New Year's Eve and again on my birthday and I wanted our friends to just know that if we're not ourselves there's a reason. We sent an email explaining what was going on and it was the best decision. We got so much support and well wishes, it's a very close group of friends and it's nice to be able to talk about it a bit. I don't get into too many details, none of them have gone through this and they all had children easily but it's nice to not feel so alone with what is happening.
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