How do you all decide to tell or not about what you are going through. I have a few people at work that know because of the constant appointments. My parents know about my condition because I was diagnosed at 17, but they don't know much about our current treatment. We haven't talked to any other family, especially DH's family. My MIL is a bit of a gossip, but also really wants grandbabies so she does unthoughtful things like buying us baby socks... So sometimes I just want to tell so we stop getting nagged about having babies, but other times I don't want to tell because I don't want everyone to hear that it's "my fault" that we don't have kids. That is how she would spin it. I blame myself enough, I don't need someone else to blame me too.
Re: To Tell or Not To Tell...
Together since 2008, married Sept 2013
ttc #1 since July 2014
DX: unexplained infertility
Sept, Oct, Nov Clomid 50 mg: BFN
Feb 2016 IUI w/ 50mg Clomid, Ovidrel, Prometrium: BFN
March 2016 IUI w/ 50mg Clomid, Ovidrel, Prometrium: BFN
June 2016 IVF: BFP 6/28!!! beta #1: 358, beta #2: 1428, beta #3: 3742
TTC - since 2014
7 rounds of Clomid - BFN
IUI #1 - October 2015 - BFN
IUI #2 - November 2015 - BFN
IUI #3 - December 2015 - BFN
IVF #1 - March 2016
Retrieval #1 - April 2016
FET #1 - May 2016 - BFP!!! DS - Born January 2017
Trying for baby #2...
FET #2 - January 2018 - BFN
No more embryos left; switched to a new RE
IVF/Retrieval #2 - January 2019
IVF/Retrieval #3 - March 2019
FET #3 - April 2019 - BFP!!! - DD: Born December 2019
Trying for baby #3...
FET #4 - October 2021 - BFP!!! - Due June 2022
Together since 2008, married Sept 2013
ttc #1 since July 2014
DX: unexplained infertility
Sept, Oct, Nov Clomid 50 mg: BFN
Feb 2016 IUI w/ 50mg Clomid, Ovidrel, Prometrium: BFN
March 2016 IUI w/ 50mg Clomid, Ovidrel, Prometrium: BFN
June 2016 IVF: BFP 6/28!!! beta #1: 358, beta #2: 1428, beta #3: 3742
But to each their own.
Me: 37 DH: 32 TTGP Since 2014 INFERTILITY INFO (Medicated, IUI's, IVF/FET) IN SPOILER
Medicated April-December 2015: Clomid (didn't work) and so we tried Femera/Letrozole. Progesterone Met 1000 Not diagnosed PCOS but treating the same. Anovulatory. TI No US No O BFN
- TW -
IUI"S
January 2016-October 2016: Letrozole 2.5mg-7.5 mg, Pregyl or Ovideral Trigger Shot.
9 cycles of IUI (7 Cancelled due to no mature follicles) (2 attempted IUI's with mature follicles)
IUI # 2 June 2016 and July 2016: Met 1000, Estrogen (21 days), Progesterone (5 days) Femera 5m 6/28/16 Ultrasound CD14 = 25 follie. Pregnyl Trigger CD14 IUI 7/13 1stBeta (DPO 15): 7.6 (Surprise BFP...but Low #'s) 2ndBeta (DPO 17): 18 3rdBeta (DPO 19) 52.8 Progesterone Prescribed (spotting) 4thBeta (DPO 26) 6.9 Chemical Pregnancy BFN
IVF and FET (diagnosed with PCOS) 204 pounds at start of IVF
IVF # 1 October and November 2016: CCRM - Minneapolis 10/14 Consult and CD 3 testing, 10/14 started (OCP Antagonist - BCP) BCP, 10/21 1 day work up, Doxycycline 100mg 10 days, 10/24 stop bcp, Bloodwork US 10/29, 10/30-11/8 Stims 2 vials of Menopur, Dexamethasone, 225 of Gonal-F daily (dropped to 120). CCRM Vitamin Cocktail (like 20 of them), Monitoring (11/2, 11/4, 11/5, 11/6, 11/7, 11/8), Retrieval 11/10 (38 eggs, 30 mature, 16 fertilized ICSI), 11/16 8 Blasts 11/30 CCS testing results 3 Normal 5aa's (2 boys and 1 girl) 1 Unknown 4 Abnormal (All girls)
Fet #1 January 2017: CCRM - Minneapolis bcp/lupron/suppository/p4 in oil QOD AF 12/7, 12/8 start meds. 1/3 lining and blood work check 14/15 mm, BW check 1/6. 1/9 transfer with acupuncture 1 CCS/PGS Normal 5aa hatching Progesterone around 26ish? Lower estrogen level 207 (wanted above 300 but over 200 was acceptable), started 1 estrace, progesterone in oil every other day, vivelle dot patches 4 every other day, 3x estrodiol daily, vitamin cocktail. POAS: - 4dp5dt and 5dp5dt, 6dp5dt frer very very very faint line. 7dp5dt and 8dp5dt + on Accuclear. 8dp5dt pregnant on a clear blue easy digital. 214 pounds at FET
1/18 #1 Beta 91.1
1/20 #2 Beta 215.9
2/3 6 week US 2 sacs? Twins? but only 1 heartbeat/pole good heartbeat Stopped taking baby asprin Added in DHEA Veg Vitamin (also got the report that they transferred a girl 5aa eggo)
2/10 7 week US 2 sacs (likely vanishing twin) only 1 heartbeat/pole etc good heartbeat 137
2/24 9 week US 1 eggo sac good heart beat 182 1 very small fluid sac (shrinking)
2/24 9 week 2 days start weening. Graduated from RE (CCRM is now starting weening as soon as 8.5 weeks)
3/7 10 Weeks 5 days weened completely of FET meds A1C 5.3% (Normal)
3/9 11 Weeks 1 day my progesterone level was 15 and my estrogen level was 881 (I freaked out!)
3/16 12 Weeks 1 day baby heard on doppler 164 HB
4/14 16 week 2 days Ultrasound baby is looking good with all good numbers sized 17 weeks. Also got to hear her on the doppler for a few mins too.
5/5 19 Weeks 2 days going in for "20" week anatomy ultrasound got measurements but need to come back as wasn't able to get all the measurements
MEASUREMENTS BPD 4.6 cm 19 weeks 6 days* (78%) HC 17.0 cm 19 weeks 4 days* (70%) AC 14.5 cm 19 weeks 4 days* (69%) Femur 3.1 cm 19 weeks 6 days* (63%) Humerus 3.1 cm 20 weeks 2 days (84%) Cerebellum 2.0 cm 19 weeks 5 days
CisternaMagna 6.2 mm Nuchal Fold 4.5 mm
HC/AC 1.17 FL/AC 0.22 FL/BPD 0.68 EFW (Ac/Fl/Hc) 309 grams - 0 lbs 11 oz
THE AVERAGE GESTATIONAL AGE is 19 weeks 5 days +/- 10 days.
6/9 24 Weeks 2 days Glucose Test 1 hour (Failed) 190
6/16 25 Weeks 2 days Ultrasound and 1st Baby Shower
6/20 25 Weeks 6 days Glucose Test 3 Hours (Failed) 95 (95), 183 (180), 213 (155), 198 (140) etc
6/21 26 Weeks Recommended to a perintologist
6/22 26 Weeks 1 day start monitoring blood sugar levels
6/30 27 Weeks 2 day A1 (blood sugar test ordered)
7/5 28 Weeks Echo and 3d Ultrasound
AMNIOTIC FLUID Q1: 2.6 Q2: 3.2 Q3: 4.8 Q4: 5.6 AFI Total = 16.3 cm Amniotic Fluid: Normal
MEASUREMENTS BPD 7.2 cm 28 weeks 5 days* (60%) HC 26.4 cm 28 weeks 4 days* (48%) AC 23.3 cm 27 weeks 4 days* (36%) Femur 5.2 cm 28 weeks 0 days* (36%) Humerus 4.8 cm 28 weeks 0 days (49%)
HC/AC 1.13 FL/AC 0.23 FL/BPD 0.73 Ceph Index 0.77 EFW (Ac/Fl/Hc) 1142 grams - 2 lbs 8 oz (37%)
THE AVERAGE GESTATIONAL AGE is 28 weeks 1 day +/- 14 days.
7/10 28 Weeks 5 days Dietitian Appt and Lactatcian Consultant and A1 blood draw 5.4% (normal) 218.5 pounds
7/20 30 Weeks GD consult. 6 Lantus at 7pm daily. Novolog 1 unit for every 15 gm carbohydrate if consumed more than 30 gm at brkfst or 60 gm at lunch or supper 215.6 pounds
7/20 30 Weeks Transferred care to OB due to high risk. 216 pounds
8/2 32 Weeks Ultrasound (not cooperative and still breech) and then weekly NST's
MEASUREMENTS BPD 8.0 cm 32 weeks 2 days* (44%) HC 29.2 cm 31 weeks 6 days* (22%) AC 26.9 cm 31 weeks 0 days* (24%) Femur 6.3 cm 32 weeks 2 days* (57%) Humerus 5.7 cm 32 weeks 6 days (71%)
HC/AC 1.08 FL/AC 0.23 FL/BPD 0.78 Ceph Index 0.78 EFW (Ac/Fl/Hc) 1808 grams - 3 lbs 15 oz (29%)
THE AVERAGE GESTATIONAL AGE is 31 weeks 6 days +/- 18 days.
AMNIOTIC FLUID Q1: 3.4 Q2: 2.9 Q3: 2.9 Q4: 4.4 AFI Total = 13.6 cm Amniotic Fluid: Normal
8/8 32w6d upped to 1:10 for dinner
8/11 Baby Shower
8/13 Baby Shower
8/16 34 weeks NST good reading Upped to 8 at bed for fasting and 1:7 for dinner
8/18 Dr Appt
8/24 35 weeks 1 day (was suppose to be scheduled for 36 weeks) Weeks Ultrasound/GD Dr Appt/OB Appt
Frank Breech
MEASUREMENTS BPD 8.9 cm 35 weeks 6 days* (67%) HC 31.7 cm 35 weeks 1 day * (35%) AC 30.2 cm 34 weeks 2 days* (33%) Femur 6.9 cm 34 weeks 6 days* (57%) Humerus 6.0 cm 34 weeks 6 days (64%)
HC/AC 1.05 FL/AC 0.23 FL/BPD 0.78 Ceph Index 0.80 EFW (Ac/Fl/Hc) 2494 grams - 5 lbs 8 oz (39%)
THE AVERAGE GESTATIONAL AGE is 35 weeks 1 day +/- 21 days.
AMNIOTIC FLUID Q1: 3.3 Q2: 3.8 Q3: 2.4 Q4: 3.8 AFI Total = 13.4 cm Amniotic Fluid: Normal
8/31 36 Weeks
9/7 37 Weeks
9/10 Water broke...I got it tested at the emergency room it it showed it was negative. More water breaking and didn't go to the dr.
9/11 37 weeks 4 days Called the Dr and got retested for water breaking...
10:30pmish Baby Girl Born via Emergency C Section (Frank Breech Baby) 6lbs 3oz -
9/13 Dropped to 5 pounds 10oz and had jaundice
9/13 38 weeks
9/22 39 Weeks 2 days C Section Scheduled for 10am (arrive at 8am) Equinox/Solstice
EDD 9/27
**edit to add: My situation is not typical since we live far from our relatives and see them only once or twice a year. It was easy for us to keep it a secret for so long because people aren't typically up in our business. No one asks us when we're going to have kids anymore because we've been married 11 years. I know it is a lot more difficult to skirt around those questions when you are still recently married. You don't have to tell anyone if you don't want to! I wanted to keep it a secret so if we did get pregnant it would be a huge surprise. But it felt good to finally be open about it, so many people showed me they cared, and it felt like a weight lifted off my shoulders.
DX - MFI Antibodies, High DNA fragmentation
IUI #1 November 2015 - 0% Motility
IVF #2 May 2016 - (FAIL/25 eggs, 1 5BB xx, PGS abnormal)
We recently had to tell my in-laws and my sister-in-law because we were unable to travel for Easter due to a ultrasound appointment. (Which, sidenote, turns out was totally unnecessary anyway, since for some reason this cycle I didn't respond to Letrozole like I usually do!
Other than that, I have told 3 friends. Two of them are my closest friends and I really needed someone to talk to. They are both expecting right now, due later this spring, so I haven't spoken with them about it as much lately. Another is a friend who was TTC for 4 months and expressed her frustration to me. Although to me 4 months is not that long, it was frustrating/scary to her, so I tried to be helpful in sharing some of my own experiences and encouraging her to see a specialist if she thought there might be a problem. (She is 35 and concerned about her age & TTC.)
I agree that it is hard to hear the responses. FIL told DH to "just relax" (GRRRRR) and I heard "Well, you can always adopt" from a friend. What I really want is for someone to say, "It really sucks that you may never have a child. I'm so sorry." This experience has definitely taught me that I don't always have to console or offer solutions to what friends are going through. A simple "I'm so sorry" and a willingness to listen and ask questions goes SO far.
DH: 36, No known issues
TTC since 11/2014
1000mg Metformin daily
Oct-Dec 2015: Letrozole 5mg, Ovidrel, TI = BFN x 2
Feb-May 2016: Letrozole 5mg, Ovidrel, TI, Prometrium = BFN x 3
August 2016: Clomid 100mg no response, Letrozole 5mg, Ovidrel, TI, Prometrium = BFN
Me - 28, Lean PCOS
DH - 31
Married June 2010, TTC since March 2014
Blog: ourbinarystar.com
FET cycle #3 Transfer July 28th 2016, Triplets born healthy on February 26th 2017 at 33w1d!
Only a few people know we are dealing with IF - my parents, two coworkers (one who struggled with IF for 10+ years and just went through IVF), one of my cousins and a close friend from college. I wasn't planning on telling any other family besides my parents, but my cousin confided in me that she has been diagnosed with PCOS and I let her know I had as well and what I had been dealing with. I think it is good to be open with her so if she ends up struggling whenever she decides its time to conceive, she knows she isn't alone and can come to me with any questions. My sister will most likely be informed next week since she is coming to stay with us for a few days and all my meds are just chilling in the fridge, lol.
We decided not to share anything with DH's parents or family because they are known for inappropriate comments. When we had just gotten engaged I got, in a baby voice from my future MIL "Are you ready to be a mommy?" And she has voiced her opinion about birth control and other treatments based on her religious beliefs, completely unprovoked and unrelated to us but we decided we didn't want to hear about how God will bless us with children when He is ready. She also asked my sister upon the first time meeting her at my wedding shower if and when she was planning on having kids. My BIL had asked us when we were going to have children and eventually my DH told him that he should never ask couples that question because it is not appropriate and then asked him how his sex life was going and that shut him up.
I told my DH that I support him and even encourage him to be open with some of his close friends if he wants (even to just complain about me, lol!), only for him to have some additional support other than just me because I know I'm not the easiest to deal with at times through this process. As of right now he said he doesn't feel comfortable with that and would only say something if it came up naturally in a conversation, which with guys I'm guessing never will.
Take care x
We felt like we had withdrawn a bit from our friends and were making excuses not to join in on vacations, nights out and parties like we used to. We had some really bad news on New Year's Eve and again on my birthday and I wanted our friends to just know that if we're not ourselves there's a reason. We sent an email explaining what was going on and it was the best decision. We got so much support and well wishes, it's a very close group of friends and it's nice to be able to talk about it a bit. I don't get into too many details, none of them have gone through this and they all had children easily but it's nice to not feel so alone with what is happening.