October 2016 Moms

Scared beyond belief

I carried a beautiful baby girl full term and she was born on the 5th of Aug 2015. The next day she started going blue and a heart defect was diagnosed. 4 open heart surgeries later she passed away on the 1st of October. She was 57 days old. Im am now 5 weeks pregnant again... im so scared.... what are the chances it will happen again?

Re: Scared beyond belief

  • First of all, I am so sorry for your loss. Unfortunately, none of us can tell you the chances of it happening again. You'll have to talk to your doctor about the possible risks. I would also ask about genetic counseling. They can likely tell you if it is a congenital issue or if it was a rare occurence. 

    We will definitely be here to support you ask you go through this scary time. My prayers are with you.

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  • I'm so sorry for your loss. I can't imagine how hard that would be. 
    I second seeing a genetic counselor. Maybe also a mental health counselor. You experienced something incredibly traumatic, and I imagine processing that along with talking about your fears for your unborn babe with someone caring and unbiased might help a lot. 
    Thoughts and prayers for a healthy pregnancy and baby. ❤️❤️
  • I am so sorry for your loss. You would need to know if it was a genetic defect, and even then that doesn't mean it will happen again. Thats where the genetic counseling alreafy entioned will be helpful. I know this is probably really hard to do but try not to let that scare you in this pregnancy and try to enjoy it. 
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  • I am so sorry for your loss. 

    I couldn't begin to guess what the chances of it happening again are, that's probably only something a Dr. And some genetic  testing can tell you.  I can say I know of several families  where one sibling was born with  genetic condition  and the other was not.
  • I'm so very sorry for your loss, I can't even fathom the pain you've experienced. I second the genetic testing for sure as that will be one of the only ways to monitor this. We'll all be here for you! 
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  • I carried a beautiful baby girl full term and she was born on the 5th of Aug 2015. The next day she started going blue and a heart defect was diagnosed. 4 open heart surgeries later she passed away on the 1st of October. She was 57 days old. Im am now 5 weeks pregnant again... im so scared.... what are the chances it will happen again?
    I'm so very sorry for the loss of your sweet daughter. Congratulations on your new pregnancy, but this is a question for your MFM and/or genetic counselor. The chances of the heart defect happening again rely on too many factors to be able to tell you over the internet. I hope your new baby doesn't have any of the issues that your Angel Baby did, but time will tell. Today you are pregnant and today you love your babies. Hang in there.


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