Help! FTM in terrible distress: just found out 1 of my twins has a serious defect

RMM1204 · January 2016

Has any other mom been told the devastating news at a 2nd trimester ultrasound that one of your babies had a serious birth defect? If so, I would love to hear your experience and any advice you can give.

PaniaO · January 2016

No experience but wanted to send you T&Ps for feeling some peace around this. Hopefully others have something more concrete for you to lean on.

JennyS86 · January 2016

Wow, I'm sorry to hear such sad news. Thoughts and prayers to you. I had twins and one of my twins has a heart defect that was not diagnosed prenatally. It's not a life-threatening heart defect, but she still may need surgery in the future.
My recommendation to you is to keep asking questions - maybe even ask for a more specialized ultrasound with a maternal fetal medicine specialist. I'm sure there is still a lot that is unknown at this point, and that can be hard as well. Take care.

mytinc · January 2016

I found out at my 20 week ultrasound that my son (DS2) had a complex congenital heart defect where half of his heart didn't grow properly (hypoplastic left heart syndrome or HLHS) and the aorta was attached to the wrong side of the heart (double outlet right ventricle or DORV). These defects meant that he had to have his first open heart surgery at 5 days old, his second one at 5 months old and he still needs another one this fall when he turns two. The news was absolutely devastating as the outcome for these kids varies and Dr. Google shows all sorts of horror stories of things going wrong.

I don't know what diagnosis you received, but my thoughts are with you during this difficult time. It's so painful to learn that what you thought was a normal pregnancy isn't what you anticipated it to be.

Help! FTM in terrible distress: just found out 1 of my twins has a serious defect

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