September 2015 Moms

Dairy Allergy - does your LO have it?

Just got back from the pediatricians office. My 14 week old LO has severe skin rashes and screams non stop lately, reflux/spitting up as well. Doc believes it's an allergy to dairy, NOT lactose intolerance, but an allergy to the milk protein. Has anyone else experienced this with their LO? If so, what were their symptoms? Did things improve once u got off all dairy? The doc told me it can take a week or so for the dairy to truly be out of my system... Also, ALL that pumped milk that I wake up at 3am to pump... Yup, can't give it to her bc it'll have dairy in it since I only stopped eating diary today. They gave us a prescription for a skin cream but I'm not allowed to use it till we confirm this is in fact an allergy to dairy! Which means she will be miserable for days and days more. Please let me know if any of you have experienced this and any tips or tricks u know of. We were given permission to give her Tylenol as well as 1/4 teaspoon of Benadryl at bedtime. Doc said Vaseline for her skin for now.

Re: Dairy Allergy - does your LO have it?

  • Yeah my LO has it and we completely switched to formula... We use Nutramigen LGG since he is very allergic and most of the symptoms were gone in about a week. Rash - hard scratchy rash on his face and behind the ears. A little bit on his wrists and legs as well. Tons of colic. Now he just has gas every once in a while. Good luck, hopefully you'll get it resolved soon... I seriously wanted to cry - I felt so powerless to help him. Especially since the doctors couldn't agree at first!!
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  • kkerner87kkerner87 member
    edited December 2015
    My LO Screams nonstop. I'm starting to think this is what it could be. I hope not because i have close to 200oz stored in my freezer stash and i would just hate to get rid of it all... that would be heartbreaking.

    ETA She had one skin rash at about 7weeks old, but they said it was eczema. If she had an allergy, would it keep coming back?
  • We use the nutramigen LGG as well and it has made a world of difference. He sleeps through the night, isn't fussy, isn't gassy and he's a whole new baby. That stuff is liquid magic
  • I think the rash would keep coming back - do others agree? I read it's fairly rare and way over diagnosed, so don't stress yet about throwing away your stash! It does take lots of time to clear from your body/breastmilk so you could always spend a few weeks being completely dairy free and see if you notice major improvement!
  • My LO has it. She started having green mucous poops and had one diaper tinged with blood. Cut out all dairy and she's been fine since.
  • I suspected this since about week 5. Cut out the dairy and her fussiness and gas improved dramatically. I wasn't sure if it was just coincidental bc fussiness decreases around weeks 6-8. I ate dairy 2 nights ago (ranch dressing and some Chocolate) and yesterday she has really green globby mucus-y poop and a pretty bad diaper rash.

    Not sure if it's milk protein allergy or an intolerance. Either way...cutting out dairy! (Which is super depressing by the way ;)
  • I just remembered- our ped said absolutely no vaseline on the rash... we got a perscription steroid cream which we used twice. It helped a lot but.... ick. Now a specialist perscribed a special vitamin A cream
  • Whaaaaa!? Crap, mine said to use ONLY Vaseline for now. Do u know the reason your doc said to not use Vaseline?!
  • I kept asking my ped about this for very loose mucousy green poop for over a month and she said it's over diagnosed and if it was an allergy we would know b/C he would be miserable (he's totally happy and calm otherwise). I'm still thinking of trying dairy free just to see if it makes any difference.
  • Yes!!! My DS3 had MSPI (milk soy protein intolerance) I had to go on an elimination diet, ended up removing all dairy and soy from my diet for two years while I nursed him.  It was definitely a struggle at first, because dairy and soy are in everything!!! But once I got the hang of it, it was definitely easier. 

    You'll want to remove all sources of dairy, obvious ones like milk, cheese, yogurt, etc but also hidden dairy like casein, whey, etc found in breads, baked goods, crackers, even spices!  Read labels carefully.  Half of all babies who cannot tolerate dairy also have trouble with soy because their proteins are very similar so you may want to consider going off soy as well.

    It generally takes a few weeks to get everything out of your system and your LO's so if you don't see 100% improvement right away don't get discouraged.  I was able to continue nursing my LO while I was figuring out his allergens, using his reactions as my guide sometimes (helpful hint, "vegetable oil" is usually soy oil). 

    If you end up using formula you'd want to start with a hydrolysate formula like Nutramigen or Alimentum.  They are made up of partially broken down protein chains, unlike "regular" formula that contains full milk protein chains.  A large majority of MSPI babies do well on these types of formula, however, some more sensitive babies will require an elemental formula (like Neocate).  Elemental formulas are broken down 100% into free amino acids, the building blocks of protein, so there are no protein chains to digest. 

    Here is some info on MSPI, elimination diets, and formula:

    https://www.refluxrebels.com/mspi-milk-soy-protein-intolerant/

    https://www.refluxrebels.com/eliminating-dairy-and-soy/

    https://kellymom.com/health/baby-health/food-sensitivity/

    https://www.kellymom.com/store/freehandouts/hidden-dairy01.pdf

    https://www.neocate.com/blog/elimination-diet-fyi/

    https://www.neocate.com/blog/elimination-diets-and-breastfeeding/

    If you do decide to proceed with an elimination diet, I also have some resources for recipes that you may find helpful!  Hang in there, and I hope this info helps.

    Rachel Mom to 3 boys Augustboy02 - Sensational Sensory Kid Decemberboy04 -former reflux baby Augustboy10 - MFPI baby
  • @rachel*neocate
    I would love some dairy free recipes! We are also dairy free and I'm running out of ideas!
  • Omg thank you!!! I want to give up soy as well and see if that helps to improve things!!!
  • Yes, I had to go dairy free for my LO. I chose to keep breastfeeding rather than going to all formula. It's NOT easy. How we found out: The Ped tested my LO stool for traces of blood, after 2 weeks of being dairy free, the blood was gone and her screaming was WAY less. I felt so guilty that my milk was causing her pain, but thankfully I was able to fix it for her.

    When we need to give her formula we use Alimentum. We tried the Nutramigen and LO hated it. Would not take it. The Alimentun is alittle sweeter and she will take that.

    If you decide to keep breastfeeding ......You'll find that there is milk is way more than the obvious stuff like cheese. Look at every food label for milk or whey. It's in a ton of breads which surprised me. The best thing to do is think "simple". Meat, veggies, fruit. And spend some time in the organic aisle. There are breads, crackers, bread crumbs, butter, etc. Almond milk will be your new best friend. The Silk brand has a vanilla version that's really good. Use Earth Balance butter. My go to foods are Mexican (taco shells and most soft tortillas are dairy free), stuffed green peppers, eggs, Fiber 1 English muffins (Thomas has milk in them), and peanut butter (with apples, carrots, celery, great protein snack). Good luck, after a couple weeks it'll get easier to cook for yourself!!
  • I made a lot of my food from scratch so that I knew what I was eating.  Keeping it simple.  The biggest thing you'll find is that you need to cut out a lot of prepackaged foods, because they usually contain dairy and/or soy.  I found that it forced me to eat better, which turned out to be a positive!  Hang in there!

    Rachel Mom to 3 boys Augustboy02 - Sensational Sensory Kid Decemberboy04 -former reflux baby Augustboy10 - MFPI baby
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