Babies on the Brain

Pre-existing Medical Condition

edited December 2015 in Babies on the Brain
Hello, I'm new to the bump and just in the very beginning stages of starting to think about having kids. My husband and I were just married this summer, but I knew shortly after I first met him that we were going to have issues conceiving a child. My husband has Cystic Fibrosis (CF). I am so thankful that he has a more 'mild' case of CF and is in good health, but infertility comes with the disease, he doesn't have a vas deference to carry sperm. I have been tested and am not a carrier for CF. It's overwhelming, and I don't even know where to start. Do we start with his Dr. or mine? How are we ever going to pay for this? Are we not meant to have children? What if it takes too long and I become too old? And the list goes on. I only just yesterday started tracking my BBT; thought it would be a good idea to have some data to bring to the Doctors'. Has anyone else experienced CF and infertility? Anyone else know before they started trying that they would have issues? Where do I start?

Re: Pre-existing Medical Condition

  • This sounds like an enormous obstacle, and I'm so sorry to hear that you have to go through it. I think starting out with charting is a great idea. I have no experience in this matter, but I should think that you both may want to talk to your doctors together. Best case scenario, you're ovulating properly and he produces strong dperm that can be retrieved, in which case, you could conceive through IUI. A doctor could give you way more information than we can, though!

    Best of luck and creepy internet stranger hugs to you.

    ________________________________________________________


    Started TTC #1 November 2015
    BFP 6/10/2016 - EDD 2/22/2017


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  • Hello, I'm new to the bump and just in the very beginning stages of starting to think about having kids. My husband and I were just married this summer, but I knew shortly after I first met him that we were going to have issues conceiving a child. My husband has Cystic Fibrosis (CF). I am so thankful that he has a more 'mild' case of CF and is in good health, but infertility comes with the disease, he doesn't have a vas deference to carry sperm. I have been tested and am not a carrier for CF. It's overwhelming, and I don't even know where to start. Do we start with his Dr. or mine? How are we ever going to pay for this? Are we not meant to have children? What if it takes too long and I become too old? And the list goes on. I only just yesterday started tracking my BBT; thought it would be a good idea to have some data to bring to the Doctors'. Has anyone else experienced CF and infertility? Anyone else know before they started trying that they would have issues? Where do I start?


    I am sorry to hear about DH having CF. I can't begin to imagine how emotional TTC would be with that on the back of your mind. I would say to do the following:
       1. Breath - worrying and freaking yourself out about the CF at this point is not going to help anything and could negatively effect things in your body such as when you get AF, etc.
       2. Start a chart with what you know. You can make it more detailed as you go along.
       3. Talk to his doctor and your doctor somewhat together. If you talk to his in January, talk to yours in January / February if possible. Also, maybe look at a doctor who would work with both of you at the same time.
       4. Obviously cost is a factor but insurance should help with some of it and maybe in the meantime try putting / saving some money on the side if you're able to. It may not be a huge amount but I know for DH and I, just knowing that money (we don't have a lot set aside) is there takes a lot of stress away.
       5. I wouldn't worry about the future what if's (such as becoming too old, etc) right now. Yes I know easier said than done
       6. Lean on us at TB for support.

    HUGS
    Me:27 | DH: 26
    Married: 7/26/14
    NTNP since: September '15
    TTC #1: October '15
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  • My best friend is going through this right now, but she's the one with CF rather than her husband. It won't be an easy process, but there have been some amazing advances in CF treatment lately. Talk to his doctor first about your options, and they will be able to help outline the process for you. It is definitely possible that you two will be able to have a baby, but it may not be without medical intervention, so be prepared. Your doctors will also be able to tell you what kind of finances you'll need and whether any necessary procedures will be covered by insurance. keep your head up, and you're welcome to pm me if you need any emotional support.
    Read about my motherhood journey and more at http://hallidaynelson.com/
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