endometriosis and OBGYN

Re: endometriosis and OBGYN

• J+A2008 member

  November 2015

  This site shouldn't be for people to be rude...sorry you had that experience...I haven't had that issue at all, thank goodness....but have definitely read some posts of people that were quite a bit...

  
  

   I think its important to remember we are all here for the same reason!!

  
  

  I don't have near as much experience as some of the people on here but I will tell you what I know!  Depending on your age and amh level it can take up to a year and they say keep trying without help. I will tell you they told me to TTC for 6 months first, I insisted on AMH Test and they immediately sent me to an RE when I got results.  (hopefully that won't be the case with you) Unfortunately I don't have much info on endometriosis...(sorry?)

  
  

  I would say definitely hands down go to an RE, have an HSG Test done and your levels tested at least your amh....

  
  

  
  

  http://global.thebump.com/ticker?TT=fruit&TT1=fruit&CL=40&CT=W&CG=F&O=GreenFruitweek11&T=ticker_fruits_bg_green&D=&M1=&D1=2016-09-14&T2=&T1=&T3=&CC=&CO=&CO2=&W=&TS=&R=&SC=Green
  

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• khochanadel member

  November 2015

  I have stage 4 endometriosis. My OB also told me not to worry until a year of unsuccessful ttc. I had to be a little insistent, but she put me through the fertility protocol after that.
  
  Hormone levels all came back normal but HSG showed a blocked tube. That's when I got referred to an RE and finally found the real culprit - the endo.
  
  How do you know you have endometriosis? From what I was made to understand it's not something they can diagnose without surgery. I think it's bull that OBs make you wait so long. I felt like I wasted all that time and just made my endo worse. If you know something is wrong, be persistent.

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• KidShrink member

  November 2015

  *bfp mentionned*
  Sorry you've had bad experiences with boards...this group is usually pretty awesome. I had suspected endo for a little while, did a few rounds of femara and TI with an RE, all of which were unsuccesful despite great response to the meds. So at that point he decided to do a hysteroscopy (I had a suspected issue with the shape of my uterus) with a transvaginal endoscopy which could lead to a laparoscopy if they saw anything wrong. Turns out it was pretty awful in there, with stage 4 endo that spread from my bowels, bladder, all the way to my liver (completely covered) and diaphragm. My right ovary was completely covered and stuck in it too. They hadn't seen any of this on any of the ultrasounds I had done, so they were quite surprised by the extent of it. I ended up having an MRI about 2 weeks after the surgery because of some endo in the wall of my bladder that they couldn't remove without risking a reconstructive surgery. Then, they saw I still had a bunch of lesions that hadn't been removed here and there, as well as an endometrioma in my left ovary, which given it was INSIDE my ovary prevented them from seeing it on ultrasound or during the surgery. I got my bfp the very next cycle (femara and follistim with IUI). I'd highly recommend finding an RE that specializes in minimally invasive gynecological surgery (MIGS)...unfortunately, a good friend of mine is dealing with endo and diminished reserve and none of her OBGYN or fertility specialist is willing to operate despite completely debilitating pain which now lasts throughout the month. Best of luck in your search!

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• madamemason member

  November 2015

  This is so great to read KidShrink, I am booked in for hysteroscopy and to remove endometriosis if they discover it whilst they are in there. I have a feeling that they will find it as I have already been diagnosed with PCOS and have quite painful periods. If you don't mind me asking, how long were you ttc before surgery? I love that your story has a happy ending, gives me hope for mine

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• KidShrink member

  November 2015

  Thanks! I'm 14 weeks pregnant now and it still feels surreal. I had my surgery in July and got pregnant in August, which marked 2 years TTC. Things got complicated and slowed down though. We did our investigative cycle in September last year (with the RE), but my GP had found out I had liver problems a few months prior. We had just moved to the area we live in now, so he was our new doctor, and he thought I was a heavy drinker because of those elevated liver enzymes. Then when came the investigative cycle, the RE asked how my liver had been doing (I think because I ended up ovulating with an immature follie), and so I went back to my GP who asked for repeat liver ultrasound. We found out my fatty liver was gone, but something was wrong with my gallbladder (I had polyps, but they hadn't been able to see that before because of how swollen my liver was). Then I was referred to a surgeon, who then sent me for further testing. Testing showed my gallbladder essentially wasn't functionning, so I finally got it removed in January, and was told it was stuck in 'tissue', but they wouldn't say it was endo. So we were on pause between September to January. Did 3 cycle of Femara and TI from February to April/May, with no success, and that's when my surgery was scheduled for July. Turns out if the doctors had agreed to speak to each other, things would have gone a lot faster and maybe there would have been less damage. Turns out that all the liver issues I had been experiencing were likely because of the endo damaging my organs (I barely drink and have a healthy weight and good eating habits, which didn't jive with the fatty liver). So 2 years, 2 surgeries, 9 scars and lots of medical intervention later, we finally got our little miracle. Good luck to you @madamemason ! Hope your surgery is just as succesful!

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• taylortobe2013 member

  November 2015

  @khochanadel .. this is going to sound silly, but ive been to the emergency room MULTIPLE times in the past years..i actually set up a online patient portal that the hospital provides, (yesterday) so i can look up all my diagnosis. its always been a ovarian cyst or pelvic pain, UTI's, and i seen on my records endometriosis back in 2014... i know ER doctors cant really rule that out. i was actually at the ER last week, they sent me home with motrin and antibiotics for a UTI and couple days after that i went to my gynecologist and she said from my CT scan that i had done, it was a kidney stone. The ER doctor never told me. (pretty shitty hospital) lol... but i know my body and i know when i have a cyst or somethings wrong. endometriosis runs in my family, my mother had it so bad that she had to have a hysterectomy at a pretty young age!..me and my mom have the same OBGYN doctor so i'm not sure why shes not taking me serious..i mean i am little young, i'm only 23 and my fiance is 25. wev'e been together for 7 years and we have been TTC for about a year and a half. 

  
  

  so when i get my ultrasound done on the 10th, i will bring up the testing and i will mention the procedures that everyone's talking about.

  
  

  thanks everyone for the advise!

  
  

  and congrats! @kidShrink

  
  

  
  

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