SuzP

qos410 · January 2009

Hi there!I have been following your posts about your partial molar pregnancy. Although I have not been told officially, the nurse sort of slipped and hinted that "I may have had a molar pregnancy." I am a health care professional, so my nature is to figure out as much as I can on my own. Just looking for someone to chat with.

I am a high risk pregnancy to begin with (bad pre-e with DD), so I was monitored closely from the begining. I think we literally caught the baby failing on u/s (could see the heartbeat, but it was to slow for the u/s machine to audibly pick it up at 9 weeks). At anyrate, based on labs, u/s etc., had every reason to believe that at first it was a "normal" pregnancy, then a "normal" miscarriage. It wasn't until the path report came back, that now there seems to be a hightend level of concern. Because we saw and heard a heart beat at 7 weeks, then saw the heart beat at 9 weeks, I know that makes it a partial molar. I was induced to m/c with cytotec (my choice) at 12 weeks. It was a bad experience, and I ended up in the hospital beacuse I lost to much blood and became anemic. Everything that I have read says that if they know it is molar, the pregnancy should not be induced because the risk of excesive bleeding. I have also read that a molar can often be detected by u/s, which mine wasn't. On u/s my pregnancy looked good. I guess I am starting to ramble now.

I believe you had your d/c 12/17. I had my m/c on 12/20, my Hcg 2 days ago was 264. My OB appears to be ok with this and we are re-checking in 1 week. What are your levels? I have an appointment with the OB in 2 weeks. I am under the impression that as long as my levels continue to go down, she is going to let me continue to "float" But, if the start to increase, I am going to have to have a d&c. My OB doesn't know that "I know." It was the nurse for the OB that was on-call when I was in the hospital that slipped. Anyway, would love to hear what your experience has been, what your levels are, and what your OB has had to say.

Thanks and so sorry we are going through this!

Brooke

SuzP · January 2009

Hi Brooke,

I did have my D&C on 12/16, not a great experience. Lost a lot of blood too, and ended up overnighting at the hospital. I haven't been told what my levels have been. I'm so obsessive, it's probably better that I don't know. I know at this point they are going down, but that's all I know. For some reason they had me skip my blood draw last week. Which concerns me, but I keep trying to convince myself that means there was a significant drop and they felt confident with that.

I pretty much knew from the first u/s that things weren't good when I measure a week and a half behind. They thought the saw the beginning of the gestational sac and maybe the yolk sac and scheduled a follow up u/s for almost three weeks later. I had some brown spotting and they got me in earlier. I clearly remember that u/s because it just didn't look right. DH and I thought we may have seen the baby but definitely no heartbeat. We left the room with no pictures, which told me a lot there too. I should have been close to ten weeks. I also noticed when she took pictures of my ovaries that there was something in there, that concerned me also. When we finally saw my doctor she was in surgery and a delivery while we waited. Fun times. She told us that she thought it was a molar pregnancy and showed us the u/s pictures to tell us why.

After the D&C my husband told me that she told him that there was "a lot of placental tissue" and that's why it took a bit longer than anticipated. D&C was at 11, I remember looking at the clock in recovery for the first time at 1230. I knew then that it was definitely a molar.

Pathology came back "consisten with a partial molar pregnancy."

Having been diagnosed with thyroid cancer in 08 also I"m hoping to avoid this one. I had a total thyroidectomy in June and I'm AMA, so not totally high risk, but I definitely have my issues.

Sorry this turned out so long.

Keep me posted on what goes on with your levels and if you get confirmation or not.

I'm so sorry for your loss.

qos410 · January 2009

Thanks for replying. When I see AMA I think "against medical advice." I forget on this board that it is "advanced maternal age" I appreciate your input about what you saw on u/s. I had 3 different OB's u/s me, and no mention or concern ever of a molar pregancy. Long story, but my OB moved out of state, she saw me the last day she was at the practice. That is when we saw/heard the hearbeat at 7 weeks. Another OB in the same practice (the one I elected to transfer to) saw me at 9 weeks,that is when we could only see a HB. Then, the OB on call u/s me once we knew the baby had passed and still never any concern about a molar. We used fertility drugs to concieve. A small part of me wonders if I had "twin issue" wether it was a vanshing twin or maybe even simese twins. The only thing for me that is really consitant with a molar is that I had a lot of tissue. I guess I will know more in 2 weeks when I see my OB. For now, I am just keeping my fingers and toes crossed that my levels keep going down.

I am still bleeding 2 and 1/2 weeks later. I want the bleeding to stop, but in some weird way find reassurance that as long as I am still bledding, then I am still passing stuff. I know my levels won't go down if there is still stuff that needs to come out.

Thanks for sharing your story. You have had more than your fair share of heart ache the last year. Hugs to you!

SuzP · January 2009

In a way I'm glad I never got to see the baby, though I know one was there.

Good luck with your doctors appointment and I hope your levels go down quickly and stay that way. I'm still spotting three weeks out. it gets old. I hope yours stops for you soon.

Please keep me posted and let me know how you are doing.

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