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On Cycle Day 123...no AF yet...

1soprano4him1soprano4him member
in Infertility
Ugh, so, my husband and I went off birth control in April and my last period started on April 29th. However, 4 months later, no pregnancy and worse...no period! We've been working with an OBGYN to find out what's wrong but nothing too out of the ordinary. External and internal ultrasound showed zero abnormalities and same with my bloodwork...except my prolactin which sat at 63. I was diagnosed with PCOS back in 2007, but always had regular periods when I was on BCP. 
I'm so confused and more frustrated by not having a period because I feel like I'm failing to do the simple and "normal" woman thing. I am overweight but have no other problems. I'm at a 40.6 BMI and they said I need to get to BMI of below 40 before they will give me clomid...but I still need to have a period! Has anyone else ever dealt with this frustration? 
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Re: On Cycle Day 123...no AF yet...

  • riveridgionalriveridgional member
    I have not had to deal with this issue, but it sounds like this could be due to either your PCOS or high prolactin level or both. I hope your doctor is doing follow-up testing on your prolactin and has also tested your TSH and free T4 levels as hypothyroidism can artificially elevate prolactin levels and cause issues with your cycle. Good luck!
    Married to DH 10/6/12
    TTC since 5/14
    Unexplained with (controlled) hypothyroidism and suspected ovulatory dysfunction (but, I do ovulate on my own)
    Clomid 50 mg 3/15 (unmonitored) - BFN
    Clomid 50 mg + metformin 4/15 (unmonitored) - BFN 
    First RE appt. 5/15; Natural cycle 5/15 monitored with 2 mature follicles and Pregnyl Trigger (full dose) + prometrium - BFN
    6/15 HSG - clear tubes & normal uterus; great PCT test results
    TI - 100 mg Clomid + prometrium (AM & PM) + vaginal estrace (AM & PM) 6-7/15 (monitored) --> no additional response and thinned lining - BFN
    TI - Injectables (follistim + Gonal-F, Ganirelix, & 1/2 dose Pregnyl) + prometrium (AM & PM) 9/15 --> 3-7 mature follicles (3 definites and 4+ that could have matured due to trigger) @ O -->BFN + 5 large cysts
    BC for 2 weeks due to cysts
    TI - Injectables (Gonal-F, Ganirelix & full dose Pregnyl) + prometrium (AM & PM) 10/15 --> 1 mature follicle --> BFN 
    TI - Last attempt at injectables (Gonal-F, Ganirelix & 1/2 dose Pregnyl) + crinone (AM only) + vaginal estrace (AM & PM) 11/15 --> 3-4 mature follicles --> BFP!! 11/27/15 @ 13dpo (shockingly, actually waited until then to test)

    Beta #1 @ 16dpo (11/30/15) = 1,075
    Beta #2 @ 19dpo (12/3/15) = 3,150
    One baby: Saw heartbeat @ 5w5d (114 bpm; baby measuring 2.3mm)

    "Great Things are Happening"
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  • AdorkablePixieAdorkablePixie member
    I've dealt with the frustration of not having a period too. I took my last BCP back in December of 2014. I got a period after that, but after that I had nothing for over a year. January of 2015 I think I had a period, but I'm not sure. Then I got nothing else until April. I had a somewhat regular cycle April, May, June, and July.. then again I went back to not getting anything. I started my medication this cycle, and after this I am sure I will get a period if I don't end up with a BFP.

    I don't have PCOS though, I have hypothalamic amenorrhea, so a different thing cause me not to get periods, but just as frustrating!

    Me: 31

    DH: 29, SA - Great

    Married: June 12,2011

    TTC #1: 1/2014

    Diagnosis: Hypothalamic Amenorrhea

    Treatment: Clomid:  50mg, 100mg, 150mg - not successful and not monitored

                      Menopur 75ml (upped to 112.5ml), Ovidrel, & IUI  IUI #1 8/31/2015

    9/15/2015: BFP HCG - 400, 9/17/2015: HCG - 827, 9/21/2015 - HCG 3,327!
    Heartbeat 10/2/2015: 118bpm
    DS: 5/27/2016

    TTC# 2: 12/2017
    BFP: 4/20/2018
    EDD: 12/29/2018
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  • mskeenanmskeenan member
    I'm so sorry you are having to go through this ! Not having your period is so frustrating . I have PCOS as well and typically only have 1 or 2 periods a year but have gone through periods of having slightly more or none at all . No rhyme or reason to it that I can tell (and I've tried diets , various ways to manage stress). Hopefully your doc can run some more tests to figure it out ! I'm on ovulation induction drugs now and I will say this is the first time i have felt "normal " even if it is drug induced .

    **BFP and loss warning**

    Me: 29
    DH: 29
    Us: Married Valentine's Day, 2015
    DH: No issues.
    Me: PCOS, unexplained infertility (whatever that means!!)
    June 2015 Medicated TI cycle: BFN
    July 2015:  Medicated TI cycle: BFN
    August 2015: IUI: BFP. Chemical pregnancy :(
    October 2015: IUI: BFN
    January 2016: Egg retrieval: 10 frozen embryos!
    March 2016: FET Cycle- 2 embryos transferred!: BFP !
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  • kaitlink33kaitlink33 member
    I too have PCOS and only have 1 or 2 periods a year if that and I know exactly what you mean about not having a period. The worse things is whenever people say I'm crazy for being mad about not having a period or for inducing one with meds. I have to have a period to get pregnant and they just don't get that...However, my OB/GYN told me that the reason I do not have a regular period is because I am not ovulating. Having your period is when your lining is shedding after you have ovulated and there was no egg to implant. SO since I do not ovulate on my own the lining did not get thick to prepare for pregnancy so there is nothing to shed.....from what I gather. Best of Luck!
    NTNP since 2012
    Officially TTC #1 since January 2015
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  • bsckgb7bsckgb7 member
    It can take 3+ months for your body to regulate after BCP.  Most OBs will RX Provera to jumpstart your period after 60-90 days with no bleeding.  Has your OB RX Provera?
    Daisypath Anniversary tickers
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  • FatPonyFatPony member
    I have PCOS and my gyno induced periods with progesterone pills. 
    Report Reply
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