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August 2015 Moms
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@emmacake08

carleym93carleym93 member
in August 2015 Moms
I tried to PM you aanndd it didn't work, so here I am.

Didn't you mention your boys had an issue with dairy and soy while you were BFing? How did you know that was the issue? And how TF do you avoid soy? ITS IN EVERYTHING. I'm only asking because Lucy is still having mucus in her poop after eliminating dairy, so now they have me on no dairy and no soy and they're checking her stool for blood. Her weight gain is great, but I'm still worried. What the heck am I supposed to eat?!
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Re: @emmacake08

  • LorienlilyLorienlily member
    edited August 2015
    I know I'm not the person you've directed this post to, but I wanted to offer some encouragement all the same. My husband has ulcerative colitis so I'm way familiar with avoiding certain foods (dairy being a key item). I agree that soy is a particularly difficult one, and that's rough! It is possible, though. Keep persevering with the label checking and be a creative grocery explorer (or find someone who can be an epic label-checker for you). It does get easier with time because you will find brands/items that fit your needs. Best wishes on the journey, and I hope your Lucy is feeling better asap!
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  • carleym93carleym93 member
    @Lorienlily Thank you! I really appreciate that :) Its just an adjustment. Even my prenatal has soy! Its so hard to avoid.
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  • WeringWering member
    @carleyec93 - similarly, I'm not the one you directed the question to, but I had to eliminate dairy for my daughter, too. I did it for 12 months. It seemed like such an uphill battle at first, but to be honest, I'd do it all over again in a heartbeat (and I might have to!). I also considered doing it to lose some weight, because as soon as I added dairy back in, I gained 10 pounds!!! I did not go soy free, so this advice might be skewed once you check ingredients for soy.

    Here's some information I sent a friend of mine that might help. I'm in Ohio, so some of the brands might be regional, but hopefully it will help!!!! 

    Here were my staples - and keep in mind you'll want to check the ingredients to make sure they haven't changed in the last year.
     
    Bread:
    Schwebels White
    Nickel 35 White/Wheat
     
    Chocolate:
    Godiva 72% dark chocolate (NOT ALL DARK CHOCOLATES ARE DAIRY FREE!)
    Giant Eagle's specialty section had a bunch of vegan, too...I went for the dark chocolate peanut butter cups.
     
    Ice Cream:
    So Delicious brand coconut ice cream (most Giant Eagles carry it - other great options are available at Trader Joe's/Earth Fare. Check out their website for great coupons)
     
    Cheese:
    Daiyya shredded cheese. Closest I could find to "real" cheese. Don't even go near rice cheese. YUCK.
     
    Snacks:
    Nature Valley Granola Bars (PLAIN)
    Ritz Crackers
    SOME pretzels (make sure you check the labels!)
    Keebler Club Crackers
    Peanut butter with any of the above
     
    Breakfast:
    Giant Eagle Apple Cinnamon or Maple Brown Sugar Oatmeal
     
    Cake:
    Tasty Cakes cupcakes are dairy free. AND DELICIOUS.
    Duncan Hines mixes/frostings - 90% of their line is dairy free. Check the labels.
     
    When we went out to dinner, I always took my own bread and my own salad dressing. If nothing else, I could ask them to grill a PLAIN chicken breast and provide lettuce, tomato, onion for a chicken sandwich. Another go-to at non-chain restaurants was anything "plain" - steak, chicken, etc. WATCH OUT FOR THE BREAD! I told the servers that I was the one with the allergy, not my baby. For one thing, it was easier to explain. Secondly, they were VERY quick to make sure that my food was prepared properly at 90% of our restaurants. A lot of chain restaurants have allergy menus in the restaurant, or at the very least online. I also made a business card that said the items I wasn't allowed to eat (mine were milk, casein, and whey) so that if a server had to go talk to a chef or check ingredients, they knew what they were looking for.
     
    A couple of websites that I used A LOT were:
     
     
     
    One other note, if I'm allowed to preach. If your friend hasn't already, have them ask for a referral to a gastroenterologist. Ours was  FANTASTIC. He was able to offer a lot more information about what was really going on than the pediatrician could. Our pediatrician handed me a case of formula and walked me out the door. If not for my determination to BF (c-section guilt!), she probably would have been formula fed starting at 5 weeks. Instead, she's been nursed for nearly 17 months.
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  • emmacake08emmacake08 member
    Hey just saw this! I had an instinct on their allergy based on their fussiness and reflux and mine and DHs borderline intolerance to dairy. I was convinced once I had been off it for 3 weeks and had broccoli cheddar soup from panera and 6 hours later they spit up buckets of BM and cried and cried (I of course felt like a selfish ahole).
    It is really hard with soy because basically all processed food has it in it. Dairy seemed to be way worse for mine so things that only had minimal traces of soy like Oreos (which are dairy free), they didn't seem to react to. Luckily I had been vegan before getting pregnant so I had some good dairy free recipes. It's so tough cutting both out because so many convienance style foods go out the window and I had to cook/bake more. Earth Balance makes a butter that's dairy and soy free in a red tub that substitutes really well. Almond milk cooks in recipes (sweet and savory) without much of a taste. If you need some recipe encouragement, the blog ohsheglows.com has a lot of good dairy free recipes. If you just look up vegan baking recipes that will get you to some yummy dairy free (and usually soy too) recipes. Also almost all normal baking recipes I can sub in earth balance butter and milk substitutes and it works great with no issues. There are also Enjoy Life brand chocolate chips that are dairy, soy, and nut free and yummy too. I've never had anyone realize my chocolate chip cookies are dairy free with those sub ins ( so there is hope for yummies!). I hope I covered everything you asked about. Let me know if I didn't. I remember the fussiness and seeing them in pain and I just did everything I could to stop it. It's so hard but it sounds like you're doing great!
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  • sconniegrlsconniegrl member
    edited August 2015
    Another not-the-intended-recipient here. Had to add: check out the gluten free area of your local grocery store. They usually have an allergy free section there too and will have some good dairy/soy free treats.
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  • missmarissa711missmarissa711 member

    following this.

    After LO broke out with a horrible blister like rash on his tush, the doctor said Benjamin had a cows milk/soy allergy. It took a month of trial and error, changing my diet, changing his formula 3 times. It was a nightmare. Finally I took a gamble, and tried a soy formula because I read that they aren't always allergic to both. He took it just fine and his rash cleared up. So I now have cut *most* dairy out of my diet, and supplement him on similac soy.

    Always hold on to hope ❤
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  • emmacake08emmacake08 member
    I agree with @Marissalynn0620 . I removed everything though in the beginning so that I could be sure that it was both. It was when they were around 1 and I gave them a lasagna with cheese made from tofu, they broke out into full body eczema that I knew they were still soy intolerant. In minimal doses they did/do fine with soy but not a lot. Their grandmother fed them buttermilk biscuits and they got a raised rash all over their bodies and that's how I knew the dairy allergy was still around too.
    @carleyec93 try some recipes for vegan cheese sauces that use nutritional yeast. I know it sounds weird and I was hesitant to try those recipes and ingredient, but it's the best soy free cheese recipe substitutes that I've found (because I missed cheese so much). Also, feel free obviously to add meat back into any of these recipes, I'm only steering you to vegan recipes so that dairy isn't in them and that you'll find some cheesy like recipes.
    I also ate a lot of takeout. Chipotle without cheese and sour cream, panera sandwiches and some soups, jimmy johns subs, and sit down restaurants (lots of meat and rice and veggie dishes). Sweet treats were easier to just bake myself. The specialty and allergy aisle did have some snacks I could eat (and potato chips!) but they were so darn expensive. I also like fruit snacks and starbursts.
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  • missmarissa711missmarissa711 member
    emmacake08 said:
    I agree with @Marissalynn0620 . I removed everything though in the beginning so that I could be sure that it was both. It was when they were around 1 and I gave them a lasagna with cheese made from tofu, they broke out into full body eczema that I knew they were still soy intolerant. In minimal doses they did/do fine with soy but not a lot. Their grandmother fed them buttermilk biscuits and they got a raised rash all over their bodies and that's how I knew the dairy allergy was still around too. @carleyec93 try some recipes for vegan cheese sauces that use nutritional yeast. I know it sounds weird and I was hesitant to try those recipes and ingredient, but it's the best soy free cheese recipe substitutes that I've found (because I missed cheese so much). Also, feel free obviously to add meat back into any of these recipes, I'm only steering you to vegan recipes so that dairy isn't in them and that you'll find some cheesy like recipes. I also ate a lot of takeout. Chipotle without cheese and sour cream, panera sandwiches and some soups, jimmy johns subs, and sit down restaurants (lots of meat and rice and veggie dishes). Sweet treats were easier to just bake myself. The specialty and allergy aisle did have some snacks I could eat (and potato chips!) but they were so darn expensive. I also like fruit snacks and starbursts.
    I love nutritional yeast! It is delish. I have been vegetarian for 16 years(should have mentioned that) and have a lot of awesome vegan recipes as well if you need any @carleyec93.
    Always hold on to hope ❤
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  • mariafordonmariafordon member
    No allergies but I've been vegan for a decade so I'm a seasoned label reader. I don't do soy free but I have noticed a lot more soy free, dairy free options recently.
    As pp said earth balance has a soy free version which is sometimes harder to find but if you have a good health food store or coop nearby they'll probably have it or you may be able to request it.
    Luna and Larry's coconut bliss ice cream is amazing especially chocolate walnut brownie!
    I personally hate the texture of the shredded daiya cheese but their blocks and slices are really good. So if you don't like the shreds don't give up! They also have cream cheese which I probably wouldn't eat straight up on a bagel but it makes great cheesecake, cream cheese frosting and in recipes like spinach pie.
    Also if you're drinking almond milk(or any other nondairy milk) make sure you check the nutrition info because the amount of calcium can really vary. Blue diamond and silk have 45 percent but some have hardly any.
    Oh and hurray for coconut milk at Starbucks!
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  • carleym93carleym93 member
    At this point, I think I'm going to have to do a full elimination diet. She did great all night, no screaming, no gas, slept 4 hour stretches. This morning around 6 she woke up screaming with diarrhea and her rash is back. I hadn't eaten anything since about 9 pm and what I ate was gluten and dairy free. I'm assuming she is having a delayed reaction to something, but I have no idea what.
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  • WeringWering member
    @carleyec93 - My doctor told me that it can take 3-5 days for all of the food to exit your system completely. Also, make sure you're looking at the ingredients exceptionally carefully. My SIL eliminated dairy (cheese, milk, etc) but never eliminated "hidden" dairy like the casein in bread. Her son had exceptionally bad periods during her DF phase whereas my daughter seemed to sail through it once we eliminated everything.
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