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December 2015 Moms
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Club foot?! Any experience wanted!!

cherryblosscherrybloss member
in December 2015 Moms
Hello ladies, I'm a ftm and had Anatomy scan today. We found out we are having a wonderful little boy!!! Although I'm overjoyed with excitement, the scan revealed that our little angel has club feet. We are devastated as first time parents. We have a follow up apt tomorrow to get a better look at the women's institute. Anyone have experience with this? What to expect? The doctor also told us that club feet have a very small link to Down's syndrome, so we had to get the Harmony blood test as well. We have no family history of anything significant and were definitely not expecting this!! We now have a entire week of agonizing worrying until the test come back.
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Re: Club foot?! Any experience wanted!!

  • cherryblosscherrybloss member
    Here's our little guy
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  • spottedgingerspottedginger member
    edited August 2015
    There was a thread last week on which several members posted about their experience or that of their family members dealing with this issue and had helpful advice. I am mobile, so I can't link it. If you do a search using the search function you can probably find it in the first 4-5 pages of the board. Congrats on your little boy!!

    Edited to add the link and note that it seems like outcomes are great with few to no long term effects on the little one.
    https://forums.thebump.com/discussion/comment/87442517#Comment_87442517
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  • duckinovenduckinoven member
    No experience but just wanted to wish you good luck with the specialist and hope you get some peace of mind. Congrats on your son!
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  • holly1811holly1811 member
    No advice sorry hopefully somebody on here is able to offer you some. Like pp said i do remember somebody posted a few weeks back, hope all goes ok with little man. P.s scan pic is so cute
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  • hummingbird35hummingbird35 member
    This isn't much but I had an ex who was doing his residency in orthopedic surgery and worked with kids with club feet.. He said that the medical community has made huge advances and for certain types it can be completely corrected in childhood! Hope this helps.


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  • TacoSarahTacoSarah member
    A friend's son was born earlier this year with a club foot. He had an operation and wears special boots and it's now really hard to tell which one was the affected foot. Doctors can do amazing things.
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  • cherryblosscherrybloss member
    Thank you everyone for your well wishes! I will look for that other link and keep you updated after our appointment
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  • hayliermhaylierm member
    My little brother was born with club feet and is now an adult with little to no issues. I was a kid too so I don't exactly remember the specifics. But he had to wear casts on his feet as a newborn. Corrective shoes when he stared walking, and then I believe a corrective surgery when he was about 5 or 6. He was a perfectly happy and healthy child though. This was also in the early 90s so I'm sure the knowledge and technology has come a long way since then. Now, as an adult I believe he maybe gets sore feet when he's on them all day at work, but who doesn't really? As I said, i was a child too so I'm sorry if this info isn't very helpful. But from what i can remember he was always just my little brother, he wasn't "disabled" or in any way unable to participate in normal childhood activities.
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  • Mands1010Mands1010 member
    I don't know much personally, but my cousin was born with club feet (both feet). He is 18 now, and has had to have several surgeries throughout his life, but I don't think it has affected him too badly. He wore the braces as a child, but doesn't anymore, and he spent a lot of his baby years in casts. (full disclosure)
    But since growing up, he plays football and has played baseball (can't really run very fast, but plays the sports) and is very active in general, playing ultimate frisbee golf, wears regular shoes now, and as far as I know hasn't had much to complain about in a long time! 
    For him it was a long road but its definitely not the end of the road and it shouldn't cause him to be too different or burden him too much. 
    I hope this helps a little, sorry I can't tell you more. 
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  • crl145crl145 member
    I actually posted about this last week. We found out the same thing about our little boys left foot. My grandma and mother were both born with club feet so it runs in my family. Going Thursday for another scan and doctors appointment. I was devastated for a couple days. But the positive side is it's not life threatening. My mother had severe club feet and after surgery, casts and braces, she was completely fine by age 5. That was nearly 50 years ago also, so with how far medicine has come, I think our kiddos will be just fine!

    Like PP have said, search for my thread. A lot of people left helpful comments on there! Might make you feel better!
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  • lucyaddislucyaddis member
    I'm an orthopaedic pediatric nurse. So I see babes with club feet on a regular basis. It's great that you found out early and have time to learn about it before your little one is born. Usually they will have a series of casts on their feet for about 6-8 weeks which will help reposition the feet. Then they sometimes will do a procedure to release a tendon to further help the foot release. After the casting is done they wear special shoes to maintain their feet in a good position while they are growing and developing. Not all kids go on to need surgery but some do.
    Also, sometimes on the ultrasound when you see club feet it can be positional and can improve after birth all on their own.
    Some docs will refer you to an orthopaedic specialist for counselling and teaching prior to the birth of your little one too. That way you can see what the shoes look like and ask lots of questions to help prepare.
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  • mirissa25mirissa25 member
    I have club feet , I had surgery as an infant ,wore a lot of braces and special shoes . Even thought they fixed the problem when I was young , when I turned 18 am 22 now I was constantly in pain and my feet would get swollen . They doctors told me I would have to get surgery again because my bones are not the same any more , if I want to stop the pain. I can't stand on my feet for over 3 hrs . The only thing that has been helping me is that I am not heavy . Hope this kind of helps !
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  • cherryblosscherrybloss member
    Thank everyone for the responses! We had our specialist appointment today and our little boy does in fact have bilateral club according to the scans. This is totally mangeable so we aren't too concerned. In regards to genetic disorders and threat of Down's syndrome, doc didn't see any abnormal signs on the scan so we decided to do the amniocentesis and await the results just to be sure. I'll keep you all updated once we learn these results
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  • spottedgingerspottedginger member
    @cherrybloss I am so glad you had a successful appointment and got more information.  That is great news about your little! Happy news. 
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  • duckinovenduckinoven member
    @cherrybloss glad to hear you had a helpful appointment with some relatively positive updates. Please keep us updated !
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  • crl145crl145 member
    cherrybloss said:

    Thank everyone for the responses! We had our specialist appointment today and our little boy does in fact have bilateral club according to the scans. This is totally mangeable so we aren't too concerned. In regards to genetic disorders and threat of Down's syndrome, doc didn't see any abnormal signs on the scan so we decided to do the amniocentesis and await the results just to be sure. I'll keep you all updated once we learn these results

    We had our second opinion 3D scan today. Our guy has it in his left foot but the doctor said its only a mild case and can hopefully be fixed just using casts, no surgery. Glad to hear your appointment went well also. It's reassuring to hear that it's fairly easily fixed. Good luck!
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  • Mother0fDragonsMother0fDragons member
    cherrybloss said:
    Thank everyone for the responses! We had our specialist appointment today and our little boy does in fact have bilateral club according to the scans. This is totally mangeable so we aren't too concerned. In regards to genetic disorders and threat of Down's syndrome, doc didn't see any abnormal signs on the scan so we decided to do the amniocentesis and await the results just to be sure. I'll keep you all updated once we learn these results

    Happy to hear about the bilateral club and it being more manageable! Hope you receive good news on the amnio!
    Lilypie First Birthday tickersDaisypath Anniversary tickers
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  • Mother0fDragonsMother0fDragons member
    crl145 said:
    Thank everyone for the responses! We had our specialist appointment today and our little boy does in fact have bilateral club according to the scans. This is totally mangeable so we aren't too concerned. In regards to genetic disorders and threat of Down's syndrome, doc didn't see any abnormal signs on the scan so we decided to do the amniocentesis and await the results just to be sure. I'll keep you all updated once we learn these results
    We had our second opinion 3D scan today. Our guy has it in his left foot but the doctor said its only a mild case and can hopefully be fixed just using casts, no surgery. Glad to hear your appointment went well also. It's reassuring to hear that it's fairly easily fixed. Good luck!

    Glad to hear that it's only on one foot and a mild case that won't require surgery! Hope you get to relax a bit now, good luck with the rest of your pregnancy!
    Lilypie First Birthday tickersDaisypath Anniversary tickers
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  • cherryblosscherrybloss member
    Glad to hear about your appointment and the mild results! Did you have any genetic testing done as a precaution ? Our doc immediately referred us to amniocentesis once they noticed the club feet
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