Hi! Newbs here. . .

clt2pwm11 · July 2015

Good morning!

Back story:

I was diagnosed with PCOS when I was 16 due to AF no-shows, and I've been on BC to force a period. I was married right out of college to my high school sweetheart, and we tried for a year to get pregnant, but AF never showed. He ended up having an affair and wanted a divorce. Looking back, I'm glad we didn't have a baby because then I'd have to see his cheating bum on the regular. I went back on the pill after a forced period with the help of Provera. I've since remarried; DH and I are coming up on our two year anniversary (He's presh. Love him.) I came off BC seven months ago hoping that my cycle might be normal. I was rail thin in my early twenties, and I've since gained a healthy amount of weight. I had read that sometimes putting on a few pounds can help jump start ovulation if you are thin. Needless to say, the weight has not helped, and I haven't seen hide nor hair of AF since being off the pill. I'm going to see my Dr. today, and I'm really hopeful she can help us. I guess I'm most nervous on how to bring it up. Any good feelings/prayers/words of encouragement would be helpful.

blsav23 · July 2015

Your story sounds very much like mine (early dx of PCOS, ex husband, etc.). My best advice is to advocate for yourself & seek seeing an RE vs. an OB. OBs are great at caring for you once you are pregnant, but the RE is who you need to see to get pregnant. It can & will happen for you, it may just take a little push to help you ovulate. Be sure your doc runs all necessary tests (semen analysis, HSG) prior to beginning any treatment.
Best wishes to you. Infertility can be a cruel animal but you can beat it!

blsav23 · July 2015

Also--I just re-read your post & saw the part about being nervous to bring it up. These docs see so many women, all of whom have different needs. When I was ready to get pregnant, I told my OB /gyn that I was concerned bc of my irregular cycles & that I had been irregular for as long as I can remember. My doc immediately referred me to an RE. Luckily, I had a doc who knew fertility treatment was out of her scope of practice. If your doc doesn't offer a referral, I would simply ask for one. The worst she will say is no & at that point, you can seek one out on your own. The clinic I went to (in Dayton, Ohio) didn't require any kind of referral even though I had one. Just do your research & you'll find the right fit for you.

GoldenKeys · July 2015

Agreed with everything that @blsav23 said! PCOS does not resolve itself, and not ovulating is due to your PCOS, not your weight. The good news is that you have a lot of fertility options available to you. You really need to see an RE because your OBGYN would probably just give you Clomid without monitoring... which makes high order multiples possible! Definitely see an RE and get proper testing (including an SA for your new hubby... many couples have dual infertility). Good luck and glad that you joined the board!

3JTMom · July 2015

Don't be nervous to bring it up. Tell your doctor everything, even what you are feeling. They have a lot of behind the scenes knowledge and may have a solution. Hope it works out!

blsav23 · July 2015

GoldenKeys said:
Agreed with everything that @blsav23 said! PCOS does not resolve itself, and not ovulating is due to your PCOS, not your weight. The good news is that you have a lot of fertility options available to you. You really need to see an RE because your OBGYN would probably just give you Clomid without monitoring... which makes high order multiples possible! Definitely see an RE and get proper testing (including an SA for your new hubby... many couples have dual infertility). Good luck and glad that you joined the board!

Pregnancy warning***
Exactly! And for the record, I also have "skinny PCOS" as I was 120 lbs when I started treatment. I've always been fairly small (although my weight has somewhat fluctuated) but wasn't ovulating due to whacky hormones and poly cystic ovaries. Due to those factors, my RE was extremely careful with my treatment to not hyper stimulate me, which can be detrimental to your health and fertility. Even with being careful, I am currently 27 weeks with twins--luckily I had proper monitoring & didn't end up with high order multiples which could have been all too possible with improper monitoring.

clt2pwm11 · July 2015

Thanks ladies for all your encouragement! and congrats, blsav23. Nice to know there are other skinny pcos people out there! I have all the other sucky symptoms!

I don't know why I was scared to bring it up to my OB; she is wonderful. In fact, I didn't even need to bring it up. She brought it up. I had some blood work done today, and I am starting Provera tomorrow. Once I have my period, I am to have another lab done the second day of my period. Then I will start Clomid three days after that. I will have another lab done to check levels if I do not get pregnant this first time, and adjust levels accordingly (which I'm sure you guys are all familiar with). After all the needles this month, I will feel like a pin cushion! I am also going to start referring to the hubs as "the stud." I think he will appreciate this

blsav23 · July 2015

clt2pwm11 said:
Thanks ladies for all your encouragement! and congrats, blsav23. Nice to know there are other skinny pcos people out there! I have all the other sucky symptoms!

I don't know why I was scared to bring it up to my OB; she is wonderful. In fact, I didn't even need to bring it up. She brought it up. I had some blood work done today, and I am starting Provera tomorrow. Once I have my period, I am to have another lab done the second day of my period. Then I will start Clomid three days after that. I will have another lab done to check levels if I do not get pregnant this first time, and adjust levels accordingly (which I'm sure you guys are all familiar with). After all the needles this month, I will feel like a pin cushion! I am also going to start referring to the hubs as "the stud." I think he will appreciate this

Yay! I'm glad to hear you have a plan in place. With the Clomid, will your doc also be doing ultrasounds to monitor follicle development? If she hasn't mentioned this, I would strongly encourage you ask before starting the clomid. Clomid is a powerful drug that can cause lots of follicles (esp in us "skinny PCOSers"). Lots of follicles can lead to high order multiples and/or ovarian torsion, which can threaten life and fertility. Please ask about ultrasounds.
I am very excited to hear you will be kicking starting your cycle, first step toward your goal! I hope you get to move to a pregnancy board very soon

CopperLane · July 2015

I'm glad that your doctor is being proactive with treatments. I, too, am a skinny PCOSer, it's why my diagnosis took so long. It can be pretty dangerous to go so long without getting periods. My RE said all the tissue buildup from my looooong cycles can lead to uterine cancer O_O I highly recommend you look into PCOS management post babies to keep your cycles regular and help prevent the lady bit cancer. My RE did a ton of bloodwork to figure out the cause of my PCOS to put me on a plan post baby to help keep me regular. Granted, that won't be for a while (or so it feels) but it's nice she's looking out for my over all health in the future. This isn't meant to scare anyone, I just want to raise awareness because I had no clue until my RE brought this up and I was initially diagnosed with PCOS by an OB.

clt2pwm11 · July 2015

CopperLane said:

My RE did a ton of bloodwork to figure out the cause of my PCOS to put me on a plan post baby to help keep me regular.

Just curious, what does your post baby plan entail?

AdorkablePixie · July 2015

@clt2pwm11 - GL with everything. I would have the doctor monitor you while on clomid. When my OB gave me Clomid I was never monitored so we have no idea what it did when I was on it, if anything at all. All we know is it never made me ovulate.

CopperLane · July 2015

@clt2pwm11 my OB was going to put me on metformin and BC. My RE said my PCOS isn't insulin based so the metformin is not necessary. I'll be on either BC or Provera to make sure I get a period letting tissue build up for two months.

Another example of why an RE is generally better than OB with this stuff.

juliehollz13 · July 2015

Hi, just FYI - most books will tell you to go see a Dr. (RE or Gyno it doesn't matter) when your period is more than 60 days long. My Dr. (gyno) told me there's not need for me to wait around that long and call him after CD40 if i haven't had my period. The danger with not having a period for that long is the fact that your endometrial lining could get too thick, and potentially cause blockage in your Fallopian tubes. My opinion, and im no professional, is to go ahead and go to an RE, get your period jump started and as a previous poster stated, get an HSG test and an ultrasound to check for cycts and blockages.

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