Possible downs??

addisyn13 · May 2015

Had my ultrasound a week ago today!
Everything looked good from my end baby very active!
But I have just got off the phone to my dr who has ordered me for another scan due to thickness of the skull ect.
She is getting me to also do a blood test.
I'm so upset and nervous!
Like I will love the baby none the less at all! But I'm so scared!

Anyone else had a scare like this?
Currently feeling numb and scared..

poupoule · May 2015

Mine is not until next week, so I don't know yet. That is definitely something that scares me and I hope everything is fine with your baby ! As if we did not have already 10000 reasons to be worried, this adds one more. Let us know when you have an update. Sorry you are going through that additional stress ! Hopefully for nothing.

Noey80 · May 2015

They thought my last baby was going to possible have Downs. We did lots of ultrasounds. He ended up not having downs. Think of it this way...only the best moms get special kids.

thefithuntress · May 2015

I hope you feel better. Will you be able to take a blood test to ease your mind?

weaverinc · May 2015

I feel your pain. I was just screened positive 1:20 chance of Trisomy 18. If you need to talk or vent I'm here for you. Try not to worry. Even the blood test is just a screening and is not 100% accurate.

emmybean123 · May 2015

Look up Nuchal something... The measurement should be on your scan picture, but the odds are still low! Even if the skull thickness is over average it could only increase your chances to 1/10 which means 90/100 you'll have a normal healthy baby! The blood tests will narrow down your odds, I took the blood test anyway (I opted for the skull measurement and blood test despite no increased risk) so that we are aware and adjusted if we need to prepare for a more special baby. You have options with it. If you can't handle it at this time in your life then they will give you the option to terminate the pregnancy up to 24 weeks (which I do think is too late, try to make a decision before 20 for your own health) but many people wouldn't for the world! It's not something you should worry about yet. The odds are in your favour! The doctors and your midwife will be able to support you as much as necessary xx

knrickert · May 2015

I know the feeling all to well...I had my NT scan last week and the thickness was 3.5mm (which is a red flag for a chromosomal abnormality) I went for bloodwork but it takes 7-10 days so here I sit stressing and waiting. If you need to talk, feel free to send me a message. I'll be praying that everything comes back with good results and that your little bean is okay!

VexyMommy · May 2015

Children with down syndrome (the term "downs" is considered rude by many who have down syndrome and their families) come with a lot of things that we don't typically think of for our child when we're first pregnant, but they are also some of the sweetest people I've met. My daughter is in a class with a child with down syndrome and I've met many others in my community. They tend to be honest and trusting. As adults, most people who have down syndrome can go on to live semi-independently and some can live independently. They can hold jobs and tend to be very reliable and hard workers.

There are a lot of support groups and government help if your child has developmental or learning disorders that you should take advantage of to help learn and to spread the load a bit.

I hope that your children do not have to bear the burden of a disorder like this, but if they do it isn't the end of the world. It's a serious edit to the plan that most of us have, but it doesn't need to be the end of the story. (I do respect your choice if you feel you are unable to handle it.)

kestes946 · May 2015

So since it's considered "rude" to label them Down syndrome, is there a better terminology used? I know that calling anyone "retarded" is very offensive and that word should not be used, but stating that someone has Down syndrome doesn't seem rude to me. I know families who have a "Down syndrome" loved one and they've never said it was offensive. In fact, they've talked about his/her challenges on social media, and have made awareness about Down syndrome and they've used those exact words. I guess I'm just curious why it's considered offensive?

VexyMommy · May 2015

kestes946 said:
So since it's considered "rude" to label them Down syndrome, is there a better terminology used? I know that calling anyone "retarded" is very offensive and that word should not be used, but stating that someone has Down syndrome doesn't seem rude to me. I know families who have a "Down syndrome" loved one and they've never said it was offensive. In fact, they've talked about his/her challenges on social media, and have made awareness about Down syndrome and they've used those exact words. I guess I'm just curious why it's considered offensive?

Using Down Syndrome is not considered rude, but using "downs" is. To be honest I don't know why it's considered rude. The couple of families that I know who have children with Down Syndrome have asked if I would not use "downs" to describe it. If I had to guess I'd say because people (at least in my area) refer to people as "Downs babies" or "Downs children" which puts the syndrome before the child and makes that the focus.

kestes946 · May 2015

Oh ok that makes sense. I haven't really heard that term used around where I live but I can see how it could be offensive.

Kmohney1 · May 2015

I just got the call that mine are abnormal too, 3.6. I'll do a blood test and an ultrasound but I refuse to do anything invasive. What is going to be is going to be, I'm just confident that we had a horrible tech and that's why the results were off. She flat out told us she hated doing that type of ultrasound and took over 2 hours. I was in tears by the time I left.

sla626 · May 2015

My first son, I was high risk for Down's syndrome. 1 in less than 5 chance they said because he had a large skin fold in his neck. We did the blood work, materna21 to make sure, and it turns out that that he didn't have it. Have faith. I know it's scarey because you want your baby to be its healthiest. Think of it like this, the blood work will tell you the sex of the baby if that is sow thing you want to know early. That is how I looked at it waiting for the results.

sla626 · May 2015

Kmohney1 said:
I just got the call that mine are abnormal too, 3.6. I'll do a blood test and an ultrasound but I refuse to do anything invasive. What is going to be is going to be, I'm just confident that we had a horrible tech and that's why the results were off. She flat out told us she hated doing that type of ultrasound and took over 2 hours. I was in tears by the time I left.

2 hours? That is crazy. So sorry you went through that.

Elyse1384 · May 2015

sla626 said:

Kmohney1 said:
I just got the call that mine are abnormal too, 3.6. I'll do a blood test and an ultrasound but I refuse to do anything invasive. What is going to be is going to be, I'm just confident that we had a horrible tech and that's why the results were off. She flat out told us she hated doing that type of ultrasound and took over 2 hours. I was in tears by the time I left.
2 hours? That is crazy. So sorry you went through that.

With my first pregnancy I was also stuck at the doctor's office for about 2.5 hours as my little man just wouldn't get into the position they needed to get the various pictures/measurements. They finally called it and I had to go back a second time while in the window allowable to get a proper read. The second time it took about an hour, so I was over 3.5 hours of "turn on your other side", "roll this towel under your hips", "walk around for a bit", "eat something and come back" etc. It was unreal.

With this pregnancy it took 45 minutes, but after 30 minutes I was convinced it was going to be a repeat performance!

herdofcows · May 2015

kestes946 said:
So since it's considered "rude" to label them Down syndrome, is there a better terminology used? I know that calling anyone "retarded" is very offensive and that word should not be used, but stating that someone has Down syndrome doesn't seem rude to me. I know families who have a "Down syndrome" loved one and they've never said it was offensive. In fact, they've talked about his/her challenges on social media, and have made awareness about Down syndrome and they've used those exact words. I guess I'm just curious why it's considered offensive?

Calling someone Down Syndrome is rude since they are not Ds. They are their own person and should not be labelled by their disability. Downs is also frowned upon since the man Down did not suffer from it. Saying that someone has Down Syndrome is perfectly fine and is the accepted terminology.

Brought to you by a mother of a child who has Ds. I had the NT scan and was given odds of 1:10000 and found out at birth. Not test is 100% except the CVS and amnio.

kestes946 · May 2015

herdofcows said:

kestes946 said:
So since it's considered "rude" to label them Down syndrome, is there a better terminology used? I know that calling anyone "retarded" is very offensive and that word should not be used, but stating that someone has Down syndrome doesn't seem rude to me. I know families who have a "Down syndrome" loved one and they've never said it was offensive. In fact, they've talked about his/her challenges on social media, and have made awareness about Down syndrome and they've used those exact words. I guess I'm just curious why it's considered offensive?
Calling someone Down Syndrome is rude since they are not Ds. They are their own person and should not be labelled by their disability. Downs is also frowned upon since the man Down did not suffer from it. Saying that someone has Down Syndrome is perfectly fine and is the accepted terminology.

Brought to you by a mother of a child who has Ds. I had the NT scan and was given odds of 1:10000 and found out at birth. Not test is 100% except the CVS and amnio.

Yea that's what I meant by as far as telling someone if another friend/relative has Down Syndrome. Not calling them DS because I've never done that or will ever do that. I just wanted to clarify it was okay to actually say this person has DS. Hope that makes sense.

kestes946 · May 2015

My daughter had severe Noonans Syndrome and I wasn't sure how I would handle that whole situation. Saying she has it is one thing but to call her that is a different thing.

@addisyn13, continuing to pray for you and hope you get the answers you need.

herdofcows · May 2015

I should add that the r-word is never ever acceptable.

Want a personalized experience?

Possible downs??

Re: Possible downs??

Choose Another Board

Search Boards