Hypertonia — The Bump
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Hypertonia

Confirmed by the pedi for the baby. "The next month of development is critical." Google's being quite the @$$hole. Any insights? 
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Re: Hypertonia

  • Was your LO a preemie?

    Both of my boys have severe hypertonia. They told us DS1 would never get past rolling over and at 3.5 he learned to walk.  Both boys have a genetic disorder.
    To my boys:  I will love you for you Not for what you have done or what you will become I will love you for you I will give you the love The love that you never knew
  • Oh, Dr. Google is the WORST! 

    My DD was thought to be high tone by the pedi, but then EI team said low tone. Then a seizure disorder popped up, and all development has halted. Once the seizures and meds are sorted, we'll keep working towards milestones. 

    Have you started trying to do Early Intervention? It's a kind of slow process to get qualified, but then you can get great support if you qualify!
  • Not a preemie, @ToastieSimons.

    I haven't called EI yet, @ErinE683. I'm not sure he'll fail the Battelle and we'd have to be in on clinical judgment sans a Dx. Getting antsy for a full workup, to be sure. 

    Thanks, ladies. 
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  • Just wanted to say I'm thinking about you. Big hugs. :(
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  • Hypertonia is common in preemies, that's why I asked.

    have you considered seeing a physiatrist?  Or a neurologist?  High tone is also common in babies with seizures.  

    DS1 was like a 2x4 at birth.  Literally.  I never had squishy newborns, it was hard to bend them to get them in carseats.
    To my boys:  I will love you for you Not for what you have done or what you will become I will love you for you I will give you the love The love that you never knew
  • Hypertonia is common in preemies, that's why I asked.

    No, thanks for asking. 

    have you considered seeing a physiatrist?  Or a neurologist?  High tone is also common in babies with seizures.  

    We're in a holding pattern until we see what happens with babbling, motor development, and weight gain (tanked from 25th percentile to 3rd) over the next month. I'm jumping the gun and checking the wait time at the Children's CP clinic. Bouncing some follow up questions off the pedi at the older kid's checkup next week. 

    DS1 was like a 2x4 at birth.  Literally.  I never had squishy newborns, it was hard to bend them to get them in carseats.

    He's like a plank putting him the carseat sometimes, have to bend at the hips. Also very hard to get him into a sit. Have to forcibly bend the knees and hips to begin a bicycle on his back, and even then he locks up from the hips and arches. Doesn't bounce when in a supported stand, just locks. He hates diaper changes. I've been joking that he's already a nevernude, but I'm thinking the tone issues are factoring there, too. 

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  • DD has hypertonia. The thing that has helped is PT. She receives Early Intervention and private PT. As she has gotten stronger she has seemed less floppy and stiff. Good luck with EI.
                           
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  • That's really interesting about the stiffness. That is a major issue we are dealing with with my son. He has hypotonia in the core, but his therapists always talk about how strong his legs and arms are. We are trying to teach him to bend his knees and not hold them in locked position all the time. Carseats are very difficult.
  • Visiting here :). My son has this, too! He was huge on planking and arching his back. Still doesn't grab his toes or sit well at 7 months, but does crawl and roll. PT has been helpful, but I still feel like we have a long ways to go. LO also has torticollis and plagiocephaly that we're dealing with.
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  • Hi! We have just found that our now 7 month old is hypotonia with seizures as well. She is developmentally delayed and we just now started therapy. We have done an EEG and they did notice disorganized brain activity. We are getting an MRI done on Monday to find anything else and from there we will get a better plan in place. I am so scared for her.
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