Secondary IF

How open are you about treatment

i was wondering how open you guys are about your infertility problems and treatments. My DH is really private about it all, and he doesn't want to share it with anybody. His family never knew we had a hard time getting pregnant the first time or that we had to do IVF.
This time my husband says he doesn't really want my family to know. That is really hard for us, since our RE is in my hometown and we usually stay at my fathers house. He is even telling me that this time he wants to stay at a hotel.
I asked him why he is being so private and he says, that it is nobody's business to know how we "make" our children, since people without problems don't go out telling everybody about the sex they had.
I kinda ubderstand him but I would like to have the support of my family going throught it all over again.

Re: How open are you about treatment

  • Loading the player...
  • We were open with just our parents and a friend or two the first time, especially since DH's dx condition was caused by a health issue that is genetic so his family had to be told.

    The other times, we have not told anyone.

    My DH is very very very private like yours and does not want anyone knowing and that can be lonely and isolating, he barely even speaks about it with me.

    H: 34 dx Azoospermia due to CBAVD from CF  
    ME: 39 IS FINE!!!  DOR and poor AMH/FSH/LH
    IVF/ICSI/PESA #1 Beta 1 373 Beta 2 1783 BOY/GIRL TWINS!! Born April 2010!!
    Natural FET 5/26/12 2 blasts Beta 1 207 Beta 2 513 Beta 3 1377 U/S 6/28 Pregnancy not viable d & c scheduled :( 
    IVF/ICSI/PESA #2 ER 11/15/12 Nothing to transfer :( 
    IVF/ICSI #3 April 2013 MDLF 3dt of 3 embryos, chemical :(  
    IVF #4/ICSI/MESA/CCS/FET EPP April 2015
    ODWU CCRM with Dr. Sch COMPLETE!!!! Put on acai supplement they are studying for DOR and embryo quality.
    DAY 3 Labs Drawn 2/26 put on vitamin D and calcium supplements
    Regroup and Protocol Reveal 3/04 "Bazooka Protocol" EPP with MDLF "Protocol 6 with patches"
    ER/MESA 4/10 ER 9 eggs retrieved MESA success found live swimmers :)
    Fertilization Report 6 eggs mature and ICSI'd 4 eggs fertilized normally
    Day 6 Report to Blast for CCS 4/16: 2 DAY 5 BLASTS BIOPSIED FOR CCS a 4AB and a 3AB!!!!
    CCS Results BOTH BLASTS CCS NORMAL!!!!!!  call on 4/24
    Regroup call to discuss CCS results and FET call on 5/20
    FET prep: CD 1 6/08 CD 3 Start BCP 6/10, HSG 6/12 Lupron Start 10 iu 6/17 End BCP 6/21 CD 1 6/23!!!
    Start vivelle patches 6/25 change e/o/d reduce Lupron to 5iu 6/25 Blood Draw 7/01, 7/08, 7/15, 7/19
    Increase vivelle patches 7/03 2 change e/o/d and 7/05 change e/o/d 3 and 7/07 4 change e/o/d add vaginal estrace 2x a day
    Lining Check/Blood Draw 7/08 and 7/15 End Lupron 7/18  Start PIO 1ml daily 7/18  Blood  Draw 7/19
    Flight to clinic 7/22
    FET 2 CCS BLASTS :):)  7/23 :):) YES YES both thawed and both fully expanded :):)
    7/26 :):) 3dp5dt PM very very faint positive FRER
    7/27: 4dp5dt Neg Digi AM but very very faint positive FRER PM POSITIVE DIGI CLEARBLUE PREGNANT 1-2 :):) 
    7/31:8dp5dt AM POSITIVE DIGI CLEARBLUE PREGNANT 2-3!!!! :):) 
    Beta 1 8/01= 408!!!!!!!!!! at 9dp5dt FET
    Beta 2 8/03 = 1014!!!!!!!!!! at 11dp5dt FET
    8/05/2015 AM POSITIVE DIGI CLEARBLUE PREGNANT 3+!!!! :):) 
    First Ultrasound: 8/20!!!!!! TWINS!!!!!!!!!!!!!!!!!  Genetics says BOTH BOYS!!!!!!!!!
    Second Ultrasound: 9/03!!!!!!!!!!










     










  • I understand this problem well. The problem my DH and I have is that his mother will not keep her mouth shut. Our first two miscarriages were very public. With the first one, my DH and his parents told EVERYONE we were pregnant although I told them not to and it was too early to share. Well, we saw how that ended. For the second pregnancy/miscarriage, my DH told his parents even though we agreed not to tell them (or my parents either) until we were sure everything was OK. His mom ended up telling her whole family and other people, even though I specifically told her not to AGAIN.

    When we had the second loss so close in time with so many people knowing we became the couple with "problems". His family started to reach out and express their "pity" and "sadness" in our "issues" and I was just plain angry. There is no shame at all with IF or with miscarriages, but sometimes you don't want this broadcast among a ton of people who now become involved with a private matter that is none of their business. Also, a lot of people say very odd/wrong things. One of his aunts remarked that now I could "drink again" so wasn't that nice? I wanted to take her face off.

    Flash forward to now. DH and I have a few close friends who know we are going through treatment but that's it. Although my parents have always honored our request for discretion, they get cut out by default because we are not telling his parents. DH concedes that his mother will not keep it private, and I am likely to really blow up at her if it happens again.

    Sooo...the shorter version of the answer is that we have a few close friends who know and support us. Mostly people who have dealt with IF but a couple friends who have not. We told them because we (mainly me) needs support but we know they will respect our request to not share this with others. Too many people knowing is stressful for me.

    Me: 35 DOR - AMH 1.1 FSH 5.6

    DH: 39

    09/01/10 - First pregnancy - my sweet son was born 

    04/25/14 - Miscarriage at 9 weeks - Turner Syndrome 

    08/01/14 - Miscarriage at 8 weeks - Trisomy 9 

    October 2014 - Unsuccessful IUI 

    November 2014 - IUI month skipped due to cyst 

    December 2014 - Unsuccessful IUI 

    January/February 2015 - Failed IVF (standard long protocol) - 7 eggs, 6 mature, 4 fertilized (ICSI), 0 made it to blast, 0 for testing 

    March/April 2015 - Microflare IVF protocol with HGH - 6 eggs, 6 mature, 5 fertilized (ICSI), 2 blasts for biopsy! 

    May/June 2015 - Microflare IVF protocol with HGH - 9 eggs, 6 mature, 5 fertilized (ICSI), 3 blasts for biopsy!

    06/18/15 -  Two healthy embies based on PGS testing by Natera!

    June/July 2015 - FET cycle with estradiol & PIO shots, a Neupogen treatment, and accupuncture

    07/08/2015 - Transferred one lovely embie 

    07/17/2015 - Beta #1 136

    07/20/2015 - Beta #2 529 -- BFP!!!

  • Both sides of our family know and a few close friends. DH is way more open about it than I am. We didn't share with anyone until right before we started our IVF cycle. For some reason I thought we would get pregnant during an IUI and when that didn't happen, I figured I could use all the support I could get. I'm glad they all knew because when my IVF cycle ended in a BFN, it was comforting knowing that everyone was thinking of us and sad with us.

    By sharing and being open, I also discovered that my brother and SIL are struggling with infertility also. We have become extremely close through this. They are choosing a different path and are currently going through the adoption process instead of treatments, but it's nice to have someone I can confide in who gets it!

  • I am crazy open. Just how I am.  I know there is a decent chance it won't work out but i don't have a problem with that.  I actually think people get nervous of me in my openness and don't know how to react.  People at my work know because i need coverage for things.  I know the vast majority of people dont feel comfy being so open (or even having me be so open) but I think it is just part of my journey andI don't mind bringing awareness to the fact that there are so many of us out there. 
    DS: Born November 2011
    TTC #2 since April '13
    DH 35, Me: 34
    DX: Unexplained Secondary Infertility, Slight DOR
    Sept 14 - IUI (Clomid + Ovidrel) = BFN
    Oct 14 - IUI (Clomid + Ovidrel + Progesterone) = BFN
    Nov 14- Benched due to cysts Looking for New Doc
    Feb - IUI #3 (Letrozole + Ovridrel)
    March/April - IVF #1 - Antagonist Protocol - Follistim+HGH+Low Dose HCG - 11R/9M/5F - 2 8 cell 3dtransfer - BFN on April 23, 2014


  • I'm open with anyone who asks. My work friends know the most, because they ask the most. My sister knows, and my brother to an extent. My dad and grandma know we're having trouble, but not about treatment. DH doesn't share anything with his family. I did talk to MIL about it once, but she seemed uncomfortable so I didn't open up any more than to say we were disappointed that we might not have any more.
  • DH and I have told our family about MCs- we never announced pregnancy, just quietly let our families know our loss and receive comfort.
    My main reason for not telling anyone when my treatment months are is so that I can keep the + a secret if it happens, and so I don't have people asking if it worked when I'm feeling devastated that it did not (or one day, trying to hide that it did). My first go round my sister did know, but she is so forgetful she never thought to ask the result. Next go it was only us and that's the way I like it.
    I suppose if I needed someone to help out with DD, I would tell my mom and she would keep her.

    Two years, two losses and three IUIs...

    We are having TRIPLETS!

    EDD 1/26/16

     GGB born November 2015!


  • I am so glad u found this board!
    It's good to know that not everybody feels confortable sharing.
    We have friends that have difficulties and they are super open about it, I was feeling like the odd one out!
  • I'm pretty open about it.  All our family and close friends know about our losses and that we will be doing IVF this year.  I've also publicly shared on FB about our losses.  It's been important to me in the healing process to be open about it, but that definitely doesn't work for everyone.  I don't think you are the odd one out by being private about it, just doing what works best for your family.
    Me: 31     DH: 33
    Dx: Me: Recurrent Pregnancy Loss; DH: Low Morphology (2%)
    BFP#1: MC 3/1/11 at 6w1d - EDD 10/21/11
    BFP#2: 5/3/11 - EDD 1/9/12 - DD Born 1/6/12
    image
    TTC #2 since 12/13
    BFP#3: MC 2/8/14 at 4w5d - EDD 10/13/14
    BFP#4: MC 5/6/14 at 4w4d - EDD 1/9/15
    BFP#5: MMC discovered 8/4/14 at 9w1d - D&C 8/5/14 - Baby Boy with Trisomy 16 (maternal origin) - EDD 3/8/15
    BFP#6: CP 11/6/14 at 4w2d - EDD 7/14/15
    IVF #1 with ICSI & PGS: May/June 2015, ER 6/3/15, 17R/17M/15F
    IVF #2 with ICSI & PGS: July 2015, ER 7/16/15, 16R/11M/9F
    PGS results = 6 normal embryos (4 boys, 2 girls)
    FET 9/23/15 = BFFN
    Natural FET 11/4/15 = BFP!
    Beta 9dp5dt = 92

  • With #1 we only told close friends and family that we were doing fertility treatments. I told some other employees and people like that after he was born. We are kind of doing the same with #2. I am pretty open about it in person if it comes up about us trying again, but I am not going to post about it on facebook or anything like that.
    ~~ All Welcome~~
    ME: 32, SER aggregates on eggs, anovulatory
    DH:  33, 2% morphology
    TTC #1 
    2 clomid cycles, 3 hybrid clomid/bravelle IUI's = 4 BFN/1 CP@ 5.5 weeks
    IUI #6 -Follitism IUI cycle converted to IVF and back to IUI-4 mature, 3 maybe mature = BFP!!   DS Born 9/2014
    TTC#2 
    IVF #1 9/15 Antagonist- 19 R 1F (Frozen day 1 @ 2PN stage) Diagnosed with SER aggregates in 13/19 eggs after failed fertilization
    IVF #2 11/15 Antagonist w/ICSI  (Higher stims & Letrosole added last minute on stim day 7)- 39R, 24M (20/24 SER free), 15F (14/15 SER free & all frozen @ 2PN stage) 
    FET#1 Cultured all 16- 2pn embryos to day 5- transferred 1 good hatching blast and 1 early blast on 1/28- None to freeze - beta 2/5

  • We are very private about our infertiliy. I don't know anyone having problems ttc. A few of Dh's co-workers know because he needs certiain days off. Plus we use his insurance to cover our procedures.
    Me(28) DH(28) 
    DD(9)
    Expecting Baby #2


    BabyFetus Ticker
  • I have always been a pretty open person. So I am pretty open with anyone who asks about what our situation is, but try not to over share.

    Because of being open I have learned of several others who have had infertility. A cousin, friends of my siblings, my best friend, and even my sister.

    Image and video hosting by TinyPic 

    DD conceived after 3 years of ttc.
    MFI - DH had varicocele repair and took Clomid to get DD b. 02/2010

    TTC #2 since 6/2010
    10/2012 DH diagnosed with Epilepsy
    A few failed IUIs summer 2012 and 2013. 
    DH taking clomid and waiting to see if he needs another vericocele repair. 
    Hoping for a 2015 baby or babies. 
    Wishing, hoping, waiting.


    Lilypie Fifth Birthday tickersLilypie - Personal pictureLilypie Trying to Conceive Event tickers

    Image and video hosting by TinyPicImage and video hosting by TinyPic
  • NB817NB817 member

    I am very open about it but only MY role in it. I do not share with people about DH's Azzospermia because he would pretty much hate me if I did. Only a handful of his family even know he had cancer 20 years ago because that's how private he is and therefor only that handful of HIS family members can know the whole truth about what we are dealing with. Well and my BFF knows but he doesn't know that. I've told my mom all of it too and he knows that, but mostly people think that it's just a problem with me.

    Like @Aprildrew04 I've learned about a lot of IRL friends that have gone through it or are going through it and have gotten so much support and comfort from them. I hope your DH realizes that it's not that you are broadcasting how you're making your children it's that you are seeking support for it because it's hard.

    ME: 35 DH: 39

    Married July 2011

    DD Born 8/12

    TTC #2 since 11/13

    ME: Submucosal Fibroid Surgery Date APRIL 14th 2015 -Left Tube is blocked by Fibroid~Surgeon removed 26 Fibroids from my Ute and Unblocked my Tube

    DH:Azoospermia...Thank God we have 12 vials of frozen swimmers

    July 15-Check to see if Ute is all healed

    IUI #1 8/3/15...BFN

    IUI #2 9/5/15...BFP on 9/17/15

    Beta #1-344

    Beta #2-809

    Beta #3 8,390

    1st u/s 8/8/15 1 bean HB 135 @ 6w5d



  • I am very open, and a lot of it has to do w my feeling that infertility shouldn't be taboo. Now I don't go telling strangers on the street but if someone asks I about when we are going to have another I answer honestly. But all of the problems are w me, I can understand being more discreet if it were an issue w DH

    Me(27)+ DH(30) Married since Sept.2007
    BFP #1 DD born 6/1/2009 (no complications)
    TTC #2 March 2011
    BFP# 2 after 4 rounds of clomid (blighted ovum)12/11
    BFP# 3 w help of clomid 2/12 DS born 10/24/2012

    TTC#3

     Stopped preventing when DS was 6 months old (4/13), really started TTC 10/13
    Started clomid July 2014, 3 failed rounds of clomid w OB (low pro on CD 21) sent to RE

    HSG and blood work all good
    round 1: clomid and trigger shot~BFN
    round 2: clomid, trigger and IUI~BFN
    round 3: clomid, trigger and IUI +4 booster HCG~NOPE

    On a break!!! Til April/May 

    round 4:clomid, trigger (missed IUI window) NO fricking way BFP


    Baby Birthday Ticker Ticker
     Baby Birthday Ticker Ticker
                                                                            BabyFruit Ticker
  • My husband and I are having problems conceiving too! I have been so open about sharing our struggles, but he has wanted to shove everything under the rug. I wrote a blog about our infertility problems, and made him read it. In the blog I explained the point of me writing wasn't to share my life story, but instead to hopefully help someone else get through the same problems. From that moment on, he understood why I wanted to share our story. There are SO many couples struggling with fertility, and I love knowing that we aren't the only ones!

    That being said, I have told my side but he has yet to tell his...and I'm okay with that:). I HAD to tell my mom and sister. When I told my mom she said "when I had you it took me over a year, but with all my other kids it only took a couple months." So I was so glad that I shared!

    Sending love and prayers to everyone that has to go through this! It truly is such a sad thing, and I wouldn't wish it on my enemy.
Sign In or Register to comment.
Choose Another Board
Search Boards
"
"