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June 2015 Moms
KJKNAJ
member
Another update from me
KJKNAJ
member
Well, ladies, every piece of good news comes with a heck of a lot if 'we don't know'.
Our initial round of amnio results have come back clear
This rules out Down's syndrome, Edwards and whatever that 3rd one is she told me.
To us, this sounded like good news? To the doctors it just means that they know what's NOT going on, but not what IS.
So they are now talking to us about termination. That the legal cutoff in our state is 23wks so all our decisions have to be made quickly. Next we are meeting with a team of neo doctors and nurses who are going to show us 'the harsh reality of what her life, and ours, will look like' so that we can make the most informed and realistic decision.
I am losing my mind. I am carrying a baby that has so much going right along with so much not. She is kicking me as I am considering what is fair to her future, and if she has a real shot at life. I am in some kind of personal hell, with no intuition of what's going to happen.
Our initial round of amnio results have come back clear
This rules out Down's syndrome, Edwards and whatever that 3rd one is she told me.To us, this sounded like good news? To the doctors it just means that they know what's NOT going on, but not what IS.
So they are now talking to us about termination. That the legal cutoff in our state is 23wks so all our decisions have to be made quickly. Next we are meeting with a team of neo doctors and nurses who are going to show us 'the harsh reality of what her life, and ours, will look like' so that we can make the most informed and realistic decision.
I am losing my mind. I am carrying a baby that has so much going right along with so much not. She is kicking me as I am considering what is fair to her future, and if she has a real shot at life. I am in some kind of personal hell, with no intuition of what's going to happen.
*** BFP #3 - angel baby at 8w2d - D&C 1.31.14 ***
*** BFP #4 - Chloe Grace, the 'C' to complete our 'A & B' - born Feb 25th, 2015 at 22w2d, lived for 2.5hrs ***
<a href="http://www.thebump.com/?utm_source=ticker&utm_medium=HTML&utm_campaign=tickers" title="Parenting Advice"><img src="http://global.thebump.com/tickers/tt1c7a3f.aspx" alt=" Pregnancy Ticker" border="0" /></a>
This discussion has been closed.
Re: Another update from me
Please keep us updated if you can .
Regardless of what you and your husband decide, I hope you find peace and healing in each other. I'll continue to pray for both of you and your daughter! I sincerely hope you get good news soon.
*** BFP #3 - angel baby at 8w2d - D&C 1.31.14 ***
*** BFP #4 - Chloe Grace, the 'C' to complete our 'A & B' - born Feb 25th, 2015 at 22w2d, lived for 2.5hrs ***
<a href="http://www.thebump.com/?utm_source=ticker&utm_medium=HTML&utm_campaign=tickers" title="Parenting Advice"><img src="http://global.thebump.com/tickers/tt1c7a3f.aspx" alt=" Pregnancy Ticker" border="0" /></a>
Franco Paul born 6/4/15 at 39 weeks. Mila Francesca born 10/19/13 at 37 weeks. Both born via C-Section after 6 years of fertility treatments, disappointments and losses. Love them!!
Proud Mama to cleft cutie
Most of the kids I teach are medically fragile, non-verbal, and have limited mobility. I also teach general children. My special needs students brighten my life. This is my first year teaching them and it has changed my outlook on life. Every success with them is a huge deal. I happen to teach them music and when there is a breakthrough it is cause for celebration. Almost all of my students love music and will laugh and smile with me.
I understand that the path is scary, uncertain, and overwhelming. There has been so much progress in special education for children like your daughter. I can't imagine having information like what you've received brought to me. After teaching the students I have now I know there is hope for them and teachers who will love her so much. The teachers at my school will do anything for their students including going to visit them in the hospital, at home when they're too sick to come in, sending Skype videos of the class, or even just holding them as they cry.
Just know that there is support waiting for whatever outcomes you find with her. These are people who will love her and want only the best for her.
Please keep us updated and know that we're praying for your family.