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September 2015 Moms
SWBrigadoon
member
Celiac or gluten free families?
SWBrigadoon
member
Anyone in this group have Celiac or maintain a gluten-free diet? My husband has Celiac, so we have made our entire household gluten free to show support and avoid cross contamination. Thought it would fun to see if there are any others!
Sept. '15 Siggy Challenge: Happy Dance
Mommy of DS born 6/13/2013, and 3 furbabies
Re: Celiac or gluten free families?
@rubylovebug Ha! I like "gluten-full". My friends take me out to dinner to, as they say, "get my gluten on"
My mum has it and so do my 2 daughters ( ages 5 & 3). Diagnosed at under 2YO and at 4 YO. They are 100% GF.
Hubby & I eat GF at home 99% of the time with them, unless it's a sandwich or late in the evening.
I've been tested, genes, scope, biopsy everything. I have the 2 gene markers for it, but am not celiac.
@mlindon I know what you mean about the cravings making it hard! I would kill for an Indian samosa some days...
I also want to clarify that I am not taking a stance that making the entire household gluten free is better than not. I know lots of people successfully handle it in different ways. Hopefully it didn't come across that way, but just in case! We made that decision because when DH was diagnosed he was in his late 20's and we were already living together. I figured me sitting next to him chowing down on a slice of pizza probably wasn't going to make the transition any easier for him, and it was such a huge adjustment and lifestyle change we decided to make the transition together.
Married DH 7/30/11
CSC arrived 5/7/12
CHC arrived 6/2/14
SWBrigadoon - my younger dd was first to be diagnosed. She was deathly ill the summer of 2013. Lost 15% of her body weight in 6 weeks - it was scary. After multiple visits to the pedi (initially was treated for c-diff after lots of antibiotics for ear infections, then reflux as she wouldn't stop vomiting) he finally sent her to a pediatric GI. She got blood test, scope and biopsy at 21 months.
My 5 year old (then 4) had complained about pains in her tummy, but nothing came of it in spite of visits to the on-call pedi, so when she had her well check after little sis' diagnosis I had her blood tested and he sent her to the GI as well who didn't do anything else as her celiac antibodies were through the roof at the time.
She's been marvelous with the change to GF and a great example to little sis.
According the to GI it will often show up around 20 months or so in children. You are right to keep your ds on gluten for now as if he was off it and went for testing there'd be nothing to show if he was as the trigger wouldn't be present in his system
@joco thank you for the info, I thought it was usually around two years that it often manifested. We actually are doing the opposite and keeping DS gluten free right now, but I do know that in order for him to get an accurate test he has to be eating gluten for a period of time. We figured we would cross that bridge when we came to it, but we really need to start making a plan.