We found out the worst news of our life on Nov 11 at our anatomy scan. She has a very rare disorder (1 in 200,000-400,000) called OEIS. She has
severe scoliosis (spine is basically bent in half), bladder and bowels
appear to be connected, heart is enlarged or chest is small, and the
intestines are outside in a sack. She isn't urinating and they don't
know why so I have no amniotic fluid. We are naming her Elizabeth Rose. I have a 2 year old named Caroline. The Dr. believes I will go full term and she will live either a few minutes or a few hours. I'm due April 5. I am trying to enjoy each day I have with her, but I feel like I'm getting sadder with each passing day. I am dreading giving birth to her knowing I will lose her. This is such a nightmare.