Trouble TTC

Waiting on AF- need advice *Update in Comments*

SND1231SND1231 member
edited December 2014 in Trouble TTC
Hey ladies. I am needing some advice.
This cycle was a bust and ended with a BFN. This is NOT a "could I possibly be pregnant post" at all.
I am 20 days past O (confirmed with bloodwork) and on CD35 (counted CD1 as the first day I started Femera since no actual AF).
I called my RE today and told then about the BFN and no AF, they said that they would not even consider giving anything to induce AF until Friday at the earliest and then it still wouldn't be a definite since I have a history of a blood clot and it would be risky. She said no testing can be done at all until AF arrives. I told her that I haven't had AF in over three years and she agreed that it was unlikely that I would have AF on my own at all.

 I do not know what to do. Is this common to wait this long for AF? Any natural ways to make AF come? I am by no means super knowlegable about all of this but from what my doctor told me and what I have researched it is extremely rare to ovulate and not have a period. I am so confused about all of this. I would appreciate any info and advice!
Married: 12/15/2012    TTC: 08/2014
Husband: 26 SA: normal
Me: 23 Low AMH and damaged ovaries due to chemotherapy.
No AF or O in 3 years. HSG showed a slight T shaped uterus.

High Risk OB 9/29- got the ok to get pregnant.
RE Appt:  10/28/ U/S showed follicles, but also small damaged ovaries.
B/W results CD0: all normal except low AMH at 1.3
Cycle 1-November (TI)- Femera 2.5mg, 2mg Estradoil, and Trigger=BFN
Cycle 2-December (TI)- Femera 2.5 mg ,4mg Estradoil, and Trigger= No O
Cycle 3-January (TI)- Femera 5 mg, 2mg Estra
doil, and Trigger=


Re: Waiting on AF- need advice *Update in Comments*

  • I don't have any advice for you but I just wanted to say I am sorry you are going through this! Sending big hugs!

    ***TW****MC mentioned & BFP mentioned***


    me 38 DH 39.  
    TTC#1 since July 2014
    AMH 0.1, DOR, Poor responder
    Moved to Prague, Czech Republic for IVF
    2 Natural IVF cycles, 3 full IVF cycles, 4 transfers, 1 BFP - heard heartbeat at 6w5d
    Diagnosed MMC at 9w1d on 11/30/15
    Headed back home to Colorado 12/12/15

    DE attempt in Czech Republic!! 

    March trip to Prague canceled due to Pancreatitis. :sob:
    Headed to Prague April 30
    3 different donors resulted in 1 PGS tested embryo and 1 fresh embryo
    2 embryo's transferred (from 2 different donors) on 5/10/16
    BFP on 5/15/16 at 5dp5dt
    Beta 1 = 81 at 8dp5dt, Beta 2 = 295 at 10dp5dt, Beta 3 = 891 at 12dt5dt. Beta 4 = 2114 at 14dp5dt, Beta 5 = 4916 at 16dp5dt, Beta 6 = 13252 at 19dp5dt
    Heartbeat at 6w5d 133BPM <3
    We are having a GIRL!!! Due Jan 26, 2017


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  • @rainbowbridge14 The nurse I talked to today seemed like I was bothering her with my petty questions. I asked if they would do an u/s or start some of the other testing they wanted. She was quick to shoot back that I just needed to wait longer and if by Friday nothing had happened she would consider asking the RE. But thanks for the heads up about Narnia's post I will search and try to find it!
    Married: 12/15/2012    TTC: 08/2014
    Husband: 26 SA: normal
    Me: 23 Low AMH and damaged ovaries due to chemotherapy.
    No AF or O in 3 years. HSG showed a slight T shaped uterus.

    High Risk OB 9/29- got the ok to get pregnant.
    RE Appt:  10/28/ U/S showed follicles, but also small damaged ovaries.
    B/W results CD0: all normal except low AMH at 1.3
    Cycle 1-November (TI)- Femera 2.5mg, 2mg Estradoil, and Trigger=BFN
    Cycle 2-December (TI)- Femera 2.5 mg ,4mg Estradoil, and Trigger= No O
    Cycle 3-January (TI)- Femera 5 mg, 2mg Estra
    doil, and Trigger=


  • I think I will email my RE. We have an online portal thing they they post all of the results, labs, ultrasounds etc to and it has a place to email the doctors. I think that I will email him directly and see what he has to say. Thanks for the advice!
    Married: 12/15/2012    TTC: 08/2014
    Husband: 26 SA: normal
    Me: 23 Low AMH and damaged ovaries due to chemotherapy.
    No AF or O in 3 years. HSG showed a slight T shaped uterus.

    High Risk OB 9/29- got the ok to get pregnant.
    RE Appt:  10/28/ U/S showed follicles, but also small damaged ovaries.
    B/W results CD0: all normal except low AMH at 1.3
    Cycle 1-November (TI)- Femera 2.5mg, 2mg Estradoil, and Trigger=BFN
    Cycle 2-December (TI)- Femera 2.5 mg ,4mg Estradoil, and Trigger= No O
    Cycle 3-January (TI)- Femera 5 mg, 2mg Estra
    doil, and Trigger=


  • @lemonliz I replied here instead of on the benched check in. I hoped I didn't sound rude with my answer. I really appreciate all the help and insight! As for your questions- I never bled. They started my on Femera without AF. I haven't had one in over three years due to damage from chemotherapy causing me not to O. I took Femera for 5 days what they count as CD 1-5 then triggered on CD13 they did not do b/w at this time but said it looked like I was starting to O on my own. They did do 7dpo b/w on CD20 a week after trigger and it was 9.5 ( nurse said they were happy with over 6 for me and it did confirm O). Lining at CD 10 was 3mm put on Estradoil for 4 days and it was up to 5mm on CD13 which they still were not happy with. My body did not cooperate with anything this cycle, so I guess I shouldn't be surprised that it still won't do what it is supposed to do.
    I had very light spotting at CD 26 and 27. Not even enough for a liner (sorry if TMI) but that is all that I have had. No PMS symptoms of any kind.
    Married: 12/15/2012    TTC: 08/2014
    Husband: 26 SA: normal
    Me: 23 Low AMH and damaged ovaries due to chemotherapy.
    No AF or O in 3 years. HSG showed a slight T shaped uterus.

    High Risk OB 9/29- got the ok to get pregnant.
    RE Appt:  10/28/ U/S showed follicles, but also small damaged ovaries.
    B/W results CD0: all normal except low AMH at 1.3
    Cycle 1-November (TI)- Femera 2.5mg, 2mg Estradoil, and Trigger=BFN
    Cycle 2-December (TI)- Femera 2.5 mg ,4mg Estradoil, and Trigger= No O
    Cycle 3-January (TI)- Femera 5 mg, 2mg Estra
    doil, and Trigger=


  • no advice, but I think it's a great idea for you to stand up for yourself and get answers with your RE's office. You are not wasting their time. Patients are the reason they all have jobs. GL

    Official diagnosis: Unexplained IF. I am 32. I have low ovarian reserve (low AMH), and poor egg quality. I've also been diagnosed with mild glandular developmental arrest (lining problems, detected with EFT).

    We are using open ID donor sperm. IUIs #1-7=BFN. IVF September 2014 antagonist protocol, 8R,5M,3F, 5 day transfer of 1 morula = BFN. IVF#2 planned for January 2015 (antagonist protocol + HGH).

    Image and video hosting by TinyPic image

  • I am here for moral support too! I don't have any advice besides what other people have said about talking to your RE directly. There is no reason that they shouldn't at least get you in for an u/s to check for a cyst. I hope this resolves itself soon, but until then take care of yourself.
    ****SIGGY WARNING****

    image





    TTC since May 2013

    Me: 31, blocked tube
    DH: 35, azoospermia :(
    IUI #1 (50 mg Clomid, Ovidrel) on 9/7/2014: BFN
    IUI #2 (100 mg Clomid, Ovidrel) on 10/3/2014:
    BFN
    IUI #3 (100 mg Clomid, Ovidrel, Estradiol) on 11/1/2014: BFN
    First RE appt. on 11/11/2014
    November 2014: Benched due to cyst :(
    IUI #4 (5 mg Letrozole, Follistim, Ovidrel, Crinone) on 12/26/2014: BFP!!!
    Beta 1 (1/9/2015): 292     Beta 2 (1/12/2015): 843


  • I'm also here for simply for moral support.  I have no advice to offer, but I do agree that you should definitely send the doctor a message since the nurse was so rude.  I'm sorry you're going through this stress, HUGS to you!
    Me: 31 (PCOS) possible right tube issues DH: 36 (SA normal) 
    Started dating in 2006, Married 2012 
    TTC since November 2013 
    First RE visit due to irregular periods: June 2014
    Lap/Hysto to remove polyps, cyst and tube blockage 11/6
    Cycle 1 (Dec. 2014) TI with Clomid, Trigger, & Progesterone CX due to no response
    Impatiently Waiting CD1 to try again with Fermara Back on the bench due to giant cyst,
    who know I'd ovulate on my own after a cancelled cycle and end up with a mega cyst :(
    All Welcome
     
    image
  • SND1231 said:
    @rainbowbridge14 The nurse I talked to today seemed like I was bothering her with my petty questions. I asked if they would do an u/s or start some of the other testing they wanted. She was quick to shoot back that I just needed to wait longer and if by Friday nothing had happened she would consider asking the RE. But thanks for the heads up about Narnia's post I will search and try to find it!
    Whaaat?? You have the right to ask your doctor a question! I am so glad you will email him.

    Going 20 days past what they called your O date without a sign of AF is NOT normal and it is their job to know what is going on with your body so they can keep you healthy and help you have a successful cycle. I think at the very least you deserve an ultrasound to see if you have a cyst(s). 

    So sorry you have to go through this. Anything that messes with my predicted timing for each cycle is a hard pill to swallow. This must be so frustrating. :(

    January 3T Siggy Challenge - New Year's Resolutions
    image
    imageimage

    Me (29), DH (30) TTC actively 54 55+ cycles | All BFNs
    MFI (low everything) | Endo Stage 1 & Stenotic Cervix (treated) | PCO
    Married - July 2008 | Started TTC - Jan 2009RE Visit #1 - Mar 2014 
    IUI #1 ICI #1 - June | IUI #1.1 Laparoscopy - Aug
    IUIs #1.2, 2, 3 - Sept, Oct, Nov (Letrozole) - BFNs 
    IUI #4 - Dec (Bravelle) | IUI #5 - Dec/Jan (Bravelle) - 5 follies + TI - BFNs
    IUI #5.1 - Jan (Bravelle) Cancelled 
    Planning to start IVF in March!
    ***All Welcome***
  • Y'all are wonderful!! Thank you for all the support and advice! I will definitely email my RE today. Hopefully I will get some better direction about what on earth is going on!
    Married: 12/15/2012    TTC: 08/2014
    Husband: 26 SA: normal
    Me: 23 Low AMH and damaged ovaries due to chemotherapy.
    No AF or O in 3 years. HSG showed a slight T shaped uterus.

    High Risk OB 9/29- got the ok to get pregnant.
    RE Appt:  10/28/ U/S showed follicles, but also small damaged ovaries.
    B/W results CD0: all normal except low AMH at 1.3
    Cycle 1-November (TI)- Femera 2.5mg, 2mg Estradoil, and Trigger=BFN
    Cycle 2-December (TI)- Femera 2.5 mg ,4mg Estradoil, and Trigger= No O
    Cycle 3-January (TI)- Femera 5 mg, 2mg Estra
    doil, and Trigger=


  • ((Hugs)) sweetie. PPs have given you great advice. I am sorry your nurse was a twat waffle. Hopefully she gets an earful from your doctor about her less professional advice and handling of you and your situation. 
    Multiple TTCAL 1IF 3
    imageimage
    DX: stage 2 Endo 2012, PCOS 7/2/14,  HSG 6/11/14, Lefty open!!
    BFP#1, EDD: 4/27/14, Missed EP confirmed: 9/23/13, R tube removal: 9/25/13 
    Clomid/TI #1=BFN, 
    Clomid/TI#2=BFN, Clomid/TI #3=CP
    BFP #2 CP, EDD 7/12/15
    On a treatment break: 2 natural cycles. Saving money, sigh*

    Goodbye my sweet babies. We miss you so much
    All Welcome


  • SND1231SND1231 member
    edited December 2014
    @IPutKetchupOnKetchup here is what I emailed him..

    Dr. M,
    I called the office today because I still have not had a period. I am on cycle day 35 (counting day one as the first day I took Femera), 20 days past ovulation and no sign of a period and home pregnancy test were and are still negative. The nurse did call me back and told me that I needed to wait until Friday and see if it would come before she would bother you with my questions. If it still didn't show up that she would consider asking you and decide what to do since I have a history of blood clots. I am very concerned about what is causing me not to have a cycle as we confirmed ovulation with blood work. Please let me know what you would like for me to do.
    Edited: took out doctors name and my own.
    Married: 12/15/2012    TTC: 08/2014
    Husband: 26 SA: normal
    Me: 23 Low AMH and damaged ovaries due to chemotherapy.
    No AF or O in 3 years. HSG showed a slight T shaped uterus.

    High Risk OB 9/29- got the ok to get pregnant.
    RE Appt:  10/28/ U/S showed follicles, but also small damaged ovaries.
    B/W results CD0: all normal except low AMH at 1.3
    Cycle 1-November (TI)- Femera 2.5mg, 2mg Estradoil, and Trigger=BFN
    Cycle 2-December (TI)- Femera 2.5 mg ,4mg Estradoil, and Trigger= No O
    Cycle 3-January (TI)- Femera 5 mg, 2mg Estra
    doil, and Trigger=


  • I really wasn't rude or snappy with him at all. I just tried to express in a professional way that the nurse blew me off without knowing what was going on. He was very nice and very concerned about why I haven't had AF when O was confirmed. I think my RE must know how irritated I am since I had the other RE prescribe meds without looking at my chart and now this stupid nurse telling me to wait without talking to him first. He obviously did not agree with the nurse considering he is having me come in first thing in the AM before he leaves on vacation.
    Married: 12/15/2012    TTC: 08/2014
    Husband: 26 SA: normal
    Me: 23 Low AMH and damaged ovaries due to chemotherapy.
    No AF or O in 3 years. HSG showed a slight T shaped uterus.

    High Risk OB 9/29- got the ok to get pregnant.
    RE Appt:  10/28/ U/S showed follicles, but also small damaged ovaries.
    B/W results CD0: all normal except low AMH at 1.3
    Cycle 1-November (TI)- Femera 2.5mg, 2mg Estradoil, and Trigger=BFN
    Cycle 2-December (TI)- Femera 2.5 mg ,4mg Estradoil, and Trigger= No O
    Cycle 3-January (TI)- Femera 5 mg, 2mg Estra
    doil, and Trigger=


  • Ketchup- I do have a very unique name, which is why I try very hard to stay as anonymous as I can because there sure aren't very many of us out there! Lol! I copied and pasted and clicked submit and instantly realized I left my name on it! I tried to edit as soon as I could.

    Thanks ladies for helping me to know it wasn't normal and that I should indeed stand up for getting to the bottom of what's going on. I will update tomorrow after I go in.
    Married: 12/15/2012    TTC: 08/2014
    Husband: 26 SA: normal
    Me: 23 Low AMH and damaged ovaries due to chemotherapy.
    No AF or O in 3 years. HSG showed a slight T shaped uterus.

    High Risk OB 9/29- got the ok to get pregnant.
    RE Appt:  10/28/ U/S showed follicles, but also small damaged ovaries.
    B/W results CD0: all normal except low AMH at 1.3
    Cycle 1-November (TI)- Femera 2.5mg, 2mg Estradoil, and Trigger=BFN
    Cycle 2-December (TI)- Femera 2.5 mg ,4mg Estradoil, and Trigger= No O
    Cycle 3-January (TI)- Femera 5 mg, 2mg Estra
    doil, and Trigger=


  • Update on the appointment-
    Well it was definitely the longest I have ever waited before. 1.5 hours before I even saw the doctor. But the good news is that there was no cyst at all. From what the ultrasound showed and labwork (low estrogen and low progesterone) they think the itty bitty bit of spotting I had was all that I was going to have as far as AF goes. They said from labwork and ultrasound is seems like I did have AF just by no means a real flow like the doctor told me to expect. He said maybe with my lining being so thin and my hormones being out of whack that was "normal" for me. Who knows?! But the plan is for me to have a HSG tomorrow to make sure the fluid in my uterus they saw last month is nothing more than my hormones and  "not normal" body. Then start another Femera cycle tomorrow if HSG looks okay (Dr is contemplating upping my dose to 5mg instead of 2.5 which I am pushing for). I will be on a cruise Dec 31-Jan 5 but they said that it most likely wouldn't cause any issues if I follow the same time schedule as last time. It would just means lots of BD on the cruise but that's a given anyhow :) So pretty much didn't really learn anything besides that my body doesn't want to do anything normally.
    Married: 12/15/2012    TTC: 08/2014
    Husband: 26 SA: normal
    Me: 23 Low AMH and damaged ovaries due to chemotherapy.
    No AF or O in 3 years. HSG showed a slight T shaped uterus.

    High Risk OB 9/29- got the ok to get pregnant.
    RE Appt:  10/28/ U/S showed follicles, but also small damaged ovaries.
    B/W results CD0: all normal except low AMH at 1.3
    Cycle 1-November (TI)- Femera 2.5mg, 2mg Estradoil, and Trigger=BFN
    Cycle 2-December (TI)- Femera 2.5 mg ,4mg Estradoil, and Trigger= No O
    Cycle 3-January (TI)- Femera 5 mg, 2mg Estra
    doil, and Trigger=


  • Narnia yes. I have 13 days until my cruise if they start the meds tomorrow like they said. So last cycle 5 days of meds and I triggered 8 days after finishing my meds (u/s on day 10 and 13) so I should be very close to triggering or already trigger by the time we leave on the 31st. Definitely time to do monitoring and get a very good idea of when to trigger and BD.
    Married: 12/15/2012    TTC: 08/2014
    Husband: 26 SA: normal
    Me: 23 Low AMH and damaged ovaries due to chemotherapy.
    No AF or O in 3 years. HSG showed a slight T shaped uterus.

    High Risk OB 9/29- got the ok to get pregnant.
    RE Appt:  10/28/ U/S showed follicles, but also small damaged ovaries.
    B/W results CD0: all normal except low AMH at 1.3
    Cycle 1-November (TI)- Femera 2.5mg, 2mg Estradoil, and Trigger=BFN
    Cycle 2-December (TI)- Femera 2.5 mg ,4mg Estradoil, and Trigger= No O
    Cycle 3-January (TI)- Femera 5 mg, 2mg Estra
    doil, and Trigger=


  • So glad everything is ok, and you can move ahead with the next cycle!  Sorry for all the stress, but good luck!
    Me: 31 (PCOS) possible right tube issues DH: 36 (SA normal) 
    Started dating in 2006, Married 2012 
    TTC since November 2013 
    First RE visit due to irregular periods: June 2014
    Lap/Hysto to remove polyps, cyst and tube blockage 11/6
    Cycle 1 (Dec. 2014) TI with Clomid, Trigger, & Progesterone CX due to no response
    Impatiently Waiting CD1 to try again with Fermara Back on the bench due to giant cyst,
    who know I'd ovulate on my own after a cancelled cycle and end up with a mega cyst :(
    All Welcome
     
    image
  • @rainbowbridge14‌ I've already had every imaginable hormone and blood test, numerous MRI's that have covered my reproductive organs, tons of u/s, and AMH tested. I honestly do not know what else they could do for testing to see why my body is so out of whack. This HSG was the last thing on his list and he wasn't even really wanting to do it until he saw the fluid in my uterus on the previous cycle. Is there additional testing that you think I should have?
    Married: 12/15/2012    TTC: 08/2014
    Husband: 26 SA: normal
    Me: 23 Low AMH and damaged ovaries due to chemotherapy.
    No AF or O in 3 years. HSG showed a slight T shaped uterus.

    High Risk OB 9/29- got the ok to get pregnant.
    RE Appt:  10/28/ U/S showed follicles, but also small damaged ovaries.
    B/W results CD0: all normal except low AMH at 1.3
    Cycle 1-November (TI)- Femera 2.5mg, 2mg Estradoil, and Trigger=BFN
    Cycle 2-December (TI)- Femera 2.5 mg ,4mg Estradoil, and Trigger= No O
    Cycle 3-January (TI)- Femera 5 mg, 2mg Estra
    doil, and Trigger=


  • Does a saline sono show more than an hsg does? I was also under the impression of numerous tests to figure out what's going on as well. The RE finally got some of my records from my million other doctors and I think it confirmed some of the questions and made it less important to do any other tests he had in mind? I'm just guessing here. The RE today seemed to think that most of my issues are related to the chemotherapy that I had causing my hormones to be off and not respond like "normal" to other meds.
    Married: 12/15/2012    TTC: 08/2014
    Husband: 26 SA: normal
    Me: 23 Low AMH and damaged ovaries due to chemotherapy.
    No AF or O in 3 years. HSG showed a slight T shaped uterus.

    High Risk OB 9/29- got the ok to get pregnant.
    RE Appt:  10/28/ U/S showed follicles, but also small damaged ovaries.
    B/W results CD0: all normal except low AMH at 1.3
    Cycle 1-November (TI)- Femera 2.5mg, 2mg Estradoil, and Trigger=BFN
    Cycle 2-December (TI)- Femera 2.5 mg ,4mg Estradoil, and Trigger= No O
    Cycle 3-January (TI)- Femera 5 mg, 2mg Estra
    doil, and Trigger=


  • Very interesting! I'm surprised my RE chose a HSG considering he told me he wasn't worried at all about my tubes and was more concerned about my uterus. I learn something every day thank you!! I will definitely mention this to my doctor!
    Married: 12/15/2012    TTC: 08/2014
    Husband: 26 SA: normal
    Me: 23 Low AMH and damaged ovaries due to chemotherapy.
    No AF or O in 3 years. HSG showed a slight T shaped uterus.

    High Risk OB 9/29- got the ok to get pregnant.
    RE Appt:  10/28/ U/S showed follicles, but also small damaged ovaries.
    B/W results CD0: all normal except low AMH at 1.3
    Cycle 1-November (TI)- Femera 2.5mg, 2mg Estradoil, and Trigger=BFN
    Cycle 2-December (TI)- Femera 2.5 mg ,4mg Estradoil, and Trigger= No O
    Cycle 3-January (TI)- Femera 5 mg, 2mg Estra
    doil, and Trigger=


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