Tested positive for CF

poteetpartyof3 · December 2014

It's a little pop to my bubble. They want my husband to come in for a blood test to see if he also tests positive but I don't know if I want to put him through that. He is over the moon that he is having a son and tells everyone he knows. I know that telling him about this will deflate him so much. He will worry non stop till the baby comes and I don't to take his joy away from him. He's still our baby no matter what. We would never terminate the pregnancy just because raising him might be hard. I'm just a little bummed this morning I guess.

brose1117 · December 2014

Sorry for your news. Hopefully everything works out for the best. Sending positive thoughts your way.

MAdams728 · December 2014

I'm sorry.

It's important that your husband be tested, though. If he isnt a carrier, then there is no way that the baby could have it, and you would no longer even need to worry. If he is a carrier, the chances are still low. I don't think it's a good idea to keep it from him, I know my husband would be livid.

Pintobean39 · December 2014

I'm sorry you are having to face this. Maybe discuss it with your husband and let him decide if he wants to go have the test done. Finding out early doesn't mean you have to terminate, it just means you can educate yourself on CF before he arrives.

Hopefully you won't even have to cross that bridge. From my understanding (which is limited) there isn't a high % chance of being a carrier. Good luck!

JenGrl8503 · December 2014

I'm usually a lurker but having a cousin that had CF, I know my aunt and uncle would have given ANYTHING to know sooner...he was misdiagnosed until age 7 which is insane but I know they felt like they had to make every decision on the fly....they didn't get to spend months researching and learning about the disease or get the chance to interview multiple doctors, etc. As other posters said, even if your husband is a carrier it is still only a 25% chance...my aunt and uncle had 2 other children first that do not have CF.

BUT if there is a chance your child has CF then why not utilize these next 6 months or so to educate yourself...that way IF baby has CF you can still enjoy baby's early months instead of frantically trying to learn about CF.

Also if you don't find out if your husband is a carrier or not for this child, you will go through the stress of wondering with each additional child as well.

These are the thoughts my husband and I had when we had the tests done since there was a very real chance I would be a carrier. Praying that your husband isn't a carrier, but even if he is CF research, treatment and medicine has come SOOOOOOOOOOOO far even just in the last 10 years!

RedCherry1109 · December 2014

I am a carrier and my husband isn't, we didn't find out til after we had our first child and he showed symptoms of having it. It's better to find out now and do your research then wait til LO is here and rushing to get things together. My cousin had it and lived for 22 years. He passed away this past April(due to not taking care of his self). My aunt and uncle have meet some of the strongest kids going through it and made life long friendships.

ElleMuffin · December 2014

Sending my prayers your way! I can't imagine how difficult it must be to get that kind of news. I hope you decide to share the info with your husband but I do understand the desire to protect him from the hurt you're feeling. I think the most important thing is to share the news so that you can have the support and help you need to make decisions now and so that you can avoid the potential drama of him feeling lied to (even if it's only a lie of omission) later. That should be the last thing you have to deal with!

ashtownyeah · December 2014

Your next steps are much better if you tell your husband now. You'll either A. Find out he is not a carrier, and then no longer have to worry! or B. Have the opportunity to research and both be really prepared once your son arrives.

I can sympathize with your line of thinking and wanting to protect your husband, but you shouldn't have to go through this alone.

Good luck!

catmentzer21 · December 2014

Myself and my husband are carriers and we have 2 wonderful boys! Good luck to you both that no matter what it will all work out

marym94 · December 2014

I am so sorry you are in this position and wishing you the best. XO

mlego1 · December 2014

I know how your feeling, i tested positive for thalassemia and was also told to have my husband tested. We dont know his results yet but its scary waiting to see if there is even something to be worried about. But def have him go test because even worst case seniero you have eachother to lean on. And hopefully he will not test positive and you can relax and wait for your sweet baby to arrive. Sending positive thoughts your way.

MooByrd · December 2014

I have the CF gene so they tested my DH and found out that he wasn't a carrier and all was well! Don't worry about it so much until you have to. Like others said, if he's not a carrier then you're fine and even if he IS, that doesn't mean your baby will have the condition.

abbalish · December 2014

I tested positive as a carrier for CF as well and we had a stressful week waiting for H to get tested and then waiting for the results - and luckily, he was not a carrier! I cannot imagine worrying about this for the next 5-6 months, and especially not worrying all on your own without leaning on your husband for support. Just remember, the numbers are on your side - your husband only has a 1/29 chance of being a carrier, and even if he is, there's just a 1/4 chance that your baby will actually have CF. Go put your mind at ease!

nykkybaby · December 2014

A very dear friend of mine has CF;. She has been the light of so many people's lives. She lives for a cause, and has had a purpose since the day she was born. She is a warrior.

After receiving a heart and double lung transplant a year and a half ago, she is living life to new extremes. She is 35.

My point is that if your child is diagnosed, it is not necessarily a death sentence in this day and age. I would want to find out if I were you so I could do the most research possible to give him the best quality of life.

edited because my thoughts come in two parts lately.

RedCherry1109 · December 2014

nykkybaby said:
A very dear friend of mine has CF;. She has been the light of so many people's lives. She lives for a cause, and has had a purpose since the day she was born. She is a warrior.
After receiving a heart and double lung transplant a year and a half ago, she is living life to new extremes. She is 35.

My point is that if your child is diagnosed, it is not necessarily a death sentence in this day and age. I would want to find out if I were you so I could do the most research possible to give him the best quality of life.
edited because my thoughts come in two parts lately.

my cousin had a lung transplant and it gave him an extra 4 years with us!

jakobaby · December 2014

I tested positive for carrying a mutated CF gene too. I wasn't too worried about it, but DH was. The blood panel they ran on me was for the most common mutations. We decided to have DH tested and they ran a more extensive test on him. He was negative. Truly, it's a now something we don't have to think about and have moved on from.
Have DH tested.

happywithhim715 · December 2014

I would definitely recommend having your husband get tested. I tested positive for CF carrier but my husband was not a carrier when tested. I wanted the entire Pregnancy to have time to research the disease if there was a chance...

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