Heart defect??

JenWillig · November 2014

Our little guy was just diagnosed with a heart defect.... Has anyone been through this before? We are super scared and looking for advice....

JenWillig · November 2014

We have to see a pediatric cardiologist to determine the actual defect.... And waiting on my amino fluid test that they took... FTM and super scared....

erikaluna01 · November 2014

I know it's hard but stay positive. My niece had two open heart surgeries in the first 2 weeks of her life to correct a heart defect. She is a happy, healthy 20 month old now. Modern medicine is amazing. GL and lots of prayers for you and your baby.

miahbelle · November 2014

I'm so very sorry you are going through this. I have no experience with this, but I'm sorry about all the worry and uncertainty you are facing.

SMFB · November 2014

Sorry that you are dealing with this.

MelP4 · November 2014

I'm sorry that you are going through this. I have no advice, but I hope some follow up appointments will bring peace!

starshollow · November 2014

We are seeing a cardiologist on Monday for a fetal echo because there are concerns of a heart defect. While it is REALLY scary, knowing now is best. There are many different types of congenital heart defects. Some can even correct themselves. And some require surgery but are easily fixed.

Sending good thoughts that you get good news from the cardiologist.

twinklepits · November 2014

T & P's to you and @starshollow‌. I'm a FTM as well, with no experience in this, but I agree with starshollow on this. At least it's something you know now and can deal with it head on!

Best of luck for positive news to you and your LO.

fourthtimesacharm · November 2014

My cousin's son has CHD, we call him our heart warrior. It was caught at the A/S and her doctors kept a close eye throughout the pregnancy. It's scary but the pediatric cardiologist should be able to recommend a support group. I hope it's nothing too serious. T&P sent your way.

angelfish628 · November 2014

Keeping you in my thoughts and prayers. xx

kaydensmama4 · November 2014

My son Kayden was born with a chd called transportation of the arteries 24 hours after birth he had surgery. He is now two and doing amazing! Best of luck to your little one.

JJBoden · November 2014

Sorry you are dealing with this. Hope the doctors are able to come up with a good plan.

wackoe · November 2014

Hi JenWillig. I too am a FTM and at my last visit the OB indicated that one of our twin boys may also have a heart defect. I know exactly how you feel. ..am waiting on pins and needles for the cardio appointment and the results of the amnio. In the meantime, just try to stay positive...it's about the only thing you can do.

hillbillywife · November 2014

Sorry you have to go through this. Wishing you luck as you have your cardiology appointment

thefitzfam · November 2014

I'm so sorry you have to go through this. T&P

missab · November 2014

Thoughts and prayers are with you. Try not to worry too much until you know what you're dealing with (I know easier said than done!); there is such a wide range of issues it could be. I have not been through this myself but a friend has; his little boy's heart will need to be monitored for the rest of his life (no need for surgery or intervention though), but the fact that they were able to identify the issue in utero allowed them to be prepared for any mishaps during his birth, and since then (he's now a perfectly healthy 18 month old), has meant the whole family (both parents and 3 year old sister) have been checked for the same defect. Apparently this is all due to some recent technological developments that weren't even around 3 years ago when their first was born! Anyway, there have been amazing advancements in heart care, as others have said, and there are a wide range of issues and potential treatments (if any!), so try not to stress too much until you have some definitive answers. ((Hugs))

reb0054 · November 2014

My 1st son (1 1/2 years old now) was born with a CHD. We found out when I was pregnant so we had a little time to prepare and talk to support groups, the surgeon, and cardiologist. Not going to lie it's scary to go through the surgeries. My son has had 2 (one at 4 months and one at 6 months). He had to get a pacemaker & is functioning completely normal now. You would seriously never know he had a defect. He is the most active little one and a half year old and so full of life! We visit the cardiologist every few months to check on everything. The advancements in medicine are absolutely amazing! My son had a quarter size hole in his strawberry size heart & they repaired it! The unit we stayed in specialized in heart babies and a lot of hospitals have care units that do just the same. It's amazing when you really start researching how common it is for a baby to have a heart defect, 1 in 100 kids. Please let me know if you have any questions and I would be happy to help. Prayers for you as I know it's scary especially the unknown but I hope I can put your mind at ease that your baby will be in good hands and care to repair the defect as soon as possible.

GingerDS02 · November 2014

Since we're part of the Down syndrome community, we know LOTS of kids who have had heart defects (about 50% of kids with Ds have one). All of them have had successful heart surgeries for correction of the defects. I also have two friends who have typical kids who had heart defects detected during the AS. One corrected itself before birth and another had it corrected in an out patient procedure that took maybe 45 min when her child was 4 yrs old. Depending on what type of defect it is, a lot of them correct themselves before birth. I know it's concerning of course, but there's hope that it won't need any intervention at all!

sararohrer · November 2014

I was born with a heart defect and had open heart surgery when I was 2. Just this past Friday I had to have a fetal echocardiogram to rule out any congenital defects with the baby. Stay positive and know techonolgy is your bff and Drs these days can do amazing things!! Prayers.

chicsugar · November 2014

No advice to add, but sending your positive thoughts!

melissa721 · November 2014

Try not to freak out until you know what you're dealing with. Easier said than done, I know.

My friend is a FTM--had her baby in June. He had TGA. She gave birth at the children's hospital in Philly. Being around professionals who specialize in this area helped put her at ease. He was born, had his surgery, and is now a healthy 6 month old.

mombod · December 2014

No experience but sending good thoughts your way. Good luck with the cardiologist.

redheaded14 · December 2014

No personal experience but sending t&p's to you and the other moms dealing with this.

I have a friend who just had a son (3 weeks old) who was diagnosed with chd at the anatomy scan and the doctors told her it was possible that it could heal itself in utero.

jamiesc58 · December 2014

My DS (now 5) was born with a heart murmur and pulmonary stenosis. We did not know before he was born. Hie pediatric cardiologist is amazing and so far he has only had to be monitored. We just had an echo and sonogram done on him in July and Thank God we don't have to bring him back for 3 years!!! The dr. said to let him be a normal little boy!!! I will pray for you and your family!

DixieNormous330 · December 2014

Do not consult Dr. Google or WebMD.

As hard as it is, wait for your appointment with the specialist. Write down your questions and concerns. Do a little research from reputable sites (Mayo Clinic, major children's hospitals) so you're an informed consumer, but do not take what you read as absolute.

Remember to breathe.

be888 · December 2014

Sending good thoughts your way. Hope you get reassuring news soon.

littlewest1 · December 2014

No advice but I am sorry you are going through this. Good thoughts for you!

Heart defect??

Re: Heart defect??

Choose Another Board

Search Boards