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June 2015 Moms
beckynsean11
member
High Risk Check In (11/19/14)
beckynsean11
member
This check in is for June 2015 Moms that have a high risk diagnosis. There are many different reasons a mom can be high risk, and all are welcome to join us on our journey for us to remain healthy and the ultimate outcome of healthy babies. If you are new to our check in, please indicate why you are high risk, what # pregnancy this is, & your EDD, and I can add you to our list.
How far along are you?
How are your symptoms?
Rants/Raves?
Upcoming appointments?
Any major milestones or major events?
GTKY: What was the last book you read? Did you like it?
How far along are you?
How are your symptoms?
Rants/Raves?
Upcoming appointments?
Any major milestones or major events?
GTKY: What was the last book you read? Did you like it?
@ac5008 (5th pregnancy, 4th & 5th baby) EDD: 6/8/15, mo-mo twins
@beachyfrog (11th pregnancy, 5th baby) EDD: ?, multiple m/c's, heterozygous Factor II
@beacknsean11 (4th pregnancy, 1st baby) EDD: 6/20/14, multiple m/c's, BMI, PCOS, Preterm labor (17.5w) Incompetent cervix loss
@caseycruz02 (1st pregnancy) EDD: 6/27/15, loss of twin during this pregnancy
@criley232 (4th pregnancy, 2nd baby) EDD: 6/26/14, ectopic, Preterm labor(16w), hypertension & Pre-E
@dazw77619 (6th pregnancy, 3rd baby) EDD: 6/13/15, AMA, multiple m/c's, Factor V Leiden, MTHFR
@donnadeeast (1st pregnancy) EDD 6/17/15, PCOS, Type II Diabetes, cyst on left ovary
@egott07 (2nd pregnancy, 1st baby) EDD: 6/30/14, Sjogren's, severe asthma
@FitMamaInProgress (2nd pregnancy, 1st baby?) EDD: ?, late term loss, bleeding constantly during this pregnancy @jadesimon88 (1st pregnancy) EDD: ?, multiple m/c's
@jennepp1016 (1st pregnancy) EDD: 6/4/15, Long QT Syndrome (heart condition)
@jjbdvm (1st pregnancy) EDD: 6/10/15, ITP(autoimmune)
@kmleon83 (1st pregnancy) EDD: 6/4/15, homozygous Factor V Leiden
@kristykristyleelee (1st pregnancy) EDD: 6/19/15, asthma, blood pressure
@ksimo6 (4th pregnancy, 2nd baby) EDD: 6/6/15, homozygous Factor V Leiden
@Ladysif (2nd oregnancy, 2nd baby) EDD: 6/18/15, PCOS, cyst on ovary, GD
@lehouk (2nd pregnancy, 2nd baby) EDD: 6/6/14, previous loss due to Jacobsen Syndrome causing Hypoplastic Left Heart Syndrome
@lindadutton (5th pregnancy, 5th baby) EDD: 6/6/14, preterm birth history, pre-E & placenta previa history
@ltpugs (2nd pregnancy, 2nd baby) EDD: 6/12/15, AMA, High blood pressure
@obryana6219 (1st pregnancy) EDD: 6/9/15, type 1 Diabetes
@OMGTree (3rd pregnancy, 2nd baby) EDD: 6/20/15, bicornuate uterus, Preterm delivery(30+3)
@missphillipine (1st pregnancy) EDD: 6/19/15, Van Willebrand factor VIII(clotting), possible thryoid issue
@mkarntz, (?), EDD: ?, DX: ?
@nsilberman216 (1st pregnancy) EDD: 6/9/15, Lyme disease, hypothryoidism
@RedRaiderLaura (6th pregnancy, 3rd baby) EDD: 6/5/15, ectopic pregancy, multiple m/c's
@superkarynragilistic (5th pregnancy, 3rd baby) EDD: 6/18/15, AMA, multiple m/c's, PTL histoy, bleeding during preg, PP clotting issues
@tachycardicdoll (4th pregnancy, 2nd baby) EDD: ?, multiple m/c’s, ectopic pregnancy, high blood pressure
@tasteslikeshiney (8th pregnancy, 3rd baby), EDD: ?, DX: ?
@thealmostmom (1st pregnancy) EDD: 6/14/15, BMI, IR-PCOS, family history of unexplained loss
@threearrows (2nd pregnancy, 2nd baby), EDD: 6/11/15, Sjogren's, previous GD
Angel babies:
MrsRed09 - Blighted Ovum
@beachyfrog (11th pregnancy, 5th baby) EDD: ?, multiple m/c's, heterozygous Factor II
@beacknsean11 (4th pregnancy, 1st baby) EDD: 6/20/14, multiple m/c's, BMI, PCOS, Preterm labor (17.5w) Incompetent cervix loss
@caseycruz02 (1st pregnancy) EDD: 6/27/15, loss of twin during this pregnancy
@criley232 (4th pregnancy, 2nd baby) EDD: 6/26/14, ectopic, Preterm labor(16w), hypertension & Pre-E
@dazw77619 (6th pregnancy, 3rd baby) EDD: 6/13/15, AMA, multiple m/c's, Factor V Leiden, MTHFR
@donnadeeast (1st pregnancy) EDD 6/17/15, PCOS, Type II Diabetes, cyst on left ovary
@egott07 (2nd pregnancy, 1st baby) EDD: 6/30/14, Sjogren's, severe asthma
@FitMamaInProgress (2nd pregnancy, 1st baby?) EDD: ?, late term loss, bleeding constantly during this pregnancy @jadesimon88 (1st pregnancy) EDD: ?, multiple m/c's
@jennepp1016 (1st pregnancy) EDD: 6/4/15, Long QT Syndrome (heart condition)
@jjbdvm (1st pregnancy) EDD: 6/10/15, ITP(autoimmune)
@kmleon83 (1st pregnancy) EDD: 6/4/15, homozygous Factor V Leiden
@kristykristyleelee (1st pregnancy) EDD: 6/19/15, asthma, blood pressure
@ksimo6 (4th pregnancy, 2nd baby) EDD: 6/6/15, homozygous Factor V Leiden
@Ladysif (2nd oregnancy, 2nd baby) EDD: 6/18/15, PCOS, cyst on ovary, GD
@lehouk (2nd pregnancy, 2nd baby) EDD: 6/6/14, previous loss due to Jacobsen Syndrome causing Hypoplastic Left Heart Syndrome
@lindadutton (5th pregnancy, 5th baby) EDD: 6/6/14, preterm birth history, pre-E & placenta previa history
@ltpugs (2nd pregnancy, 2nd baby) EDD: 6/12/15, AMA, High blood pressure
@obryana6219 (1st pregnancy) EDD: 6/9/15, type 1 Diabetes
@OMGTree (3rd pregnancy, 2nd baby) EDD: 6/20/15, bicornuate uterus, Preterm delivery(30+3)
@missphillipine (1st pregnancy) EDD: 6/19/15, Van Willebrand factor VIII(clotting), possible thryoid issue
@mkarntz, (?), EDD: ?, DX: ?
@nsilberman216 (1st pregnancy) EDD: 6/9/15, Lyme disease, hypothryoidism
@RedRaiderLaura (6th pregnancy, 3rd baby) EDD: 6/5/15, ectopic pregancy, multiple m/c's
@superkarynragilistic (5th pregnancy, 3rd baby) EDD: 6/18/15, AMA, multiple m/c's, PTL histoy, bleeding during preg, PP clotting issues
@tachycardicdoll (4th pregnancy, 2nd baby) EDD: ?, multiple m/c’s, ectopic pregnancy, high blood pressure
@tasteslikeshiney (8th pregnancy, 3rd baby), EDD: ?, DX: ?
@thealmostmom (1st pregnancy) EDD: 6/14/15, BMI, IR-PCOS, family history of unexplained loss
@threearrows (2nd pregnancy, 2nd baby), EDD: 6/11/15, Sjogren's, previous GD
Angel babies:
MrsRed09 - Blighted Ovum
Me: IR-PCOS, elevated DHEAs, low progesterone, weak ovulation DH: low volume, low T
SHG 5/10/13: both tubes blocked; HSG 6/28 = Left tube cleared! Right blocked.
BFP#1 7/20/13 EDD 3/30/14, m/c 8/19/13, D&E 8/21/13, Chromosomal results = normal, female
Lap & hysteroscopy scheduled for 10/31, right tube cleared, no endo found! ...Happy Halloween!
Cycle 14: Clomid (50)+ IUI = BFP! EDD 9/16/14~ Rowan Elizabeth born sleeping at 17w4d on 4/12/14 due to IC.
~There is no foot too small that it cannot leave an imprint on this world~
New RE June 2014. RPL b/w - negative. SIS looking for uterine/cervical abnormalities & Asherman's 6/10/14 - ALL CLEAR!
Cycle 16: Natural IUI = CP, Cycle 17: Femara (2.5) + IUI = BFN, Cycle 18 Femara (5) + IUI = BFFN, Cycle 19: Break
Cycle 20: Clomid (50)+ IUI = BFP EDD 6/20, transvaginal cerclage 12/19, Carson Quinn born sleeping at 16w3d on 1/6/15 due to IC
Phone consult with Dr. Haney (Univ of Chicago) for transabdominal cercalge scheduled for 2/9/15.
"We are the music makers, and we are the dreamers of dreams."
This discussion has been closed.
Re: High Risk Check In (11/19/14)
How far along are you?
9wks
How are your symptoms?
the nausea has not been fun
Rants/Raves?
nope
Upcoming appointments?
Dec 1st
Any major milestones or major events?
Found hb on doppler
GTKY: What was the last book you read? Did you like it?
Cottage by the sea. Yes
Our son has Down Syndrome which makes this a high risk pregnancy
EDD 6/29/15
How far along are you?
8 weeks 3 days
How are your symptoms?
Awful morning sickness...everything smells awful
Rants/Raves?
I wish I'd stop puking
Upcoming appointments?
Nov 21
Any major milestones or major events?
Saw our sweet tadpole and got a recorded heartbeat
GTKY: What was the last book you read? Did you like it?
Three Brides. No Groom. It was a cute book
How are your symptoms? They're a lot better. I'm still nauseated, but it's better. Constipation is getting bad though.
Rants/Raves? I'm so fucking tired of bleeding. It happened again yesterday before my appointment, baby is fine, but it scares the piss out of me every time. I'm also officially on pelvic rest probably for the remainder of the pregnancy, which is a bummer but we'll live.
GTKY: What was the last book you read? Did you like it? The last book I finished was Gone Girl. I really liked it. It was the first time in a while that I would read until like 4 am without realizing it. I'm not sure if I'm going to watch the movie though.
11 weeks!
How are your symptoms?
Not too bad, nausea is still lingering but energy level is starting to return. I'm developing gingival hyperplasia (hormones!) which makes my gums bleed, which gives me a small heart attack regularly...
Rants/Raves?
I saw an NP at my last visit and she didn't know I had ITP. Read your charts people.
Upcoming appointments?
Just had one, next one is December 11
Any major milestones or major events?
Getting to the "lime baby" stage is amazing. It feels so real now.
GTKY: What was the last book you read? Did you like it?
I just started working on Wild. I'm not sure I like it... Last book I actually read was Pregnancy Sucks- a surprisingly great read!
T&P to all of you- stay strong ladies
How are your symptoms? Pregnancy symptoms are abated due to a cold/sinus infection; colds are awesome for nausea because you can't smell a damn thing to trigger it so there's a perk, I guess. Could do without the sinus infection though. GD well in control, so optimistic I'll be able to manage it through diet alone again.
Rants/Raves? DH brought me flowers tonight for no reason.
Any major milestones or major events? Nope.
GTKY: What was the last book you read? Did you like it? Voyager, part of the Diana Gabaldon Outlander series. I've read it a million times but am re-reading the series just because. There is a new tv series based on the books and I'm terrified to see it because I don't want it ruining the books.
How far along are you? 10 weeks 1 day
How are your symptoms? Mostly ok I gag a lot and ocassionally it makes me sick
Rants/Raves? None so fat
Upcoming appointments? Meeting g with the nutritionist soon and perinatalogist on 12/8
Any major milestones or major events? Nope
GTKY: What was the last book you read? Did you like it? A book in the 500 kingdoms series by Mercedes lackey. I love all her books.
How far along are you? 11 weeks
How are your symptoms? Severe full abdomen and back cramps
Rants/Raves? My Dr has been awesome (again) getting me into immediate testing and checking everything he can.
Upcoming appointments? Tomorrow I'll be checking my liver, kidneys, gall bladder and appendix to make sure none are failing. Hopefully I'll be able to hear the hb
New here:
I'm Meg, I am high risk because I suffer from an extremely rare (1 of 139 in the usa) blood disorder called methemoglobinemia. In a nut shell I react to chemicals and environmental factors that cause the iron in my blood to bond to my red blood cells in lieu of oxygen, I destat rapidly becoming unable to breath, my blood turns black and I turn blue (think willy wonka "violet you're turning violet!"). The only way to reverse a reaction is a drug that causes miscarriage and blood transfusions. There are over 150 known reactants for the disorder but most of my reactions have not been attributed to the known factors or have been to things like medications I have taken several times before and never reacted to previously.
This is my second pregnancy but first to make it to viability as I lost the last to a reaction.
My EDDis June 4th
I am 12 weeks along today.
I currently having incredible nausea almost constantly and just hit the 31 pound mark for weight loss in the last 10 weeks but can't receive any medication due to the potential for a methemoglobinemic reaction.
I have an ultrasound every Monday due to the extreme risk of my pregnancy and will be going into Duke Medical Hemotology Feb. 10th for an extensive study and decision as to when I will start my hospital stay prior to birth (probably somewhere around 24 weeks
I am happy to report that for the first time in early two years as of 11/16/14 I have went three months without a reaction!
I can't help but have a little rant on how disgustingly rude people can be! I've had loads of people tell me I'm "selfish" for having a child when it could get my disorder even though my fiancé is not a carrier of the recessive gene that causes methemoglobinemia. This means that while the child could have a half marker from me even if it does it will cause little interruption in its life (the child would have a list of drugs and known reactants to avoid and would never be able to travel to Africa because malaria drugs kill us). Even after I informed some people I hadn't planned on having children yet and would have received genetic counseling with my partner prior to becoming pregnant (we got the genetic counseling and as I stated my fiancé is not a carrier) and was on birth control when I conceived it was suggested to me my child would be better off aborted (does that mean I would have been better off aborted!?). I hardly think the risk of not being able to vacation in Africa and being unable to get a spray tan warrant a child being better off dead!
Right now I'm a bit frustrated as I am almost always in bed and rarely leave the house to do anything but go to the doctor. I'm living in this little fear bubble and I obviously can't taken anxiety medication. I'm really hoping that now that I'm into the second trimester I will be able to eat more and have a little more energy. I'm also experiencing some jealously and resentment toward my friends who are pregnant because it's hard to see them gaining weight and reveling in excitement over their impending births while I'm growing gaunt and pale and surviving on getting IV fluids 2-3 times a week.
However, I am thankful I have remained reaction free and I have been going to the same nurse at the cancer center here who can access the portacath I had implanted April of this year on the first try every time! It's great to not be poked over and over for IVs or blood work! I'm also thankful that while some people can be real jerks I have a "team" of over 100 people who frequently wear blue in solidarity so I don't turn blue.
I am also almost lucky my disorder is so rare (and the way it presents in me is even more rare) because there has been little opportunity to study people like me let alone pregnant women like me. This means I am receiving free care from Duke medical and Johns Hopkins in exchange for them having the opportunity to use me in case studies.
My heart goes out to anyone experiencing worry over their pregnancy. It's no fun to be anxious over what, for most women, is a happy exciting time in their lives.
If you're bored Google "the blue fugates," unlike them I am not blue all the time but I look the same way when I'm experiencing an episode.
I am high risk because of my age - 38. My husband and I found out yesterday that we are positive for trisomy 21. We will terminate the pregnancy on Monday. Heartbroken.
We find out on Monday if the child carries my half marker, if he or she doesn't at least that will be one less thing to worry about.
On a side note I just got a letter from Johns Hopkins and I'll be getting an inpatient study from the 25th- 7th so maybe they will tell me something to ease my mind! Also thankful and happy that I can be studied. If they can find out anything new that will help other people with this disorder the stress and worry will be well worth it!
SoCalGal915 - I am SO sorry. I will be thinking about you and praying for you while you grieve.
How far along are you? 12 weeks today
How are your symptoms? Getting better.
Rants/Raves? Triscuits and hummus are amazing.
Upcoming appointments? NT scan and Verifi test on Monday.
Any major milestones or major events? Busted out a few maternity tops this weeks. My "girls" have grown to an epic size and my normal clothes are jsut not cutting it anymore.
GTKY: What was the last book you read? Did you like it? Happy Hippo, Angry Duck, That's Not My Monster, 5 Little Pumpkins.... I have a toddler. Can you tell?
@megron I can't imagine what you are going through! Fingers crossed for no reactions and hoping you get some good news from the study!
How far along are you? 12 weeks today
How are your symptoms? Slowly getting better. Still gagging a lot, puked for the first time yesterday so that was fun.
Rants/Raves? This Yoo-Hoo I'm drinking right now is the greatest thing in the world.
Upcoming appointments? OB appt on Wednesday, 11/26 and NT scan on Saturday, 11/29
Any major milestones or major events? I'm going to a concert on Saturday night so I'm just hoping I make it through without falling asleep.
GTKY: What was the last book you read? Did you like it? I am currently in the middle of a Harry Potter re-read (my 5th time through). Hoping to finish up Order of the Phoenix over my Christmas break!
me: 33, Factor V Leiden, MTHFR + hubs: 37
BFP #1: 9/25/14 -- EDD: 6/4/15
Jesse, our baby boy: 2/25/15 @ 25.6 weeks, 2lbs 2oz & 13.5 inches. spent 66 days in the NICU.
BFP #2: 7/29/16 -- EDD: 3/30/17
baby #2 on the way.
9 weeks 6 days
How are your symptoms?
Could be worse, so thankful for that. I am constantly tired and exhausted, though. At work, in serious meetings, all I do is yawn and I feel so bad! I haven't told anyone at work yet, so I feel like everyone is judging me!!! MS has gone away, so long as I eat every couple of hours. And theres the constant peeing thing. Nothing too bad, though!
Rants/Raves?
I wish my SO would do more things around the house without me asking her to! She has been home all this week and slept all day! I want a clean house and I want to be the one sleeping all day, grrrrr!!!!
Upcoming appointments?
12/1 - we will have another u/s and hear the heartbeat again! We went in for our 1st appt on 11/6 and had an u/s but it was so early the doctor could hardly see anything.
Any major milestones or major events?
We are going public with our pregnancy after the 12/1 appointment.
GTKY: What was the last book you read? Did you like it?
Although I love to read, I haven't read any books lately. I picked up one the other day (a free one from a pile of books), and I just couldn't get into to it. I have been reading baby books, though - I have a pregnancy book published by the mayoclinic. I am not impressed with it.
I just caution you to temper your frustration when posting. No one is denying what you're going through is awful -- it's just you're still pregnant. We found out yesterday, by some random fluke of horrible luck, that our baby is positive for trisomy 21. What were the chances of this happening? 1 in 150 at my age. We are terminating the pregnancy on Monday.
Please excuse my ignorance, but what is trisomy 21? I never knew the odds could be so high for something fatal just due to age
Again, so sorry you are going through this
Megron- your situation sounds incredibly scary! And for it to be so rare and not know much about it has to be stressful. Stay strong honey, you can can do this!
How are your symptoms?Ok, a lot nausea, especially compared to last pregnancy when I had none
Rants/Raves? None as of now
Upcoming appointments? Just had one yesterday, saw the baby and heard the hb
Any major milestones or major events? Nope
GTKY: What was the last book you read? Did you like it? Gone Girl, I like to read books before I see the movies, weirdo I know. I did like it, a bit twisted, but it kept my interest that way
I am on this group not for sympathy, but empathy. I figured if anyone could empathize with what I'm going through it would be a group of women who are dealing with high risk pregnancies!
As for detailing my illness, I feel that having some insight as to what methemoglobinemia actually means is par for the course. Usually when I mention it people ask because they've (rightfully) never heard of it.
I hope I haven't offended any of you ladies as much by telling my story!
I really hope you can find some solace in your situation so you can feel better without needing to lash out on people on the Internet with passive aggressive comments.
As for your, "shut up, it could be worse, look at ME" perhaps
You should turn that camera around on yourself. I have three close friends in their early 30s who will never be able to conceive and I'm pretty sure you wouldn't love one of them saying you "should be thankful" that you can get pregnant at all, or that they would happily birth and raise a child with Down syndrome.
You say you're on this board for empathy -- how about giving some?
We found out two days ago, and the wound is still raw, and I'm still in shock. I have said what I needed to.
I hope you find peace and don't inflict unnecessary pain on others.
You wouldn't want someone to do the exact same thing you did to me to you. Then you say "imagine how I feel." Right, that was exactly the point of what I was getting at.
It doesn't feel good when someone else minimizes your struggles no matter what they are. There is ALWAYS someone who has it worse than you. You want to point out to me that you're situation is worse and that I am so much better off, but if I point out to you that there are other people worse off than you- you don't like it.
Just because you're hurting doesn't mean you should stumble around the internet pointing fingers at how people should be thankful or that someone is self indulgent for sharing information about a disease.
My entire point was that you wouldn't like it if someone in a perceived worse situation than yours did EXACTLY the same thing to you that you did to me- and you just proved it.
Going through something terrible does not give you a license to be terrible to others. Just because I'm going to die before I make it in my fifties doesn't make it ok for me to say "well you just have MS or you just have arthritis- you should be thankful you're going to live."
I'm not going to waste anymore time
Pointing out to you the obvious contradiction. I'm going to find a block feature because I didn't come here to be a jerk on the Internet, I came here to give and receive support.
How are your symptoms? Still pretty symptom-free
Rants/Raves? We've been having fun telling friends!
Upcoming appointments? Seeing our OB again this Wednesday
Any major milestones or major events? We had our NT scan and blood work for genetic screening this past Thursday. Everything looked good so just hoping for the blood work to come back with the same good news.
GTKY: What was the last book you read? Did you like it? "My Sister's Grave" by Robert Duponi. I got it for free off Amazon. If you enjoy crime thrillers, it was pretty good. Currently reading "Thrive" and "The Book Thief".
How far along are you? 11 weeks
How are your symptoms? Loss of appetite and tender breasts.
Rants/Raves? I just wish I didn't worry so much About another m/c.
Upcoming appointments? Dec 5th normal check up and NT testing.
Any major milestones or major events? Just got married this past summer, husband's first child.
GTKY: What was the last book you read? Did you like it? Outlander, yes great book I would recommend it