Update . . . .

CynRO12 · November 2014

So. . . . . my daughter went into surgery to fix her Laryngomalacia, and also do a Bronchoscopy to make sure nothing else was wrong. She has since recovered, her strider sounds much better but unfortunately she still is all over the place with her bootle feed intake.

We have exhausted all tests to try and figure out why she wont take to her bottle. She knows how to do it, but something stops her. Its now come to the decision of a G-tube which should of happened last week. It got put off because when they did the pre-op blood work her white blood cell count wasnt right, along with sniffles and a cough; she got parafluenza, and was/is in isolation now. Blood work from Friday showed great improvement and we are tentitvely scheduled for Monday surgery assuming tomorrows blood work is still looking good. She is getting a "Minnie" a new device that is smaller than the Mickey and should be more comfortable for her.

I hate to have to put her through another surgery again but at this point she is getting so big, and needs to be with her family/twin brother!!

I swear it feels like i've adopted a child. I know everything about her, know that shes mine, but have to wait until the hospital/paperwork of discharge will release her to me.. . . its so unnatural!

But, the end is near . . . . just need a couple more weeks and my baby girl, god willing will be coming home!!!

Her brother got the Synergist shot yesterday thank god! what a relief to know thats in his system!!