Choroid Plexus Cyst found at a/s scan thoughts? Results Update

FitMom3510 · November 2014

I posted this in the last HDBD thread but I was a late poster about 4 pages in so I wanted to ask everyone just in case someone with a similar story might have advice or any BTDT moms went through this before.

I went and had my a/s scan at 19w6d and was told everything looked just fine with baby girl until the very end the dr started off by saying he didn't want to alarm me but he had to let me know that they found a cyst on babies brain and that it's a soft marker for down syndrome. He told me he normally sees them disappear but that I had to go have a level 2 scan at a perientologist to have it looked at further. He said her measurements were right on track and showed me the sheet all measurements said normal and ranged from 19w1d to 19w6d. I know that if he is saying not to worry I shouldn't, but easier said than done.

I know not everyone is familiar with this, I have checked google and used the search bar and have found mixed reviews on them but anyone here familiar with these and if so what was the outcome?

GingerDS02 · November 2014

There have been a few other moms here who had the same findings. You can find their posts by searching "choroid plexus cyst".

Like PP said, they usually disappear on their own. If that's your only soft marker for Ds, I'd really not worry about it. The measurments being normal are good news.

Sharon&Paul · November 2014

My first DD had that on her 18 week US. They repeated the US further in the pregnancy and it went away. They never seemed too concerned about it.

chelseaa23 · November 2014

My april baby (girl) has them bilateral. I opted for the maternit21 tests which came back negative. I had a ultrasound on the 18th and they said they almost all the time go away i googled also and everything was very reassuring.

Goodluck!

Thedreamofbabiea · November 2014

Just got done going through this- it went away in two weeks I know it's hard but try and stay calm

islandmom79 · November 2014

My DD had one on her 20 week ultrasound along with another soft marker. They did a follow up ultrasound in the 3rd trimester and both had gone away.

Cate92 · November 2014

I've never heard of that - but sending positive vibes your way that all is well and good for your daughter!

FitMom3510 · November 2014

Thank you everyone!! I'll keep you updated, our appointment is this Tuesday.

Swanigam · November 2014

My first baby had one, they made me do a follow up u/s a month later and it was gone. That was a long month! This baby has one also but my doc doesn't seem concerned about it and neither am I. Doing a follow up u/s in January during the ever so fun glucose test!

FitMom3510 · November 2014

@swanigam thats great I'm glad to hear, makes me feel better : D many say their dr has them do an apointment a month or so later to have it checked but mine made mine less than two weeks later so that has me concerned : /

Swanigam · November 2014

@fitmom3510 the way my doc explained it is that the original studies they did on these cysts were at high risk facilities so babies with these cysts usually had more markers/parents with markers. For the general public there's usually very few that end up not going away. Or something like that with more medical mumbo jumbo.

AshleighK305 · November 2014

I think you saw my post on the HDBD post, if I remember right you responded. But I just wanted to tell you again that my son had the same thing at my 18w scan and it was gone at week 23 when they checked again. I would especially try to relax since there aren't any other indications that it could be more. Hang in there! I hope the next appt gives you some relief.

Mushibamboo · November 2014

No personal experience, just wanted to jump in to wish you and baby well and a perfect bill of health at next appointment!

picklesx · November 2014

They noticed one on my son's brain at my anatomy scan on Wednesday. The doctor told me that they generally resolve themselves and didn't go into any more detail. My baby is also missing his cavum septum and his corpus callosum was smaller than what they'd expected it to be. I expect to find out more information about all 3 of these issues when I have the fetal MRI done in a week and a half.

I hope we both get some more answers and best of luck for a perfect next appointment.

JAP09-02 · November 2014

We had this show up in our anatomy scan too. I'm not worried about it, nor Is the doctor. My first tri screening came back with really low risk for Down's, and there were no other markers on the as. Did you do first tri screening? If yes, were your results ok? I am going back in 1 month, but would have anyways because my first a/s was at 17 weeks for other reasons.

My sister's baby also had this. She is a healthy nearly one month old.

Hope this helps! Good luck

arussell21l · November 2014

We just found out this morning our little girl has one. The dr said she looks perfect otherwise and got the best results possible on the first trimester screen so not to worry. I feel like I haven't taken a normal breath since we left. Finding this and reading all of these posts have made me feel 100 times better. Thank you ladies so much.

somewheresublime86 · November 2014

At my a/a this morning the doctor said that the newest guidelines suggest that they not even tell moms about these unless other soft markers and risk factors are present.

Fingers crossed everything turns out well!

HollyHK84 · November 2014

Had the exact same thing with my daughter and my dr said he hated to even tell me Bc it was such a small thing that soooo rarely turned out to be any of the trisomies. It was just a good reason to get another u/s at 28 weeks to me!

Streed1 · November 2014

I too had this at my 20 week ultrasound. I am going for a targeted ultrasound on December 2. The doctor wasn't worried about it at all but I was and so she referred me to a targeted ultrasound just to put my mind at ease. My doctor told me that many babies have this soft marker and grow out of it.

KellyA724 · November 2014

They discovered a CPC on my baby at my A/S this morning as well. I'll be going for a level 2 ultrasound in a couple of weeks when I get back from vacation. There haven't been any other markers so I'm trying not to freak out, but obviously easier said than done.

FitMom3510 · November 2014

@arussell21l We didn't do first trimester screening, our dr never brought it up so we never considered it. We had our appointment yesterday for our level 2 scan and met with a genetic counselor. They said everything looked fine and that we should not be concerned and that they would be surprised if it did not go away but we opted to have the NIPT done anyway just to be sure since it's 99% accurate. We should know in 7-10 business days, maybe longer with the holiday

FitMom3510 · November 2014

@somewheresublime86 I wish my dr would have followed that guideline since she has no other markers and not have so much stress on me but he said he likes to let his patients know everything no matter how big or small. : /

mayfateleadyou · November 2014

We've been told the same exact thing, except; he is also measuring a week behind but that is still in the normal range. It's hard not to worry but as has been mentioned, you are not alone in your worry and it does seem to usually turn out to be nothing. I'm just trying to focus in getting to see my boy a bit sooner then I expected. Truly hope it all works out for you and you don't stress yourself out too much.

cyllander · November 2014

I am going to a perinatalologist now because I'm 22w with twins boys, one has anencephaly and the other is progressing normally. The perinatalologist noticed one of these cysts in Sam's brain (healthy baby) but because it was an isolated cyst (meaning no other visible birth defects) my doctor said not to worry and that it would usually disappear on its own. He described it as nothing more than a physical marker, like saying that your baby has blue eyes and brown hair. It is just something that they have but it doesn't have impact on the brain. I hope everything else goes great for you!!

lildropofheavn23 · November 2014

During my 19/20 week u/s, the scan showed a choroid plexus cyst and an echogenic intraventricular focus. I was so scared! We just did the Harmony test and everything came back completely normal. Healthy, little girl so don't worry until you have to worry. It was a long 2 weeks for me to hear back from the doctor though!

npaget · November 2014

I didn't have this soft marker but
I had another one which was Echogenic Bowel. He said baby was on target weight and had a good heart but all I heard was my baby had a potential problem. I worried about it for 2 days then realized it wasn't helping so I would wait until my next one and ask the question, "what special needs will my baby need at birth?" I don't plan on doing genetic testing since what difference will it make, it's not going to cure my baby and I'm confident in my skills and ability to figure out what my baby will need in life. I think it helped me in knowing that my job hires people from a group here in Las Vegas called Opportunity Village that provides a variety employment for people with varying levels of intellectual disabilities. Knowing they are happy members of society and the organization has wonderful resources sealed the deal for me. I understand people wanting to know too, but this was my choice. I choose to not worry because in my heart he's ok. I hope that for you and your little one too! Love and Prayers!

lovemyducks · December 2014

This came up on our ultrasound and was very similar to what the rest of the ladies are saying. My Midwife isn't worried because everything else was normal (size, cranium measurements, kidneys, heart, abdomen, etc...). She did offer for me to do a blood test which comes back with 99%+ accurate results. I have amazing insurance so I opted to take the blood test (today) and am now waiting for the week and a half to go by, but I really haven't thought of it much since reading about them ahead of the anatomy u/s. Sending all those with "soft-markers" good thoughts and prayers.

FitMom3510 · December 2014

@angl30 thanks for checking : D We just found out Thursday that her results came back normal and that they said there is no cause for concern for Trisomy 18 or Downs. Feeling very blessed and thankful.

FitMom3510 · December 2014

Thank you everyone!

Smash1215 · December 2014

Yes!!! Great news!

karboss · December 2014

This made my day. Good news.

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