LGBT Parenting
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Hydrops at 19 weeks. We are so lost.. :o(

I know I haven't been on the site recently, but I have no one else who might know what we are going through...

We did the quad screening a few weeks ago only to find out that there was a 1/8 chance the baby could have Downs. This we were not worried about, but decided to do the level 2 ultrasound to see if that was truly the case.

Turns out the baby has hydrops and is very swollen and also has fluid in the stomach area. We are back at the hospital after a long night and will be having and amnio to see if/what the underlining cause is.

The Dr pretty much told us that she expects us the lose the baby to the hydrops because the baby doesn't seem to have a lot of room in the placenta because they are so swollen.

Everything I have read about hydrops and those who have had to deal with it have a very grave outcome. I have a feeling we will lose the baby. Although I really hope the Dr's are wrong and it's something treatable and the baby will be okay.

I just don't know what to do with myself. J is devistated and I'm just trying to hold myself together.

Prayers or whatever you could send would be greatly appreciated.
I'm 35, DW is 33
Together since Dec 2007
Married since 18 June 2011

TTC #1
1st IUI - trigger, 9 July 14 at midnight, IUI - 11 July 14 at noon - BFP!!
10 Dec 14 - Lost our Baby Girl to Hydrops & Cycstic Hygroma due to Turner Syndrome
TTC #2
2nd IUI - hoping to try for our Rainbow in the Spring

Re: Hydrops at 19 weeks. We are so lost.. :o(

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    Oh no.  I am so, so sorry.  I will hope for the best but I understand the gravity of the situation and will be thinking of you and J.  Sadly we have at least one regular here who has had a similar experience.  Please know you are not alone and feel free to lean on us as much as you can.  We are here to listen and will be sending good thoughts!
    Married my wife 8/2007 ~ TTC #1 since 7/2011
    9 IUIs = 9 BFNs
    IVF October 2012: 22 eggs retrieved, 17 fertilized, 5 frozen
    ET #1: 1 blast = BFP; Blighted ovum discovered at 7w5d; D&E
    FET #1: 1 blast = BFP; Missed m/c discovered at 9w5d; D&E
    Karyotyping: normal ~ RPL Testing: normal ~ Hysteroscopy: normal
    FET #2: 1 blast transferred 10/25; BFP 10/31!
    EDD 7/13/14 ~ Induced at 37w4d due to pre-eclampsia ~ Born on 6/28/14
    *Everyone welcome*

    Baby Birthday Ticker Ticker
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    So sorry to hear you are going through this. Our thoughts are with you.
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    I'm so sorry to hear this.  I will be sending all good thoughts and hope your way!

     

    Married to my amazing wife 6/12/10 
    TTC since 6/11
    Unmedicated IUI #1 - 6/28/11 - BFN
    Unmedicated IUI #2 - 7/25/11 - BFN
    Robotic Myomectomy (Fibroid Surgery) - 11/15/11
    Unmedicated IUI #3 - 4/24/12 - BFN 
    Progesterone Supported Leuteal Phase IUI #4 - 6/21/12 - BFP!!
    Baby Boy G Born 3/24/13

    On to #2, are we crazy?
    IUI #1 - 11/28/14 - BFP!  Beta #1 (11DPO) 34, Beta #2 (13DPO) 101, Beta #3 (20DPO) 3043
    Ultrasound at 6w4d shows a single, fluttering heartbeat.  Say hello to Sticky Ricki!

     

    image

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    ATXmommasATXmommas member
    edited November 2014
    I am so very sorry for you. I don't know a lot about this condition, and although the doctor is not hopeful, I hope that this is something treatable and not fatal.

    At around 12 weeks into my first pregnancy, we found out that our son had Trisomy 18, which, in our doctor's words, is a condition that is "incompatible with life." It was a heartbreaking experience and the wait between ultrasounds and diagnostic procedures was agonizing.

    My heart is with you. I'm so sorry.
    Baby Birthday Ticker Ticker
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    I'm so sorry. I've been thinking about you lately and wondering how things were going. I hope that you get an answer soon and that it is something that can be treated.

    Me: 30  DW (aka C): 29

    Together since 2/15/11 ~ Legally married in NY on 9/29/12

    ***CP mentioned***

    We've been working on baby #1 since July 2013 using Open ID donor sperm.  8 IUI attempts with 5 actual IUIs and one chemical pregnancy.  We have one fresh IVF cycle under our belts as well as a FET.  I have endometriosis and a uterine septum that was corrected via surgery in November 2013. 

    11/14/14 -  Second HSG shows that tubes are still clear and ute is looking good. 

    12/6/14 - Started BCPs in prep for IVF #2

    12/22/14 - Saline u/s and endometrial scratch (All was clear and OUCH!)

    1/2/15 - Began stimming for IVF #2

     ****All Welcome!****

    We are Mommas to four fur babies - 3 dogs and 1 cat.

    image   

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    I am so incredibly sorry to hear this. I will be keeping you all in my thoughts.

    Me - 30, My wife - 31 , Together for 10 yrs - Married August 2012

    5 medicated IUIs w/ RE (March - July 2013) = BFN

    Fresh IVF Cycle in September 2013 resulted in 18 mature eggs, 16 fertilized, 12 made it to day 5. Transfer of 2 Grade A blastocysts on 9/15/13, and 10 embryos in the freezer!      *****BFP on 9/25/13 - betas: @10dp5dt = 232; @12dp5dt = 465; @15dp5dt = 1,581   *********William George born June 4, 2014*********
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    That's heartbreaking to hear. I'm sorry.
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    I am so sorry that you and J are going through this.  I am sending all the positive energy I have that the doctors have misdiagnosed and that this pregnancy can continue.  I am glad you have each other in this hard time.  Your family will be in my T&P.

    Me: 30  DP: 30

    TTC#1

    IUI#1 9/26/13 BFN

    IUI#2 10/26/13 BFP beta #1 99 #2 456

    2/20/2014 Brynlee Madeline is taken too soon at 19weeks she was perfect

    IUI#3 6/10/14 BFP beta #1 276 beta #2 722 20w A/S shows we are having a girl

     

     

     

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    I can't even begin to imagine what you are going through, but wanted to say that my heart goes out to you and your family.  I really hope you end up seeing a better outcome and wish you all the best. 
    "S15 January Siggy Challange - Happy Dance"
    Jimmy Fallon Dance

    Married: 10/4/2013
    TTC Since September 2014
    BFP 11/30/2014 ~ EDD 8/13/2015 ~ CP 12/5/2014
    BFP #2 12/30/2014 ~ EDD 9/13/2015 Stick bean stick!
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    I am so sorry. I will sending positive thoughts your way and will be thinking of you and your family. 


    Baby Birthday Ticker Ticker
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    Thank you all for your kind words and support.

    The amnio went okay. Rather uncomfortable, but I've been through and will go through worse.....

    News from the Dr was no better. She advised that the baby is very, very sick. At this point there is nothing that can be done for the little one.

    She asked if we wanted to terminate the pregnancy as that is an option, and we said no. The baby has a perfect, beautiful heart right now and I will carry this baby till the day it stops beating.

    At this point the amnio is more to find out if the baby had underlining issues or if this is one of those one in a million things that can happen.

    We are both in shock right now. It's going to take a bit to set in, but this is out new reality. I don't like it, but not much we can do at this point.
    I'm 35, DW is 33
    Together since Dec 2007
    Married since 18 June 2011

    TTC #1
    1st IUI - trigger, 9 July 14 at midnight, IUI - 11 July 14 at noon - BFP!!
    10 Dec 14 - Lost our Baby Girl to Hydrops & Cycstic Hygroma due to Turner Syndrome
    TTC #2
    2nd IUI - hoping to try for our Rainbow in the Spring
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    I am so sorry to hear this.  You become a parent the second you conceive, you and J will make the right decision for your child.

    Me: 30  DP: 30

    TTC#1

    IUI#1 9/26/13 BFN

    IUI#2 10/26/13 BFP beta #1 99 #2 456

    2/20/2014 Brynlee Madeline is taken too soon at 19weeks she was perfect

    IUI#3 6/10/14 BFP beta #1 276 beta #2 722 20w A/S shows we are having a girl

     

     

     

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    I'm so very very sorry. You and your family are in my prayers.


    10 medicated IUI's (3 with injectables). 
    IUI #1 (medicated) Jan. 2013-BFP!!!!- Beta's didn't double, MTX shot for possible ectopic.
    8 IUI's between April 13-April 14 = BFN 
    IUI #10 and final before IVF, injectables May 2014- BFP!!!!  TWINS!!!!

    7 week ultrasound showed 2 wonderful heartbeats!
    8 weeks to the ER with vaginal bleeding while on vacations!  Diagnosed SubChorionic Hemorrhage.  Babies are both great.
    9 week ultrasound showed both babies are still great.
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    I'm so sorry to hear this. My thoughts are with you and J.

    Me: 30  DW (aka C): 29

    Together since 2/15/11 ~ Legally married in NY on 9/29/12

    ***CP mentioned***

    We've been working on baby #1 since July 2013 using Open ID donor sperm.  8 IUI attempts with 5 actual IUIs and one chemical pregnancy.  We have one fresh IVF cycle under our belts as well as a FET.  I have endometriosis and a uterine septum that was corrected via surgery in November 2013. 

    11/14/14 -  Second HSG shows that tubes are still clear and ute is looking good. 

    12/6/14 - Started BCPs in prep for IVF #2

    12/22/14 - Saline u/s and endometrial scratch (All was clear and OUCH!)

    1/2/15 - Began stimming for IVF #2

     ****All Welcome!****

    We are Mommas to four fur babies - 3 dogs and 1 cat.

    image   

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    So so sorry to hear this news. You and J and your LO will be in my thoughts and prayers. 
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    I'm so, so sorry. You will be in my thoughts.
    Baby Birthday Ticker Ticker
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    This is heartbreaking. You all are in my thoughts. Take care of each other.

    Queer coupled and having a BABY with the love of my life! Love my life and wouldn't have it any other way!
    First IUI 1/22/2013 BFN: 2/7/2013, Second IUI 2/21/2013 BFN: 3/9/2013, Third IUI 4/23/2013 BFN: 5/8/2013, Fourth IUI 5/24/2013 BFN: 6/7/2013, Fifth IUI 6/24/2013 BFN: 7/8/2013

    C began IUI's
    7/23/2013 C's first IUI BFN, 8/21/2013 C's second IUI BFN , Took a break in September and October, 11/05/2013 C's 3rd IUI (TWW...we meet again...) BFN, Took off the month to switch to an RE. 01/01/2014 C's 4th IUI...BFP!!!!!!!! Beta #1- 17, Beta #2- 34, Beta #3-140....  6W Ultra-Sound Reveals nothing in Gestation Sack... Natural M/C at 7W, 2/3/2014

    03/21/2014 IUI #10...BFP!!! Beta #1- 48, Beta #2- 416, Beta #3- 1018. GROW BABY GROW!!!

    1st Ultrasound 4/22/2014 Baby Squints is PERFECT! Measuring at 6w2d with a heartbeat of 129. EDD: 12/12/14.

    Ultrasound at 18 weeks on 7/14/2014. Baby is healthy and growing just as she should!

     

    Check out my blog at: http://journeytoparenthoodandmakingmilk.blogspot.com/

     

    image

     

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    Awful. I'm so, so sorry. I know there is a board on baby.center for women who choose not to terminate and carry until the baby passes naturally. It may be a good source of support. Thinking of you.
    Lil'mamaz was born on Aug 21, 2014! She's PERFECT!

    It's been a long road to here...
    Me (43) and J (45) - same sex couple. And we don't feel 40+!
    June'12 - First RE Visit
    Sept. '12 - Tubes removed
    Dec. '12 - Donor Egg/Donor Sperm IVF Cycle - 4 good embies!
    Dec. '12 - Fresh transfer, BFP! EDD 8/29/13
    Mar. '13 - Missed m/c at 16w1d, baby boy stopped growing at 15w4d
    Loss due to umbilical cord clot...baby was perfect. :(
    Jul '13 - FET#1 - c/p
    Sept. '13 - FET#2 - BFN
    Dec.' 2, 2013 - FET#3 with our last chance embie - BFP!!!
    Dec' 26, 2013 - hb!!
    EDD 8/20/14 with a baby girl!
    Little S was born on 8/21/14 - 8lb, 14 oz and 20 inches long.
    We live in Seattle and used SRM for our donor egg IVF cycle


    imageimageimageimage

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    So sad. Giving you all my thoughts and prayers.
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    Lil'mamaz was born on Aug 21, 2014! She's PERFECT!

    It's been a long road to here...
    Me (43) and J (45) - same sex couple. And we don't feel 40+!
    June'12 - First RE Visit
    Sept. '12 - Tubes removed
    Dec. '12 - Donor Egg/Donor Sperm IVF Cycle - 4 good embies!
    Dec. '12 - Fresh transfer, BFP! EDD 8/29/13
    Mar. '13 - Missed m/c at 16w1d, baby boy stopped growing at 15w4d
    Loss due to umbilical cord clot...baby was perfect. :(
    Jul '13 - FET#1 - c/p
    Sept. '13 - FET#2 - BFN
    Dec.' 2, 2013 - FET#3 with our last chance embie - BFP!!!
    Dec' 26, 2013 - hb!!
    EDD 8/20/14 with a baby girl!
    Little S was born on 8/21/14 - 8lb, 14 oz and 20 inches long.
    We live in Seattle and used SRM for our donor egg IVF cycle


    imageimageimageimage

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    I'm so very sorry to hear this.  You're definitely in my thoughts and prayers.
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    you have my prayers and have my heart felt sympathy. Lean on each other during this time. 
    Me~35 Wife~32
    Together 6 years
    Married 2014
    TTC~ Reciprocal IVF
    11/5-ER
    11/10-ET (1 blast) = BFP
    Beta @ 8dp= 185, Beta @ 10dp=752, Beta @ 16dp= 8,127
    7/22/15 - It's a boy! 


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    I'm very sorry. My thoughts are with you during this difficult time.

    A & K, married 7/1/13.

    After 10 months of ttc via medicated IUIs and two early losses, we finally got our boys- Perfect premie twins born 5/27/14.

     

     

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    Thank you for all the kind words and prayers.

    We found out last night that our Baby Girl has Turner Syndrome.

    It makes us feel a little better knowing what is wrong and why she has the fluid buildup. But there is only a 1% survival rate.

    One good thing thought is that our genetic counselor said that Turner Syndrome is one of the more manageable ones..

    We are hopefully she is stubborn like me and won't give up without a fight.
    But if we do happen to lose her, maybe knowing she had Turner will help with closuring.

    As positive as we are trying to be, and promised one another we would just keep going like we had before the news, it's still hard. I'm finding myself dipping into a bit of depression I think. Plus I'm scared that I won't know if she dies. Every cramp or weird thing I feel makes me freak out. I just know I'm going to be a mess until Wednesday when we see our local doctor and I can hear her heartbeat.
    I'm 35, DW is 33
    Together since Dec 2007
    Married since 18 June 2011

    TTC #1
    1st IUI - trigger, 9 July 14 at midnight, IUI - 11 July 14 at noon - BFP!!
    10 Dec 14 - Lost our Baby Girl to Hydrops & Cycstic Hygroma due to Turner Syndrome
    TTC #2
    2nd IUI - hoping to try for our Rainbow in the Spring
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    Hugs to you.  You are not alone.  It's been more than two years since I lost my baby who was diagnosed with Edward's Syndrome and I still feel alone sometimes.  I hate, hate, hate, for anyone else to experience this, but know you are not alone.  I have experienced the anger, the frustration, and unbelievable sadness that accompanies this type of diagnosis.  You're baby is loved and is making her mark in this world - no matter what.  I am so sad for you and am thinking about you.
    Baby Birthday Ticker Ticker
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    Thoughts and prayers for Peace, Comfort and Support. That little girl has fought hard thus far and has so many people thinking and wanting the best for her! Please keep us updated as time and emotions allow.

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    Thank you everyone!

    So far so good... We saw our local doctor today and we heard the babies heartbeat which was the most amazing sound.
    She just needs to keep up the fight. We have another level 2 ultrasound Wednesday next week and I really hope we see improvement and this little girl proves the specialists wrong and she is still with us when they said she wouldn't survive.
    I'm 35, DW is 33
    Together since Dec 2007
    Married since 18 June 2011

    TTC #1
    1st IUI - trigger, 9 July 14 at midnight, IUI - 11 July 14 at noon - BFP!!
    10 Dec 14 - Lost our Baby Girl to Hydrops & Cycstic Hygroma due to Turner Syndrome
    TTC #2
    2nd IUI - hoping to try for our Rainbow in the Spring
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    @Danni_Girl - Thank you for the update. I hope your little one keeps fighting. You and your family are in my thoughts. Please do keep us posted when you are able.

    Me - 30, My wife - 31 , Together for 10 yrs - Married August 2012

    5 medicated IUIs w/ RE (March - July 2013) = BFN

    Fresh IVF Cycle in September 2013 resulted in 18 mature eggs, 16 fertilized, 12 made it to day 5. Transfer of 2 Grade A blastocysts on 9/15/13, and 10 embryos in the freezer!      *****BFP on 9/25/13 - betas: @10dp5dt = 232; @12dp5dt = 465; @15dp5dt = 1,581   *********William George born June 4, 2014*********
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    Thank you for letting us continue to be a part of this journey with you.  I am sending you and your little girl every ounce of strength that I have.

    Married to my amazing wife 6/12/10 
    TTC since 6/11
    Unmedicated IUI #1 - 6/28/11 - BFN
    Unmedicated IUI #2 - 7/25/11 - BFN
    Robotic Myomectomy (Fibroid Surgery) - 11/15/11
    Unmedicated IUI #3 - 4/24/12 - BFN 
    Progesterone Supported Leuteal Phase IUI #4 - 6/21/12 - BFP!!
    Baby Boy G Born 3/24/13

    On to #2, are we crazy?
    IUI #1 - 11/28/14 - BFP!  Beta #1 (11DPO) 34, Beta #2 (13DPO) 101, Beta #3 (20DPO) 3043
    Ultrasound at 6w4d shows a single, fluttering heartbeat.  Say hello to Sticky Ricki!

     

    image

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    With everything you must be going through, I admire your courage and will to not give up.  My heart goes out and my thoughts are with you as well. 
    "S15 January Siggy Challange - Happy Dance"
    Jimmy Fallon Dance

    Married: 10/4/2013
    TTC Since September 2014
    BFP 11/30/2014 ~ EDD 8/13/2015 ~ CP 12/5/2014
    BFP #2 12/30/2014 ~ EDD 9/13/2015 Stick bean stick!
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    Praying for you
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    Danni_GirlDanni_Girl member
    edited November 2014
    Hello all,
    So a little update.

    Baby Girl is still with us, heart beating strong at 150. But the fluid has now migrated up around her lungs. So things got a little worse than better.

    But the baby is still with us and that's what matters right now. Our next follow up is 17 Dec. But we are going back to have a fetal echo done Friday next week. So at least we will get to see her again.

    We still don't know what's going to happen, but it's nice that the Dr we saw didn't offer termination or flat out say the baby was going to die. She said when we are there in Dec we will talk about delivery options and what will happen then.
    So that was very nice to hear, that's for sure.
    I'm 35, DW is 33
    Together since Dec 2007
    Married since 18 June 2011

    TTC #1
    1st IUI - trigger, 9 July 14 at midnight, IUI - 11 July 14 at noon - BFP!!
    10 Dec 14 - Lost our Baby Girl to Hydrops & Cycstic Hygroma due to Turner Syndrome
    TTC #2
    2nd IUI - hoping to try for our Rainbow in the Spring
  • Options
    I'm sorry that things aren't looking any better. I'm glad that your doctor is showing you compassion.

    Me: 30  DW (aka C): 29

    Together since 2/15/11 ~ Legally married in NY on 9/29/12

    ***CP mentioned***

    We've been working on baby #1 since July 2013 using Open ID donor sperm.  8 IUI attempts with 5 actual IUIs and one chemical pregnancy.  We have one fresh IVF cycle under our belts as well as a FET.  I have endometriosis and a uterine septum that was corrected via surgery in November 2013. 

    11/14/14 -  Second HSG shows that tubes are still clear and ute is looking good. 

    12/6/14 - Started BCPs in prep for IVF #2

    12/22/14 - Saline u/s and endometrial scratch (All was clear and OUCH!)

    1/2/15 - Began stimming for IVF #2

     ****All Welcome!****

    We are Mommas to four fur babies - 3 dogs and 1 cat.

    image   

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    Keeping you and your family in my thoughts & prayers. I'm sorry that things aren't improving yet. Wishing the best for you and your little girl.
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    Thank you for the update! That baby is lucky to have two strong moms fighting for her, that's probably why she is fighter. Stay strong and positive. Sometimes doctors aren't always right! Keeping you in my thoughts!
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    Continuing to keep you and your family in my thoughts. Thank you for your bravery and your openness in sharing this with all of us. Sending you tons of support!

    Me - 30, My wife - 31 , Together for 10 yrs - Married August 2012

    5 medicated IUIs w/ RE (March - July 2013) = BFN

    Fresh IVF Cycle in September 2013 resulted in 18 mature eggs, 16 fertilized, 12 made it to day 5. Transfer of 2 Grade A blastocysts on 9/15/13, and 10 embryos in the freezer!      *****BFP on 9/25/13 - betas: @10dp5dt = 232; @12dp5dt = 465; @15dp5dt = 1,581   *********William George born June 4, 2014*********
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