Advice needed-multiple miscarriages

careyalis · November 2014

Hey guys,

I used to be a pretty active poster on the bump, but have stepped back a lot over the past couple of years. My first daughter had an extremely rare form of dwarfism called thanatophoric dysplasia and died shortly after birth. We were blessed to get pregnant with our son immediately following her death and had an uneventful "normal" pregnancy (in quotations because it is impossible to be normal after watching your first child die.)

Since having my son, I have had 3 miscarriages and I am grasping for straws trying to figure out what is wrong with me. My first 2 miscarriages were early at 5 weeks, but the one I just had was a missed miscarriage at 14 weeks where we lost the baby a couple of weeks before.

I am feeling so incredibly defeated and I want to make sure that I am doing absolutely everything that I possibly can to advocate for my health. I go for my post D and C follow up on the 25th, and I am looking for some feedback on things that I should ask about. I seriously don't think I can handle another answer of "it's just one of those things that happens."

Are there any specific tests that I should request? Specialists that I should see? Is there something that I could have developed after having a healthy pregnancy with my son? I don't think that my daughter's death was at all related to the miscarriages because it was a rare genetic condition. Does anyone have any idea of what could possibly be wrong with me?

Thanks in advance for any insight and advice!

meredithcarole · November 2014

I am very sorry for your losses. I think you should make an appointment with an RE and do some testing (basic genetic and IF work up). Are the testing the fetus for the cause?

eswany1 · November 2014

Im so sorry you are going through this. Im going through the same thing right nw 3 miscarriages and 3 d&c's and now my doctor suggests seeing a specialist. Maybe you should suggest that anything is worth a try. Sorry im nt much help.

careyalis · November 2014

meredithcarole said:
I am very sorry for your losses. I think you should make an appointment with an RE and do some testing (basic genetic and IF work up). Are the testing the fetus for the cause?

They aren't testing the fetus and I am kicking myself for that. We did genetic testing with our daughter because there are certain types of skeletal dysplasias that mean all of my babies would have it and die, and then there is thanatophoric dysplasia (what she had) that is just a 1 in 60,000 thing that should never happen in our family again. I had to know before trying again, but it was a huge debacle that ended up costing us a lot of money out of pocket up front and really added to our grief because I had to call the insurance company and plead my case daily. I finally convinced them it was necessary because it would cost them more money if my babies kept dying than to just pay for the test, so we were reimbursed.

I was hemorrhaging by the time we got to the hospital and barely with it at all. So when the doctor brought up genetic testing and played down the necessity, my husband told her we would pass because it had been tough in the past. Meanwhile I was vomiting and covered in blood and just agreed.

I wish I can go back and change that so, so much.

Nikolie93 · November 2014

I am sorry for your losses. I don't have much to add, the other ladies covered it, but welcome and I wish you luck.

mylittlegemini · November 2014

Have you gotten your hormone levels checked while pregnant? specifically your progesterone levels? I read that some women need a supplement because their progesterone levels drop while pregnant. I just miscarried my first pregnancy last week at 10 weeks and have been trying to do as much research as possible in order to avoid a MC next time but I know that it's out of my control :-(

I'm so sorry for your losses. XOXO

estaticmom2b · November 2014

I am so sorry for all you've gone through and all you're going through currently. I cannot imagine how hard it would have been to lose your daughter. My heart breaks for you. I have had three miscarriages myself, one at 12 weeks, one at 10 and one at 5. I am seeing a specialist now and he tested LOTS of things -my thyroid, my progesterone levels, he tested for antibody issues, chromosonal issues, he tested to see if I had a blood clotting issue (if so you can take baby aspirin to thin your blood). He tested my husband's sperm. I am having a sonohystigram when I get my period again- it's when they shoot dye into your tubes and make sure there are no blockages. I'm also having a 3d ultrasound to look at the shape of my uterus. I am seeing an osteopath (my body alignment is off) and getting acupuncture to help the lining of my uterus and egg health. I am taking coenzyme q10 for egg health and 5mg of folic acid. Now that you have had three losses your doctor should refer you to a clinic. I really hope he/she can give you some answers. I am sending you a great big hug and lots of baby dust.

Nikolie93 · November 2014

@mylittlegemini‌ my OB had me use some progesterone gel as soon as I got a BFP. The pregnancy didn't get far enough for my first OB appointment though

My OB prescribed it to thicken my uterus lining.. Although no tests were ever done to see if this was an issue. In hoping my RE will have some better answers for me.

@estaticmom2b‌ I'm so sorry for all your losses and good luck to you.

FYI, you may want to refrain from using the term "baby dust" on these boards. It's hurtful for many ladies.

estaticmom2b · November 2014

I'm sorry. Didn't mean to hurt or offend. ..we are all here to support each other.

Nikolie93 · November 2014

I'm sure you didn't know, I just wanted to let you know for future comments

IfMamaAintHappy · November 2014

Besides insisting on a RPL (recurrent preg loss) blood panel and possibly seeing a specialist such as an RE, I would also recommend reading the book Coming to Term on recurrent miscarriages. The author's last name is Cohen. Tremendously helpful to me. I'm sorry you are going through this and I'm very sorry for your losses.

mylittlegemini · November 2014

@nikolie93 I'm sorry to hear the progesterone cream didn't work. I heard that doctors won't check your hormone levels until 3 consecutive MC. Did you ask to check them after your last MC? I know of someone who asked their OB after her first MC and they said no :-( but she ended up getting them checked by a naturalpath so I may get them checked in the future by a naturalpath.

ashleyann62215 · November 2014

careyalis said:
Hey guys,
I used to be a pretty active poster on the bump, but have stepped back a lot over the past couple of years. My first daughter had an extremely rare form of dwarfism called thanatophoric dysplasia and died shortly after birth. We were blessed to get pregnant with our son immediately following her death and had an uneventful "normal" pregnancy (in quotations because it is impossible to be normal after watching your first child die.)
Since having my son, I have had 3 miscarriages and I am grasping for straws trying to figure out what is wrong with me. My first 2 miscarriages were early at 5 weeks, but the one I just had was a missed miscarriage at 14 weeks where we lost the baby a couple of weeks before.
I am feeling so incredibly defeated and I want to make sure that I am doing absolutely everything that I possibly can to advocate for my health. I go for my post D and C follow up on the 25th, and I am looking for some feedback on things that I should ask about. I seriously don't think I can handle another answer of "it's just one of those things that happens."
Are there any specific tests that I should request? Specialists that I should see? Is there something that I could have developed after having a healthy pregnancy with my son? I don't think that my daughter's death was at all related to the miscarriages because it was a rare genetic condition. Does anyone have any idea of what could possibly be wrong with me?

Thanks in advance for any insight and advice!

I agree about making an appointment with a specialist. They will be able to give you better answers. I am sorry for your loss and sorry I don't have much insight.

Nikolie93 · November 2014

mylittlegemini said:

@nikolie93 I'm sorry to hear the progesterone cream didn't work. I heard that doctors won't check your hormone levels until 3 consecutive MC. Did you ask to check them after your last MC? I know of someone who asked their OB after her first MC and they said no :-( but she ended up getting them checked by a naturalpath so I may get them checked in the future by a naturalpath.

I am not quite sure there was even any reason to be on the gel, it's just something my regular OB told me to try

I just had my 3rd loss a month ago (my OB said to also wait to see an RE until after a 3rd loss since MC's are so common) so I have an appointment with an RE Dec 17th. I am hoping to get some answers soon!

mylittlegemini · November 2014

@Nikolie93 my fingers and toes are crossed for you. I hope you get all the answers you want and need!

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