Late Term and Child Loss

Introduction

I wanted to introduce myself. I introduced my story on the TTCAL board and they also suggested this board as well. I am deeply sorry for everyone's loss. It has been over 9 months since we lost our son and the roller coast that goes with it is hard to stomach.

My DH and I have decided to start trying for our second child. Our story is below. We are both nervous, excited, and scared for this new journey. I respect all the women that have gone through a loss as I understand how hard it is.

On January 13, 2012, we were blessed with our first child, a healthy baby boy. New Year's Day of 2013, we discovered a lump on his neck. As any concerned parent would do, we called our pediatrician who assured us that it was most likely a swollen lymph node from a coming infection. We took him in the next day. On January 2, 2013, our son, was diagnosed with Stage IV, high risk Neuroblastoma; two weeks before his first birthday. Neuroblastoma is a type of children’s cancer that occurs in the developing cells of the sympathetic nervous system that affects about 650 children a year in the U.S. During 2013, he endured eight rounds of chemotherapy, four surgeries, a stem cell transplant that required an eight week hospital stay, 12 rounds of radiation and countless scans and hospital stays. On June 19, 2013, we heard the words that we had been waiting for – he was cancer free! He started his final stage of treatment, immunotherapy, during October 2013 which was scheduled to finish in February 2014. Cancer is an ugly beast – especially Neuroblastoma. The relapse rate is especially high with his stage and risk of cancer. On January 2, 2014, a CT scan was ordered due to the right side of his face beginning to paralyze while already hospitalized for scheduled treatment of immunotherapy – his second to last scheduled hospital stay. Neuroblastoma was back and this time it had returned in his brain and was inoperable as it was located on his brain stem. Less than 24 hours later, he passed away peacefully surrounded by loving family and friends on January 3, 2014

Married my rock - April 29, 2011
BFP - June 4, 2011 EDD February 3, 2012
Super T born @ 37 weeks - January 13, 2012
Super T diagnosed with stage IV high risk Neuroblastoma nmyc-amp - January 2, 2013
Super T cancer free - June 19, 2013
Super T relapsed - January 2, 2014
Super T earned his angel wings - January 3, 2014
 
TTC for #2 beginning November 2014
BFP #2 - Chemical Pregnancy - Confirmed May 29, 2015
Diagnosed with PCOS; HSG - Clear; SA - Clear
Clomid #1 - BFN
Femera Cycle #2 - BFN
Femera Cycle #3 - BFP 11/10/15 - EDD 07/14/16
 
 
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Re: Introduction

  • I am so, so sorry for your loss.  We are here for whatever you need.  I have found this group to be very supportive and I hope you will too.  If you feel comfortable, I would love to know your son's name.
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                                        motheringcarolinegrace.wordpress.com

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  • ***sig warning***
    I am very sorry for the loss of your son. I also lost a son, in February this year. Watching him sick for four weeks (he was five weeks old when he passed away) was torture, I can't imagine going through everything y'all had to go through. GL on your ttcal journey.

    Me 32 (Stage IV Endometriosis, short luteal phase) DH 38

    Married 5/2010

    January 2014- DS born healthy at 35.4 weeks

    February 2014- DS passed away due to complications from adenovirus

    February 2015- Rainbow baby DD born at 36.3 weeks

    My chart: http://www.fertilityfriend.com/home/42fd32 

     


  • **ticker warning**

    I am so sorry for your loss.  I wish there was something I could say to take away even some of the pain you must be feeling.  I can't imagine watching your baby go through all that, only to lose him.  I will be keeping you, your little one, and your family in my prayers. 
  • I'm so sorry for the loss of your sweet baby boy.
  • *siggy warning*

    I'm sorry for the loss of your son.
    Ticker id: ra2f

    BFP #2, EDD 12/26/14, please be our rainbow.

  • I am so sorry for the loss of your son and the difficult and painful journey your family has been on. Good luck with trying for your second child, and know that we are here whenever you need us. There is a TTCAL check-in on this board about once a week - the day changes as MaybeJoleisa has time to get it up, but you would be very welcome to join us there as well.
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    Me: 32 DH: 33  High School Sweethearts  Married 5/28/2005
    DS1 born 6/5/10 at 40 weeks via emergency c-section due to fetal distress and IUGR caused by placental insufficiency
    DS2 born still 8/28/13 at 32 weeks via emergency c-section due to a complete placental abruption - cause unknown
    Baby #3 on the way, EDD 2/29/16.  Originally twins, but we said goodbye to Baby B at 8 weeks.
  • Thank you everyone. His name was Trenton.
    Married my rock - April 29, 2011
    BFP - June 4, 2011 EDD February 3, 2012
    Super T born @ 37 weeks - January 13, 2012
    Super T diagnosed with stage IV high risk Neuroblastoma nmyc-amp - January 2, 2013
    Super T cancer free - June 19, 2013
    Super T relapsed - January 2, 2014
    Super T earned his angel wings - January 3, 2014
     
    TTC for #2 beginning November 2014
    BFP #2 - Chemical Pregnancy - Confirmed May 29, 2015
    Diagnosed with PCOS; HSG - Clear; SA - Clear
    Clomid #1 - BFN
    Femera Cycle #2 - BFN
    Femera Cycle #3 - BFP 11/10/15 - EDD 07/14/16
     
     
    Lilypie Angel and Memorial tickers
  • I'm so very sorry for the loss of your precious son, Trenton.
    Mom to Eliott Alexander, born sleeping at 37 weeks on 8/13/10. Most of us only dream of angels - I held one in my arms.
    BFP #2 - EDD 2/26/12 M/C 6/28/11 @ 5w2d
    BFP #3 - EDD 4/7/12 M/C 8/2/11 @ 4w2d
    Too beautiful for this earth
    BFP #4 - EDD 12/09/12, Lucille arrived 11/26/12
  • I'm so sorry for the loss of your precious boy.
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  • ****siggy warning



    I'm so sorry for the loss of your sweet Trenton. We lost our 8 month old son in May after long hospital stays and surgeries and I know it's painful. To put him through all that and end up losing the fight just isn't fair.

    But I am excited for you that you'll hopefully be growing your family, I hope to see you in the PGAL check in soon.
  • I'm so sorry for the loss of your son Trenton. That sounds like a long and difficult journey - you are a wonderful mama. Thinking of you as you TTCAL.
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  • BrittianyMBrittianyM member
    edited October 2014

    **TICKER WARNING**

     

     

     

    I am so very sorry for the loss of your sweet boy. Sending thoughts and prayers your way.

    Brooke Elizabeth born Feb 17, 2013 grew wings May 9, 2013 @ 11 weeks & 4 days old from SIDS

     

     

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  • I am so incredibly sorry for your loss of Trenton.
    November 2010 - 10.5 week loss  o:) 
    October 2011 - DS (7)  <3 
    July 2014 - Stillborn DD (24 weeks)  o:) 
    August 2015 - DD (3)  <3 
    April 2018 - 5 week loss o:) 

  • I am so very sorry for the loss of your son Trenton. The roller coaster your family has been on - I can not even imagine. You and your husband will be in my thoughts and prayers. Thinking of you and sending you so many hugs.
  • I'm so sorry for your loss.
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  • I am so sorry for the loss of precious Trenton. We are beginning to try for our rainbow as well and I already feel the strange mixture of excitement and fear that comes along with it. This is a wonderful place to find support from those who have had similar experiences and I have learned a lot from these amazing women. We are here whenever you need us. Hugs

    Asher born February 5, 2011.

    Baby #2 born sleeping at 20 weeks. May 6, 2014.

  • My heart goes for you, reading your story! I am sorry you ever had to go through this, no one should ever be in that position. 
  • I'm so sorry for the lost of your son Trenton.
    TTC since August 2013 BFP #1 1/15/14...MMC 2/24/14...D&C 3/3/14 BFP #2 5/11/14 ... severe pre-e placental abruption our angel born sleeping at 22 weeks Lilypie Angel and Memorial tickers
  • I am so very sorry for the loss of your sweet son. What a little fighter he was. <3

    image
    TTC since 10/2010
    IUIs # 1-5 = BFFN
    IVF # 1(July 2012) = BFN
    IVF # 2 (November 2012) = BFP (MIssed MC D&C @ 8w3d on 1/10/13)
    IVF # 3 (June 2013) = BFN 
    IVF # 4 (September 2013) = BFP Fraternal twin boys! (Loss at 21w6d due to IC on 1/26/14...devastated.)
    3/21/14--TAC (transabdominal cerclage) w/Dr. Davis in NJ
    IVF # 5 (May 2014) = BFN
    FET (August 2014) = BFN

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  • So very sorry for your loss. I lost my little David back on Sep 6th, he was almost 7. He was hit by a car, one moment were dropping him off at his grandmothers next we get a phone call telling us to rush to the hospital. I hate that i couldnt say goodbye... That i couldnt hold his hand and tell him it would be ok. As hard as that will always be to deal with i cannot imagine having to see your child suffer and not being able to do anything about it. Thankx for sharing your story and let me know if you ever need someone to talk to. Godbless xoxo
  • @faraos0329 - I am so very sorry for the loss of your son David. Thoughts and prayers for you and your family. ((hugs))
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