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February 2014 Moms
JackieP1023
member
T&Ps please!! Update 1, 2, 3, 4, 5
JackieP1023
member
DD had a seizure tonight. We ended up putting her in an ambulance from the restaurant we were at to the local hospital.
They ran tests and called Children's Hospital in St Louis. They sent a transport, and we are currently on our way (2hours) by ambulance.
It could possibly just be a febrile seizure, as I had them as a child and they might be genetic. St Louis is the closest pediatric neurology unit, so that is where we are headed.
---
They are talking like we will be here at least one night, for observation. Her seizing lasted 25 minutes, and they used 2 different drugs before it stopped. The length of the seizure is what has everyone so concerned. She appears to be back to 'normal'--trying to stand up on the bed rails, crawl the recline of the bed, pull off wires, and just generally be a handful. Before we left the local hospital, they were worried because one side appeared to be much weaker than the other, but apparently that was just fatigue from the actual seizing, since she is moving all limbs like normal now.
DH and I have dozed a little, but not much. For some insane reason, this ER has normal adult size beds--pretty impossible to keep her calm and contained!
---
They are going to do a spinal tap to test for meningitis. The ER doc thinks the chances are very low, but neurology wants it done because the results could determine course of treatment.
Room is ready for us in neurology, so once the spinal tap is done, we will be moving up there.
---
Okay, so spinal tap showed nothing (as ER doc expected). They did a nose swab to check for viruses, and found the culprit-Adenovirus. At least we have a cause! What is weird is she's really not shown any of the symptoms, at least not regularly. The neurologists originally suggested we do an MRI (which would require sedation--they also did a short sedation for the spinal tap). Because she is basically back to normal, and the CT scans done at the local hospital, they decided against the MRI, and will just do an EEG tomorrow.
She has been pretty cranky today, and pretty sleepy. I'm not entirely surprised with all she has been through. Since we are 2 hours from home, DH and I are the only ones that are here (ILs didn't come), so we are taking turns letting her sleep on our chests. She has a crib, but it is metal, and as soon as her body hits the mattress, she wakes up and starts pulling up on the rails. Every. Time. She has one foot with an IV port in it, and it has a board taped to it to help keep it stablized, and it doesn't seem to bother her as far as standing/crawling, but it makes her really wobbly on her feet. Which leads to lots of bumps. Easier to lay back in the recliner and just let her sleep on us!
Thank you everyone for the T&Ps. It has been a long couple of days, and we aren't home yet. DH took off Monday and Tuesday, and I'm considering taking some time off too (I'm scheduled to work Wed-Fri). I don't ever want to go through this again. And I am scared to see the bills. But, I think we made the right decisions, regardless of the cost. Can't put a price on peace of mind regarding something like this!
---
Last night, she slept great (like normal). They did end up taking her IV out and put one in her hand instead. After fighting with her about an hour to not put it in her mouth, we got a sock to cover it, and she has done okay with it since. She had an EEG this morning, we are still waiting for results from that.
Sounds like they want us back in a few weeks to do an MRI, and we will follow up with a neurosurgeon after that.
Again, thank you for all the T&Ps. Containing a mobile baby to a crib, jumper, high chair, or arms is about impossible, and that has been our main goal the last few days.
---
I just realized I said neurosurgeon in my last post. Neurologist. Not neurosurgeon.
We are on our way home. The EEG showed nothing abnormal. We have to come back in about a month for an MRI, and follow up in January.
We have a prescription med for the next time she has a seizure longer than 5min.
We have instructions to keep her home for a week, to keep from getting more little ones sick. So we will monitor her and hope and pray this doesn't happen regularly.
They ran tests and called Children's Hospital in St Louis. They sent a transport, and we are currently on our way (2hours) by ambulance.
It could possibly just be a febrile seizure, as I had them as a child and they might be genetic. St Louis is the closest pediatric neurology unit, so that is where we are headed.
---
They are talking like we will be here at least one night, for observation. Her seizing lasted 25 minutes, and they used 2 different drugs before it stopped. The length of the seizure is what has everyone so concerned. She appears to be back to 'normal'--trying to stand up on the bed rails, crawl the recline of the bed, pull off wires, and just generally be a handful. Before we left the local hospital, they were worried because one side appeared to be much weaker than the other, but apparently that was just fatigue from the actual seizing, since she is moving all limbs like normal now.
DH and I have dozed a little, but not much. For some insane reason, this ER has normal adult size beds--pretty impossible to keep her calm and contained!
---
They are going to do a spinal tap to test for meningitis. The ER doc thinks the chances are very low, but neurology wants it done because the results could determine course of treatment.
Room is ready for us in neurology, so once the spinal tap is done, we will be moving up there.
---
Okay, so spinal tap showed nothing (as ER doc expected). They did a nose swab to check for viruses, and found the culprit-Adenovirus. At least we have a cause! What is weird is she's really not shown any of the symptoms, at least not regularly. The neurologists originally suggested we do an MRI (which would require sedation--they also did a short sedation for the spinal tap). Because she is basically back to normal, and the CT scans done at the local hospital, they decided against the MRI, and will just do an EEG tomorrow.
She has been pretty cranky today, and pretty sleepy. I'm not entirely surprised with all she has been through. Since we are 2 hours from home, DH and I are the only ones that are here (ILs didn't come), so we are taking turns letting her sleep on our chests. She has a crib, but it is metal, and as soon as her body hits the mattress, she wakes up and starts pulling up on the rails. Every. Time. She has one foot with an IV port in it, and it has a board taped to it to help keep it stablized, and it doesn't seem to bother her as far as standing/crawling, but it makes her really wobbly on her feet. Which leads to lots of bumps. Easier to lay back in the recliner and just let her sleep on us!
Thank you everyone for the T&Ps. It has been a long couple of days, and we aren't home yet. DH took off Monday and Tuesday, and I'm considering taking some time off too (I'm scheduled to work Wed-Fri). I don't ever want to go through this again. And I am scared to see the bills. But, I think we made the right decisions, regardless of the cost. Can't put a price on peace of mind regarding something like this!
---
Last night, she slept great (like normal). They did end up taking her IV out and put one in her hand instead. After fighting with her about an hour to not put it in her mouth, we got a sock to cover it, and she has done okay with it since. She had an EEG this morning, we are still waiting for results from that.
Sounds like they want us back in a few weeks to do an MRI, and we will follow up with a neurosurgeon after that.
Again, thank you for all the T&Ps. Containing a mobile baby to a crib, jumper, high chair, or arms is about impossible, and that has been our main goal the last few days.
---
I just realized I said neurosurgeon in my last post. Neurologist. Not neurosurgeon.
We are on our way home. The EEG showed nothing abnormal. We have to come back in about a month for an MRI, and follow up in January.
We have a prescription med for the next time she has a seizure longer than 5min.
We have instructions to keep her home for a week, to keep from getting more little ones sick. So we will monitor her and hope and pray this doesn't happen regularly.
dx PCOS 2007
BFP #1 (natural) 12/23/2010. Stillbirth due to IC 4/2/2011
TTC #2 starting 03/2012
RE starting 07/2012
05/2013 BFP on a Letrozole (Femara)/trigger!
Cerclage, Procardia, Makena, GD (with insulin), MBR, and we made it!
Our Angel was born sleeping at 20 weeks due to IC.
This discussion has been closed.
Re: T&Ps please!! Update 1, 2, 3, 4, 5
BFP #1 11/01/12 M/C 12/22/12 @11w4d
BFP #2 06/04/13 DS born 02/08/14
Mom to Lily and Colin!
We are doing OK. Sleeping an hour or two at a time, sort of in shifts. We are relieved that they found the cause, and are confident in the plan going forward. Hopefully the EEG tomorrow doesn't throw up any red flags, and we can go home!
dx PCOS 2007
BFP #1 (natural) 12/23/2010. Stillbirth due to IC 4/2/2011
TTC #2 starting 03/2012
RE starting 07/2012
05/2013 BFP on a Letrozole (Femara)/trigger!
Cerclage, Procardia, Makena, GD (with insulin), MBR, and we made it!
Our Angel was born sleeping at 20 weeks due to IC.
dx PCOS 2007
BFP #1 (natural) 12/23/2010. Stillbirth due to IC 4/2/2011
TTC #2 starting 03/2012
RE starting 07/2012
05/2013 BFP on a Letrozole (Femara)/trigger!
Cerclage, Procardia, Makena, GD (with insulin), MBR, and we made it!
Our Angel was born sleeping at 20 weeks due to IC.