Unicornuate uterus with non connecting rudimentary horn

irishprl03 · October 2014

I was diagnosed with this and it's my impression that since my uterus does not communicate that I cannot carry a pregnancy. Anyone have any knowledge of this? I am devestated by this news. I see my dr again soon but I just wanted to know if anyone had any thoughts or heard of this. Thanks

mandi195 · October 2014

What do you mean by "does not communicate"? (ETA: I looked this up, and it just means that the unicornuate uterus does not communicate with the rudementary horn, which is typical with this anomaly and not something that will decrease your odds)

If you are unicornuate, and have one stable horn with a tube and ovary attached, you do have the possibility of getting pregnant. I have an anomaly as well (didelphic) so I can relate to the fears. Based on the quick research I did on your anomaly, it says you can get pregnant and carry to term, but like with all anomalies, your risk of loss and ectopic is slightly higher. So, don't count yourself out; you still have a great chance of getting pregnant and carrying to term. (Based on the numbers I saw, your odds are about the same as mine. I have an 8 year old son, and am pregnant with a beautiful little one right now. That said, I've also had 2 losses.)

Fx for you that you get good news from the doc when you meet next.

luvboston · October 2014

My friend delivered a healthy baby at 37 weeks with this

irishprl03 · October 2014

I wonder is there a way to make my chances less riskier? Or will it be always trial and error. I've had 3 miscarriages in the first trimester so far.

mandi195 · October 2014

I believe a lot of it has to do with where implantation happens, your cervical length, etc. I don't know of anything you can do to help the odds. There are potential risks that come from baby having a smaller place to grow, whether or not the uterus can expand as necessary to accommodate baby, if the cervix is incompetent, and so on. Beyond that I can't really tell you anything, but I'm sure your doctor can provide more info. Best of luck!

af2004rn · October 2014

I highly recommend you join the following Yahoo group. I found it extremely helpful when I was first (incorrectly) diagnosed with a unicornuate uterus. These ladies were so kind and knowledgeable and have lots of data that will, likely, encourage you.

Good luck!

groups.yahoo.com/group/MullerianAnomalies

Salsera29 · October 2014

I have this as well, but it was not known until after I delivered. My son was born at 34 weeks and spent 2 weeks in the NICU but he is now a happy and healthy 4 month old!

LolaX2 · October 2014

I have didelphic uterus as well with 2 smaller horns. It took 2 years along with a RE to get pregnant with my first and then I was sent on t a HR doctor group. My son (now 2.5 years old) was born at 36 weeks as he ran out of room and I went into PTL. He is a perfectly happy/healthy little boy was just very small to start with. I then got pregnant again without the help a RE and now have a 6 month old baby girl also born at 36 weeks and she was small but healthy and doing well.

My doctors told me that it all depends on how much your uterus stretches and grows with baby. Since it is smaller you have a greater risk of breach and baby being born a bit early. My DD's head was a bit funny shaped bc she was squished and ran out of room, but it has grown into a fully normal shape now at 6 months.

You want to find a doctor that is actually familiar with working with uterine anomolies to help you.

KutiePebbles · October 2014

hello

i have a UU and just had my first at 29wks in May due to PTL.

a diagnosis of a UU can be confusing and emotional, but it does not mean you cannot get pregnant or carry. getting pregnant can pose difficulty but carrying tends to be more difficult- in my case carrying to full term was the issue. if you have concerns about getting pregnant, I would suggest seeing a reproductive endocrinologist aka fertility doctor. once pregnant, you want to get a good OB that is familiar with uterine anomalies and work in tandem with an MFM = maternal fetal medicine aka high risk pregnancy doctor. UU's are automatic high risk due to the complications that could occur.

in terms of a UU, the side with a uterus is "connected" to a fallopian tube and an ovary. you can get pregnant from the unconnected side (if you have that ovary) though it is rare. in terms of "non communicating"... the doctor is referring to your rudimentary horn i.e what should have formed into the other half of your uterus. non communicating is a good thing. it means it does not seem to be working or communicating with your reproductive system so in essence a fertilized egg is not likely to implant/grow in that area (still possible but not likely). you def do not want a functioning horn because a pregnancy will not be viable if it implants in the rudimentary horn.

pregnancy wise, I got pregnant naturally within 3 months of trying and had no issues up until when i went into spontaneous labor at 28+6- labor could not be stopped so i delivered at 29 exactly. my friend, who also has a UU, needed to go with IVF and had a c-section at 36+2 due to low fluid/breech position and IUGR.

since you are trying to get pregnant with one ovary, your chance can be cut in half depending on how often the connected side ovulates. some women opt for fertility drugs and an IUI to boost chances (not a big boost, maybe 2-3% higher per fertile month than natural) but ovulation drugs are tricky with a UU. some do not agree with giving them unless going the route of IVF because drugs can lead to multiples and a UU usually does not have the capacity to carry twins or more. other things to know about is you have a higher risk of an incompetent cervix, preterm labor, breech position which will lead to a c-section and possible intrauterine growth restriction. the uterus is an amazing thing that is meant to stretch for a baby so some women have no issues, some have one, or some have many. every pregnancy and person (UU or not) is different so don't let your uterus make you feel like you are not capable of getting pregnant or carrying.

there are two yahoo support groups, one mentioned in a previous post and also the UU sisterhood. both are very helpful. the UU sisterhood also has 2 facebook pages. just know although a UU is rare, you are not alone, you are not broken, this is not your fault and as long as everything else is in working order (male factor put into consideration), you can get pregnant.

message me if you have any questions. i am an open book. been through all the tests, saw an RE, OB, MFM, went through a preterm vaginal delivery and spent 11wks in the NICU with my preemie

csuperstar02 · October 2014

I definitely recommend the UU Sisterhood yahoo and Facebook group. There is not much out there about UUs but there are plenty of positive stories around. We just had a set of twin girls and another baby boy birth announcement this week.

I found out about my UU when I started seeing an RE after my 1st loss and a year of trying with my OB. We did some testing and monitoring cycles, but we weren't interested in going the IVF route which was what mine felt most comfortable with because of the associated risk of multiples with the medicines required in other routes.

I had 3 early losses from 2011-2013. I always went to my RE when I got a BFP for bloodwork and prescriptions. I'm currently 16w6d with spontaneous twins. Praying that these are our rainbow babies!

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