MCADD? Anyone else's baby?

Re: MCADD? Anyone else's baby?

• Flowr4246 member

  June 2010

  I've never heard of it.  But I wanted to say good luck!  And your LO is beautiful!

   
  Piper, 4/10/10
  Connor, 3/16/15
  Morgan, EDD 9/22/16
  
  

  
  

  
  

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• LuvMyBostons

  June 2010

  I haven't heard of this before, but wanted to say GL and I hope everything is okay with your LO.  You may be able to find someone who might know more on the special needs board?  

   And your LO is adorable! 

  

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• raphiesmine member

  October 2014

  My baby boy was positive for this as well. Its rare, and most people don't know about it. Dealing with it for me has been difficult, you never want someone to tell you there is something wrong with your baby. 

  Basically, your baby can't break down medium chain triglycerides (fats) to store them as energy. This means if they don't eat often or enough at a time, they could become lethargic and fall into a coma. It sounds scary, but as long as you stick to a feeding schedule you do not deviate from, its easy enough to deal with. 

  It'll be tough for the first few months, you have to make sure that your LO is always eating between 3-4 hours no matter what. It's stressful, and if you hit the four hour mark you'll be pulling your hair out with worry. However, it gets better. At four months old babies are able to go longer without eating. You'll then be able to breathe a little better. As they get older the deficiency won't be as hard to work around. You'll have to keep your child on a special diet that the dietitian will talk to you about once you've learned about mcadd from your geneticist. 

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