Blood pressure question.

I have x-linked rickets, so I am considered high risk, but honestly don't understand why because it doesn't effect my pregnancy whatsoever. I had my first two w a regular OB no complications at all, 7 years later I delivered my third with a high risk dr becaus apparently in that 7 years they decided my genetic disorder makes me high risk. Anyways, with the third I felt AWFUL for the last few months. Had carpel tunnel in both hands, eczema, severe hip pain, I coukdnt even lift my leg over the threshold of a door with out being almost reduced to tears. Had 1 high BP reading the whole time, deliver was painful but it's child birth so that's to be expected. 3 days later I have this constant pain in between my shoulders that I attribute to muscle pain from just giving birth, we go to our first pedi spot and I can barely walk I feel so bad....pedi checks my BP while I'm there and it's like 180/100. AFTER I was already home from the hospital it went up. So weird. Feet were the size of watermelons. So here we are w #4, 33weeks, feeling the same pain in between the shoulders but only sporadically. Very mild swelling in hands and feet and highest BP I've seen is 138/85. Has anyone else had this where you have pain like its BP but don't have a high reading, or high BP after birth when you were fine before?